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50 Side Effects posted for conversations

August 21th
2009
8:25 AM

I too have memory loss. It is humiliating not to recall events with friends and family and people I have been introduced to. I cannot conversations, movies and names of bands. I am 43 and have been taking this drug for seizures. The seizure disorder is gone due to the drug. I have gained weight, awaken with a severe headache on several occasions behind my right eye, feel tired and dizzy after an hour of taking the drug and blurred vision. I thought it was early onset of Alzheimer ( i forget how to spell it though I am in the medical field). My generalized Doctor and my Neurologist say this is not from the medication but from age and normal. The quality of life is not as I would like. I feel like I am missing out on my own life. Thank God I came across this blog! I have been researching this drug on the net and NOWHERE does it state this as a side effect. This is the only med I take.

-- By cranberrytwisted65 | Reply | (1) replies | Private Message me

July 30th
2009
11:51 PM

I have been taking Ambien CR for 2 months - almost nightly. I think it does help me sleep. Or at least if I don't sleep, I don't remember not sleeping. I do wake up the morning after with headaches. I have a lot of headaches anyway... so that is not that bothersome to me, unless they get to the migraine point. I feel like it affects my memory the next day. Also for about 2-3 hours after taking it, my husband and son say that I am very talkative (which I don't remember) I have had 15 min conversations with my son and not remember. I have sent text messages and not remember. I have not been told that I have done anything else. But that is concerning to me. If I didn't have any other options for sleep meds, I probably would stick to it, but I am going to try something else that has less side effects.

-- By mom2laurenshea | Reply | Private Message me

July 28th
2009
12:49 PM

I am taking the generic Bupropion at 300mg per day. I went up in dosage to 300 last month, I'm about 1 week in to my 2nd refill on the 300mg. I am having TERRIBLE side affects right now. At this moment I'm at work trying to concentrate on even saying the right words on the phone - I have no sick time left so I can't go home - my hearing is jacked up. Things fade out and then come back so loud. I feel as if I'm drifting off to sleep and things get quiet and then WHAM someone will say something to me and it's so loud like someone woke me up from a nap. My vision is a little blurry, and I can't remember things. Fortunately I can get away with this for another day at my job, I started feeling like this yesterday, just today started thinking it was my med. I'm not on any other meds. I'm dizzy too. The worst part is I can't remember conversations. At the time of, I know what I'm saying though slower, but if I'm having a lengthy conversation I will probably forget what you said at the beginning. The confusion is what makes me the most upset. Things that I know, little things like someones phone extension, I can't remember and have to look up. The weird thing is all these symptoms come in waves. I'll have a moment of 'normalness' and then right back into the symptoms. I'm even having trouble typing right now. - I'm not hungry and after reading this site I now know why I'm itching all over.

I got on this website looking for a 'quick fix' like eating a big meal, but see I'm going to have to rough it out another day here in la la land. Wellbutrin was working for me in the beginning, 150 mg for 2 months, increased energy, good attitude etc, then wore off a little so we uped it to 300mg. I'm going to go dwn in dosage, try taking the 150mg tomorrow and see how I feel. I hope this wears off!! I am curious to know if you can cut the dosage of 300mg pill Buproprion to 150 by cutting it in half? I just got that refill so I was wondering. Today is going to be so rough! I went straight to bed yesterday after work and guess I will be doing the same tonight. Oh great, my coworker just asked if I was "ok" because I'm being so quiet. Yikes. I've read this email about 5 times to make sure I don't repeat myself since I can't remember!

-- By tmurphy | Reply | (3) replies | Private Message me

June 22th
2009
5:44 PM

I have taken Lamictal for about three years since I was 19. I feel like I'm experiencing the memory loss of a 60- or 70-year-old. I've always been quick and witty with impeccable grammar and spelling. These days, I struggle to remember words and their meanings, spellings and pronunciations.

I can't remember conversations I had with people half an hour before or items on my to-do list. I MUST write everything down. Sometimes, if it's in my planner, I still don't remember to do it.

It has affected me in my college classes, on the job and in my relationships. I hate the feeling that I'm less intelligent and quick as I used to be when I'm just 22. My short-term memory is shot.

