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Here are side effects posted by other members, that mention congressman.
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50 Side Effects posted for congressman

April 16th
2009
4:57 PM

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My daughter suffered severe side effects from the Gardasil vaccine - pneumonia, dehydration, etc. etc. The lots with "X" and "U" are causing the most problems. You need to detox your body from the aluminum that was in the vaccine. Please take special precautions if you had the above lot numbers (check with your doctor who administered).
Please read my posting on How to Detox from Gardasil on questions tab. This will help you. File a VAERS report immediately and call your doctor to let them know you are POSITIVE your illness is from the vaccine.
Several people are working on getting this off the market - but please write your congressman or senator to ask that they help. This is the only way to stop this! Also ... tell EVERYONE you know that this vaccine and others with aluminum are NOT safe!

-- By nyminnow | Reply | (2) replies | Private Message me

December 4th
2008
4:42 PM

My 3 year old is on 5mg of singular daily for her constant allergy issues and has had NO trouble at all with it. Her personality has not changed.. she's happy, outgoing, friendly and MUCH better than she was before she started the medication. Prior to starting she was constantly dripping from her nose, she had both ears filled with fluid, had bags under her eyes and was tired and grumpy all the time, due to allergies we could not get under control with other over the counter or prescription meds. Since being on Singulair she's been 100% better than she was. I'm sad to hear that others are having so much trouble with it, but I can say that I am happy my little girl is feeling better.

-- By joshnabbey | Reply | (9) replies | Private Message me

September 24th
2008
7:57 PM

I also want to add that he has been having nightmares a lot as well. And exhibiting some behavioral issues on and off at school.

Again I can not tell you how scary this is. I have no clue where to start or what to tell my congressman. What do I say? Do I make specific reference to Singulair or do I just medicines in general? No offense, but right now my concerns are selfish, and I need to find another alternative to Singulair. I cant bear to have my son experience what I have to deal with everyday with my depression.

He says things like
"I hate myself" and
"This is the worst day of my life"

I am so scared I plan to call his Dr first in the morning.

-- By jenmac | Reply | (2) replies | Private Message me

September 16th
2008
10:09 AM

YOU have to get together and fight for change,the big pharm companies are running the show,they just about have diplomatic immunity,they can pass out poison and not be held accountable,change needs to happen,write everyone your congressman,your rep,they are supposed to work for the people.Somebody has to be made accountable.Pharm companies get to police themselves,they are in charge of their own clinical trials,it is a for profit business both for pharm companies and the clinics running the trials,nobody has your best interest at heart only their bottom line.Even the fda gets a bonus...IT IS WRONG

-- By flindy | Reply | Private Message me

September 7th
2008
8:33 AM

Thanks for the update Kate,as we wait with interest in what Merck has to say,I hope it is not a repeat of the Lung Associations report.To review past clinical studies,i dont know feels crazy,to ignore post marketing reports,well ignorant.My fear is after making my report to the FDA,that was the end of it not one follow up for further information,not one question on how our recovery was continuing nothing.All my letters to my congressman not one reply,i did not ask for a reply,but if someone wrote to me as often as i write,i would at least want to rule out stalking.Clinical trials are what they are,they are for profit,and not the profit of the participant,but profit for the companies and clinics holding trials,this by itself is a conflict of interest.We must continue to demand change the very future of our children demands it.Those of us who have seen the ravages of this drug must still shout out till we are heard our experiences do count no matter what the out come of this investigation.Good luck to all keep fighting

-- By flindy | Reply | Private Message me

August 11th
2008
9:55 PM

I am a parent of a 14 year old son. He has been on many meds due to having migraines, adhd, seizures, and asthma. For 3 years his ADHD meds have been switched. Now Thanks to a friend she told me about singular side effects. OH MY GOD. it blows my mind reading this stuff. He has been on singular for 3 years and never once did I think all these problems were caused by that drug. Flipping out over the smallest things, arguing with us his parents, his friends, being mean to us and a real smartass, depression, and MAJOR attitude. Getting upset over nothing at all then crying for no reason What was his Dr. thinking? Needless to say, I took the singular while she was telling me this stuff about her own son, and threw them away, I will never allow my son to take that shit again. I hope in three days like all of you say, that my son will be that loving, caring, friendly person he use to be ! Singular free is how he will be!!

-- By te12 | Reply | (3) replies | Private Message me

April 30th
2008
10:45 AM

I discovered this site last Wednesday morning - without taking the time to list all of the grief I felt reading through the pediatric postings, I will briefly note my 4 year old daughter has been on Singulair for 2 years now. What I now realize is all the behavior issues, night screaming, etc. are so easily dismissed as stages of a toddler. She has suffered (as well as our family) every symptom and behavior listed by parents on this site with the exception of leg cramps.

Our entire family can see the dramatic results since taking her last pill last Tuesday night. The melt downs and tantrums are all but over, she even commented "hey, I listened right away" on the second day without Singulair. She is still having night terrors - I call them that because they are in no way a dream or nightmare, but rather agonizing moments that break our hearts to hear. I hope those will soon go away as well so her sleep pattern results in a restful night.

Am I angry that we have all suffered for 2 years only to find we have been basically poisoning her? Am I angry that for the 2 years her dad and I have sunk pretty low, feeling inadequate as a parent to teach and discipline our child? Am I angry that after 20 years of marriage, raising a great 16 year old in the midst of all this, we were to the point of the ADD, bipolar, etc. theory that would have been misdiagnosed? Heck no, we are all so thankful to have come across this site and are so giddy and excited to be happy again.

