October 6th
2008
12:31 AM
I have been on Lamictal now for 10 months, and I mostly love it.
But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.
Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.
I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?
Has anyone noticed this dropping, or any other clumsiness like this?
-- By marimac | Reply | (5) replies | Private Message me
June 29th
2008
11:41 AM
Read my symptoms first; at the bottom it will tell you how long I had the IUD and the time line of the symptoms.
constant pelvic discomfort
(sometimes to the point where Advil usage doesn't even help)
("zaps" or "pings" of pain...light lightening bolts)
almost constant bleeding
(sometimes with clots - in differing sizes)
(coloring can be bright red to burgundy and brown)
(odor from the bleeding is very noticeable)
immediate weight gain
(this includes severe abdominal protrusion)
(I belly dance, & the costume I had just worn 2 weeks prior to insertion no longer fit)
severe swelling of the extremities
(hands usually do swell in hot weather, however, I've never had my feet and lower legs swell up like this - I had elephant feet/legs)
immediate acne issues
(my skin is always clear except for a few during my period)
moodiness
brain fog
(I'm a bookkeeper, & I noticed an immediate problem with my making stupid mistakes or taking longer than normal to resolve usual issues in this regard)
clumsiness
(could be attributed to the brain fog)
breast tenderness
(feels like someone's constantly squeezing/poking them)
movement of the IUD
(I could feel that it was out of position; it was more on my right side and caused ALOT of discomfort)
Here's the kicker, ladies. This was all within 1 WEEK of USE.
I demanded removal of this nasty thing & the GYN office refused.
After two more weeks of hell, I insisted, & they finally removed it.
This is what I experienced AFTER the removal:
Immediate relief in my pelvic area, BUT, still having pelvic pain.
INTENSE bleeding & clotting. To the point where I bled through my clothing at work (yes, I was using tampons & heavy pads).
The GYN's office didn't seem concerned; they said this was my body's "normal" reaction. (yeah, right). I finally stopped bleeding a good 5+ days later.
Even more breast tenderness.
Weight gain/bloat has not gone away. (I'm quite active)
Still experiencing brain fog.
Acne is starting to dissipate.
I have a ****** Group set up to shout to the world about this horrid device; look for: mirenajustsayno
Report your experience directly to Mirena; they have a contact # to report an "Adverse Reaction". From there, file a report with the varying health organizations.
On another note, I also had several ultrasounds done at the GYN's office prior to the insertion. The DR stated I had no ovarian cysts, no fibroids, BUT, my uterus was overly large. I sounded at a 10 as opposed to the usual 8. I was told it didn't matter, that I was a good candidate. He also stated that I had "a little endo".
(The reason for my use was to control the heavy bleeding during my period, along with the severe cramps.)
Well, I had some ultrasounds done at the hospital late last week, about 10 days after the removal of the Mirena. This is the result:
irregular complex cyst on my left ovary
unusually thickened uterine wall (no other explanation other than it was thicker than average)
It was noted that the series needs to be repeated.
(I'm assuming they want to look deeper)
Note that I have not resolved whether or not there was any perforation from the IUD moving out of place; the GYN never ran an ultrasound to verify it - they just did a regular exam & told me "it was still in my uterus". (that exam initiated severe bleeding for several days as well)
Good luck and let me know how you're doing!
And, yes, I do have several friends that LOVE their Mirena.
-- By nancyinnh | Reply | (3) replies | Private Message me
January 8th
2008
9:30 AM
I was on Lipitor for either two or three years, maybe more, can't remember, it was around 2003. About a year after starting the meds I started losing my balance, like my feet were heavy and wanting to not lift themselves up when stepping off a curb. I was in fear of falling. After being a professional dancer for many years and still having excellent muscle tone I was shocked by this muscle problem. Then I developed shooting pains in my thighs, and eventually I had an incident where my one leg just gave out and I couldn't walk. It was something in the hip/leg joint. Went to an orthopedic doctor, got x rays and m.r.i., he found nothing. I stopped taking Lipitor because I had spoken with other friends who were having leg pains. My regular doctor would not admit to anything wrong, just kept telling me I needed to stay on the drug, which infuriated me. He also kept blaming the muscle weakness and pain on my weight; which I have never had a problem with before.
The shooting pains in my thighs was all the time, including at night and woke me up at night. This was unreal. Even after walking miles I had these shooting pains, so it wasn't an exercise issue at all, but it certainly did deter me from exercising more often.
Now the pain and swelling is mainly in my knees. I can hardly walk, feel like I am crippled, and have lost my job over not being able to walk around and show apartments! I can't walk steps anymore at all, I am only 55 years old! No matter what I do, the pain and muscle weakness is progressing, I've seen a Chiropractor, a nutritionist, and now I'm going to see a Rheumatologist. I believe I have permanent muscle damage from this drug, no one can tell me otherwise.