Along with memory loss, I struggle to focus (always have been a straight-A student), follow conversations and often feel confused and need people to restate their thoughts so I can understand.

It's just so embarrassing to be so spacey. I didn't put it together until my sister (also on lamictal) told me about the memory loss and it clicked. At least there's a reason for my new-found stupidity.

Thanks for telling me doctor. Oh wait, she didn't.

-- By nemequittepas | Reply | (2) replies | Private Message me

June 15th
2009
8:00 PM

I am a female in my mid-to-late 30's. I was on Topamax for about a year. The memory, vocabulary, concentration, focus, loss of words and 'confusion' got so bad it became a real problem at work and the rest of my life. When I started forgetting how to get home, the neuro doctor took me off of it. Those problems decreased a bit, but never entirely disappeared. After weening off the medicine, the full-blown headaches/migraines returned (Topamax only moderately relieved pain). So now in addition to the pain in my head, I have the lingering sides-effects to deal with. It cost me my job. I've been off Topamax for over a year and still have not regained control of my own thought processes. Among other things, it's embarrassing because I feel stupid. I no longer understand about half of what I read, have trouble following (and remembering) conversations, habitually forget what I'm supposed to do/have done/am doing. Forget being able to follow a series of directions. I am afraid Topamax has caused permanent damage to my cognitive brain functions and I have no idea what to do about it. Has anyone else experienced this problem?

-- By maverhe | Reply | (2) replies | Private Message me

May 31th
2009
1:46 PM

I feel somewhat reassured that it's a possibility that my memory loss is a side effect of lamictal. I was diagnosed with BP I and the medication has done wonders. I still get very depressed sometimes, but not as severe as it was without the med. I experience(d) rapid-cycling which I was told is less common for this disorder.
My short-term memory is horrible. Sometimes have trouble remembering conversations and even things that happened a short time ago. For example, I recently played a few games of pool with my son and on our way home, I couldn't recall whether or not I won any of the 3 games. It's pretty embarrassing and scary when someone "catches" you or notices that you have completely blanked. I have to write things down if I want to discuss them with my therapist, because I won't remember what my issues were within the last week or two. Sometimes, when someone asks me if I remember something, I act like I do, because I probably should remember it. Again, I feel like an idiot because I don't. At work, it's not too much of a problem, because I insist that everyone sends me a reminder email, so I have a task list to work from instead of recalling things from memory. I also get completely lost in my train of thought during conversations. I tend to go off in tangents and completely forget what point I was trying to make.
I also have trouble focusing and my mind is always because obsessing over some thought, usually something negative. I feel like I waste a lot of time doing unproductive thinking. I'm not sure if this is a symptom of the disorder of not.

-- By jl_cle | Reply | (2) replies | Private Message me

May 17th
2009
1:43 PM

Below is my original post from 7 months ago i am still waiting for most off these side effects to improve especially my memory which is still terrible and also the tinnitus ...the aches and pains are slightly better but that depends on the day only the severe itching is better but i still have the fatigue in the mornings ..

I am a 52Yr old male and was diagnosed with T2 Diabetes 2 1/2 yrs ago ....The doctor prescribed me simvastatin a few month later 20mg once a day all had been fine till about 6 months ago when I developed tinnitus and started feeling very tired...My concentration started to lapse especially when driving as i found i couldn't remember driving down a stretches of the road etc ie passing speed cameras etc ...my memory also seems to have slowed down and i have problems recalling recent conversations or things i have done etc...just recently i have been getting severe itching on the soles of my feet almost becoming painful i have pains /aches all over and now especially have pain in my left arm right knee and fingers...when i get up in the mornings i feel like i have run a marathon the day before as i ache especially my neck and shoulders...needless to say i have now stopped taking the tablets after reading this forum and i am seeing my doctor next week initially i put all this down to getting older ... S.