What I am angry about is this - when I called our pediatrician last Wednesday and relayed what I had seen on the Merck website for side effects added in recent months she had not heard this information and asked where I saw it. At that point I had not seen this site. I asked her how is it the well dressed pharmaceutical reps come in with doughnuts, exotic trips, etc. to market a drug with "ABC" treatments and "XYZ" side effects, continue to market the drug and never update the doctors when original selling points are altered - ie; new side effects.

The FDA website is troubling for two reasons: Merck is in charge of their own investigation regarding recent complaints and the FDA expects this to take 9 months. Gee, who gets to investigate themself? Secondly, in February the site notes the FDA and Merck are trying to find the best way to communicate the concerns being investigated to prescribes and patients. HELLO - we live in a world of real time, instant communication methods, two examples being the United States Postal Service and an internet connection.

Today is April 30 - a full two months after "trying to decide how to pass this information on" and my doctor, nor my pharmacist have received any information. Apparantly since we missed the story and coverage on Dateline we are out of luck.

I plan to start from ground zero to get our voices heard to change the way, or the law if you will, to implement an immediate communication link between the FDA and prescribes when an investigation such as this has been initiated. I realize Singulair has most likely benefited more humans than it has destroyed while on the drug and the FDA would have to clearly not communicate "panic". However, when a drug is used for pediatric treatments we need information quickly to assess on behalf of our children. In my case, since my daughter had been on the drug since 2 years old, I do not know what her "normal behavior" should be as that is the age they start to develop and show personality. Additionally, when enclosed prescribing information is updated with a prescription -MARK IT IN RED, "UPDATED INFORMATION". I read every ounce of information that accompanies a new prescription for any family member. I would NOT, however read the information every 30 days for an ongoing, long term prescription over the course of 2 years.

I am looking for anyone that may have started contact with a congressional representative or otherwise to change the communication to our doctors. Please note - I am in no way interested in any legal action regarding Singulair and our nightmare. We are moving forward and do not wish to live the nightmare one moment more. I simply want to see our doctors and pharmacists have vital information as it happens.

Thank you to all for sharing your experiences - I truly believe it is changing lives and making a difference. I am personally telling everyone I know about what is happening with our child and all of yours. Andy by the way, by telling one of my long time friends our amazing discovery, she realized she had been suffering from depression for some time and chalked it up to various things going on in her life. She had her last Singulair last week and feels tremendous! So keep the word going!

-- By rlcoffin | Reply | (5) replies | Private Message me

April 11th
2008
10:03 PM

Merck is experimenting on premature babies giving them montelukast as we speak. Does anyone believe that they care about these side effects that are posted here?

Here is the clinical trial. Write your congressman.

http://clinicaltrials.gov/ct2/show/NCT00492102?term=montelukast&rank=2

-- By concernedcitizen | Reply | (1) replies | Private Message me

April 10th
2008
10:02 PM

I just want to make another post about studying Singulair in premature babies. There is a person who is very dear to me that I remind practically every day that a scientist proves what is NOT true just the same as a scientist proves what is true. I have read hundreds of Merck studies on montelukast. Does anybody ever say - NO - not true? So with all those YES men behind them, Merck experiments on premature babies. Oh, my God. Where does this end?

I would like other people's opinion of Merck's study about using Singulair (montelukast) on neo-nates - premature babies. This absolutely freaks me out. http://clinicaltrials.gov/ct2/show/NCT00492102?intr=%22Montelukast%22&rank=7

-- By concernedcitizen | Reply | (3) replies | Private Message me

April 9th
2008
10:22 PM

We have been through hell for the past three years with my son, who is now 18. He went from a very happy, confident kid who had lots of friends, loved playing several sports, played the piano, enjoyed going to school where he got straight A's, to a complete disaster. I cried when I read many of these postings. All these stories sound so similar to ours. He had trouble sleeping where he couldn't get to sleep at night and then his sleep would be very restless (one time he punched a hole in the wall in his sleep, several times he fell out of bed) and he would be all twisted up in his blankets in the morning. Getting him up in the morning became a complete nightmare, I dreaded getting up in the morning because our mornings had become so stressful. He just could not seem to wake up no matter what method we tried and sometimes it could get quite ugly. We took him in for several sleep studies which didn't yield any results. He started feeling sick all of the time with frequent stomach aches and ended up missing alot of school. We had a CT scan done on his abdomin which didn't show anything abnormal. Because he missed alot of school he fell behind and his grades dropped, he stopped hanging out with all of his old buddies and he started getting into trouble. There were days when he would be rolled up in a ball in his bed crying, telling me that he couldn't stand the thought of going to school. This was not the son we knew and we, like most people with teenagers, figured it was just a phase and would go away. Unfortunately, he ended up getting thrown out of school and has moved out of state. He will not be graduating with his class this spring which is a tragedy. Although he has been away from us now for 10 months, we keep in touch regularly and he is doing great (he stopped taking Singulair well over a year ago). He has had a steady job that he loves for the past 10 months and is apparently able to get himself up in the mornings and to work on time. He has been living on his own, paying rent and all of the other associated expenses that go with this, he has not asked us for any assistance and appears to be coping very well. He has made a lot of new friends and seems to be thriving. We are very proud of him! He would like to get his GED and go to college. His transformation has been dramatic. The frustrating part is that it didn't have to be this way. We feel like we have pretty much lost the last three years of our son's life, and we're not sure when he will be coming home. We all miss him terribly, especially his brother and sister, there is a big hole in our family. And the stress of the last three years has taken a toll on our family. I have passed some of these postings on to our Dr. I hope all of the information on these postings will help to spare other families the sadness and heartache that we have gone through. If there is going to be a class-action suit I would appreciate receiving any information regarding that.

-- By sglisson | Reply | (4) replies | Private Message me


 

Medications contributing to congressman

Singulair (8)   Gardasil (2)  

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