July 3th
2009
1:50 PM
I was placed on Topamax, off label, for suspected bipolar illness (now disproven). My cognition, word finding abilities, memory has been so adversely affected that I am now on disability. I had 5 kidney stones due to the development of Renal Tubular Acidosis, nearing renal failure (a side effect doctors don't warn patients about). This in turn led to osteomalacia, softening of the bones, only discovered after I broke all three major bones in my leg and snapped off my foot stepping off the lowest seat of a bleecher. I've suffered tingling in arms, hands, legs & feet (nerve damage), lesions in the brain, muscle spasms, heat & cold intolerance, insomnia etc... Although I lost weight, I gained it back (then some) as soon as I reduced the dosage of 800 mgs. Upon stopping the drug to save my kidneys, thus my life, my kidney function returned to almost normal within a few months, although there is residual damage. All other side affects remain two years later. Losing weight is not worth dying! Beware of this drug being used off label! I would never trust this drug!
-- By suzieq1958 | Reply | (2) replies | Private Message me
April 30th
2009
9:17 AM
I am a 44 yr old female. I have been on Zocor for 2 yrs. I have never had high cholesterol. I have a family history of heart disease and after my 44 yr old brother had a heart attack and the transplant, my doctor put me on Zocor as a precaution. I have had problems over the 2 yrs and have been to the doctor many times only to be dismissed as Oh, I need to lose weight, I need to get out of the house more, I need to exercise, It must be my depression....and on and on. I have never had a kidney or liver test in 2 years. I never knew I needed on and my doctor never tested me. I have over 30 symptoms/side effects of Zocor. I only looked into the side effects after my mother-in-law had muscle break down, an intestinal blockage and a ruptured bowel and almost died a few weeks ago. I couldn't believe what I found on this site. I immediately stopped the Zocor. I started to feel better right away but it was short lived. i felt great for 1 week and then it all crept back in on me for a week and then this last week I am back in bed with dibilitating fatigue and muscle weakness. I will now list my symptoms/side effects.
Shortness of breath; heart palpitations; droopy eye lid (left eye); eye lid twitch (right eye); optical migraines; numbness & tingling of my arms (from the elbows down) and my hands; My hands "fall asleep"; Itching all over; severe muscle weakness ( I have dropped things); muscle pain; joint pain (even the little ones in my toes); leg cramps; critically anemic (on 3 iron pills per day); ruptured ankle tendon (left ankle, currently being treated with a brace trying to avoid surgery); hot flashes/flushing; cold hands and feet; dizziness;, loss of balance; headaches; blurred vision; mental fog; confusion; loss of memory; loss of concentration; extreme and debilitating fatigue; insomnia; trouble staying asleep (wake every hour); huge weight gain; swelling of calves, ankles and feet; dark colored urine; gas; upset stomach; diarrhea; stomach pain; depression; anxiety; hair loss; bruises; mouth ulcers; back pain; tingling on top of head; heaviness in my thighs; EXHAUSTION! I feel like I am 100 yrs old. I have had nights that I thought I was dying and had panic attacks that I would not survive the night. I have 3 young children to take care of. I can not even put conditioner on my hair or shave my legs in the shower because I have to get out so quickly due to exhaustion. I have to lean on one elbow at the sink to brush my teeth. When I get out of the shower I can barely breath, I am wheezing, my heart is pounding and I feel like I will collapse so I have to get out and rush to my bed. I home school my 3 children and most days we do school in my bed. Everything is an effort. I can never plan anything because most days I am incapacitated. I may have a good day and can actually go out to dinner or Walmart once or twice a month and then I can't wait to get back home and get in bed because I am so worn out. I don't see how this drug can actually remain on the market. I am so angry and upset that my doctor never told me this could happen. When I asked about side effects I was told "oh no there aren't any really". My doctor never ran tests on me. I just can't believe this. I go tomorrow for blood work and I go to the doctor on Mon to discuss the results and all of my problems. I am so afraid that I have permanent damage to my muscles and possibly my heart. I went tot he doc months ago with shortness of breath and swelling and she did an EKG and said my heart was fine and I was not having congestive heart failure. I fear I was and still am! It is not normal to be out of breath just brushing your teeth and combing your hair. I hope we all get the answers we are looking for and that we all recover from this horrible drug. God bless you all!
January 14th
2009
11:14 PM
I have been taking 12.5 mg Metoprolol for my palpitation and occasional racing heart. Few days ago I got a rapid heart rate again and I increased the dose to 25 my as original prescribed. Now I have chills, cold hand and feet, insomnia, shortness of breath, chest pain, etc. I have cut back to 12.5 mg. The problem is that even with 25 mg my heart races once in a while but I can't tolerate increasing this drug. I want to wean off of it. What is the best way to stop this drug?