-- By ukmartian | Reply | (1) replies | Private Message me

April 8th
2009
7:20 PM

i hope you can help me. my daughter is almost 17 and started on yaz for severe cramps, heavy bleeding, and pmdd. within 2 weeks, the boyfriend that she hated to be apart from, annoyed her. he was all she thought about before.
about a week later, she said that everyone was bothering her and she needed a break from everyone. she stayed in her room in the evenings-not like her. she even broke up with her boyfriend. she said she wasn't upset with him, just not interested. she got back with him 2 days later. her gyn switched her to loestrin. after 2 days, she seemed to be doing better, but only for 3 days. i don't know if it's the hormones or if she's going through something. she is normally an upbeat, optimistic person. i don't know what to do. she was very serious and happy with this boy 3 weeks ago. i don't know if she could be depressed because she doesn't feel the same about him or she doesn't feel the same about him because of the pills. any opinions or suggestions?

-- By mom92 | Reply | (5) replies | Private Message me

March 18th
2009
11:38 PM

First of all, I want to say that I'm sorry for all of you having physical discomfort in your lives right now. I feel for anyone who is experiencing such problems.
With that said, I have been on YASMIN (not YAZ - those are two different things people!!!!) for 8 years and have NEVER experienced any problems despite experiencing problems on other pills. Pardon me being frank... If you are one of the women who BARELY started this pill in the last 3-6 months, you may have not given it enough time. You must remember that by taking any medication you are changing the chemical balance of your body and it will take time and adjustments. Bottom line, you need to carefully monitor your problems and discuss them with your ob/gyn and possibly general physician. You may just need to try other pills. This is TRIAL and ERROR, there is NO way for a doctor to be able to know how each person's body will react to any particular drug. Be open and pay attention. If you search about any birth control pills, you can find there are side effects for all of them. Second of all, some of you may have these existing problems, but never noted them until you started taking the pill, or as I said before, you have not allowed time for your body to adjust. For example, when you have a headache or indigestion, you take medication and it takes time for your body to adjust to the meds. Please ladies - don't bad mouth or assume, without first allowing for the already published side effects to come - and most likely, pass. And if they don't - talk to your doctor!!! Seriously!!! The makers even say to talk to you doctors if any of the published side effects happen. I do apologize for being harsh, but I must insist on being practical and reading the material provided. I do hope that each of you stay in good health and have no lasting problems.

-- By mrswilliams1023 | Reply | (5) replies | Private Message me

February 22th
2009
3:17 PM

I have been taking ambien cr for over 2 years. I did not realize I was having side effects until I started to notice things, and my family would tell me things. I was cooking late at night, full meals and eating them. This I would do either for my self or me and my son. He said I would carry on conversations with him and clean after I was done. I have gotten in my car and went to visit people, or went to the store (no memory of these acts). Just this morning I woke with a band-aid on my finger. Called my husband at work. He said I was washing dishes and he had been watching me do this.He said I cut my finger with a knife on accident and I said "ooh, i cut my self", and then I said "oooh look, there's blood". He immediately took care of it but he noticed I could not stop stumbling and I just stared at my finger like a zombie. Evidently I continued this behavior for over an hour and a half. He assumed I was awake because I was talking to him. But my words were limited and only in phrases. He took me to bed and I went straight to sleep. Just a few days ago, my husband was telling me about me and my son going to the store one night. (no memory of this) Now he is scared and he hides the keys, although he is a heavy sleeper. First he thought this was kind of funny, because I seemed so lucid. Now he has taken note of things. Like damages to our car, my new found OCD (with no memory of fixing and cleaning things), my need to be left alone and expressing this only at night, and how I don't need him in my life and how I feel I am a horrible person, all of these things occurring at night after I have taken my ambien. My biggest concern is the sleep activities and knowing that I am involving my son without knowledge. Thank goodness he has not been injured. How would I know if I have hurt someone with my driving? I don't. If my husband hides the keys and he wakes up and the keys are on the table and the vehicle is parked different. He knows it had to be me. I have even gotten dressed and went to the club (no memory of this, people telling me about me being there cause they saw me). And me seeing the clothes I wore laid out on the floor. Yeah, its gotten out of hand, I want to stop taking it, I need to. I tried and stayed awake for 8 days and then slept for 3 hours.Depression is only there when I am on the ambien, not when I am awake during the day. I have lost track of times and events. Memory loss is a horrible thing. I can't remember things from last week or last year. Its like gaps in my mind. Scary, yes, heartbreaking definitely. The breast pains, I thought that was just something new going on with me, still may be. I have to wear sports bras, to constrict any movement, if I don't it feels like someone hit me in the chest with a bat. I tried Lunesta (the rashes were unbearable). As you can tell, I am an insomniac. I am not sure what to do. I will call my doctor but I thought the sleep activities were not real. Now I know they are.

