July 22th
2008
1:21 PM
Hi all. I would just like to agree that PredniSone sucks but it is the best out there for these diseases especially the auto-immune diseases. Drug companies do not make any money on prednisone because it is generic and there is no patent. I know I picked up 98 10mg prednisones yesterday for $5.00. Believe me when there is a better steroid that works as well and has less side effects it will be available to us all. It will cost tons but it will be sold. Researchers have been working for so many years trying to find an alternative, some have been found but do not work well enough. As bad as the prednisone makes us feel it does work on the diseases. You always have the choice to say no - that is why we should all have a health care power of attorney - just remember that when you decide not to take the prednisone you are agreeing that the disease may worsen and may be life threatening. I hate to sound so morbid but patients must be informed. When you are at the physician ask about the side effects, ask if they can give you something to counteract any mood swings, ask what lotion is best for the itchy skin (AmLactin works well for me and is over the counter). Also, my physician advised me yesterday that the side effects are worse on women due to our precarious hormones. I have told my husband to just stay out of the way and don't piss me off because I am not sure how this next 7-8 weeks is going to fare for him. I am 4ft 10in 110lbs and he is 6ft 1in 200lbs and believe me he is scared for his life. I am using prednisone for my ulcerative colitis so now that I am feeling better physicially I can return to exercise and that has definitely helped. So has turning up the music really loud and dancing and singing poorly. Yelling at the tv helps me whether it be politicians, soap operas or idiots on game shows who get the wrong answers. I also have been keeping a journal of all the rage I have and what kinds of things I could do to people who keep getting in my way at the store, on the road, in line at the pharmacy - I guess I need to put that in a safe place so it can't be used for evidence :}
-- By maryrn | Reply | (7) replies | Private Message me
July 17th
2009
3:08 PM
So let me tell you my experience...I started taking the generic form of Yasmin (Ocella), mind you I have been on four other birth control pills and had no problems. The first cycle I had with this pill I felt like I had the flu with no sinus symptoms, so I went to my doctor, it was flu season, did a flu test: negative. He told me it was just a virus and my body will kick it out in a few days...so I went back home and went back to bed...not six hours later I had a constipated feeling...go to the bathroom and I was having severe bloody diarrhea. I had to call my husband to come and get me to take me to the ER because my abdominal pain was so severe. The ER did a CT (yummy on the barium milkshake by the way, not!) they said I had colitis...went to a GI doctor and I went through 2 CT's, a colonoscopy, endoscopy, small bowel series, sonogram, and blood work to see if I was allergic to gluten and lactose...I was limited to jello and apple juice as my food supplements...I was STARVING for three months. I realized that when I would go to the ER they would give me antibiotics and I would feel better until about 24 hours after I ran out...I called my OBGYN and he told me flat out, stop taking the pill you are having ischemic colitis and it is a severe reaction to that pill you are taking...I also wound up having surgery because endometriosis runs in my family and he wanted to make sure mine didn't get any worse...which was wonderful...I quit taking the pill and I have to be on a pill due to hereditary gynecological issues...so I was put on Orth-Tri-Cyclin and Life is wonderful again!!! So for you ladies...some of you had it easy!! I almost had to get part of colon removed because they thought it was UC! Twelve weeks in a colostomy bag...NO THANK YOU!!
-- By tiger21206 | Reply | Private Message me