June 15th
2009
11:43 PM
HEllo.. I am a 47 year woman, whom started losing alot of hair all of a sudden... I had been losing, a few to 20, throughout a days brushing.> But the last few weeks a good chunk on and off for months.. I started advair last year.. Just got my 3rd refill... I been on albuterol for about 4 years.. My airways close severely..Allergies to foods, chemical, nature flowers and plants.. I also have Apnea sleep disorder which closes airways.. I take, singulair, albuterol, advair, naproxen, and flonase.. daily... I try to take the advair only if really needed.. BUt usually needed every day.. BUT I got the thought the more recent meds have to be the culprit..Not unusual to lose a 100 hairs a day by studies ! But clumps from same spot, all of a sudden! >YEa something not right ! So I started searching..Found so far nsaids such as the naproxen , and this advair both can make you lose your hair and then some ! I also get the itching for your life itch ! HEad to toe ! Dry, Told the doctor I use ever cream, lotion, gel, To Moisturize and it not help..
I been bloating on and off for years, with bowel trouble(IBS).. And nsaids also give constipation problems it seems , as advair has been said by users. BUt the last few years even more so.. I always excerscized..BUt bloat would make me not even appear as I exercise regular.. I have nerve problems all the time.. NEver had blood pressure... ALways read low if anything..NOW I am rating higher blood pressure when I go the dr.. I noticed in the last year My blood vessels show through my skin aLot ! That seemed weird to me ! Perhaps the meds? I been gettin more backaches than usual.. I always have them along in my life..BUT MOre prevailed Now in Lower back . My Eyes stay dry No matter what I do, Even feels like something in my eye, like a small bug or something... BUt never nothing there.. I get the ringing in the ears quite often now.. I think I will quit advair.. As for albuterol I do not know !? I do not know.>BUt Advair is the only meds I started recent.. And the clumps of hair been recent.>So I assume yes the advair !
THe person saying bad mouthing the advair or any med... that it is as prescribed only etc.. YOUR right ! Some people cannot take wat other persons can.> We take meds from a dr.. Not realizing we can have allergy reactions to the med, other people will not have ! PErhaps that it I have another chemical I cannot take in the advair, And perhaps the albuterol !
And another thing.>>The OZone harming chemical had been taken out the ALBUTEROL... they switched it to something else but calls it Albuterol still.. THat is what my Dr told me ! So if harmful to the Ozone, why not harmeful to humans. IT is about Sales to the medical fields more than HElping humans ! Money talks !
GOOD Luck.. and remember GOD is the 1st Physician.>HE cures still !
-- By indixie | Reply | Private Message me
January 9th
2009
5:35 PM
I was given a shot in I think January of 2008, not knowing exactly what it was, because I had a fever and the doctor said it would jump start my recovery. At first there seemed to be no problem with the injection site and I felt great just days after.
A couple of months later, when I was working out and losing weight and keeping a very close eye on my body because of it. Suddenly, I noticed that I had a deep indentation and discoloration on the left side of my lower back - right where they gave me the shot. It seemed like it appeared over night. It got deeper, and darker as time passed.. I was scared to press my finger in it because when I did, it just kept going in..as if there was no fat OR muscle in that spot.. I was FREAKED out. I'm a model so this fact that there was a bottomless whole in my lower back was devastating. I also feared that there may be something life threatening going on. I mean, a chunk of you just doesn't disappear overnight..Unless someone stole your kidney, but, I didn't wake up in a bath tub full of ice.
I typed in "Injection that causes Indentation in the lower back" and I found this board. Everyone here suffered the same exact symptoms from this shot and worse. I was certain that it had to be Kenalog. It seemed to cause death of all tissue at the injection site, depression, lethargy, moodiness, insomnia, pain and all sorts of other symptoms after this shot. I started to suffer from all of them soon after the shot and I didn't really know why or where it came from. I was in so much pain and was so tired.. I stopped doing everything I loved and I could barely sleep because of the pain.