-- By adpcdp1 | Reply | (8) replies | Private Message me
May 30th
2008
9:35 AM
I am 36 and take 100 mg of generic Toprol a day. I was put on it due to many ( I mean 30 to 40) palps a day. I had been on Atenolol for about 5 years and the doctors told me it had simply quit working. I had an echo and a 24 hour holtor monitor and both came back negative, yet I felt like I was dying daily. My palps have diminished with the medicine, with a change in diet and running 5 or 6 days a week for about 3 miles. Caffeine and alcholol have almost been excluded. I do have cold hands and feet and have had much trouble losing weight. Stomach cramps and an upper right side cramps have been an issue. After reading your posts I think we need to get off this stuff
-- By chadjenfrey | Reply | (3) replies | Private Message me
March 16th
2008
10:51 PM
I was prescribed Cipro for a UTI on 1/25/08. I took 500 mg for 7 days. About day four I began to experience intermittent "little pains" in my hands and feet. I thought it could be a side effect of Cipro but no big deal and would subside when I finished the prescription. Boy was I wrong. It has been two months and every week that goes by I feel worse. I have pain and mild cramping in my arms, hands, legs and feet on and off all day. The muscles in my neck and the back of my head tighten up and I get very lightheaded. When I get up in the morning I am extremely stiff and do not feel like myself most of the time. I have read many comments by others who have used this drug on several websites and I am quite worried at this point. Can I expect these symptoms to gradually subside or am I on the road to becoming an invalid? Sorry to sound dramatic but this is very upsetting. Has anyone found anything to help with these sort of symptoms or does anyone have any suggestions? Thanks.
-- By mcd2007 | Reply | (6) replies | Private Message me
February 29th
2008
10:21 AM
Have been on Aciphex for about 8 months and have had many side effects. I thought it was the acid reflux causing the side effects but maybe its the Aciphex. I get light headed every once in a while, i get blurry vision, bad gas,tingly cold hands and feet, back pain and chest pain,arm pain, neck pain,irregular heartbeat, and go to the bathroom constantly. also feel very nervous at times. Its very scary because i thought maybe i had a heart problem but got an EKG and everything was normal. There is a book that i found that is guaranteed to naturally get rid of acid reflux or your money back. I am definitely going to purchase this book. You can find it on ***
-- By jaycee_1 | Reply | Private Message me
February 24th
2008
12:00 PM
My father has been taking Warfarin for 13 years now 2.5mg a day. He's been complaining of headaches, heavy feeling in his head, dizzy spells, extreme fatigue,swelling of his legs, spontaneous numbness of his fingers, blurred vision, cold hands and feet, loss of balance and memory loss. I have spoken to his Doctors and no one believes him that the Warfarin is doing this to him. By the way, he was diagnosed with AF 13 years ago.
Does any one experience the same symptoms? what can he do? he is 77 years old.
-- By 121956 | Reply | (1) replies | Private Message me
February 19th
2008
8:53 PM
This is my third time on Topamax...and I am weaning myself off again...The first time I loved it! I don't drink pop so I could care less about the taste issues. I suffered some tingling so I took Magnesium for that, some fatigue, low blood pressure, etc. But, due to a rapid weight loss (I was already small) and low blood pressure my doctors took me off. Then when I put some weight back on and the severe migraines persisted, I was put back on. Then, lots of tingling, dry eyes, fatigue, NO weight loss (apparently it only works the first time for loss) and weird vision disturbances and feeling dopey and not being able to talk, teach to type. So, I stopped again. Well, I can't live with the headaches, so on again. Well, it's been over 2 and a half years total now and I am just now beginning to see the real effects of this nasty medicine. I have been "sick" for over a year and no doc (10 total) can figure out what's wrong!!!! I have been researching a lot and come to the conclusion that it very well may be long-term use Topamax effects...45 lb. weight GAIN in a year and a half, constant nausea, severe fatigue, skin rashes, female infections non-stop, dry skin, lips and hair, dental issues, muscle and joint pain, pins and needles in feet, eye twitching, constant cold hands and feet, metallic smell to hands, body odor,insomnia the list goes on and on...Some of these I just noticed when my neuro (who thinks Topamax is the only cure!) upped my dosage again due to daily headaches and I started researching. I am currently weaning off of 150 mg. (100 at night and 50 in the am). I have been on up to 250 mg before. Although it used to help my headaches, the side effects are just too much to bare.