-- By insomniac74 | Reply | Private Message me

December 16th
2008
12:28 PM

I have been through 5 cycles of IVF treatments all taking Lupron shots. The last cycle was 3 years ago. Lately, within the past 1-2 years, I have been very forgetful with names, forgetting where I'm driving to, in the middle of conversations, etc. And I also have knee pain but I'm not sure if maybe that is a result of working out too much at the gym. I am concerned with the constant forgetfulness and possible other side effects as I get older. I am now 42. While I was taking Lupron all that time, I have to say that I felt pretty good, aside from the small headaches from time to time. It basically stops your cycle. I do feel bad for those women who have had worse side effects. And I do question whether it ever leaves your body and if other side effects could be brain tumors (I heard that somewhere). Any insight would be appreciated. Good luck to all.

-- By comini1 | Reply | Private Message me

December 3th
2008
12:49 PM

I had my second Lupron shot this last mid October that lasts, supposedly, 3 months. So I will be 5 months in this mid December and I have to say I was one of the people who was fine with Lupron...up until now. I had and have all of the typical side effects of hot flashes, headaches, memory loss, mental fog, etc. Then I had my first ever migraine a week ago that knocked me on my butt for 2 days. My memory loss and depression are by far, by far, the worst side effect I have experienced. At this point I am concerned my memory problems and mind fog will not go back to normal, which has already adversely affected by daily life. I was one of the people who spoke positive of this injection even after reading all the horror stories but now I am beginning to wonder if they were right on some levels. When reading all the different experiences I would get confused and wouldn't know what to believe. I am not saying I would change things, the jury is still out as to whether the benefits will outweigh the difficulties, but my personal experience and symptoms have been getting worse just in the last few weeks, so that would be between month 4 and 5 on it. I could lead a pretty normal life up until recently and I'm a pretty tough person, I clean houses for a living and work hard with a packed schedule so I am not just stating little symptoms I experience but ones that actually have affected my daily life. Just being honest so you know what to possibly expect, depending on your body's reaction. That is a point to keep in mind, everyone's body reacts differently but if the majority of people are saying the SAME side effects, makes you wonder if there is a consistent pattern.

One thing I will tell you that has helped me is B vitamins regularly in your system and staying as active as possible. Write things down to remind you for the memory issues, don't over-commit to things because of the mental affects-it hits you hard when you can't follow through, and try to watch your sugar intake, which messes with your emotions. Hope this is helpful.
I would love to know from someone who has the same symptoms (which looks like almost everyone who is on it) and who is now off of Lupron for at least a few months, if the symptoms of memory loss and mind fog go away. Is my memory permanently damaged?

-- By brpavey | Reply | (3) replies | Private Message me

October 26th
2008
5:18 PM

Hi there. Im a 25 yr old fem im type 1 diabetic I have been on this medication for 4 days and i could tell its causing problems

My side effects include a lot of mental issues
anxiety and depression
the second day i took this i went to work and thought everyone was mad at me because they were on the phone when i said hi or because they were looking at a paper when i was talking to them

the next day when i went to pick up my kids i felt like my mom and my sister were ploting against me

while my husbands at work im feeling more needy and i call him wanting him to stay on the phone with me when i know he cant

im also experiencing memory loss i cant remember getting off of work i remember going down stairs but like it was something i dreamed and it was foggy and details went clear

also conversations with my husband are like dreams and foggy

im usually a detail freak and can tell u exactly what u said if u mis quote your self

im calling my doctor i thought it was jst me but im sure it has something to do with Lisinopril

Thanks Guys!!

-- By mlesly | Reply | (3) replies | Private Message me

October 17th
2008
8:30 PM

I've been on Welbutrin for about six months, along with Zoloft. I had tried it because of the lack of motivation and the lithergy I was feeling (I suspect) as a result of the Zoloft. I came across this site after a search for memory loss connected with Welbutrin. I believe I'm having that problem. I don't seem to have the quick grasp of words I did. In a phone conversation today, I could not remember a certain medical term that I have been using rather frequently over the past six months. There are some other cases, but that incident put me on the trail of memory loss research. I actually suspected that it was the Ambien I had been taking for sleep (I have not completely ruled that drug out). But all the posts here seem to indicate that the welbutrin could be at fault.

