September 11th
2009
3:54 PM
severe abdominal pain, colitis, inflamed colon, arthritis, staphylococcal, scarlet fever (which is the advanced stages of strep throat)hair loss, severe headaches.
2 E.R visits, 1 hospital stay of 4 days. When I informed doctor of the possibilities of gardasil vaccination -within MINUTES released daughter to go home and make an appointment with a gastrologist
July 9th
2009
11:51 PM
My mother just died from all of the secondary effects of prednisone. She was diagnosed with glaucoma 4 years ago but no one ever did a sed rate blood test to find out that she had giant cell arthritis. So once they found out, they treated her aggressively with 60 mg of prednisone. She swelled up immediately and had terrible pain in her legs. Then she became diabetic with big sugar swings that couldn't be controlled. Then s he got thrush in her mouth and couldn't eat or drink. Then she became dehydrated. For pain they gave her constipating pain meds and this caused a bowel impaction. She had tremors and then she had mental confusion. Then her skin started splitting everywhere but wouldn't heal. Then she started losing fluids from her skin. Then her bowels got impacted again. Then her colon ruptured and she got sepsis. Her sugar levels went haywire. Her heart wouldn't slow down, her skin tore up worse, she lost more fluids. And finally she got pneumonia and fever. She died in my hands after so much s suffering - it was just ungodly.
I hope she's ok now and happy and having no pain and is in God's loving arms.
I will never forgive this doctor.
Please be careful with this drug. It is so incredibly dangerous.
-- By francinelitz | Reply | Private Message me
May 20th
2009
2:51 PM
They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.
-- By sbl315 | Reply | (6) replies | Private Message me
April 15th
2009
1:53 PM
I have been taking flomax for a long time, i have had 5 operations due to my colon, when i became able to walk again i would loose by breathe just walking to the mail box in front of my house, and have ringing in my ears, i have been checked by a hart doctor and a pulmonary doctor as well, i am 100% in those areas, no one could find out why i had shortness of breathe, then i ran out of flomax. 4mg 1 daily, then my breathing rapidly unproved till i had no problem. no one ever thought to look at the possibility that it was due to the flomax until now.....
-- By terry_49 | Reply | (1) replies | Private Message me
March 3th
2009
7:53 PM
I have crohns and was on a very high dose of prednisone from Jan. - Sept./08 (having a operation to take part of my colon out in Jun/08) and now I am suffering such joint pain in my back shoulders and both arms that I am taking ibuprofen (approx. 8- 10 a day). My general doctor said to me "somethings can't be fixed" and I said to him well I did get my crohns under control, surely there is something I can take to block this pain. I take Calcium with Magnesium, Vitamin D and an anti-inflammatory, Mesalamine, prescribed by my internal specialist. I have not been well for over a year, finally get crohns under control and enjure such pain in my shoulders and arms - it makes me cry sometimes because the pain is so great. I finally realized, maybe this is the after effect of prednisone. Anyone have any ideas if I might be correct. I am going to internal specialist March 12/09 so I am going to ask him if he can help me as my regular doctor seems to brush my pain off. Thank you, D.
-- By sallyslick | Reply | Private Message me
February 3th
2009
7:43 PM
My Daughter was twelve when she got her first and second Gardasil shot. The first shot went well other than the normal irritation after the injection. The second shot hurt a bit worse and for longer after, but we thought nothing of it. Slowly, she started to get very down and very tired, it was around the holiday season so we thought maybe she was just stressed out. Then, she started bleeding vaginally. There were no "warning signs" that she was starting her period, so we treated it as a Urinary Tract infection, and that's what the doctor's told us it was, until a month later, she got it again and we found that it was her period. She also started having MAJOR stomach issues, having two colon scopes, and many other tests (as well as tests for Urinary Issues as well). All have so far come back negative, but all this started occurring exactly ONE MONTH after her second shot. Needless to say, please read her about her other symptoms, and the other posts on this site and others. Gardasil, does not seem to be as safe as they say.
-- By sweetpea14 | Reply | (2) replies | Private Message me
February 1th
2009
4:58 PM
After 4 days in the hospital with the colon infection and some antibiotics treatment via I.V. I walked home, I was fine. All I needed was to have 7 x 500mg in coming week.
