Cystitis symptoms and conditions

I've been on Aviane for a month and just got my period.
So far here are the good things: I haven't gained weight. My boobs haven't swollen up like crazy (they usually do right before my period), and my period isnt killing me! Yay! I used to have HORRIBLE week long periods. It was so bad I would throw up and stay in bed squirming in pain for hours and miss work and class because of it on my second day of my period. But after this first month of being on Aviane my period will be max five days long which makes me really happy and I'm only sleepy but there ARE NO CRAMPS. Also I'm always lubricated during sex and it doesn't hurt anymore. It used to.
It also helped my bladder. I have interstitial cystitis and now my bladder isn't as sensitive anymore.

Negatives: I AM VERY MOODY. I cried a lot this month and was really paranoid and jealous about whatever my boyfriend was doing. I am never like this.
I have a lack of appetite. I have lost weight (not that I'm complaining).
I'm always tired.
My clitoris isn't as sensitive and I have a hard time orgasming. Before I used to have multiple orgasms but want less sex. Now I am always aroused but can't orgasm! It's weird.

But it has been the best birth control I've been on. And I've tried EVERYTHING. So we'll see...

Hi ladies. I had my Mirena put in just under 6 months ago because of heavy long periods, day 21 Oestrogen test showed I was heading for perimenopausal. Suffered acne on and off over the years but looking back it was manageble. I have 4 kids, youngest is 2 and GP refused a COCP because of my age(40). Persuaded me that the Mirena was the answer to my prayers so went ahead. Despite 4 full term pgs and 2 mc's insertion was very very painful. Anyway, just had the damn thing removed last week, drove to another town's family planning clinic to get it out as couldn't get seen at my GPs for 2 weeks and was desperate and just had to get it out of me.

Side effects: Zilch sex drive, mood swings, hot temper, overly emotional/crying, fuzzy head, tiredness,poor self esteem, bloated, joint pain, aching all over, painful breasts, symptoms of UTI/Cystitis, and the worst for me acne. My skin has never been so horrible. My pores have responded to the androgen's by going mad, producing too much sebum, blocking pores, causing nasty papules, pustules and the off cyst like spot. I have been depressed, not wanted to face anyone, even felt suicidal at times.

Spoke to the doc at the FPC and she agreed it's not for everyone, says she has told the Obstetricians at the local hospital(UK) that they shouldn't be putting so many in! Got the impression she saw loads of women with probs from it. Said she could see it was totally wrong for me. The nurse was lovely, took it out and told me it had been a pleasure to remove it for me!

Came away to give my body a break and think about perhaps Yasmin but after reading about that think I will just go without. Will say my withdrawal bleed from Mirena has been awful, heavy with huge clots and has been going on for 7 days and has again become heavy today. However I would rather have heavy periods than all those horrid side effects. 1 week on and I think my skin is starting to improve as well.

Wish I had found this site 6 months ago. Your doctor will tell you to give iyt longer and let it settle, but if like me you are sensitive to the Androgens then get it out!

Hi, I had Mirena put in 4 years ago and just had it removed a month ago. The insertion was painful for abut a minute and after that all seemed fine. I did not have a period for 4 years. However after the first year I started having to urinate frequently....sometimes up to 20 times a day. This would happen weeks at a time and then go away. I went to all my doctors and was finally diagnosed with interstitial cystitis by a urologist. This is a chronic condition that affects the inner wall of the bladder. Even though most doctors do not agree with me, I think that my IUD led to this disease. Has anyone else had this experience??

I conducted a search for "long term effects of Topamax" and discovered this site, and am so glad to have done so. I have been on Topamax for around 2 years now, at the 200mg level, for chronic, sustained migraines. I have figured out, through tracking, that I will get a migraine lasting 3-4 days during ovulation and again on my period. The Topamax has helped considerably with the headaches, although I do still get at least one per month. It is generally not of the same duration, though, and is fairly easily controlled with pain meds.