Also, I have experienced the gradual increase of brain fog over the last two years. I am scared to death this damage is irreversible.
December 3th
2007
9:09 AM
I am a 34 year old female who was accidentally given Lipitor by my pharmacist instead of my regular Rx. I unknowingly took Lipitor for almost a month and had terrible side effects. I experienced dizziness, nausea, lower back pain, forgetfulness, clumsiness, hot flashes, and night sweats. Thought I was prematurely going through menopause. All I can say is Lipitor is a horrible drug and I have no idea what long term effects it will have on my health since I did not have high cholesterol. I stopped taking Lipitor 4 days ago when I realized I was taking the wrong drug. I'm still having some dizziness and bad lower back pain.
-- By mamaqn247 | Reply | Private Message me
July 23th
2007
4:37 PM
so glad to read these comments as most of my doctors have told me warfarin has no side effects. mine are increased sensitivity to cold, foggy brain, memory problems, persistent itchy rash on my leg, clumsiness, lightheadedness, frequent fatigue.
on 9mg, Protein S deficiency. my INR also bounces all over the place too.
-- By bensf | Reply | (1) replies | Private Message me
July 9th
2007
9:13 PM
diagnosed with superficial thrmbo plebitis after a long trip to India and those long plane rides. Developed pulminary embolisms ( many small ones) and since May 6, 2007 am now on Warfarin between 5 and 7.5 mg on alternating days. am experiencing clumsiness in my hands, dropping things,knocking things over. It's like the information about where things are in space is not getting to my brain in time for my hands to react. No plroblems with with feet or stumbling, just in my hands. Small motor control fine. the people at the Warfarin clinic sadi that they had never heard fo that side effect. Am an active 74 yr old woman.
-- By beecol | Reply | Private Message me
October 3th
2006
10:05 AM
I am so glad that I found this site, my son is 5 1/2 and has been taking Singulair since he was two. It works, but the side effects are not worth it. He is our first child so we attributed his behavior to the terrible two's, terrible three's when he started pre-k we thought it was immaturity, now he is in kindergarten and the teacher reports restlessness, inability to concentrate, clumsiness, all types of issues that could be related to ADHD. We were about to start the process to see if he had ADHD when I found this website. He has been off of the med for two weeks today. He went to the pediatrician, eye doc and allergist. All say he is in good health and that he can sit still for their exams, doubting ADHD. The pediatrician wants us to wait another two weeks and then look at his behavior in school and see if it has changed. It's hard to get an ideas as to how long before the effects of the pill will wear off. I have read entries that say one day, to entries that say up to 6 months. I have seen a change at home, he states he is less "squirmy." The allergist says that this effect on children is rare, but he did admit that it happens. He has seen 3 cases in 6 years.
-- By mellowmelissa | Reply | Private Message me
July 30th
2006
9:46 AM
My doctor just put me on singulair a few weeks ago. I seem to have noticed
that I just feel out of sorts -- sort of mild flu symptoms. I feel like my mind is cloudy
some forgetfulness, increased clumsiness and some dizziness.
Weakness, some fatigue and irritability.
I stopped taking in a day or so and then resumed. They flu-like symptoms have resumed. I will
discontinue it and return to Claritin and decongestants.
July 15th
2006
2:28 PM
I have been on Neurontin for over 10 years. I am taking Neurontin for PHN. When I was first given Neurontin, I could not take the med. as prescribed. I too would fall asleep. It took a whole year before my body adjusted to the med. I now take 2700 mg. daily. Along with Tramadol. I have the rare side effects but can not quit taking the med. for fear of having a more severe pain if I don't take the meds. I have recently noticed the weight gain. I continually think I have other things wrong with me, but when reading the side effects, I fit almost all the symtoms. Low back pain, bloated full feeling, body aches, buring eyes, change in vision, clumsiness, constipation, decrease in sexual desire, eye discharge, increased sensitivity to pain and touch, indigestion, nervousness, redness, trouble thinking, and loss of strength.
-- By cbc25 | Reply | Private Message me
June 26th
2006
8:59 AM
Started taking Lipitor in Januay 06 after Dr. said my cholesterol was high. No low cholesterol diet, just put me on Lipitor. Blood test last week showed it really worked -- down over 100 points. Now I'm beginning to believe I am having severe side effects from the drug - especially after reading some of the posts here. Have been having the following for last 2 months -- vertigo, dizziness, heavy headedness, neck pain (feels like my neck cannot support my head or that I have a weight on my head pushing me down), sinus pressure, ringing in ears, clumsiness, to name a few. Went to Dr. two weeks ago, he suggested an "inner ear virus". Just today he re-prescribed more Lipitor even though he said my cholesterol was "excellent".