-- By duncana2002 | Reply | Private Message me
February 19th
2008
7:30 PM
severe arthritic pain, body is turning to cement, heart out of rhythm, sky high blood pressure, palpations up the back from the kidneys, vivid dreams, night sweats, swelling, cold hands and feet, sore throat, dried bloody sinus, over all restlessness, headache, stomach pains. Been on Januvia for 3 months these showed up after one month and got worse each week. Went off and started feeling better right away, still have the arthritic pain in my shoulder and arm hoping it will leave. Also still having some heart rhythm problems.
-- By janieann | Reply | Private Message me
February 3th
2008
5:55 PM
been taking Altace for about 1 year. never experience the terribl3e cough i hear so much about. however do have the following with a 2.5mg. feeling of throat closing or jammed, very cold feet at times, lightheadedness all the time. i also take Toprol xl 25mg so the combo could make it even more so. all my tests come out normal, so it has to be this medicine. i guess you either have to live with it or go through a trial and error period with other medication.
-- By mattdillon | Reply | (3) replies | Private Message me
January 28th
2008
7:48 PM
I was put on Toprol xl (GENERIC) 3months ago. Its been a nightmare. I was put on it for rapid heartbeat. My blood pressure was great 110/70 sometimes lower. I was happy with it for about 2 or3 weeks.Its been all down hill since. Sleepless nights, horrible sweats, leg cramps from my knees down, cold hands and feet. And horrible headaches. It was at the point i didn't want to get up. Called my doctor and he said to stop taking it.Today is my second day without it and last night i finally slept all night first time in 3 months. Woke up with no headache and i haven't had any sweats. I see my doctor tom. I am not going back on. I don't think its the medicine for me.
-- By brooks7979 | Reply | Private Message me
December 27th
2007
1:48 PM
About the same as many others. Sharp pain in my left shoulder blade, came on suddenly last year and no one can tell me why. Cold hands and feet. Dry Eyes. I take 40mg of Zocor (generic) daily. Lots of indigestion problems. Didn't consider Zocor as the cause until I re-read the side effects. It reads like a horror novel.
-- By michaepk | Reply | Private Message me
June 11th
2007
1:20 PM
I have been taking adderall for over a year, but for about 10 months ago, I started taking wellbutrin also and since have had chronic problems with my ears, It's actually getting worse. Not so much ear infections, but the pressure is actually pushing inward. So i feel light headed just funky all day. Kind of like a head cold without the cold. I can't figure out which one is causing (i think wellbutrin) since that's when it began. But it could be the combination. Just wanted to know if anyone else is experiencing this. I am 35 female.
thanks pam
February 15th
2007
12:34 PM
I have been on Atenolol (only 12 mg a day) half a pill, for 4 months now. I have had dizziness most of the time, ice cold hands and feet, numb feeling in my legs, severe pain in my chest, which turned out to be costachondritis. Very slow heart rate 50 bpm. Low blood pressure 98/54. Dull pain in both my sides and back. I did not have any of these symptoms until I started Atenolol I hate the way I feel. However, when I try to stop it, my heart starts racing. I have been taking it only for my racing heart (as the Dr. says I have atrial fibrillation.) I wish there was a better med without these bad side effects.
-- By tdjk | Reply | Private Message me
January 8th
2007
3:21 PM
I have been on Levoxyl for 14 years, over time I have had increasing problems with leg pain, joint pain, memory loss, cold hands and feet, bouts of being very tired. Until I discovered Armour Thyroid, I feel so much better since going on the natural thyroid instead of the synthetics.
-- By gingerguerrieri | Reply | Private Message me
January 2th
2007
12:40 PM
joint pains, mental confusion, weakness (bad), muscle aches, BP higher, bad dreams, cold hands and feet with numbness, pain in lungs.
slowly took myself off!
-- By oqmc | Reply | Private Message me
December 1th
2006
10:41 PM
wow. i am a 36 year old female that started taking 50mg of toprol about 1 month ago for frequent pvc's. all these side effects i am reading about are just blowing me away. i have several...foggy, tired, difficulty falling asleep, muscle aches, weakness, tingly legs, weight gain, depression, nightmares, swollen ankles, hopeless feeling, decreased sex drive, cold hands and feet, leg and foot cramping.... NONE of which i had before. THIS MEDICATION IS EVIL!!!!!!!!!!!!!!!!!!!!!!!!!! i will be weening myself off of it starting NOW!!!! i would much rather feel my heart beating funny than feel like this.
-- By tyrolean | Reply | Private Message me
November 25th
2006
6:42 PM
Have been taking toprol for 2 years. Have had leg pain and cramping, mental confusion, very constipated, developed diabetes and have cold hands and feet. Doctor says I must take this med and I am trying to have him prescribe an alternative. Stopping abruptly is out of the question according to the cardiologist as it may cause angina or heart attack. Anyone out there experience constipation or some of the other adverse side effects?