I've been a bit worried, though, about continuing the drug for life, as it seems I need to do to control these headaches--thus the search. I, too, have experienced the "mental fog," and general decreased cognitive abilities. I am an extremely intelligent person, a writer, a former English teacher. Why am I unable to pluck words from my brain when I need them?

I've also experienced the tingling and numbness in various extremities, sensitivity to cold, blurred vision, fatigue, and loss of taste sensation. I've also become a royal bitch to my husband and children--although I had no idea that this could be related to this medication. I feel relieved to know this now...to know that I can change and be the person I once was. I don't like myself very much right now, but it's like trying to stop a runaway train. I can no sooner prevent or alter my knee-jerk reaction to things than I can stop that train.

I've been off of the Topamax for approximately two weeks now, and have already gained 5 pounds, although I work out 2-3 hours daily and play competitive volleyball 2-3 times per week for several additional hours. I had initially lost around 18 pounds and kept it off, even when my appetite returned. I'm uncertain, though, why I'm gaining the weight back so rapidly. I'm eating fewer than 1500 calories/day and exercising like crazy. It doesn't make sense.

I don't care about the weight, though. My chief concern is the return of my cognitive function. Has anyone experienced a return to their prior cognitive state after getting off of this medication?

I started taking Lisinopril for high blood pressure and 3 weeks after developed urinary tract symptoms (frequency, pressure, some discomfort, itching). The first time I went to the gynecologist to leave a urine sample, they prescribed me antibiotics, which I took for 7 days and still the symptoms continued (my urine had tested negative), so I went back and gave them another urine sample, it tested negative again, but had blood in it. They gave me a higher dose antibiotic for 3 days, the symptoms were still there. After that, there was nothing they could do, so they sent me to a Urologist.
By the time I got in to see the Urologist, a month and a half had gone by and I decide to quit taking the Lisinopril to clear my body of anything. I ended up getting a kidney scan, which was normal... and then a urinary tract scope procedure, which was normal.
After these procedures, I noticed that I started getting better and thought I might have just had "Acute urethral syndrome (also called noninfectious cystitis) causes symptoms that are similar to those of a bladder infection but that continue for longer periods. It is not an infection. No bacteria or other microorganisms are in the urine. The cause of acute urethral syndrome is difficult to determine. Possible causes include injury or irritation, allergies, stress, a disorder of the nerves, or problems with the immune system. You may be able to relieve symptoms of acute urethral syndrome by avoiding bubble baths and other irritants and not drinking citrus juices and caffeinated fluids."
So, I went back on Lisinopril, which was a few weeks after I quit taking it. After only 3 days, I started getting the frequency, discomfort and some itching... I could only figure out that Lisinopril had everything to do with my symptoms. This is still to be determined, but I feel like my urinary tract is feeling better every day now.

I had my Mirena inserted in 9/07. I was fine until 6/08. In 6/08, I started to experience strange urinary symptoms of urgency and frequency. I addition, I had pain on urination. No UTI present. I had a cysto to r/o interstitial cystitis. The physician said that it did not look like IC because I did not scream when fluid was infused into my bladder. For the last 5-6 months, I have been dealing with my strange symptoms. The GU speculated that my problems might be due to my dropped bladder, but he seemed very unsure.

A few week ago, everything changed. I started having the most severe urethal pain. I was in tears all day long with 3 kids to care for. I have wbc and rbc in my urine. ALL cultures were neg. The Dr. even cultured me for STDs. Last Thursday, I had my Mirena pulled out after reading this message board. I'm hopeful that it hasn't caused irreparable damage to my body. I still have the same symptoms 3 days post Mirena. Please let me know if anyone has had relief post Mirena.

Thank you!
K.