I'm on 150mg, twice daily. However, in the morning, I will actually take one and a half pills (225mg) to get me going. I have noticed CONSIDERABLE jitters, hand tremors, enough that if I'm doing delicate work of some type, I have difficulty continuing ti complete the task. At the 225mg, I do seem to become over amped a bit, but it improves my motivation. A St. Johns Wart capsule will usually calm that, but you see the problem of one drug, helping one problem, but causing another, so you take a third! I have tried numerous other antidepressants and they all caused more side effects than they were worth.
Celexa cause an eventual complete lack of ANY motivation! Plus SERIOUS sexual side effects. Zoloft has been the best with the least side effects and I have always returned to it. But the sleepiness can just be extreme with me.

I have run out of Welbutrin and the result is return of the lithergy. I also believe that the Welbutrin may be causing my occasional up tick in anger. Possibly spreading the dosage will help. Not mixing it with caffiene may also help because caffiene can make me explosive if I don't limit my intake to about a cup of coffee. Most of you know that Zoloft, Prozac and the like increase the available seritonin in your brain, a calming neurotransmitter. Welbutrin increases the available norepinephrine, a stimulating neurotransmitter, akin to adrenalin. (Research for yourselves those facts, remember, I posting this because of a problem with MEMORY! :) So it makes perfect sense that people can become overstimulated with Welbutrin. The memory aspects of it, I don't yet understand. I'm going to experiment with dosage reduction and possibly replacing the Welbutrin with the amino acid L-phenylalanine. I hope this little post can help some of you as much as the other posts here have helped me!

Burt

-- By burtbrown_100 | Reply | (2) replies | Private Message me

September 17th
2008
4:31 PM

I am a 52Yr old male and was diagnosed with T2 Diabetes 2 1/2 yrs ago ....The doctor prescribed me simvastin a few month later 20mg once a day all had been fine till about 6 months ago when I developed tinnitus and started feeling very tired...My concentration started to lapse especially when driving as i found i couldn't remember driving down a stretches of the road etc ie passing speed cameras etc ...my memory also seems to have slowed down and i have problems recalling recent conversations or things i have done etc...just recently i have been getting severe itching on the soles of my feet almost becoming painful i have pains /aches all over and now especially have pain in my left arm right knee and fingers...when i get up in the mornings i feel like i have run a marathon the day before as i ache especially my neck and shoulders...needless to say i have now stopped taking the tablets after reading this forum and i am seeing my doctor next week initially i put all this down to getting older ...
Steve

-- By ukmartian | Reply | (1) replies | Private Message me

September 17th
2008
2:08 PM

I've taken Ambien only once or twice with no side effects. My boyfriend however, takes it every night. He goes on ALL night eating binges, consuming almost everything in the kitchen. In the morning, the kitchen is littered with empty peanut butter jars, cracker boxes, cold cut wrappers, ice cream containers, jelly jars, left over take out boxes, etc. etc. This is what he consumers in just one night. This also happens night after night. I've asked him about it, and have had conversations with him while this is all going on. He seems lucid, but has absolutely no memory of his eating in the morning..But this new problem happened just the other night. We had what I thought was really terrific sex..You could have knocked me over when he said he did not have any memory of it what so ever This really scared me, and really got me thinking. He seems very sluggish during the day, without much energy. He has basically stopped going to the gym every morning, and I can see that he's putting much less effort into his very lucrative business. I've mentioned Ambien as a possible cause of these behaviors, but he doesn't seem totally convinced...What else could it be?

-- By wiskers | Reply | Private Message me

August 6th
2008
11:17 PM

I have many of these symptoms and have had them for several months but was waiting for a stress test, which came out fine. Finally called the doctor last week and he changed me to Novasc. Coughing at night, coughing on the phone, in short conversations, cough! cough! cough! They say it can take about two weeks for it to stop and I am on now five days and look forward to the day it ends! Cough, gag, sneeze, eyes start watering! Why wait til August? Call the doctor now!