I don't know what to do about this. I'm extremely broke and I don't have health insurance(and they wouldn't fix anything considered to them as "cosmetic" anyways).. My parents are in no position to help me anymore and I could never afford an attorney to try to claim against this.
How can I go about fixing this with no money? Is there any way to fix this to begin with?
Any advice, insight or experiences would be GREATLY appreciated!
-- By angelkitten | Reply | (2) replies | Private Message me
April 2th
2008
9:07 AM
About two months ago, i noticed an indentation forming on my right glute. I am very active in running and figured that it was possible to have pulled or injured the muscle somehow. I began to massage the area thinking I could repair this "knotted muscle", but to no avail. Instead it became worse and more indented. About a week ago, I went to a regular family practice doctor to check it out after two other doctors we're stumped. She immediately recognized it and called it 'lipodysmorphia', a complication caused by the Kenalog shot. The steroid breaks down the muscle and the body then absorbs it. Everything suddenly clicked! About 5 months ago, I had a steroid injected in that very area to treat a bout of Sinusitis. When asked if the muscle would ever come back, she said that my best bet would be to see a cosmetic surgeon and request filler of some sort. What?! I work out almost everyday to get the perfect glutes and now I have to get filler!! I'm very self- concious now because of the look of it. It looks like a handful of muscle has been removed from my butt. I no longer can wear tights or fitted jeans because to me it looks so obvious. I will do my best to build it back up with weights, but i'm not too hopeful at this point. I just wish that I was aware that this could've possibly happened. I would have never sacrificed my womanly and curver posterior. Jamie, 28, Henderson, NV
-- By jamiew28 | Reply | (1) replies | Private Message me
April 1th
2008
10:22 PM
My thyroid troubles started in 1993. I am not sure how long before the discovery I had the problem. Mine started as a nodule on one side. I was immediately put on Synthroid and had to go see the Endo every 6 months for a biopsy. In 1995 I became pregnant. I had one more biopsy until after the birth of my daughter. The Endo told me he wanted to see me right away after she was born to do another biopsy. I had my suspisions, but didn't think anyhing until after she was born and went for my biopsy. Well, I had cancer. I went through the whole thyroidectomy, the 3 days isolation with radio-iodine, and every year to every few years after I had to go back and get the radio-iodine treatment, while not the high dose as the first time, it went with the complete body scan. In fact, I am due now, but don't have health insurance. My dose has been switched a lot, I have probably been on every dose from the lowest up to .200mcg, which has been the highest for myself.
Symptoms: pre-thyroid disease, I am 5'2. I was always 110-115 lbs, I was 22 yrs old and 120 lbs. when I married in 1993. I did notice gradual weight gain, probably because of my thyroid problems. I am sad to say that now I am around 180 lbs. I cannot seem to lose the weight unless I go on a total starvation diet. I managed to lose 10-15 lbs over the past summer, but unfortunately for me it has come back over the winter. I tried to stay as active as possible by going to stores and malls to walk around. I do for a fact notice that when my dosage for Synthroid goes higher, so does my weight gain. I was on .137mcg over the summer, and I think that was a good dose for me, that was through the regular dr. The Endo is the one who put me back up to .150mcg. My Endo told me the thyroid is a regenerative organ, so it CAN grow back. I guess they don't want that in case of cancer again, and I guess that is why he keeps me on higher doses.
I personally cannot stand it. I feel it is a horrible curse. I feel very robbed of my previous active life. I have been dealing with this now for 12 years not having a thyroid and being on this medication. I feel angry that I do not have the energy to do things with my 12 yr old and 3 yr old. I miss the way I was before having thyroid disease. I feel very sad when they come up to me asking to do certain things and they (nor anyone else I know for that fact) can understand that I just feel so whooped, and no energy. All I ever seem to want to do is take a nap. I have migraine headaches constantly, I am constantly tired. I cannot concentrate, I have some memory loss. My ex-husband, and my current husband too for that fact think I am just being lazy. Well, that is not so. There are moments when I do feel a burst of energy, but then, I have to use that burst to do the things I need to do around the house.
