May 19th
2009
1:51 PM
I have taken this medication for years (in long stretches). I was not aware of some of the serious side effects not just with this drug but with corticosteroids in general. There is a group of side effects that can cause mental and cognitive issues. I experienced fatigue, confusion, confusion, inability to focus, and serious memory issues. It was bad enough I would completely forget what I was doing or be unable to understand anything if there were other noises. After doing some research I found that these inhaled steroids can have just as many and as severe side effects as oral steroids. I dosed down off of Flovent over a months time and gradually all of the horrible cognitive issues went away. This may not be a very common side effect but they have to tell people it can happen. How many other people have gone years living in a fog not knowing it was a simple asthma inhaler causing their problems.
-- By lucillefarh | Reply | Private Message me
April 10th
2009
1:21 AM
Thanks, everyone! My (brand new) doctor had convinced me that I was simply experiencing anxiety to explain my side effects. After being off Lamictal and all medications for several months, and then restarting on Lamictal only, I noticed all the following side effects, some of which I've had before, and some completely new. Also, the ones I'd had before came back at a level of severity which I had never experienced.
One familiar side effect was hand tremors and general shakiness which sometimes also affected my speech. Even strangers would notice and ask me if I was ok. Luckily, this was during this past winter, so I would basically lie and just say I was cold and a bit shivery. Another familiar side effect that a lot of others are mentioning are cognitive issues and short term memory loss. Sometimes I felt like my tongue was lazy or I felt tongue-tied, and I couldn't get it to work right to say the words I was thinking. Sometimes, I just plain lost my train of thought or couldn't think of the words to express what I was thinking. I'd all my life been prone to mishaps of speech like occasional spoonerisms and such, but on Lamictal it was happening probably daily, and I'd even started stuttering. Teaching and explaining often difficult concepts and public speaking is part of my job, so this was causing me a lot of anxiety. I, too, completely blanked on spelling out words when friends and colleagues relied on my spelling abilities more than their computer's spellcheck. I also thought I was having sudden leaps in experiencing getting older (early 30's) because of my memory, I typically have an almost photographic memory and can picture where I saw my keys last or what have you, but all of the sudden I couldn't even piece the photo together anymore or it was foggy in my memory.
The newest side effect also experienced by others was clumsiness not only of my own body but of my surroundings. I suddenly noticed that I was doing things way more often like tripping, falling, stubbing a toe, nicking a finger, dropping things, etc. Where I was an excellent parallel parker before, I'd get out of my car and realize I'd parked 2 feet from the curb and crooked.
I decided to look up Lamictal's side effects after discussing this with my excellent talk therapist because I was extremely frustrated with my new doctor telling me I was just anxious and there was really nothing he could do for my (imagined) "side effects." And here everyone is experiencing the same thing. I don't think I should be made to feel like I don't know any better and that I should suffer the REAL side effects of this drug. I didn't study medicine, but I still have a degree in biology so I'm not so stupid that I'll believe anything any doctor tells me.
I think I would almost rather suffer a mild mood swing than suffer these side effects. I'm going to try to look for something else.
-- By tonguetied | Reply | (1) replies | Private Message me
March 15th
2009
9:13 PM
I have been taking 200 mg. of Lamictal (now Lamotrigine) for 5 years. I have had cognitive issues for probably about three years at least. Memory loss, sudden loss of flow in conversation, completely forgetting words and the spelling issue which was previously impeccable. It's embarrassing and frightening. I can't get through ANY given day without losing my belongings over and over again. I feel disabled (seriously) and I jokingly tell people I need an "aide". The scariest thing was last week I was going to return an item to the store and COMPLETELY forgot my PIN # for my debit card. I have been using the card nearly daily for a year and a half!!! It panicked me but I thought of course I would remember it later. NOT!!! Never again, it's gone!!! That's when I decided to search the internet for "severe memory loss" and came upon this blog. I didn't even think of the Lamictal. And I pride myself on my thorough research!!! Certainly the doctor never mentioned this side effect and I just gave it up to being 49!!! A little early for Alzheimer's!!!
The funny thing is I have also had skin problems (acne) for the first time in my life the past couple of years with it really getting bad last summer. I weaned myself off the Lamictal b/c I had read it could cause acne (another thing the doctor never told me). Well, I was completely weaned and omg, the mood issues were severe!!! So reluctantly I titrated back up to the 200 mg dose and immediately my mood was stabilized.
I don't know what the h--- to do, but something needs to change. The memory thing is terrifying!!! No wonder I am having so many problems with my job!!!
Maybe a new med, maybe not . . . My main issue was severe depression (both situational and chronic) which Lamictal seemed to stabilize. Do the benefits outweigh the side effects??? I think NOT . . .
FRUSTRATED IN MICHIGAN :(
-- By brendainmichigan | Reply | Private Message me
May 9th
2008
2:39 PM
I am 33 years old and after a blood test about 6 months ago showed my cholesterol levels high my doctor prescribed me 40MG Zocor (actually generic Simvastatin). Since then I've started to forget things and just cognitively I'm slower and less capable. I also had more aches and pains and a weird creak in my knee showed up, but I really didn't key in on that stuff. I went back to my doctor and told him about the cognitive issues and he said "that shouldn't be a side effect of this drug".Well I am very glad I found this website because at least now I know I am not crazy. I stopped taking that garbage about 4 weeks ago and ever since that fog has been lifting.
I have also made a new commitment to myself to include more "heart healthy" foods into my diet and to completely eliminate all red meats as well. I realize there may be some validity to the studies done remarking that high cholesterol is an indication of something bad, but I am not convinced the medical community actually has a comprehensive understanding of cholesterol in the body. I will still go into the doctor to get my levels checked, but I will probably not go back to my old doctor. I'll probably find a doctor who is a little more open to other options. I hate to say it, but I have lost my confidence in my doctor. If I tried to pull something like that in my job as a computer network engineer my customers would simply say "it wasn't like this before you started". Jedi mind trick doesn't work buddy. My body wasn't like this before you gave me that stuff.
September 23th
2009
8:00 PM
I am a 51 year old woman and have been taking Lisinopril for 8 months. I have a total lack of sex drive now and have felt sad and depressed often. I also have trouble going to sleep and staying asleep. I had severe dermatitis (rash on trunk and back) about four weeks ago that required medicine to clear up. I thought it might be my bra, but now, after reading a few posts, I'm thinking it's the Lisinopril, too. Shortly after the rash my thick hair started thinning quickly. I, too, am afraid to step into the shower, as so much hair comes out it clogs the drain. It feels and looks very thin now. I have not added any new routines or products to my life to be causing these symptoms, except the Lisinopril. I went through menopause at age 43, I plan to visit with my Dr. next week about switching meds.
-- By yak | Reply | (1) replies | Private Message me