-- By jlipsoccer | Reply | Private Message me

July 29th
2008
11:29 PM

I started taking this med on 6/1/08 after taking Atacand for 4 years (had to switch for ins). Anyway, I feel for anybody that takes this stuff. I started coughing the very next day. I have no appetite because I cough to the point of getting sick to my stomach and aching in my gut. Nothing tastes good. I am totally exhausted. I wake myself up coughing at night and am totally worthless during the day ( I have always been an active person). Can't talk on the phone because of the coughing spells. Go out in public and start coughing out of nowhere. Get stares because people think you have some disease. I CANNOT wait to go to my Dr. in August and tell her she has got to find something else for me! I can't believe this stuff is still being prescribed since I have read some really bad reviews about it.

-- By badstuff | Reply | (1) replies | Private Message me

July 14th
2008
4:04 PM

This site has made me realize that I am not crazy. Well, now I am... But not for long, I have had my Mirena since 2/2005 after the birth of my daughter. Yes, there was a lot of cramping at first and the insertion was awful. The Dr. reassured me that I would begin to feel better and gave me time frames as to when cramping and bleeding should stop and may even stop completely. Wow, this is great! I thought... I nursed my first year and at the 6 month mark my production slowed. I've heard this was normal. I was proud that I had gotten down to the pre-baby weight. No credit to Mirena. This was strictly due to nursing and some exercise. At the year mark I became more and more irritable, per my husband. I was Forgetful or should I say had difficulty holding conversations due to forgetting simple words... I was depressed and just plain mean... He was right. I didn't notice until he said it, I was angry all of the time. I was reluctant to go on any pills; I feared I would be labeled as crazy. So, instead of meds we ended up needing to see a marriage counselor. Yep, after 5 months of babbling about my childhood and bringing about a normal conversation with my husband again, I end up taking medication. I had been convinced this was simply a little postpartum and everybody is depressed after a baby so I was put on some generic version of Prozac (temporarily). Had some dizzy spells at work (very embarrassing). In the summer of 2006 I started have pain during sex. I could tell it was coming from the ovary. It was on my left side. Of course, my husband had to deal to with the constant feeling of rejection. I was thinking I'm just constipated and the added pressure is well... you get the idea... Hurting everything else. After a few months of this I made an appointment with my OB doctor. I had a 5 cm cyst! I was told this could burst or possibly twist. Then I am restricted to no sex and light exercise. Within 3 months that cyst burst it sent a burning sensation through my abdomen to my upper thighs. I have a lot of abdominal pain and bloating. I went in several times later but was never diagnosed with having anything wrong. Suggested to see an Oncologist (never went). Now to the current year of the Mirena... I mentioned earlier that I had lost all of my weight back to 114 pounds (I'm petite). Within the last 4 months I have put on 17pound and still climbing. I am having some horrible pains on the right side now which I know is the return of another one of those cysts. It must be a dozy, this one really hurts. And having acne breakouts of a teenager. So let’s review... From this post I have experienced the depression, cyst, weight gain, acne, forgetfulness, dizziness, stomach pains, bloating. I want it out I had scheduled to get it done on 7/17. My husband freaked and now has scheduled to get a vasectomy. He has asked me to wait until his procedure has been done before I go through with it. So, I am waiting but am interested to hear how soon we become normal again when all foreign objects and medications has been removed.

-- By jandringa | Reply | (5) replies | Private Message me

June 27th
2008
4:58 PM

I cannot tell you how relieved I am to have found this site! I have been taking YAZ for just over 4 months. I started it to try to lessen menstrual flow, not for birth control as I already have my tubes tied. I am a former professional athlete and very in-tune with my body. I am currently 43 and had my tubal at 29.
I started having issues fairly early on, but they were gradual, yet intense. Two things showed up - memory loss and extreme mood swings. I started having difficulty remembering the simplest things and would forget parts of conversations had only minutes earlier. Then the mood swings started. I am a very stable person, even around my period. I began having suicidal thoughts for no reason at all. One day fine, the next day wanting to end it all.

I have put on 14# in the 4-month period, visible cellulite now on my thighs. Vaginal dryness, brown gunky, pasty residue after my period (which never actually stopped) and decreased sex drive.

I called the doctor and stopped taking them as of today after finding this site!

