Coumadin symptoms and conditions

In Oct. 2006 I too became one of Yasmin's victims. I ended up in ICU with multiple bilateral pulmonary embolism's. I spent a week in the hospital and a year on Coumadin/Lovenox. Even though I survived the PE's I continue to have nerve damage in the leg that was affected, along with lung problems as a result from the PE's. I was amazed when I searched the internet for information regarding PE's/DVT's how many were on Yasmin compared to any other birth control on the market.

oh my God I wish I had read this sooner I thought I was going crazy! it seems like the doctors just don't know about the side effects of a lot of these drugs, because I have had ALL of those symptoms- the tingling, the muscle pain, the aches, the feeling of bugs crawling, the itching, the one I have the most now is pain in my arms and legs now to the point where today I cannot lift my arms past the front of my chest or over my head. So I barely stand the shower and barely get ready for work. When I told my doctor this last week, he said, hmmm, I don't know, lets just give it a few more weeks and see. I've been on Topomax for 5 weeks. I started at 25 mgs and worked my way up to 100 mgs slowly. Each time I add more mgs I have more EXTREME fatigue, and spaciness, dizziness, etc. My legs and arm and back pain did not start until the past 2 weeks. THIS SUCKS. But having migraines sucks too. I have lost weight. But I just don't know that I can live like this. The migraines are new for me, as a result of an accident I was in on January 26th. The side effects of the Topamax outweigh the pain from my accident. I might have reconsider taking this. Although I must say, this drug is the kind of medicine that definitely takes a while to understand how it will work for you. A lot of the effects will wear off. A lot of my spaciness or "Paula Abdul" moments as I like to call them, are getting so much better. I'm sitting at 100 mgs and really don't want to raise the dosage at all. I will talk to the doctor and see what he says. That's the other thing... doctors tend to give people too much or dont know how much to prescribe. Starting people off at 50 mg is too much. I take mine around dinner time as it tends to kick in around sleepy time and if I increase I ALWAYS increase on a Friday so I can regulate over the weekend. PS. I also have blood clots in my legs so being on Coumadin doesn't help things either!
GOOD TIMES!
I'm just so glad I'm not alone!!!
Caroline

Last week I had an issue with my INR - it has always been unstable, but this time was weird. My INR had been 6 and so I stopped the warfarin for 4 days, and went back on my regular 2 mg dose. Then we went on holiday to Washington DC for a week. 3 days in, my pee was the colour of cherry kool aid. Went to the local hospital (thank god for travel insurance). My INR was 7.89 - In the US this is considered critical and I was admitted, and treated with Vitamin K and 2 units of plasma. Within 8 hours my INR had dropped to 1.8 - now too low. The next day down to 1.25, and a week later I am still 1. I am taking fragmin now until I can get my INR theraputic again but Fragmin shots are even worse than warfarin.

An ultrasound showed now issues with my bladder or kidneys, but I do not understand why I was bleeding.

Guess that this just shows the importance of regular checking of INR levels while on warfarin.

I stumbled onto this site while trying to find a reason for these headaches I get sometimes for no" apparent" reason. Imagine my surprise to find your testimonies about your lives on warfarin sodium.At 38, I had surgery to repair a congenital defect of the aortic valve and had to have a hema-shield graph to repair an aneurysm of the aorta. That was in Oct.2002. Warfarin has been a part of my life since then. I was also put on anti-depressants because my family Dr. thought I was depressed since I repeatedly complained of not feeling well.(I took myself off the anti-depressants a couple of years ago.) Extreme fatigue , serious memory issues, thinning hair,dizzy spells and numerous other ailments continue to plague me.Add to that a large weight gain ...and, well, you get the picture. If anyone knows of an alternative to taking this "poison", PLEASE, PLEASE let me know. I just WANT MY LIFE BACK!!! I actually cried after reading this blog. As I explained to my husband, I suppose it was from the sheer relief of knowing I was not going insane!!!

Our daughter spent her 21st birthday in ICU, Sunday the 13th. I took her to the ER with shortness of breath, chest pain and nausea on Saturday afternoon. She has been on Yaz since February with only the mild symptoms of: loss of apetite, mild nausea and some abdominal cramping. She was put on this BC to regulate her periods and relieve menstrual pain as well as excessive dark facial hair growth. All 3 of these were relieved by Yaz.
She has now spent 1 week in the hospital (2 days in ICU) and will be on coumadin for 3 to 6 months due to a very large pulmonary embolism (size of my knee cap) that was putting the right side of her heart in distress. She also has multiple clots in her right lung.
I am shocked to read through this website and see all that has happened to so many women. She can never take oral BC again in her life. There are no blood test results that indicate she was even predisposed to this type of reaction and is not family history.

