Collateral damage symptoms and conditions

I took 20 mgs a day for 5 days in September of 2006. I developed a terrible cough, but worse than that, severe chest pains & shortness of breath upon exertion. I still can't go up & down stairs; my pain is brutal and it's going on 3 years since it all began. Before I took the lisinopril, I hadn't been having any chest pains or trouble breathing.

Is there any hope of recovery? My doctors all say they've never heard of this kind of side effect; that lisinopril is a very common drug; it's clear that I have reduced lung function & definite pain & symptoms, but there is no way to isolate the exact thing causing it or to figure out how to make it go away; just to control the symptoms.

My theory: the lisinopril triggered an autoimmune response in which my body physically tries to reject my own lungs. Any thoughts on that one? I had been taking cozaar as an ACE inhibitor to slow the rate of my renal failure; I have type 1 diabetes and hypoparathyroidism, and while I needed meds before this episode, all I had to do then was manage my diabetes & I was able to live normally. Since this, it's been nearly impossible to do ANYthing. I am at the end of my rope & I want this to stop. But 3 years later, and while the shortness of breath is improved, the pain is actually worse now. I could sure use some advice & support. I'm on my way this week to get set up with a new dr. because we've moved, and I'm going to have to go through this whole thing again. Also - I'm trying to compile a list of other people who have had side effects with chest pain & shortness of breath. Also anxiety & panic attacks as collateral damage.

I was put on Levoquin after 4 days of Bronchitis. My body was not responding to the antibiotic so they added Prednisone. I continued on both medications IV for 8 days. After the second day, I developed a severe pain in my groin. I mentioned it to the NP treating me and she said, "we will worry about that once we get the Bronchitis under control". The pain continued as the medication continued. After the Bronchitis was resolved, the pain in my groin was terrible. My doctor sent me for CT scans and and MRI. The next thing I knew I was in the Orthopedic Surgeon's Office talking to him about a total hip replacement. He said the test showed very mild degeneration and he was not sure a total hip replacement for me was the answer. I opted not to have the hip replacement. Diagnostic Testing continued. Finally, my doctor told me that the combination of Levoquin and Prednisone caused a tendon rupture in my groin. He said it would heal but would take a long time. It is now 8 months since I took those medications and my hip is more painful now than ever. I am on pain medication and it does not help. I see my doctor today and we will discuss other options to relieve this awful pain. I walk with a cane and I feel like I will never walk normally again. It has totally disrupted the activities of my life. My doctor tells me to stay off my feet as much as possible to rest the tendon, this is impossible as I am a registered nurse and I am on my feet constantly. This has destroyed my life!

My daughter, 21yo, took prednisone off/on for 4 months, both oral and IV form, with the highest dose of 90mg over a two week period. The risk of bone death (Osteonecrosis, aka Avascular Necrosis) is not disclosed as a risk and 7,000 people a year get this from steroids! They gloss it over under the guise of "bone pain" or "bone fracture" near the osteoporosis risk so you think that by taking calcium and vit D supplements you're protected. What's really going on here is that the steroids cause the bone to die so if you have pain, PLEASE INSIST on an MRI because a regular x-ray will not show ON until it's in the advanced stages..and then you'll most certainly need joint replacement.
I'm not making light of the weight gain, or loss of hair or any of the myriad of other side effects that come with this drug, but when you're told that the joints in your body are dead...and that they'll eventually become brittle and break and cause so much pain it is often compared to bone cancer, then you'll really want to sue someone. But, I've tried that...it doesn't work. Because the drug is FDA approved...the manufacturer can't be held liable.

My daughter has ON in her right shoulder, both elbows, both wrists, both knees, and both ankles. She's considered "collateral damage" by the medical/legal communities because Prednisone is the "gold standard." This disease is a slow progressing disease which is often found as late as 10 years after stopping the steroid treatment. If you find it early enough, some surgical options exist to prevent the collapse of your bones, so if you have joint pain...PLEASE investigate with an MRI