After three days and 3 of 500mg Levaquin pills very itchy reddish rash developed in a day all over my entire back where I have solid areas , bottom, parts of the arms and upper chest and neck where I have dense spots..
I used the Witch hazel and Aloe Vera Mist (no help) till I’ve got hold of the Triamcinolone Acetonide Cream. No help yet in last 4 hours. I’ll try Calamine lotion next.
Boy it itches I didn’t sleep all night. I never had any allergies before.
January 15th
2009
10:47 PM
I have been taking Metronidazole for 10 days 500mg 3 times a day for a bacteria in my colon and in all honesty i have the metallic taste in my mouth , nausea , headaches , and cannot get erect.. I think it has affected me sexually because i am taking so much of it..This is the worst medication i have ever been on.
-- By atrotta79 | Reply | Private Message me
January 5th
2009
12:38 AM
I was hospitalized on Christmas with a severe infection of my colon, so when I got discharged 5 days later the doctor prescribed Avelox 400 mg. for the last 7 days it has been hell. I cannot catch my breath even if I'm just sitting there, my chest is very tight, and it feels like my heart just wants to give up from trying so hard to breathe. I keep asking myself should I call an ambulance because it gets so bad with the anxiety that I cannot catch my breath. I'm 34 and in good health. but tonight after taking Avelox for 7 days I finally decided to research the side effects just to see if this was causing all my problems. This drug should be outlawed or the doctors prescribing it should sit down for 5 minutes and tell the patient all the possible side effects. where is the compassion in these doctors these days.
-- By b4utakeit | Reply | (1) replies | Private Message me
November 4th
2008
12:04 PM
Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?
-- By 3surgeries2many | Reply | (6) replies | Private Message me
October 15th
2008
8:09 PM
Hello everyone, I did a posting on Sept 27th will my adverse reaction to levaquin. Well, I did a lot of research as to how to help with the side effects. In addition, I discussed the side effects with a friend in medical school to see what he could come up with. I did not even bother going back to my doctor because from many stories that is just a waste of time.
Anyway, its been about 3 weeks and my side effects have gotten much better. Not totally gone...but much, much better. Everything was from my local drug store.
Here is what I did:
Do a colon cleanse or detox regimine right away. Get as much of this stuff out of your system as possible.
Fish oil LIQUID FORM one teaspoon a day (yuck...but do it!)
Bromelain to help with the joint inflammation
Glucosamine to help with joint repair. I got both a pill form as well as liquid. I used this product by Drinkables called Liquid Joint Care Dietary Supplement. Anything in liquid form absorbs quicker.
I also had to resort to getting a sleep aid for the insomnia, you need to get good sleep somehow to help your body repair.
Last but not least, and I know it sounds strange. One small shot of clear vodka a day. It's an old Russian remedy...I guess it has a cleansing effect on the body.
Anyway, somehow all of this really did help. Good Luck!
-- By agnieska | Reply | (1) replies | Private Message me
September 19th
2008
6:55 PM
My 1 year old son got into my box of chocolate Ex-Lax and ate about 3 or 4 pieces. Called Poison Control and they didn't have any suggestions except to keep him hydrated. I put him to bed that night, he was still in a diaper, and he had a bowel movement during the night. In the morning his butt had huge blisters where his stool had laid. The senna in the Ex-Lax caused severe chemical burns. He had to be admitted to the burn center at Akron Children's hospital. Most people aren't aware of how dangerous this product is because adults wipe after using the bathroom, but imagine what this chemical in Ex-Lax is doing to the inside of your stomach, intestines, and colon. I would like to make people aware of the seriousness of this drug, especially parents whose kids, like mine, will eat anything chocolate. I always assumed Ex-Lax was so safe, as they even claim on their box and that it would just cause you to use the bathroom without harm(as obviously even the Poison Control Center doesn't know the dangers), but Ex-Lax is very dangerous!
In 1999, Ex-Lax company changed the main ingredient to senna because the old main ingredient caused cancer. Ex-Lax and other senna-containing product companies don't want people to know about this. It's not even labeled on their box or website! They definitely know about it because I have called the Novartis Company and they have also had many other similar incidences. Please pass on.