Hello all,
I'm a 45-yr old Air Force Major (Male) recently diagnosed with asymptomatic chronic Atrial Fibrillation (As in I have it and was walking around not knowing it). When I went to see the cardiologist, my B.P. was only 120 / 74 (Which, until they changed the rules, used to be normal)and he puts me on Diovan 80mg once a day plus Coumadin 5mg. Well the Diovan almost made me faint and I had numbness in both arms, plus a funky rash, kind of like chicken pox showing up on my arms and thighs.
I went online and read horror stories of Diovan so I stopped taking it immediately (I had only taken four doses and never had any horrible symptoms until after I took the meds!). Then the Dr. put me on an Event Monitor and it showed I was indeed in A-fib all the time, plus at night, my heart was racing briefly to 200 a minute while I was sound asleep. So he puts me on Toprol XL 100mg once a day.
Immediately I had trouble sleeping (Which I never had before, ever!) with crazy dreams and tossing/turning. My B.P. dropped to 88/65 and my fibrillating heart rate was 64!!! I was so mad because I actually felt better before the meds. I found this site and saw what everyone was posting and immediately took myself off the Toprol XL.
The day after stopping the Toprol I had slight chest pains (Like angina or gas bubble) but they went away on their own. I slept fine the next night.
I'm having an Electro-Cardiversion done on the 21st July to see if I can stop the A-fib and get in normal rhythm. I know the Dr. is going to be mad at me for stopping the Diovan and Toprol, but I'm sorry, I'm convinced there is a better way to beat all this (Namely exercise and eating right). Being in the service means you have to be Mr. Physical and Mental "perfect" all the time. I cannot afford to be diagnosed with depression in my line of work! Thanks to all on this website and I wish you the best.
PS. for those who think I'm being ignorant of my medication, I have a nice fat insurance policy and Power of attorney for my wife and kid in the event I keel over!!! I may be medication intolerant but at least I took care of my family.

horrible...started taking coumadin in November of 2007--it is now July of 2008 and in recent weeks I have had the most horrible bruising all over my body--deep maroon and deep purple and HUGE! One covers my hip on my back completely and I have others all over me. I have been having severe fatique, widespread pain to include my entire abdominal cavity, my lower and upper back, my sides, sudden headaches, and a general feeling of malaise, weakness in extremities...I am not taking this medication EVER again and I have an appt with my heart doc in a few days. I feel like I've been run over with a paver and aspirin is obviously a better choice for me. What's the use of preventing clots if your quality of life is s__t. After all, it is basically rat poison. Seriously, folks...look at the ingredients on both.

Information For The Recently Diagnosed
Possible Side Effects of Coumadin®

I found the following on a website dedicated to Factor V Leiden patients who need the warfarin/coumadin due to the genetic issues:
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Here are some of the side effects reported by members of our mailing list who are on Coumadin®:

Hair thinning-hair loss
fatigue or being tired more often
taking longer to recover from cuts or bruises
sun burn or sensitivity to light
depression.
You may experience some of these effects or none of them.

Also reported: Uneven INR's with generic coumadin®. I refuse to take generic coumadin® (warfarin). My INR will not stay stable on it. But some folks like it. It's a personal choice.

Possible side effects of LMWH:

Bleeding is the main adverse effect, either major (internal) or minor (injection site bruises, easy bruising, etc).
osteoporosis may be an issue with long-term use
very rarely an allergy develops, called HIT (heparin-induced thrombocytopenia)
liver tests (enzyme levels) may become temporarily elevated, but usually return to normal and rarely lead to the need to stop LMWH
last but not least: empty wallet syndrome (very expensive drugs)

link

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I was on Coumadin for a blood cloth I had last year(I originally started on 2.5mg and kept getting bumped up higher and higer as my PT/INR tests kept coming back).

I had most of the symptoms described here. The three worst being fatigue, memory loss and hair loss.

I remember constantly being tired on this medication. I had to go back to work after a few months and I remember not being able to lift much of anything and being extremely tired.