-- By repo1123 | Reply | (1) replies | Private Message me

June 27th
2008
3:54 PM

I would like to let people who are new to the Lamictal "experience" that it was VERY uncomfortable for me during the first few months also. In fact even at the very low introductory doses, I did not think that I could ever function in society.

The extreme confusion, the memory problems, the spaceyness, the feeling of detachment from everything that surrounded me... at the time I felt that I would never be able to function as a worker, a friend, or as a social being.

As time went on though, things did clear up for me. It took a few months, but I'm guessing that my brain function/chemistry finally somehow regulated itself, and my side effects did clear up. I am at a dosage of 600mg per day now, and yes, I do sometimes feel detached, but I certainly can function. My memory has also improved. It sometimes takes me a second or two to find the "right word" during my conversations, but a simple, light hearted mention of the problem resolves the issue for the person that I am speaking to.

If you are just getting on Lamictal, try to be patient. I have found that in time, it has helped me much more than the side effects hurt me. It did take a few months to get used to, and I did have to explain to others at work that I may be acting strangely for a couple weeks because of it... but the overall effect is quite nice now.

Lamictal now helps control my seizure problems almost completely, and has the added benefit of making me feel much more confident, and balanced.

-- By smiffboove99 | Reply | (2) replies | Private Message me

April 15th
2008
12:27 PM

My husband and I have been increasingly worried about our 11 year old son lately. He had been becoming increasingly unhappy and difficult. He was in the school play, one of the things he loves most, but had no enthusiasm or energy for it. He seemed apathetic about many activities he had always been eager to participate in. I kept thinking maybe he was just tired and too stressed out. It seemed like almost nightly he was sinking into anger and depression. We were walking around on eggshells trying to prevent him from spiraling into one of his angry moods where he would just shut down and say he didn't care about anything. The happy, cooperative, well-adjusted kid we had always known was gone.

Three weeks ago we began to talk about the fact that maybe there was more going on than just adolescent angst. We were beginning to believe some kind of professional intervention might be required.

Two and a half weeks ago our local paper ran the story about the Miller family whose son committed suicide while on Singulair. My son had been taking Singulair for three months.

The same day the newspaper story ran, my son had another tough morning When I went to bed that same night, I found two “suicide” notes from my 11 year old on my pillow. (He had not seen the article.) In one he asked for a gun or knife for his birthday so he could kill himself. In the other, he told me he had been thinking about killing himself since February.

My life for the past month has been filled with conversations and appointments with the suicide hotline, the pediatrician, a psychotherapist, the school social worker, the mother of the boy who committed suicide, the FDA, etc. etc., filling out forms and writing notes and observations.

My son had just recently finished his last bottle of Singulair. I had not yet refilled the prescription, and we have no intention of doing that. The turn around in my son has been extraordinary. My incredibly exuberant and joyful son is back. I did not realize until the past few days how much light he brings to this house and how far away he had faded. But everyday, as the drug leaves his body, his beautiful, loving, affectionate, helpful happy self returns. We just kept thinking for so long… I guess this is normal for a 6th grader. It must be adolescence. It is an incredible gift to see the cloud lifting.

I worry a great deal about the children who are not as severly affected - whose parents are thinking, as we did, maybe this is just typical for kids this age. I am incredibly grateful that my son was finally able to articulate some of the horrible feelings he had inside, and that the article appeared when it did to give us some clue as to what we were really dealing with.

-- By skye1289 | Reply | (1) replies | Private Message me

April 10th
2008
5:40 PM

Follow up to my post earlier today...

I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.

I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.

I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.

Last night was the last time my son will take the drug, and I don't care what the doctors think of me.