V. Donaldson
-- By donaldson8 | Reply | Private Message me
September 19th
2008
12:33 PM
After going to the ER for abdominal pain, I was given a CT scan and told
I have Diverticulitis, my colon was inflamed and I had an infection.
They gave me Ciprofloxcin 500mg twice a day for 5 days. My body has never tolerated drugs very well and I'm allergic to most antibiotics, but the doctor insisted if I didn't take it, I would end up in the hospital with the possibility of having surgery to remove part of my colon. So I made myself tough it out. Fortunately, I didn't get any side effects that I couldn't handle, so I did the full 5 days. Unfortunately, after two days off the Cipro, I'm feeling ill. I'm nauseas, after eating or drinking, lightheaded and out of breadth, when I stand up, and have a burning sensation after urinating that lingers till I want to scream. My muscles ache and I feel depressed. I am a 58 year old woman, very active and I don't do well with being ill. I have another Dr. appointment later today to see if I may still have an infection.
I WILL NOT TAKE ANYMORE CIPRO!
September 18th
2008
11:04 PM
I have Crohns and had a flare up so I'm back on 40mg of Prednisone. I've been on 40mg now for 3 weeks and I start to tapper off in another 3 weeks. Well every time I start the prednisone again I get new side effects. This time, my gum are bleeding all the time and the pain in my knees are horrible! I still get the regular side effects, ie: Mood swings, joint pain, sleeplessness, sweating, swelling of my legs and hands, wanting to eat everything under the sun, moon face and my hair falls out! I wish the drug manufactures could develop a drug that would not be so hard on our bodies. I have to struggle with the pros and cons with every flare up. Do I want the weight gain, mood swings and hair loss or do I want to look good and be very sick! I'm 37 and was 16 when I found out I had Crohns.
-- By col71387 | Reply | (7) replies | Private Message me
August 5th
2008
9:42 PM
I finished a 5 day course of 1000 mg a day over a month ago. About a week afterward, I started having sharp pinging pains in the "bend" areas of where my colon is. Painful gas and bowel movements, and blood in the bowl. (not in stool) Also have had gum pain and mouth ulcers. My intestines feel blistered. I'll be ok a couple of days when eliminating, then suddenly a bowel movement will be followed by bright red blood and tissue. Very scary. I am taking Acidophilus, trying to eat carefully and drink only water, nothing harsh or citrusy. I have pain on the left side of my gut mostly. Under ribs, at waist and very low left side. I'm afraid, but then, this is a harsh drug and I do not have fever, have not dropped weight, lost appetite, or felt weak. I just feel like my insides are shredding and ulcerated. I will NEVER take this again. It's odd, because I have taken it before, for much long than this. I refused to take the last 2 doses the former time, because it literally tasted like fertilizer smells when i would belch after a pill. Vicious drug. I am watching myself and my issues, and hoping I don't have to have further treatment and that I have not totally ruined my colon beyond repair.
-- By njo | Reply | Private Message me
July 7th
2008
4:55 PM
I had the same steroid injection for tonsillitis this past January in both cheeks. I now too have noticed a large indentation in my right butt cheek. I was never informed of this possible side effect either. I would definitely be interested in pursuing a class action regarding the disfigurement of my previously favorite body-part. Had I been informed of such, I would have just had my tonsils removed!!
-- By pahoral | Reply | (5) replies | Private Message me
July 3th
2008
11:57 AM
Yes dry eyes, blurry vision, stomach lining problems I now need reading glasses. I had to take ibuprofen for dental work & migraines for about 5 weeks straight 400-600 mg every 7 hours. Getting very sluggish and slow like my liver is congested again.Happened before on other meds. Had to take liver/colon herbs to bring my liver levels back down to normal....thank god for those herbs! I got them from Rene Ponder.
-- By oct7becky | Reply | Private Message me
July 2th
2008
9:14 PM
Zoloft. stress in colon sever, do not want to take any other drugs. will this subside with time? have only been on it 3 days, real tired today.