When I would take showers I remember running my hands through my fingers and literally pulling out clumps of hair. Each and every time. I thought I was going nuts.

The worst was the memory loss. I had severe short term memory loss like you wouldn't believe. I would be fine one minute and then space out and I literally could not remember what I had done the day before.

I am 24 years old and I had a pulmonary embolism last month. I was on the birth control YAZ for only 3 months, and that's what doctors seem to think caused it. My insurance only paid for me to be in the hospital for three daysand I was sent home with lovenox shots and Coumadin pills.

One month later, my INR is still unstable, fluctuating so much that they are checking it twice per week. My dosage is constantly changing. I have a red, painful rash on my buttocks - it hurts of sit for more than a few minutes. I am losing clumps of hair. I have lost my libido. I am very irritable and snap at my husband several times per day. I have a headache almost daily and frequent nausea.

I hate these side effects!

I've been on Coumadin for one month after having a pulmonary embolism (caused by birth control). I have painful red patches that look like clusters of pimples. I also have fatigue, nausea, headache, loss of libido, and irritability. I am 24 years old and just got married 6 months ago - these symptoms are ruining my "honeymoon period."

My father is currently in the hospital for his second internal bleeding from coumadin. He had a GI bleed and was discharged a month ago, put on coumadin AGAIN , supposedly monitored and wound up in ICU again, this time he had trouble breathing and was intubated and sedated for two days. I really thought Coumadin killed my father and in reality it almost did.....Now the hematologists are saying he is extremely sensitive to it, and his only other option is heperin shots which he refuses to do (that also has risk of bleeding). he is going to live with the chance of stroke rather than take coumadin a thrid time which is what they are suggesting. (idiots) . he has atrial fib and needs to be on blood thinner but at this point he would rather take his chances or take aspirin even though the doctors are saying it won't work as well. Hopefully there will be new anticoagulants out in the market soon like there are in Canada and Europe.

Coumadin KILLS....8,000 people a year bleed to death from coumadin......yes, it helps people too but judging from this site the side effects are awful...if you can avoid coumadin you should...

I'm 46, female.. developed blood clots on my lungs for apparently no reason, found them when going to ER and complaining of bad headache, nausea and left shoulder and back pain. I haven't had a recent surgery, nor was on birth control.

I'm dealing with anxiety, depression, unusual headache, horrible back and upper shoulder pain, itching of head, hair falling out during shampooing, , tightness in chest, trouble swallowing, really bad pain in hips, legs and feel like feet swell. I don't sleep well, even on Ambien.. doesn't keep me asleep. I awake in the mornings around 4:30 with diarrhea, nausea, headache and feel awful. Never get a good nights sleep. My hips hurt as well as dealing with parathesias down right arm and into hand.. feels like needles sticking in my hand. Most days I feel wiped out in the afternoon.. as I try and drag myself out of bed to get some excersise.

Does anyone deal with parathesia's down their arms or hands.. what feels like nerve pain?

Has anyone ever tried Aggrenox, also known as Dipyridamole instead?

Or actually tried the real Coumadin, instead of the generic Warfarin?

Has any other woman out there been told not to use a tampon when on her cycle, as this will cause more menstrual bleeding?

I'm so tired of Dr.'s not having personal experience of their own with this drug.. and telling the patient that they are crazy and need to be on anxiety meds or anti-depressants. I just found out that Warfarin is the main ingredient in RAT POISON..

Has anyone EVER gone the totally nutrition route, juiced and gone radical, telling their Dr.'s that they were getting off of all meds?

Does anyone suffer from feeling like their ears are full, or hearing loss?

I'm so tired of feeling afraid.. and tossed around by Dr.'s who really don't want to do the research, nor listen to their patients.

I'd love to hear from anyone who has some insight..on any or all of the questions..

I was just discharged from the hospital on Saturday. I had been taking Yasmin for almost two years now and until recently, had no problems. Last Wednesday I went to the ER for severe pain and inability to breath with my left lung. They admitted me after finding a blood clot in the right, as a result of Yasmin! Turns out, I had pneumonia in the left and since I had no symptoms that the clot was there, the pneumonia saved my life! I too had to take those fun Lovenox shots in the stomach and now I'm on Coumadin for 6 months. I am 29 years old, never smoked a day in my life. I do not drink, I am a healthy weight and I work out regularly. I do not have a history of blood clots in the family. How could this happen especially with a drug my doctors told me was safe?

