Coq10 symptoms and conditions

August 12, 2009. I have been on Zocor/Simvastatin (40mgs) off and on over 5 years. I do not have any muscle mass left. I am an avid walker and exercise as much as possible in addition to still working in a high pressure position at the age of 72 (thankful for the job). My entire body hurts constantly, hands, fingers, legs, knees, neck, back, head and other parts to numerous to mention. My sex life is the pits. My doctor tells me I have high cholesterol that must be controlled by medication. I had a quad bypass in 1999, a cardiac defibrillator installed in 2003 (Actually 3 of them, first one was defective and went off, got a severe infection on reinstall #2, and 3rd one still is in and working hopefully). I never had a heart attack, no high blood pressure, just clogged up. I take enough medication to kill an elephant. At 72 I am going to trash the Simvastatin because I know it is the basis for my muscle loss and severe pain constantly. Doctor also had me on Lipitor for a long time (5 years). Statins really suck!

I had a small stroke associated with weightlifting--my neurologist put me on lipitor 80 mg (despite the fact that my cholesterol was totally normal)--now about 3 months later my liver enzymes have doubled and I have developed a heart arrhythmia I never had before. I have had to go to the emergency department twice from palpitations and diaphoresis

Has anyone experienced muscle loss of the heart since they are on vytorin? In 15 months on Vytorin my heart ejection fracture went from 48 to 30.

My healthy, active 55 yr old husband of 30 yrs was prescribed SIMVASTATIN in Aug. of last year. He started having pains in his legs & back and had an appointment in Oct. with the dr. to check on how he was doing with the new drug. When he went in to the office, he was having terrible pains in his chest, legs & back. The dr. immediately called 911 thinking he was having a heart attack. He was in the hospital for a week while they ran a multitude of tests. All came back clear for his heart. He kept telling the dr. that the back & leg pains were still there. They didn't seem to be concerned about anything except his heart. He was dismissed continuing to have pain. The pain steadly increased over his whole body, then in Feb. of this year, he suffered a major seizure and spent another week in the hospital. This time they wrote it off as epilepsy and put him on anti-seziure pills. After he was released, the symptoms increased, his memory, vision & balance are all effected, he has chest pains, depression, and is in constant pain. He's been sent for numerous MRI's, bone scans, blood tests,etc. He has been to neurologists, neurosurgeons, chiropractors, physical therapists, etc. The entire time, his health has declined because he was being poisoned by Simvastatin. Finally, after doing our own research, we found a neurologist that recognized the problem. He told us that this drug distroys muscle tissue and that the damage may be irreversible. My husband can no longer work, drive, or enjoy life. He walks without a cane or walker, and depends on pain pills because the pain is so severe. He stays in bed most of the time due to the pain and lack of energy. He has been off Simvastatin for a week now with no change. We are hoping & praying for improvement over time. PLEASE, if you are your loved one are taking this drug-STOP IMMEDIATELY. The results can be devastating. I can't imagine why the FDA would approve a drug like this that destroys quality of life.

Ok...now I am really angry. I posted in early June. I am 7-8 weeks out from stopping the drug (only took for 2 weeks) and, while I feel better in the am, I continue to have "attacks" mostly at the end of the day after work or when going to sleep. I have minimal dry mouth/cough (keep drinking water/peeing constantly but ok because I am eating foods to dump water which is why doc wanted me on this poison to begin with). The feeling woozy and nausea has subsided. I continue to have racing heart (happens when about to fall asleep and causes anxiety/insomnia), sharp pains all over the chest and in left arm (constantly think I am having a heart attack/stroke), tingling/burning in hands/feet, and to top it off shooting warm burning pain (very annoying) up and down legs (this is new). My doc told me to get off all my supplements (because he knows nothing about them and thinks they are complicating the picture...now I think he is ignorant). I restarted my CoQ10 which is protective for the heart and the racing has stopped so far (been a few days). In my research, most of the symptoms fall under "peripheral neuropathy" which can be caused by toxicity from drugs. Natural treatments suggest making the body more alkaline and detoxing the organs by eating nutritious foods (organic when you can), exercise, drinking lots of water (with lemon and cucumber slices which make the body alkaline and purify the organs) and taking alpha lipoic acid. To treat the neuropathy make sure you are getting enough vitamin C, E, and B complex with B6, B12 and folate/folic acid (I take B100 caps). Please research these before taking anything and make sure its right for you. I used to say check with your doc but, in my experience, most don't know about natural treatments. I will post again in a week to let you guys know how its going. Best of luck to all.