-- By grutledge | Reply | Private Message me
June 1th
2006
11:59 PM
i have been taking singular for several years now. for about that time i have had really strange symptoms and they are just getting worse. i found this website by accident. what ive read here are the exact same problems i am having. i never made any connection to the singulair. anyway, heres whats been going on with me. insomnia, bad indigestion and reflux, dry mouth, itchy skin, extreme forgetfulness/confusion/clumsiness, dizziness, inscreased heart rate, palpitations, weakness, extreme fatigue and all kinds of weird things. i have had every test under the sun to try and figure out why i am like this but they all come back normal. who knows, it might be the singulair, it might not. only way i will find out is if i stop it. after reading everyones posts i am going to stop it anyway. inhalers seem like a much safer and effective option.
-- By ktaylor | Reply | Private Message me
December 26th
2005
10:04 PM
I have been taking Coumadin / Warfarin since June 14, 2005. Two major complaints are clumsiness & I am very weak. On a lesser scale, I lose my train of thought and have to fight for the right words to use when speaking. Nothing comes normally or easily anymore. I can't keep my PT/INR in check. I was given a fairly wide margin before increasing or reducing the amount I take daily. but that doesn't seem to make any difference. My surgeon said once it was regulated I could have my monthly labs reduced to once every 2-3 months. I don't see that ever happening. Is there something else I can take that would be easier to regulate and not have these side effects?
-- By ammielamb | Reply | Private Message me
December 4th
2005
5:41 PM
memory, coordiantion, clumsiness of hand, difficulty in conversation, palpitation, nervousness. before, I always thought this is due to not enough sleep, I just realize it's ambien
I wish I never touched this drug, I feel I am destroyed, I decide to wean off the medication.
May 28th
2005
5:13 AM
I started Lamicatal May 19th, 2005. I was warned by my doctor of dangerous rash and itching. If so, stop taking medication, call him if not too bad that I need to call 911 to go to the hospital. On my print out from the CVS pharmacy is clearly stated: Serious (sometimes fatal) skin rashes have occured while using this medicine. Immediately notify your doctor if you develop any type of rash. If this medicine is the cause of the rash, the medicine must be stopped. Even after stopping this medicine. It is still possible for the rash to cause permanent or life-threatening scarring along with other problems.
Possible Side Effects:
drowsiness, trouble sleeping, dizziness, nausea, vomiting, loss of appetite, muscle aches, double vision, blurred vision, fatigue, weakness, headache, shakiness, or clumsiness.
Symptoms of an Allergic Reaction include:
rash, itching, hives, fever, swollen glands, swelling of the lips or tongue, painful sores in the mouth or around the eyes, severe dizziness, or trouble breathing.
Symptoms of Overdose:
may include unusual dizziness, serve headache, unusual sleepiness, involuntary eye movements, and loss of consciousness.
I starting itching really bad the second day on the medication. To the point I had huge bruises allover me. I got a spurt of energy that I have not had in several years the second night but not since then. I can't go to sleep at night. Even taking 6 Tylenol PM and a Klonapin I don't get sleepy until around 9 to 100am in the morning and then I sleep all day long. I have started to have frequent headaches, suspious bumps around my mouth area. My muscles ache, too. It is Memorial day weekend so I can't call my doctor but I am going to on Tuesday. I have (MDD) Major Depression Disorder, Manic Depression, (TRD) Treatment Resistent Disorder. Nothing I have taken thus far has helped me with my depression.
Does anyone have first hand knowledge on ECT treatment? I am seriouly considering this procedure. I am desperate but I have no insurance or money because I haven't be able to work for 9 years now. This is the only thing that has kept me from getting the ECT treatments, is money! I have contacted every Talk show, hospital, clinical trials and no luck in finding free help with ECT.
Any ideas, guidance or suggestions would be most appreciated, I am dire to get help soon or I won't make it.
Sincerely,
Lost Hope
December 3th
2004
11:06 AM
i have experianced tingling in my back, hands, neck, and legs, pain in in back and legs, a feeling of clumsiness, a aching stomach, with dhioreah. Feeling sick, slight pin in chest.
I also drank alchol with these tablets, will it have made my side effects worse
Lamictal (3) Warfarin Sodium (3) Singulair (3) Lipitor (3) Metronidazole (1) Mirena (1) Neurontin (1) Gardasil (1) Ambien (1)
October 8th
2008
7:07 PM
Oh my goodness.....my daughter, age 17, had her first injection in June 2008, started losing her hair w/in a month. We thought it was form straightening, some high lightening etc. She had blood work done which showed she was anemic...strange, as 2yrs prior her blood work was stellar, and she had not changed her diet, or physical activity. She increased her iron and protein intake (along w/ supplements).....three months later, and after her second injection, iron was still anemic....worse actually, and her hair loss significant.I found this website last night....and I am floored......I called MERCK today and spoke to a representative wh o was not aware of the hair loss issue, but said that in their case studies, Autoimmune Hemolytic Anemia was a side effect.....which leads to hair loss itself.....so I am researching now what to do next.....anyone else have this issue??????
-- By wmk | Reply | (7) replies | Private Message me