With the amount of occurrences, I'm interested in a class action lawsuit as well. I will never take a birth control pill again EVER.

I had used NR for six weeks when I woke up at 3 am with SEVERE chest pains. Went to the ER and was diagnosed with *substantial* pulmonary emboli (blood clots in the lungs). I was hospitalized for five days and am now under the direction of a pulmonologist and hematologist for the next six months while I'm on blood thinner therapy. I had to do injections into my abdomen twice a day to prevent further clotting until my blood reached a theraputic level with the Coumadin (blood thinning drug).

Usually, pulmonary embolism afflicts sedentary people or those who have recently had surgery or those who have cancer . .. etc etc etc. I am a 33 year old personal trainer. I have ZERO risk factors for this to have happened to me . .. other than the nuvaring. It was determined that it was the cause and I was told to remove it immediately and to never never never use it again.

Please be careful in your decisions to use this product. I used it for the convenience of not popping a pill daily as I would usually forget. Wish I would have just looked a bit further into the possible side effects before choosing to go ahead with it.

Last Christmas (07) I was diagnosed with pneumonia in the the right lung and x rays ordered. Xrays revealed an "unknown mass", or so they thought... they decided to redo - confirmed them and ordered CT scan... mass was gone, but there was PE in both lungs... so started the coumadin. I am type 2 diabetic as of Jan 07... have been managing my diabetes with healthy diet and regular exercise (A1C 7.4 to 5.4 in 9 months) ... no drugs... so the prospect of coumadin for life bothered me. However, my doctors all made a great case about how safe it is compared to other drugs... I lost 35 lbs in 07 after changing my lifestyle... and felt great. I am here today because I gained 20 lbs in 4 months of coumadin therapy (no change in how I was living), have aching muscles, chest pain and shortness of breath, and thinning hair.

After 2 days on the web I find only doctors and pharmacies say no side effects, but the hundreds of testimonials of actual coumadin guinee pigs like myself are finding a lot in common. For me, Im off it tonight.

I am taking zegerid 40mg around 10 p:m for 2 years. Zegerid used to work well.
Recently I have started to take ditropan-xl 5mg, zocor- 10 mg, a statin drug, and coumadin. I am having frequent bouts of diarrhea with terrible cramps.
I wonder if I am having stomach side effects from my new medications. I have irritable bowel and gerd I have been instructed to take all my meds before I go to bed. Thank you for your reply sw

I was put on Yaz (same as Yasmin but with a smaller estrogen dose) due to irregular periods and a presumed hormonal imbalance. That was in September '07. Four month later, on Jan 1, '08, I went to the ER with breathing difficulties, and weakness in my arms and legs. I had been having muscle cramps/ charley horses in my right calf, but that was the only other health problem I had experienced. I thought I was having an asthma attack. So did the ER - at first. After I did not respond to the breathing treatments, and I became completely out of breath and exhausted after walking across the hall to the restroom, the ER doc checked my D-Dimer level to see if I was at risk for blood clots. He said if it came back over 500, he would have to do further testing for clots. It came back 4500!! I was sent immediately down for a CT Scan which showed mulitple clots in both lungs, mostly small, but several of significant size. I was immediately put on oxygen and a heart monitor, and an IV drip of heparin was started. I was in the hospital for 4 days, had to learn to give myself shots of Lovenol in my stomach until my pill form of blood thinner had time to kick in. I am now taking Coumadin blood thinner every day until July, when my D-Dimer will be checked again. Depending on the results, I may come off the Coumadin, or I may have to commit to it for 3 years. However, I was tested for all the hereditary blood clotting disorders and all came back negative, so my doctor feels as though the cause has to be the YAZ! Everyone tells me I was very lucky and that I could have easily died, especially when I was just thinking I was having an asthma attack and put off going to the ER for a few days. If you are taking Yaz or Yasmin, and you begin to have difficulty breathing, any kind of leg cramps, weakness, or tightness in your chest (I had also been having severe heart burn) - go have yourself checked out!!!!!

I've been taking Coumadin for five years without many side effects. I've never gotten a rash from it, but my new girlfriend breaks out in a rash whenever we come into contact. Could she be getting the rash from my Coumadin?