For those of you taking this drug and want to get off, please know it takes 3-4 weeks (longer in others depending on your metabolism) to be "totally" out of your system. Don't think you'll feel better in a few days. Give it a least 6 weeks to show significant change in your symptoms. I know, my husband took this and was having mental sluggishness, depression, confusion which led to many other tests. He has been off the drug now since Sept 08 and off the anti-depressant too. Guess what...no depression has returned since being of this drug. He's back to an aspirin a day, what he took before this nightmare began. Anybody taking this drug should stop immediately. It's the drug from hell!

I am 47 year old female with 5 days of headache and high diastolic bp. Doctor prescribed lisinopril. It made me want to sit for hours without moving. I was sleepy but could not sleep, cloudy thinking, anxious, thought I was going to die, had pangs all over my body and in extremities, racing heart with difficulty catching breath, etc to all the above symptoms. I stopped it after two weeks. I had bronchitis for four weeks. Then I developed dizziness/nausea and burning in the hands and feet. After researching that, I took a B12 and that tingling symptom cleared in a few hours. I don't know if the drug changes the metabolism in your system. I still am fatigued, occasionally have racing heart, and problems with sleep. Don't know how long it may linger in the system. Can't seem to find an answer. It has been 2 months since I took it and 6 weeks since being off it. By the way, my BP is now typically 117/82 with loss of 15 pounds. I prefer to treat naturally. Look up Taurine, CoQ10 and Hawthorne and see which may be best for you.

Three and a half years ago i suffered a heart attack, i had three stents put in and was put on Aspirin 75mg, Cardicor, 1.25mg, Tritace 5mg and Lipitor 80mg. I was fairly fit at the time, didn't drink or smoke and ate properly.

But now i'm suffering, i've been to the hospital and my GP, but are told there is nothing wrong, my hear tis good. So why am i suffering with light headedness, pains through my body, back, neck, chest, stomach. So much so i thought i had gall stones or kidney stones. My right knee can't be touched, it is so sore. Chest heaviness, eyesight getting worse, slurred speech, depression i could go on.

I've said this to my doctor, he just brushes it off and says i'm on them for life, ....apparently standard treatment for anyone who's had a heart attack. I walk 5 miles a day, eat 5 or more fruit and veg, don't smoke or drink, do all what i'm meant to. My cholesterol is really low, but so is the HDL too. I was never recommended CoQ10 or a vitamin B complex.

It was my mother who told me to research the side effects of all the meds i'm on. I agree, we all want to live a long and healthy life, but at what cost. I am now of the opinion that doctor's are so use to thinking they are near god like, they have forgotten that we are individuals, that we know our own bodies. I'm sick of the fact that the large pharmaceutical companies send out there sales reps to doctor's surgeries and that is what is deciding what the patients end up taking and not the patient's problem.

DOCTOR'S WAKE UP TREAT THE CAUSE NOT THE SYMPTOMS!!!!!!!

I took Zocor for 9 months after I had a heart attack. After about 8 months I began having sever muscle spasm in my legs. I had a couple of episodes where when walking I couldn't pick up my feet and thought I was having a stroke and had to sit down and rest before walking on. I had to do this several times to get where I was going. I told my cardiologist and he had me stop the Zocor. The spasms stopped but I never regained the strength in my legs. Today I have had to put ramps in at home cannot climb steps. The ramp is difficult because of the incline but it is better than crawling up my steps to get in the house. I can only walk about 50 steps before my legs give out on me. I cannot walk on uneven ground without holding on to something or someone. I have now had 2 back surgeries because I have been told over and over it is my back with no relief for the legs. This last surgery my left foot drags and my big toe hangs down and I cannot pull it up. Now I fall a lot because of that and have to wear an AFO to keep my foot and toe up so it doesn't drag and trip me. The back doctor thinks it another pinched nerve and wants to open back up again. I am so tired of them trying to convenience me it is my back when I know it was the Zocor and the damage apparently is irreversible but no one wants to agree with me. I am sick of it and just wish they would say yes it was the Zocor and get you a scooter and live the best you can. I know I am headed for that road I use a walker and cane when I don't have someone with me to hold on to. Because I am so unstable on my legs.