Pre thyroid disease I was always active, never tired, could do anything. After: TIRED, I was 24 in 1996 and felt like an old lady, dry skin, no matter how much lotion I put on. The tub is full of hair, while it doesn't come out in clumps and I still have thick hair, I have hair all over the place. Irritable, mood swings, happy to angry and the snap of a finger. I can have insomnia some nights, constipation, lots of the same stuff others have listed on this forum. Those side affects are the same no matter what dose I am on. And like I said the higher the dose for me, the more weight I pack on. It is instantanious. Over Christmas, and no, it wasn't from eating all the goodies, I gained a lot of the weight I had lost over summer back, and that was because a few weeks before, the Endo had put me on the .150 mcg.
-- By debredz2r | Reply | (3) replies | Private Message me
April 1th
2008
1:51 PM
"OH MY GOD"!! Is all I have been able to say since I learned about this on Friday!!! Reading all these posts is just like reading a diary about my 5 1/2 yr old daughter. She was diagnosed with asthma when she was just 2yrs old....continual trips to the ER because she was wheezing, breathing sounded like she had swallowed something and it was lodged in her wind pipe, lethargic, high temp, etc only to be told it was bronchitis, pneumonia, a viral infection etc., until she was referred to the pulmonologist and he told me it was asthma, never the other diagnosis she was given, so he put her on SINGULAIR. Shortly after she started SINGULAIR she became an entirely different little girl. Threw "OUTRAGOUS" tantrums/fits, was "wild", moody, poor attention, uncontrollable, angry, screamed and cried all the time, very defiant.......just this being that I didn't recognize as my sweet affectionate little baby. Even the "please and thank you's" and the hugs and kisses just because eventually slipped away. I sit here today recalling the day that I was at my desk at work and called this doctor's office, spoke to the nurse and said to her..."I think that SINGULAIR is causing her to act like a totally different person, something is wrong, this is what she is doing, and I told her the symptoms, I think it is the medication"!! She spoke with the doc and called me back only to say, "It cant possibly be the medication, it isn't a steroid type med that causes behavioral problems, it has to be something else"! So knowing how well controlled her asthma was on this medication, I "fell for it"....who wants to see their child in such distress with asthma (not knowing that I was in fact right about the med being the culprit)?! Months went by and her behavior got increasingly worse, she would literally whip things off a counter with one stroke of her hand, she has knocked over 20 pound 4 foot high stereo speakers and took a big chunk out of my wall, she has hit and bit, the list goes on and on-keep in mind she was just 2 at the time. She was very unsafe to be allowed to play outside with out being in a fenced in back yard because she would dart to the street and pay no mind to that scared mom yelling for her to STOP, it was like she was in another state of mind, a different person, you could look at her face and see in her eyes, my baby just wasn't there. When she was 3 she got upset at day care lodged a toy at the teacher and jumped over the loft for no reason. She has been knick named "klutz butt" because she has been so unstable on her feet, she trips over her own 2 feet, falls all the time and we just look at her like, how in the world did ya do that---is that related to SINGULAIR as well?!?!? She was diagnosed with sensory processing disorder, worked with an OT/PT, her behaviors got increasingly worse and I had no idea what was going on with her, I took her to see neuropsychologist and was told definite sensory issues, possible obstinate defiant disorder, taught how to do "the hold" when her behaviors got so out of control that either she was going to hurt herself or someone else, she has torn her room and the house apart in these fits of rage, at 4 took her to see a child counselor and told "Oh classic ADHD for sure"! All along I have told people I just don't feel in my heart that ADHD is what is going on with her, I think it is something else...her kindergarten teacher commented that her abilities in school are inconsistent, I note now that after her dose increased she forgot everything she knew academically and people thought I was crazy when I told them yes, she knows her ABC's, can identify numbers, etc! The behavioral things that this girl has done are just sooooo unexplainable and to now see all the posts that others who have loved ones on this drug