-- By adschimek | Reply | (10) replies | Private Message me

March 31th
2008
1:16 AM

I am a 29 year old female. I have been taking Singulair for approximately 5 years. I have indoor/outdoor/food allergies with allergy induced asthma. In addition to Singulair I take Zyrtec, Advair, Diflucan, Albuterol, and allergy shots (all of these are for my allergies). Due to the nature of my job - I do a lot of research on various drugs. I would be the first to tell everyone that when they're prescribed a new drug - it is worth it to go to the website and look at the potential side effects. I also tell everyone that when they do see a side effect, to consider how many (or few in most cases) people actually experienced these side effects. That said - I do these things regularly - for myself and for my family. I am also well aware that much of the time - I/my family, will never experience these side effects. That said, there is a pediatrician on here who has commented that other drugs are worse and has quoted, "once a stone is thrown into a well, thousands of smart people won't find it" - this may be fact - but it is not very helpful to people who have truly experienced problems. While I might tend to agree with his/her view to some extent, there is also the side of me that knows my own body. What I have to say about my experience with Singulair is this: In 5 years, I have several times felt not only depressed but many times severely depressed and very anxious. These symptoms have increased over the years. The last 3-4 months of my life have been terrible. Happiness comes infrequently and sadness and anger have become my prevailing emotions. I have been a very happy and optimistic person the majority of my life. This has been a huge struggle for me - so much so that I actually have conversations with myself when it comes on strong - I have to remind myself during these times that I am a normal, happy person, and that nothing is as bad as it seems. After 28 years - I know my body - and THIS person, is NOT me. I am not a follower - nor am I a whiner/complainer. I can say though that until there are more clinical trials done - I can't know all of the science behind it and whether or not it is the Singulair is causing these side effects. My thought is that there may be a possibility that my side effects are caused by the combination of drugs that I take - not strictly from the Singulair. In my case - and because of the other drugs that I take - I can probably, safely stop taking Singulair and judge for myself. The good thing about Singulair? It works for my allergies; it works very well as a matter of fact. Other side-effects though - I had an ongoing sinus infection for about the fisr 5 months I was taking it - and I have amazingly vivid dreams - some very scary and some very real. Additionally - I would never want to discount a pediatrician's opinion - nor would I want you to distrust your/your child's physicians - however, the sad truth of the pharmaceutical industry is that in order to sell their pharmaceuticals - they must convince physicians that they are effective and/or more effective than other drugs that treat the same disease state. Many of these physicians are paid to give lectures on new drugs or new drug indications. And some of them (not all) will always prescribe a certain drug because that's what they've 'promised' to do. The main thing I want to say here is this: if you are taking Singulair, and you have truly been experiencing these side effects - do the research; be objective; consider other medications you may be taking; express your concerns to your physician; if you are an adult and you take other medications that control your asthma/allergy symptoms then stop taking it and see if you notice a difference. If you have children that are taking it or you have severe symptoms that would be detrimental without taking the Singulair - talk with your/your child's physician about the possibility of changing the drug to something else and explain your concern. If you physician is unresponsive - get a second opinion. Many people who are on Singulair have both an allergist and a family doctor - talk to both. I have read that many of you have taken your child off of Singulair - let me just stress the importance of talking to your physician before removing your child from a drug. Not to scare anyone but perhaps the suicide side effect was caused by someone taking it then stopping it - or some similar cycle. Personally - I believe that I have a large benefit from taking Singulair - but because of the depressive/anxious feelings I've had the last few months - I am going to stop taking it and see if I feel any better. I would like to say that the benefits of taking this drug out weigh the risks - but for me - if my quality of life has become miserable (which it has) - I will try this option of taking myself off the drug before talking to my physician about taking an antidepressant or something similar. The side effects of those can be much worse. Hope I was helpful.

-- By eward | Reply | Private Message me

August 12th
2007
4:44 PM

My husband used to take Altace fo HBP. It wasn't working so his dr. put him on Lisinopril in Feb. of this year, 2007. He had to keep lowing the dosage until he reached 5mg. It knocked him on his ass, he has no energy at all, no sex drive, we have not had sex since Jan. He is tired, tired tired all the time. He also coughs but is a smoker, wakes up at night with his t-shirt soaked. He has told his dr. this and he says it's where his BP gets low and his heart is pumping trying to keep up with his body. He had bloos work done and has found out he's anemic. I don't know if the medication has caused this or not. Since June 2007 he has had to have 2 blood transfusions, has gone through scopes, more blood work and we are waiting results of the lastest done Aug. 7, 2007. He goes for a CAT Scan Aug. 21, if the dr. isn't satisfied with that he's doing a bone marrow test. Could this be the result of lisinopril? Anyone else having these systoms?

-- By bcmay1978 | Reply | (2) replies | Private Message me


 

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