Cholestrol medication symptoms and conditions

I am a 65-year-old female. I was given Lipitor 10mg in Feb 07, which I appeared to tolerate, with the effect of reducing my high familial cholesterol. Because of a genetic enzyme problem, I am careful about my diet; having been a vegetarian for decades. I don’t smoke, and rarely have wine. By May that year my GP increased the dose to 20mg., but days later I was sent to A + E with cardiac concerns. The hospital adamant it had nothing to do with Lipitor.

By mid 2008 I told my GP of dizzy spells, and loss of balance, also swallowing difficulties, but after liver function tests I was reassured it couldn’t possibly be Lipitor.

Early October 08, saw me in hospital with a ‘stroke’, although the CAT scan and MRI were puzzling. I was sent home with no help or guidance after the Consultant insisted Lipitor was not a problem, and I should not reduce it, as it was already a very low dose. Unable to walk to the end of my street, my calf muscles feeling as though I’d run a marathon, and experiencing cardiac stress. Severe neck and shoulder pains, and confusion with words. Frequent muscle spasms in my feet, legs and hands, etc. etc. No energy for anything, and so difficult coping - living alone. End of Dec. a friend from out of town visited, and was alarmed, as she’d researched a web site for her brother, who was using a walking frame. I was astounded at the reports from users of Lipitor, so many suffering in the same way. Although my GP had arranged more laboratory tests for me, I was not prepared to wait.

On 6th January 2009, (almost 2 years later) I reduced my dosage to 10mg., and within days was experiencing improvement in many areas. By 17th January, I reduced to 5mg., (maybe a little hasty) and by 24th stopped it. By 28th my GP could see for himself, the considerable improvement generally, with a lower blood pressure reading.

By then, I could complete half, of what used to be my regular walking regime. To date, I am able to cover more than that, and hope I will eventually be able to cover the full distance. I’m hoping there will be no lasting damage, but am so thankful that my friend found this website. Its scary to think I had no quality of life, and doubt I would have survived more Lipitor. So I’m taking my chances with high cholesterol, and a near normal life.

M.

New Zealand

I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.

I recently lost about 25 lbs and decided after about 8 years of 10 mg of lipitor, to go off of it, cold turkey. I consulted both my MD and my pharmacist about whether or not I should wean, and both declined.

I now feel that my sweats, hot flashes are out of control. I am so hot and tired. I feel as though I cannot do the daily functions that I am responsible for.

I truly had NO side effects that I know of ON the drug. I just figured I'd see how I do now that I lost some weight. I wonder if going OFF lipitor is dangerous?

If anyone knows, please reply!

Thank you!

I am a 51 y/o white female that has been on Lipitor for 2 years. I am 5' 1" and when I had to go on it my cholesterol was 267 I weighed 112 lbs. I was shocked.... my doctor told me weight had nothing to do with cholesterol. She kept a close watch on me and my cholesterol came down...... and then my ex-husband of 17 years and I re-connected and got back together and I moved so I had to get another primary care physician. I took all my meds to her, she also kept a close watch on everything. At this time my cholesterol is down to 109 and I asked if I could stop taking it, as I take quite a lot of meds, due to different things and if I could stop anything it would be great, but she said it I stopped it, my cholesterol would go right back up. So since I am not experiencing any side effects I'm okay with continuing it.

I surely hate to hear what you all are experiencing with your Lipitor..... could your doc try another cholesterol medication?

The only one of my meds that is giving me any problem is TOPAMAX........ that we are using as a Migraine preventative! HORRORS!!! Today is pretty good day. But my cognitive abilities are in the trash... I say the wrong word when I mean something else...... I search my mind looking for a memory...... I am also on disability since 2002 because of the Migraines....... I have has them since 1978, but they got progressively worse over the years until I was sick more days per week, sometimes more than 7-10 days at the time, having to be in the hospital being rehydrated and on IV pain meds.......... and as awful as the TOPAMAX is.....it has been reduced the migraines to approx 2 per month and they do not last nearly as long.