I've been on Lisinopril-HCTZ 10-12.5 for 8 months now. I hate it. So far I've experienced:

- dry cough
- headaches
- chest pains (under my left rib cage area. Its a sudden sharp pain that lasts maybe 2 seconds, then its gone. It'll do that a few times a day)
- stuffy nose (doctor told me it was allergies. Put me on allergy medication, have been on it for 2 months, and it hasn't helped)
- trouble breathing
- rashes
- fatigue (doctor assured me it would go away after a few weeks, but it hasn't)
- dizziness
- no menstrual cycle (this medication has stopped my periods all together)

I've had it with this crap. My primary doctor wasn't the one who put me on it. I haven't been able to see my primary doctor because I don't have insurance and couldn't afford it. I've been going to a community clinic. I'm willing to pay to see my primary doctor than continue going there. At least I'll know I'll be taken seriously.

HI- I was also checking in on the die effects of this drug and ran into this site. I am on my 6th day of bactrim and feel like my legs are going to explode. Yesterday I had chest pain and an upset stomach. I was prescribed the bactrim on my second visit to the ER caused by a bladder cystitis. I had a very large amount of blood in my urine and bled for 4 days. I feel better but I don't feel 100% myself still. Freaking out that it has such a reaction time after the medication has finished.

Honestly thank you for this website! I mentally feel better if not physically yet. I was prescribed 3 day/2 dose Bactrim for a UTI. I have NEVER had a reaction to antibiotics or any type of medicine. I can no longer say that.

That said...thought I was dying. My temperature was 102 for days, every muscle in my body felt so sore I felt like a car had hit me and then hit me again, ridiculous size headache, massive stomach pain, insomnia, thought I would faint every time I stood up, could barely walk, no appetite, etc. It was ridiculous and I thought I was going crazy because how can one medicine do all that?? I now have a whole new respect for antibiotics.

Since I was feeling so horrible by the 2nd day on it I went ahead and finished the last day. (hindsight probably stupid)

This is my first day off and all my muscles are still killing me, especially my neck, chest, stomach, back. Still feel weak and my temp. this morning was 101 and went down to 100 now.

And I don't know if it was the medicine or just being sick but I've been so 'out of it' today and just depressed. I can not WAIT for this medicine to be out of my system! And I will never use it again.

To add insult to injury I'm not sure if it cured the UTI all the way. Not running to the restroom but still have slight (non-painful) tingle down there.

I had the Mirena put in May'08. I've noticed increased acne, cramping in my legs, and spotting. I am also dealing with symptoms of bladder infections, however, there is no infection. My OBGYN says there is no correlation between the Mirena and my bladder problems, however, the urologist said that the Mirena could cause problems to other organs around the uterus (including the bladder). He stated it could be traumatic to our bodies, causing muscles in our pelvic area to tighten, nerve damage, etc. My OB diagnosed me with Interstitial Cystitis, a disease of the bladder lining that is without a cure, but my urologist didn't buy off on this and so now I'm having other tests done to make sure it's not bladder cancer, etc. Again, my urologist believes it's related to the Mirena. All I know is that I didn't have bladder problems until I had the Mirena inserted, which was the most painful experience aside from giving birth to my children! After reading the postings on this website, I'm definitely removing this device from my body ASAP! Good luck to all of you women who have had similar experiences. I pray that our bodies will return to some sense of normalcy.

My daughter had her first Gardasil shot in June. She started to have severe pain on her right side. Doctor diagnosed bladder infection. After 3 days of antibiotics ended up in emergency room due to severe pain in her right side. They did a ct scan and found a tennis ball sized cyst on her ovary. They thought her pain was from the cyst so she ended up having surgery to remove it. While they were in there they found endometriosis. So now we are working on a treatment plan. They gave her a shot of Depo Provera. She got her period while on vacation and the pain was so severe that she ended up in the hospital again. Her pain is being caused by the endo and is so severe it is debilitating. She had regular pain before with her periods, never anything like this. Another problem she is having is severe pain on both of her hip bones. My daughter was a normal, healthy teenager before this now they want to suppress her periods until she is ready to have children. I can't help but think this is due to the Gardasil.