33 year old, 125lb female with cholesterol of 234. I was put on Simvastatin 40mg, which I took fot 3 night only. All hell broke loose, insomnia, hands are numb, severe joint/back pain, extreme weakness... The thing is, I took it for 3 nights & realized it wasn't for me. I've been off of it for 3 weeks, but the symptoms still persist, rendering me pretty much dead.... I was told by a few that putting me on 40 mg to start off probably did the job... Three week of living hell & my primary physician don't have answers for me!

had horrific muscle pain and had burn blisters on my legs. I was just on the drug for 1 week also had severe headaches, there has to be some repercussions against this company. The pain is still there what should I do?

I have definitely noticed a weight gain! I started really watching my diet and running and it doesn't seem to be helping. Also, I have had problems with severe muscle aches and swelling in my right leg. It got so bad that I started taking prescription Naproxen for the pain, so I can sleep. I had no idea others were experiencing the same thing.

It has helped me a lot reading everyone's experiences with the "dreaded" Simvastatin. I have been off this poisonous drug for 7 weeks, and am still feeling rough, and thinking when is this all going to go away ! My doctor swears blind it is nothing to do with the Simvastatin, but I am a 100% sure it is , as I felt fine before I took these nasty tablets. I still have persistent buzzing in the ears , dizziness, palpitations, constantly tired , and generally feel as if I am on another planet. Ive had blood tests , ecg tests and nothing has been found. Im hoping one morning to wake up feeling "normal". I will never , ever, take Cholesterol drugs again , as I don't want to go through all this again. I really feel for everyone that is suffering, and would be interested if anyone is having the same after affects as myself.
Good luck to everyone who is suffering like me .

My mother, who is in her early 70's, is diabetic and had high cholesterol. She had been taking Lipitor and the doctor increased her dosage. She was experiencing muscle pain for some time, especially when she woke in the morning. The muscle pain worsened and her muscles became very weak. She had been complaining to her doctor for some time. It took a chiropractor to suggest it was the Lipitor. Her doctor finally ordered blood work and her enzyme levels were at 9500. She was immediately hospitalized, tests run and IV's given to flush the Lipitor from her system. She was expected to slowly recover. After weeks, her levels dropped to 6500 then began to rise. Her doctor now says her muscle damage is permanent and plans to give her prednisone to stop the inflammation. This muscle damage is a terrible "side effect" for a drug that was supposed to help her. She can hardly get up or down from a sitting or lying position, can hardly walk and her lifestyle has been severely curtailed. She is also exhausted all the time.

I to was put on Lipitor 20mg. took it about 1 month and had such pain in my leg muscles I couldn't hardly walk . I went to my doctor he said go off it and I should start Zocor in . A month the pain was worse I couldn't even walk around the mall . I couldn't sleep at night the pain was terrible. Once again I told the doctor he said stop it and we will wait 6 weeks and start Crestor. In six weeks the pain should be gone. It didn't go away I could hardly walk at my job teaching at a Pre School. The pain unreal.I have type 2 diabetes under control for years. Still is.I was told I had arthritis. But now they tell me I have spinal stenosis. I'm on paxil for the depression they said I had and. I feel as bad now as I did 4 years ago when I was on statins. I can hardly walk, my life is pain in my muscles that never leaves and now my back. I was active and watched my weight and walked 3 miles a day. Since taking these meds. I can no longer work, go shopping or go anyplace I have to walk . I have gained a lot of weight . I have something wrong with my knee .I have tried to explain this to 3 doctors and no one listens to me. My health turned for the worse when I started taking Lipitor in 2005. I don't think I'll ever get my life back I am only 58 years old and can't work to support myself.I can't even hold my 1 month old grandson and walk or lift him from his bed. Reading all your messages . I know my health going down like this is from the statin drugs I took . When I sit , I can't walk when I stand Then .I gotta sit in 5 to 10 minutes.And the pain in my knee has progressed. No doctor wants to hear my story and believe me. Thank God I found this web site and read this for my self now I know I'm not crazy. How can I get myself better ? Will I live the rest of my life in pain, and not able to function.Every time I see a doctor they give me another pill to take. I want to just throw them all away .There must to be an answer to this.

a little update. i took 5 mg lisinopril for 3 days, had blood work done on Monday and afterward, took the 4th pill. so the bloodwork reflected only 3 pills of 5 mg each. my potassium level, which right before starting lisinopril, was 3.9- was suddenly 6.4.
doctor called Tuesday, told me to stop taking lisinopril, come in for an EKG and have more blood work done on Thursday, 3 days after stopping
he just called to tell me that my potassium levels are back to normal