-- By jolani696969 | Reply | Private Message me
May 30th
2008
2:49 AM
I have been on 200mg per day for 7 months! Seems too long for anyone to be on an antibiotic, since antibiotics can deteriorate your gut and colon. However, I suffer from pemphigus vulgaris, which is an autoimmune blister disease, whereby the body no longer recognizes the skin as part of self and attacks it as an invader. The doxy will make me severely nauseous without food. I have experienced the burning from the inside out, tingling and new blisters from the sun because of the doxy. It has been a long run, I imagine the anxious, depressed emotions could be from the doxy, however I am unsure. Always feeling tired has been quite common. I tried to stop, especially if I were going to be in the sun, but the consequences were severe with new sores appearing from my pemphigus. So in my case apparently the benefit outweighs the risk, for now. I have noticed in my 6 month that my knees and hips are in pain. Is that a side effect of long term use of this medicine? Not that may be worthy of reconsideration, if it is responsible for joint and bone deterioration.
-- By gettingbetter | Reply | Private Message me
April 13th
2008
5:48 PM
Hi everyone,
I am a 25 year old female who was diagnosed with Crohn's disease one year ago. I stumbled on this website and wanted to share my experiences to let others know they are not alone and that their side effects due to Prednisone are completely normal.
In Nov of 2007, I was in the hospital for a Crohn's flare up and was put on prednisone through IV (240mg/day). After a three days I was released, but one week later, had another flare up and was back in the hospital in December of 2007. This time, I stayed for 6 days and was on 240mg/day again through IV, along with taking Flagyl and fluids for my flare up and infection.
At first, I lost about 10 lbs due to the flare up and all of the medication I was on. However, within 3 weeks time, I gained 28 lbs and was a complete mess. I looked different, felt different and was emotionally and mentally drained.
My side effects included: Severe moon face, buffalo hump, increased appetite, hair thinning and severe hair loss, night sweats where I would have to change pajamas 3-4x a night, OCD to the point where I would have to clean my entire apartment (even if it was already clean), restlessness, anxiety, no sleep and sometimes I would go days without sleeping, increased thirst and dehydration, swollen eyes and headaches, depression and mood swings, upper and lower abdomen swelling and weight gain (28 lbs in 3 weeks), suicidal thoughts, unbearable muscle and joint swelling and aching, forgetfulness and memory loss, blurred vision and dark hair growth on my face near my sideburns and underneath my chin and on the bottom portion of my face. Bottom line: it was unbearable and nobody warned me about the harsh side effects of the drug.
When I left the hospital, I was put on 60mg/day and eventually weaned off Prednisone over the course of 2 1/2 months and took my last 5mg dose in mid- February 2008.
It is now 2 months since I have been off Prednisone and as of now, I have only lost 7 lbs, but much of the moon face has gone away and I don't seem as swollen in my chest. My appetite returned to normal the day I stopped taking the drug and my mood swings subsided one week after stopping Prednisone. I still have the buffalo hump, but it stopped hurting and I am now able to sleep through the night. The fluid retention seems to have moved south towards my legs, arms, and lower abdomen. My doctors say that within about 6 months after stopping Prednisone, most of the fluid retention should go away and they recommend walking for 45-60 minutes/day to help with the fluid/weight gain.
Overall, prednisone helped to save my life and put my Crohn's into remission, but is one of the WORST drugs I have ever taken. My heart goes out to anyone who has had to take this drug and trust that you are not alone--and the side effects are real and they are harsh. I am slowly seeing that it takes time for the prednisone to leave your system and my doctors say that every day there is less and less in my body.
Stay positive, stay active & stay Healthy!!
-- By vanygirl | Reply | (5) replies | Private Message me
March 23th
2008
5:16 PM
I am 57 years old, and never had HBP, I went to the cardiologist and told me I have 140/80 and prescribed Toprol XL 25mg. I bought the generic ones. Today is my second week and I did not know that my headaches (never had headaches before), electric chocks ringing ears , breathing problems, were a side effect of this pill until reading all these experiences of so many people. I am going to cut half the dosis and lower it, so I get out of this medicine. The doctor made an EKG and gave me Toprol because my left atrial was big due to untreated HBP. Is there any natural product, better than this killing medicine, please advice.
