Cushings symptoms and conditions

They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.

Yes,
I slowly developed oral thrush over the course of the last 6 months since starting Nasonex. I blamed it on my Flovent, so I stopped the Flovent about 2 months ago, and the oral thrush just kept getting worse even after treatment with anti-fungals. So I stopped the Nasonex (the only other drug I take) 3 days ago, and now my oral thrush and burning in my mouth and hard palate is totally gone away, I feel tons better. I also, since taking Nasonex, have gained quite a bit of weight in my lower belly and I am suspicious of Cushings. I will not take Nasonex ever again. I did not have this problem with Flonase, just I developed a resistance to Flonase.

I hate prednisone. I was given it in bursts for the last 10 years for asthma and for some reason I thought the Dr told me to stop at 10 mg and when I did my adrenal glands didn't kick in and I have been stuck on the stuff for the last 2 years since. I wean down to about 17 and then end up in the hosptial. this has happened multiple times. I was down at 17 a month ago and ended up in the er where they jacked me up to 40 and now I am at 23 but I am only able to wean at 1/4 a week at the most. I now am in menopause at 38 I have constant hot flashes rapid cycling mood swings. panic attacks. my heart races all the time I have cushings and possibly addisons now. I can't drive anymore my weight has gone up over 100 lbs my vision is constantly changing. I have pseudotumor cerebri and am now diabetic. This stuff is POISON> I also keep TONS OF FLUID ON face legs chest etc and now have to take lasix> I have tried to wean faster for the last 2 years but end up back up higher than before. I hate this drug. Don't let the Dr put you on it if you can avoid it. Also I would love to know if anyone knows of any type of inpatient facility to help with the weaning. My heart constantly skips and races on this stuff I am really afraid one day I will Die from being on prednisone. But I can't find a Dr to help me. This has ruined my life with my family if anyone can help please let me know

not much of a problem with a two week taper from 100 down to 5 mgs. i tend to like it better than immuran. but we must avoid cushings, moon face, hirsutism, avascular necrosis. never, ever, go cold turkey!!

I was diagnosed w/ Crohn's Disease at the age of 15. I am now 18 and have had no luck w/ any drug that they have tried to treat me with. Endocort and Asacol. After two years of these two drugs they decided to try Prednisone because I was not getting better. I have been on it for one month at 30 mg a day. I love it SO FAR. I am waiting to see what happens. I am scared because I haven't heard the best things about Prednisone. I have had mild weight gain. I weighed 93 lbs and now I am a healthy 105. I am not getting fat, I am just putting on the weight my body was lacking. I looked anorexically skinny and now my body is healing so I am able to eat more and not get sick. I have had mild heartburn as well. Especially when I drink pop. I have had slight muscle cramps. The worst part is the acne I have been experiencing. It came on out of nowhere. But, just wash your face 2-3x a day and keep it oil free and you should be fine. And to help control the weight gain I work out 3x a week. I also am eating healthier foods.