EVERYONE PLEASE READ!!!! GARDASIL HAS DESTROYED MY LIFE! I am 24 years old and a year and a half ago I was graduating college and planning to be a professional dancer and go to law school...I was perfectly healthy and energetic! In February of 2007 I received my first Gardasil shot. After a few days I started to feel as though I had a Urinary Tract Infection and was also feeling more tired than usual. The doctor gave me an antibiotic and sent me on my way.

In May of 2007 I received my second Gardasil shot and yet again, a few days later I started to feel like I was getting another Urinary Tract Infection. I went to the doctor numerous times between the second and third shot...all for bladder and urinary tract pain. For months I was on different antibiotics and they were not making the pain go away. After visiting a number of urologists, I found out that the urine cultures had all been coming back negative - showing no sign of an infection, so the antibiotics were pointless. All tests that I had run, both blood and urine came back normal. It is not standard procedure for a doctor to call you if your test results come back normal, but there was clearly something wrong, so I searched for a urologist who would believe me that I wasn't making up the pain I was in.

In August 2007, I had a cystoscopy done (they took a scope and went into the bladder to look in the bladder wall) and they concluded that I have an incurable bladder disease called Interstitial Cystitis. This is a condition where there becomes a defect in the bladder wall causing it not to have the protective mucus layer inside of it. The pictures of inside my bladder show red, raw skin, obviously showing the severity of my case of it.

There is no evidence as to what causes Interstitial Cystitis, and there is no proven successful way of treating it. The initial signs are exactly the same as a Urinary Tract Infection (painful bladder spasms, painful urination, body aches and back pain). The main difference is the fact that it is not an infection. There are thousands of people with Interstitial Cystitis who are misdiagnosed as having chronic Urinary Tract Infections.

I received my third Gardasil shot in October of 2007 and that is when EVERYTHING fell apart. The bladder pain became constant and there has not been one minute in a day since that shot I have not been in unbearable pain. This is when everything else in my body began to crash down as well. The other health problems and side effects from the Gardasil that I am having are constant sore throat, vicious migraines, vision changes, back pain, body aches, joint pain, sinus problems, vomiting, constipation, dizziness...I could keep going on forever!

I have tried all of the conventional treatment for Interstitial Cystitis and have gotten NO relief from the pain and other side effects. The doctors didn't know what to do, so they put me on OxyContin and a diet consisting of no acidic foods. That has now posed its own set of problems seeing as now my body is addicted to the narcotic, and I have gone from 5'6'' 125lbs to 100lbs over the course of a year due to the diet. I am extremely malnourished and have to take B12 vitamin shots once a week due to the severe anemia. I am 24 years old, and feel like I am 100. I can not live a normal life, I am going to lose my job from numerous absences, I lost my fiancé and am not able to have an intimate relationship anymore, I am extremely depressed, I have to have my family clean my apartment because I am too sick to do it, I can not do social activities because I am too tired and in pain. This vaccine has DESTROYED my life! I am desperately seeking out someone else who is having bladder problems due to the Gardasil so that I can contact an attorney. This needs to be OFF the market a soon as possible so that it does not run any other lives! Gardasil has caused some deaths, but in my mind, I'd rather die than live with the pain I am having. I did notice there are some posts regarding girls getting urinary tract infections... PLEASE PLEASE PLEASE have your urine cultured because there is a good chance it may be Interstitial Cystitis!

I am desperately looking for someone who is having some of these symptoms so that I can go to a lawyer and get something going before things like this happen: Numerous states are pushing to make it mandatory that girls receive the vaccine before they enter the 6th grade. We can not let this happen! We all need to stick together and somehow fight this and get out lives back!

Let me know if you are IN - and also what you thought about my post!

You can email me at ******

Bless All of You!