-- By marviech99 | Reply | (3) replies | Private Message me
March 7th
2008
11:46 AM
Been on Prednisone for 3 years now for ulcerative colitis. At first tolerated the drug quite well. But after a few months started to gain weight, acne. After 3 years of yo-yoing between large and low doses, each increase in dose made me feel worse. I am now at a state of osteopenia and of extreme tiredness and brain fog. I see 80yo with more energy than I. I cant walk up 10 sets of stairs without feeling tired out. I need to sleep 3-5 hours a day just in order to function. As mentioned before brain fog is amazingly bad. I'm a scientific researcher which can no longer work.
Prednisone has introduced to me what panic attacks are, mood swings, joint pain and swelling, extreme muscle fatigue and wasting, blurry vision, in habitual eating habits, depression.
This drug has ruined my life. I would have preferred having surgery to remove the colon and going to the toilet 10 times a day rather than not living as brain fog and tiredness that makes my life a dream-state nightmare.
-- By geemgumgomgum | Reply | (3) replies | Private Message me
February 9th
2008
2:34 PM
I have taken Levaquin 500 mg daily for the last 7 days. I am quitting it today! I am so tired. Cannot sleep! Have severe pain in both of my hips! I do not have a history of sleep disorder or hip pain!!! I even have severe pain in both of my shoulders now as well. My doctors insist this isn't from the med. My pharmacist differs in that opinion!! This stuff is POISON!!!
I am a registered nurse and will preach this to any and everyone who will listen!!!
I only pray I will not suffer a tendon rupture even after I have stopped this med! If that happens I will contact an attorney! Can we get a class-action lawsuit for all of us and to prevent others from this terrible experience???
January 30th
2008
9:50 AM
For anyone having digestion problems while taking lisinopril....please read this!
http://www.medscape.com/viewarticle/446546_3
I am hoping this is what my problem is, as I'm to the point of not being able to eat anything, even bland food, without being in horrible pain. Cat scans and upper scope ran and all came back normal, regular blood tests are normal...but the pain I have after eating is not NORMAL! I go back to my regular dr. tomorrow and will let you know if he takes me off the lisinopril. My stomach problems started after starting 40 mg of lisinopril in June of 06. I will try to keep you posted on if it is the medication causing my problems.
I also have the anxiety, red rash on my neck, shortness of breath, lethargy, lack of concentration, etc. etc. It's scary to think medications can cause more problems than the actual health problem they are treating you for!
PredniSONE (10) Levaquin (7) Lisinopril (4) Yasmin (2) Levoxyl (2) Metronidazole (2) Gardasil (2) Spironolactone (1) Lupron (1) Viactiv Soft Calcium Chews (1) Avelox (1) MoviPrep (1) Doxycycline Hyclate (1) Toprol-XL (1) Omnicef (1) Fleet Prep Kit #2 (1) Questran (1) Risperdal (1) Keflex (1) Mylocel (1) Cipro (1) Zoloft (1) Pravachol (1) Mirena (1) Kenalog (1) Protonix (1) Ibuprofen (1) Ex-Lax (1) Fosamax (1) Flomax (1) Saline Laxative (1)
October 27th
2009
6:30 PM
I don't know if the lisinopril is the cause but I have had may things going on and something caused them. My feet and legs itch until they feel like there on fire. My hair seems to have just died. It's crisp and breaks off when I comb it. I have used all kinds of products trying to strengthen my hair but no luck. My pinky finger and the ring finger on my left hand have been nump for several months. When I comb through my hair I hit a spot that shoots pain to my right ear. My doc said the numb fingers was from proping my elbo on my desk. He said it would go away if I propped it on something padded. So for several months now I have used a foam pad about an inch thick to prop it on. There still numb. And the muscle in that had has weakened. In Aug. I was rushed to the hospital. my potassium was very low. My colon was infected. My kidneys were infected. My temp was 104. My whole body was shutting down. Im still taking the lisinopril 20/25. I am calling my doctor tomorrow and tell him im not taking it anymore. Im so glad I found this site. Now I at least have an idea why im falling apart.
-- By ladyrich007 | Reply | (3) replies | Private Message me