have dealt with brings some relief to my mind to know that I am not crazy! but it brings deep sadness and anger to know that I suspected it to be the SINGULAIR early on and did not go with my gut and take my child off this drug!! She has been on this med since she was 2, she is now 5 1/2. In September 2007 her doctor suggested she be taken off SINGULAIR and put on Flovent because Flovent covers better......I was too scared to take her off (imagine that) so she did not come off SINGULAIR until January of this year- BEFORE I became aware of the risks. I have a strong glimpse of my baby again.....less and less of these horrendous fits she used to throw, less crying and screaming, her breath doesn't have that wrenched smell, she is doing much better in school, easier to get along with, is happier these days. I am now struggeling with the fact that after these last 3 1/2 years of literal turmoil and having been ridden with such anxiety of raising this child that acted like such a monster thinking that she was always going to be this uncontrollable child with all this anger and it would only get worse as she got older.............it's now a habit of being on the defense all the time, waiting for the next shoe to drop.....but that is over! so now we have to re-adjust our life....this is a horrible feeling to know that this medication has ruined the first forming years in my child's life and strained the bond between her and I.
Where do I go from here??? Do I call her doctor and start screaming at him? Do I call an attorney?? What do I do??? I know what I have done is thank GOD that I have the opportunity now to regain my sweet little baby and pray to Him that there are no lasting side affects from SINGULAIR!!!
If someone knows what it is that we are to do please feel free to comment me.
March 13th
2008
2:52 AM
My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona
Kenalog (2) Mirena (2) Singulair (1) Synthroid (1) Benzocaine (1) Advair Diskus (1)
August 5th
2009
10:47 PM
For reference, I am 23 years old. I got the Mirena IUD put in 1/30/08 and I got it taken out today. For the first several months i bled and cramped a lot. Once that passed, i was doing good and only spotted every once and a while. Well, for the last 3 months i got my period. It was heavy and I cramped a lot. During this time I also started feeling distant from my close friends and family. I felt a horribly weird sensation of a fluttering in my uterus, almost like when you are driving really fast and go over a hill, how your tummy gets that weird feeling. It felt much like that except it was in my uterus and it started happening all the time. I have also gained like 20 pounds. I haven't been able to sleep at night. I was having sharp pains in my ovary areas. I had it removed today after 15 minutes of my dr. stalling almost as if he absolutly did not want to remove it. I just kept repeating myself until he finally called in the nurse to observe. I am not good at paps or anything else that has to do with strangers invading my lady parts to begin with. So i was sorta freaking out in my own little world while he poked and prodded away. He was good about asking me if I was okay and if it hurt, but im not one to go and answer these types of questions when im in that much distress so it's okay if they talk but i don't like talking to them back. I'd rather they just get it done and over with. Well, I felt him tug and after a few good ones he got it out. That was a Horrible feeling! I almost cried! Then he just started talking to the nurse and since he is foreign i have no clue what he was saying to her, WITH the thingy still stuck in me!! I was so worried and this went on for about two minutes.. Then i asked if we were all done and once he took it out I noticed that the IUD was in a container but there was another small container with a bloody chunk in it!!! sorry if tmi...when i asked what it was he said that "a bit of tissue came out with the IUD and they were going to send it to the lab. I could tell he was trying to act like everything was fine but if everything was FINE...why would tissue come out too? I'm in a state of panic right now and don't know quite what to think at this point. I would NEVER suggest anyone getting Mirena. The bad side effects plus the removal are NOT worth it at all. This should be banned! If i would have known what i do now i would never have gotten it to begin with. I am now dreading the "crash" hopefully it isn't as bad to me as others. I am a single mother of a child with disabilities...if i get this "crash" thing, things are get difficult fast. Hopefully I start feeling normal again soon.
-- By neenee_07 | Reply | Private Message me