So sorry, I got waaay off topic, but I know that it is not the Lipitor that is giving me the side effects as it the last med I had to go on and I had no new side effects....... but that TOPAMAX is kicking my behind.

hi, dear 777 i like to know about the natural product that lower cholesterol .and also like to know since you stop the medication any changes accure or not?i took my father to many neurologist and they test many Parkinson medication and no response yesterday i took him to another neurologist and and he diagnose him to genetic disorder witch is we never had in family history and he got mad on me when i said about the cholesterol medication side effect.what was his answer that when he quit the medication he should get better and as i said coz months ago he improved 80%,he said it is impossible and if it is it is miracle so no doctors are believing that medication is the cause.most symptom is disappeared but his walking and stiff muscle is not improving yet except some times.

I wrote the message below on March 9th, 2008, but I think it might be useful if I repeat it.

Please educate yourself.

Are you really sure that it`s high cholesterol that is causing heart disease?

All statins have similar side effects!!
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It`s very disturbing to read all these stories. I really feel for you.

My experience comes from seeing what happened to people close to me.

They all took statins.

I started to look for information on statins, and other medications in 2004 and it continues to this day although two of my relatives are dead.

I have nothing to do with the health or pharmaceutical industry.

I saw the suffering and it made me very angry.

I am an ordinary lady in her sixties who live in Sweden.

The situation is almost the same here as in the U.S.

There is very little discussion about risks/benefits with this kind of medicatications - or others.

I think it`s a good idea to turn to the Internet and books to get other views about the cholesterol issue.

Is it really true that it`s the cholesterol that is causing heart disease?

Are you sure?

Please visit:

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Also search articles etc on "Stopped our statins" and on the names of the different authors below.

Also read:

The Cholesterol Myths (Uffe Ravnskov)

The Great Cholesterol Con (Antony Colpo)

Book with the same title (Malcolm Kendrick)

Overdosed America (John Abramson)

The Truth about the Drug Companies (Marcia Agnell)

Malignant Medical Myths (Joel M. Kauffman)

There are many more.

Please look on the Internet for more information about each book.

It´s good to have some other information than the one given by doctors because most of them have been "educated" by the pharmaceutical companies themselves - and why should they talk about risks, side effects etc. They are interested in profits.

Finally - here are some side effects that I have seen:

pains in legs, hands, elbows, shoulders, knees, hips, cracking noise in ribs, muscle weakness, loss of hair, head ache, burning, tingling sensations in hands and feet, numbness, difficulties to swallow, loss of taste, ringing noise in ears, cramps, insomnia, irritation, depression, difficulty with short-term memory and then advancing into more serious problems.

These side effects - for 3 different people - all over 65 - did not come at once.

All of them had taken statins for years (Zocor)

It doesn´t matter which product -all statins have similar side effects.

Search for "Stopped our statins" on Google. It´s a very informative site and under "print articles" there are som articles that you can take along to your doctor for discussion.

I particularly like the one from Weston Price Foundation
and explains the different statin studies and side effects. .

My relatives also had some other medications which makes it even easier for doctors (and patients) to say that it`s just old age.

I am happy for those who get problems right away because then there maybe a chance for the patient and the doctor to see that there is a connection.

You really have to look out for yourself and the people around you!

Good Luck.

hi.i am living in australia ,is there any one who suffer from lipitor and zetia side effect and found a doctor who helped them and believed them that cholestrol medication caused them this problem if yes i need the doctor address to go i am so desperate about the health of my father he is very weak and low in energy i need your help no doctor believe me that lipitor or ezetrol(zetia) caused him this the neuralogist checked him (four) and they said it is parkinsonism which is the cause is unkown but i know the cause is cholestrol medication (lipitor,and zetia) i live in melbourne.my email is aroozo_99@hotmail.com

I started 20 mg Lisinopril about April, 2006. After few weeks I feel dry coughing, and after three weeks uncommon coughing comming it was look like asthma attack. My family Dr. sent me for lung testing and she gave me spary. ( the result was normal). I took a few days and I lost my vice for long time.
Anyway, about two months ago, I feel strange pain in my hips, legs, and my ankeles. And I feel tired all the time. My Dr. sent me for blood work and especially for blood clot, and the same day she gave me Cortisone shot. ( the test result was normal). October 27, I asked the pharmacy for refill, when I read the possible side effect, and I checked the internet I find out about my problems. When I saw this site I had no problem with quitting the drug. It was Friday and my Dr. was not available, I went Urgent Care. My family Dr. Stopped my cholestrol medication too. I feel better and I feel sorry for everyone who is suffering yet.