Chronic lyme disease symptoms and conditions

On doxycycline now for 3 weeks 100 mg twice per day. I can't stop yawning. I am so tired and it is difficult to concentrate.
Suppose to take the regimen for at least 6 weeks for chronic lyme disease. I skipped last night's dose. Although I am so tired I feel at night like I have a fever and do not sleep more than 6 hours.
-Lizydoo

Most of the "side effects" are die off responses (sometimes referred to as a herxheimer response similar to that which occurs when treating syphillis) from bartonella or borrelia. Levaquin is a potent intracellular antibiotic...where these and other organisms can hide. These can be subclinical infections where (at this time) you are not even aware you are infected. If your "side effects" start around the 3rd day into your prescription...rejoice...and suffer for a while, you are killing something really bad.

I am extremely hot and sweaty, memory loss, fatigue, aching hands, dizzy at times and most recently had a fainting spell (black out) while I was attending a movie -- it started with dizziness and then I became totally burning up hot and wet with sweat so much so that my hair was wet -- this lasted about 1/2 hour and ended with the dry heaves. Please let me know if anyone has experienced this. I had my thyroid blasted with radioactive iodine about 3 years ago (Graves Disease) and I have been hotter than blazes since that time. I am on 112mcg of levoxyl

I have Chronic Lyme Disease, as well as several very resistent co-infections and secondary infections. I've been following several treatments over the past few years, the last one included Levaquin.

Within two days of starting it, I couldn't get up by myself after kneeling down because of extremely severe joint pain. I thought I was having a bad reaction and cut my daily dose in half; should have been smarter and stopped it altogether. I also had insominia.

After a few more days, the hands and elbows were affected. After a while, I decided to research Levaquin online and realized that I wasn't having a Lyme outburst, but were being "poisoned" by Levaquin.

I cannot get up by myself, I canno't go up or down the stairs, I cannot peel potatoes or open jars, typing is painful, my whole body is in constant pain and I don't know how long it will last. I'm 35.

I should have taken my chances with Lyme. This is even worse.

A general note for those who are having strong side effects: I've been taking doxycycline at a pretty high dose for months now for chronic Lyme disease. I have experienced many of the symptoms that others have listed here, but I have to say that I also experienced those symptoms directly from the Lyme. The thing is, if you have Lyme and take doxycycline, you get these symptoms strongly at first because it kills a bunch of Lyme bacteria, and the toxins in this bacteria flood your system and cause increased symptoms at first. Then, the symptoms fade (which they've done in my case). So, if you take doxycline and react with an increase in skin rashes, or joint pains, or anxiety attacks, or weakness, or extreme fatigue, or brain fog / spaciness, you might want to look into the possibility that you have Lyme disease. (Not so much the stomach symptoms -- those are common with any antibiotic, because they kill your good gut bacteria.) Anyway, it's something to consider.

I pity yet envy all of you! On the one hand, I feel so bad for all of you that have such horrible and long lasting side-effects. On the other hand, I'm jealous of most of you because you have other treatment options! I have severe chronic Lyme disease... I'm debilitated-- sick for 2 years and completely out of work for 10 months and going. About a year ago, after trying countless different antibiotic combinations for months, I finally found one that began to make me better-- levaquin, flagyl, and zithromax. It worked wonders, but I had to go off it after just 4 weeks because my gut couldn't contain the yeast build up. The levaquin side effects I had were shooting pains in my penis and sore and seemingly weak intercostal joints (I was constantly sore where my ribs meet my sternum). I know the side effects were from the Levaquin because I had been on zithromax and flagyl-- serperately and together-- without levaquin at different times and never had the side effects. Anyway, luckily, the pain in my penis went away shortly after I discontinued levaquin and, while the rib soreness went away after a few weeks, I still feel like my chest is going to collapse when pressure is put on it. Anyway, it's now a year later and nothing else is getting rid of my Lyme disease, which is so bad that I've decided to start taking Levaquin again along with flagyl and ketek (a new drug similar to but more effective than zithromax). If this combo is still effective for me, I will probably need to be on it for 16-24 weeks to totally kill my infection. I just hope that whatever side effects I get won't be permanent! I was lucky enough to get through four weeks of Levaquin without any real lasting damage (unlike so many of you who got so sick on just a few pills). 4 weeks and 24 weeks, however, may prove to be a completely different story. Keep your fingers crossed for me!