I am a 33-year-old female. I was taking YAZ birth control. I woke up on a Friday morning with a bad cramping feeling in my left calf. By the end of the day, I was limping. By the middle of that night into Saturday morning, I woke up in such excruciating pain. I could not walk without help. I went to the ER. They ran an ultrasound and found nothing. They said I had a "pulled muscle" and sent me home. Went to my PCP on Monday. He said it was "phlebitis" and sent me home. He told me to return in 3 days. Did that. This whole time I told them my left foot was cold, the leg was discolored, and that I could not walk! Hello! I went back in 3 days, but this time he was finally alarmed when he couldn't find a pulse in my left foot (never checked that in the first place) and sent me back to the ER. The same jerk ran another ultrasound, and there was the clot. I've been on warfarin since February. In the beginning, I had TERRIBLE HEADACHES (which have since subsided). Now I am dealing with this: CONSTANT BODY PAINS (especially my back and ribs), OVERALL BODY SORENESS (kind of like when you have the flu), FATIGUE, DEPRESSION, ANXIETY, BLOATING AND GAS (I wake up with a huge painful puffy stomach every morning), CRAMPS (like having a period without one), sometimes DIARRHEA, STOMACH ACHES. When I reported the initial body pains to both the specialist and my PCP upon my follow-up visits after being discharged, both looked at me like I was crazy or making it up or something. I came home in tears after seeing the specialist. I thought he would be the one to know about this stuff! Instead, he made me feel like an idiot or crazy person. I was totally insulted and cried on the way home. I am so annoyed and have lost all faith in doctors. They should all have to retake their Anatomy and Physiology courses so they can be reminded what their ears are for. Why don't they listen to their patients? This is insane! I am so disgusted with this whole mess. I just want to give up.

Please don't take Yaz if you have any alternative at all!
My 30-year-old, fit, non-smoking daughter is currently in the ICU after just the third pack of this KILLER drug, with a pulmonary embolism (major cause of sudden death in young women) and a clot in her leg. Thank God we got her to the ER in time--don't let it happen to you and your family. If you're taking it and get pains in your legs for no good reason, run, don't walk, to the nearest ER.

Has anyone here ever heard of anemia being associated with Toprol? Since they increased the dosage of my husband's Toprol, he has developed anemia and they cannot find a cause but every time I ask about the possibility that it could be the meds causing it (he is on coumadin, too), no one will firmly say no - always a "could be" - so just wondering if anyone else has had this experience. Thanks!

Needless to say, Warfarin almost killed me. I was put on it after an apendectomy gone wrong which then turned into a bowel resection. In between the two surgeries I ended up with pulmonary emboli. I was put on Warfarin and also had a vena cava fiter put in. I'm a 40 year old female and have never felt so sick in my life. I was exhausted, constantly throwing up and had chronic diarrhea. Also my INR elevated to an 8 after constant vomiting causing the need for a plasma transfusion. Ugh! I kept telling my Drs. that I thought it was the coumadin but no one seemed to listen. As a result of my last hospitalization (7 admissions since 12/5/2008) they finally took me off of the coumadin (Warfarin) and now I am a totally new woman. The stuff took a week to get out of my system but thankfully I feel great. I hope this is helpful to anyone suffering.

My father has been taking Warfarin for 13 years now 2.5mg a day. He's been complaining of headaches, heavy feeling in his head, dizzy spells, extreme fatigue,swelling of his legs, spontaneous numbness of his fingers, blurred vision, cold hands and feet, loss of balance and memory loss. I have spoken to his Doctors and no one believes him that the Warfarin is doing this to him. By the way, he was diagnosed with AF 13 years ago.

Does any one experience the same symptoms? what can he do? he is 77 years old.

HI my name is Jennifer, I am 27 years old, I went for my annual check-up on January 9 and I was telling my doctor that I was having headaches and feeling nausea a week before my periods and so she changed me to Loestrin 24 which I hate and yesterday was my last pill Thank God, and so now they switched me to Yaz which I start on Sunday and I am so scared of taking it because I have read so many things about women having horrible side effects such as blood clots in the lungs, acne, weight gain, vision loss and other side effects, I have gotten to the point that I want to call my doc again and get back on ortho tri cyclen but I have not even started Yaz I do not want to seem crazy! Can someone help me cause I am already freaking out and I have not started taking them yet please help!
Jennifer