I am generally classed as an active, happy and positive person, loving life.... but the last 4 months have been a blinking nightmare....
It seems we all pretty much have the same symptoms, horrid shoulder pain, muscle soreness, spasms, feet and generally feeling like "what the??" is where we are all at..horrid thoughts of MS? Motor Neurons, Parkinsons, etc. all sorts of possible sinister problems.
I too have stopped taking Lipitor only a week ago (and I only started back in October 2008 after "arguing with my doctor for many years not wanting to take it...and i didn't even know about the horror side effects, i just thought it was totally unnatural to strip the body of something almost totally,).. within 2 months I started showing signs of chronic neck C5/6/7 and left shoulder. Maybe I had injured myself once before and suffered pinched nerves, but the pain eventually went, but this is not normal or should I say usual...... I have constant buzzing of left thumb/forefinger and hand and my right leg. NEVER NEVER have I suffered from this type of symptom before in my entire 50 years... Even some days when the spasms are at their worst I get an itchy nose and tingling lips. The scariest symptom of a white flash in my left eye convinced me...So fed up with it and after stumbling on all the negative comments and side effects with this drug I made to decision to take control of my own life. It is too uncanny....As I said, it's only a week now free of Lipitor, I have increased my Vitamin C intake and making sure I take a Mega Multivitamin daily too. There is some interesting reading in various websites of Vitamin C vs Statins...

BUT it would really be nice to read any comments of people who have recovered from these rotten symptoms and what sort of time frame it took to get over them. Is there a light at the end of the tunnel for us all. Some indication of Recovery period is probably our greatest "want to know"... and also...when will i be able to enjoy cycling again. Thank you to everyone for the input and may our strength be returned, not only physically but spiritually as well. :-)

...See posting below...also I have tingling/numbness in my hands and forearms. I'm also taking the enzyme CoQ10, which is supposed to help. I was told by someone working in a health food/vitamin/supplement store to take red yeast rice.....NOT a good idea. Red yeast rice contains the same basic ingredients as simvastatin.

I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.

Hi . I am a 69yr old male. My doctor has recently increased my Lipitor from 20 to 40mg. My cholesterol reading was 3.6 which he considered to high after a quad bypass. I am suffering painful cramps down the front of both lower legs as well as cramps down the back of my lower right leg. I plan to revert to 20mg to see if the cramps stop. I am not sure if I should stop completely.

Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******

An update to my husband's experience after taking Lipitor 10 mgm/day for 4 yrs. He developed Parkinson's disease and stopped taking Lipitor at that time--summer 04. He is taking anti Parkinson's drugs as well as many vitamins and suplements in an attempt to correct some of the damage done by Lipitor. He is fairly stable. My niece's husband who was diagnosed with Parkinson's at the same time as my husband and had been taking Lipitor also, continued on Lipitor for another 1 1/2 yrs. He had a progressive neurodegenerative disease course and died 2 yrs ago. 3 other individuals with whom I am acquainted who have been diagnosed with neurodegenerative diseases have not stopped their Lipitor--one individual's diagnosis has progressed from Parkinson's to Parkinson's with Lewy Body dementia to Multiple Systems Atrophy. this is the same progression my niece's husband experienced. The other 2 individuals are currently diagnosed with Parkinson's disease.
Husband started taking 1200 mgm of coenzyme Q10/day upon diagnosis of Parkinosn's. This amt has been shown to be beneficial to those with early stage Parkinson's--irregardless of their statin status. Seem all parkinson's patients have abnormally low levels of CoQ10 in their blood--and statins DEPLETE CoQ10. What a set up!!!!!

Same here. Pretty much like a zombie. Numbness and tingling in hands and feet. Spaced out. Stoned like in high school.

Have stopped taking Zocor today after finally accepting that my life has changed since taking this medication....am too weak to open a soda bottle, keep twisting words, memory is shot, Hips, knees and ankles scream whenever I have been sitting for more than 15 minutes....light headed, dizzy and constant headache...want to just curl up in a ball and cover my head for loss of ambition. I am exhausted all of the time.

I have been on Simvastatin for several months. I am now experiencing low back pain, stiff neck on the right-hand side, fatigue feelings in back when standing, fatigue, dizziness and generally feeling "awful." My MD cut me back from 40mg daily to 40mg every other day, but I still continue to feel sick.
I read complaints from others on this site and want to share my symptoms. I have a 78% blockage in my right carotid artery and a 58% blockage in my left carotid artery. I am 72 years old but what else can I do to prevent a possible stroke should these blockages increase without the use of a statin drug????