-- By marcella28 | Reply | Private Message me
February 19th
2006
3:57 PM
31 years old I started taking Toprol XL 25 for palpitations then switch to 12.5 due to drop of pressure. I vet been in cloud 9 since no feeling what so ever sad,depress,week tremors,dizzy,Gas BLOATING no appetite .I was loosing aprx 5lbs a week cold hands and feet, bruised feeling in chest severe neck pain. Sinus pain and pressure.I was running to the ER thinking I was going crazy
-- By bronskin826 | Reply | Private Message me
May 30th
2005
10:46 AM
52 yr old male-I was taking 100 mg and experienced
shortness of breath,weakness,dizziness,stomach bloating,
insomnia, and cold hands and feet. I cut back to 50 mg and
side effects have decreased. I am checking blood pressure
often and getting more exercise along with a better diet. So far no increase in blood pressure.
October 19th
2004
3:45 PM
I am 42 and have been taking Toprol XL for 8 months now for control of hypertension. Started at 50 mg, went up to 100 mg. Side effects have been almost constant cold hands and feet (especially at 100 mg); occasional fatigue; difficulty exercising within 3 or 4 hours after taking it (heavy, tired feeling when running); sometimes very low heart resting rate (ll see how irritable I get in the transition.
-- By ppmcltx | Reply | Private Message me
January 31th
2004
10:46 PM
painful swollen limp nodes, cold hands and feet, shortness of breath, tightness in chest, numbness is left pinkie finger and white coated tongue.
-- By trey_morgan | Reply | Private Message me
January 31th
2004
10:44 PM
swollen painful limp nodes, cold hands and feet, numbness in left pinkie finger and white coated tongue.
-- By markdavis | Reply | Private Message me
April 5th
2003
2:34 PM
Very cold hands and feet. Can't seem to get them warm. Not a new side effect, but I'm also having some vision problems. I went to the ER about seven days ago for chest and sinus congestion and I believe they gave me a shot of Levaquin and that's what's causing the problems. When I came home and took the prescription for the 500 milligrams to my pharmacist he told me that the ten pills would cost a hundred bucks and I said I didn't believe I could afford that. Then he checked and came back and said he didn't have that medication. And didn't even offer to try to find it for me. So I just left. Now I believe he probably knew there would be some very bad side effects for me and didn't want to risk maybe a lawsuit. I have been trembly and jittery ever since I was in the ER on March 28th. And believe that the shot they gave me is the cause of it. A friend of mine who is a nurse really got on me because I didn't get the prescrip filled but am I ever glad I didn't. If I can just get over the effect of the shot I'll be okay. I am taking Benadryl for my sinus congestion and it seems to work pretty well. Thank goodness I never took any pills and only have to try and work through this shot.
-- By guest204 | Reply | Private Message me
Toprol-XL (10) Topamax (3) Zocor (2) Levaquin (2) Amitriptyline Hydrochloride (2) Cipro (1) Aciphex (1) Levoxyl (1) Januvia (1) Adderall (1) Altace (1) Lipitor (1) Omeprazole (1) Lisinopril (1) Tenormin (1) Warfarin Sodium (1) Adderall XR (1)
November 18th
2009
10:03 PM
11 days ago I had indigestion and following that I had continuous heartburn. Doctor said it was gastritis and prescribed me gaviscon and omeprazole. I took one omeprazole pill in the morning after breakfast everyday for 5 days when I started to have the following symptoms: bad cramps/aches on left shoulder blades/neck, cramps/pins and needles in left arm, numbing of hands at times, nausea, tightening of the chest, sweaty cold hands and feet and lastly the most painful of all, numbing of my throat! The doctor checked my throat many times and said that it is not swollen yet I am positive there is something wrong with it. It is actually not sore when I swallow, just feels numb and cloudy? Sometimes I can't yawn fully because my throat closes up when I do and I cannot speak too much as I get breathless. I see that people here have started getting these symptoms via a long term use of this medication and not mere 5 days. Either way, I stopped taking it since today however symptoms are still present and stronger than ever tonight. I cannot sleep as I am too afraid to, as I have also been getting very vivid nightmares. I have started taking Ranitidine (twice a day)from today and I am a bit nervous about whether it is going to bring me nasty side effects too or not. I really just want the omeprazole's side effects to go away first but it seems as though it may actually take some time.... anyone had this numb throat which has caused difficulties in breathing? I also couldn't go to sleep before because when I would lie down my chest and throat felt like they were closing up even more and if I tried to sleep I would feel as though I couldn't breathe. Does Randitine cause nightmares!?
-- By sickofbeingsickk | Reply | Private Message me