Chronic headache symptoms and conditions

Nov 5 2008
I have been taking topamax since april of 2008, about 6 months now. Just recently I was increased from 50mg to 75mg for my migraines. I have short term memory loss, nausea, no appetite at all, shortness of breath, trouble sleeping, and all of a sudden terrible anxiety and panic attacks which started out of no where. I feel like my heart is beating out of my chest and I am going to die. It is horrible I cant stand it. I went to the ER and got the standard tests and they said my heart was fine and to follow up with my regular Doctor. No matter what I do I cant calm my self down it is just aweful. I am not sure I can live with these side effects, its too muc

my 11 y/o daughter has a chronic headache condition (NDPH), a non-stop headache since Oct.29,07. She had a supraorbital nerve block, occipital nerve block using Kenalog. Her first injection was only the occipital nerve block, then 2 weeks later, repeated the occipital nerve block and added the supraorbital (above eyebrow) nerve block. This was July 2nd. On July 10th, she started her first period...it lasted 19 days! Then, she had a week off, a week on, a week off, a week on, a week off........now, it's been 2 weeks since her last one. NOW.....I am seeing that the period was probably brought on by Kenalog and that the irregularity was too!
The other thing: She developed INDENTIONS across her forehead, they showed up on Aug.6th. One if very significant, the other 3 are smaller. There is some discoloration (greyish) and there is scarring at the injection site. We took her to the pain mgmt. doctor who did the procedure and she had researched it, after our call, and told us SALINE INJECTIONS would help to plump the indentions back up. She sent us to a Cosmetic Dermatologist b/c she'd not seen this or treated this before and he had. We saw him and he is waiting to talk to our pedi-neurologist to find out if she is a candidate for Saline Injections without effecting the nerves that are already messed up from the NDPH.
I am very upset about the side effects....we were NOT informed this could happen!!!!! The indentions are VERY TENDER! They are already at the site where her headache/nerve pain was severe..now you can't even touch across it! Hopefully her periods will regulate and stabilize! What a way to start your first one!!! UGGGHHH!!!! No one told us that could happen either! We had a doc fixing to put her on hormone therapy (BCP's) to regulate her! We are now waiting to see if it stabilizes.
My daughter has a great attitude about it, she has bangs and just said, "I'll just keep my bangs long enough to cover it up!!!"

I would NOT have taken the chance on this and do NOT recommend anyone with a child to take the chance with it! It wasn't worth what we ended up with!!!!

My daughter has Aloepecia Areata. Has anyone taken Kenalog to grow hair back. My doctors saying this may work and did mention about the dimpling effect. Not in the detail I read here, though. He made it sound like it would just be a dimple. I did not get the shot in his office, wanted to research some more. By the way, she is only a 11 yrs old. Not sure whether to try this stuff after reading all this.

Knee pain. I was on Prednisone for a headache, as I have New Daily Persistent Headache, a rare, chronic headache condition, to try and break it. I have never had knee pain constantly before. I was a 10 day course of it. 80 mg for 2 days, 60 for 2, 40 for 2, 20 for 2, then 10 for 10. It's been 3 weeks or so since i've been done, and I still have knee pain. I'm very scared that I have avascular necrosis, even though I know it's rare, but I've been off the drug know for awhile but the pain is still around. Does anyone know if it is possible to get AVN after only being on the drug for 10 days??

After the first time I took .25 mg of dostinex, I felt
very tired, fatigued
sleepy
light headed
dizzy
chronic headache
disconnection feeling, out of it, wishy washy