*~Amber~*

I suffered with pre-menopausal symptoms for 2 years before having the Mirena inserted in May 2007. My symptoms included bad menstrual cramping, heaving bleeding, hot flashes, night sweats, moodiness and lack of libido. But since having the Mirena all those symptoms have gone away. My OBGYN is using it for Hormone Replacement because I am too young (34 yrs old) to have menopause. I felt a lot better after about 3 months, I still have some side effects like hand numbness (mostly when I wake up in the morning or at night). Every couple of months I have some mild break through bleeding and I have PMS symptoms before it happens. I would have gone crazy without Mirena. I do have 1 symptom that I haven't heard anyone mention. Increased bladder infections, I don't know if this is caused by the Mirena or maybe its something else. If anyone has had this symptom can you post it?

chest pains,
thrush,
cystitis,
headaches,
loss of sex drive,
and HAIR LOSS

Yasmin should be banned.

I had my Mirena inserted about 4 months ago and I have felt like I'm falling apart ever since. I have experienced the following symptoms: numbness/tingling in arms and legs, EXTREME fatigue, depression, anxiety, acne on back, my hair is thinner, bloating, sore stomach, lower back pain, etc. Most recently, I have had a lot of heartburn and my voice is kind of hoarse. Also, when I went to the doctor, they did a urine test and found that I have a trace of blood in my urine. Along with this I feel like I need to pee all the time, but I seem to have no bladder infection. I am fed up with this device and feeling like total crap all of the time. I have no energy and can't seem to get enough sleep. The only thing good about this thing is that I don't have a period. Of course, my doctor swears all of these symptoms can't possibly be due to the Mirena, but I don't see how it could all be coincidental. Please let me know if anyone else is experiencing these weird symptoms like the bladder issue or the heartburn/hoarseness.

Hi, njcukett posted 2 days ago asking if anyone is still having abdominal pain after being off singuliar awhile.My 7 yr.old (on singuliar at least 3 yrs.) is still having pain.She also had bladder issues for the past 2 yrs.(Frequent dripping and urgency to void).This went unexplained by doctors.Over the past 6 weeks since she stopped taking singuliar,I have noticed a complete change in her stools.While on singuliar they had become grayish in color.She would have 2-3 of these movements a day.The color of her stools are now normal,but the lower abdominal pain is still present.So I am wondering if the pain is coming from the bladder, not the stomach.I am going in(without my daughter) to discuss this with her pediatrician next week.Singuliar also made her very anxious,do not want to add to that,by discussing this in front of her.For the people having abdominal pain,did the stools change while on singuliar compared to when off?Just curious.

Hi all. I just wanted to update what my son has been going through since we discontinued the Singulair. He is SO much happier. I was even able to take him off the Abilify that he took to control his behavior! I see no ill effects like last time we tried to take him off that medicine. He clearly doesn't need it anymore. We have been seeing a major increase in urine incontinence, both at night and during the day. He just can not make it to the bathroom in time. I had done some research on the net about this and I believe it is tied to the discontinuing of the Singulair. He along with others I have read about probably had or have rather, spastic bladder and the Singulair was actually helping that. They are using it to treat interstitial cystitis so I know that there is a link between the bladder and leukotriens.
We went to our pediatrician, who by the way agrees with my findings and all the people who have had problems, she says that it could take up to 6 months for the Singulair to be completely out of the system.
She put my son on ddavp for the bladder issue. So far it has helped a little. Too soon to know for sure.
Hope everyone finds peace in this soon

DO NOT take antibiotics unless it is a Life or Death situation!
I have been diagnosed with CYSTITIS, based in my breasts & bladder, and now I'm scheduled to go in for other tests because I have had excessive bloating, IBS & pain in my gut.
I thought the Nuva Ring was causing my extreme random cramps, my breast soreness (Extremely Painful, making me want to inject them with novacaine, if it were a good idea...), my Pain During Sex (esp. since I have a lovely sex drive) and most recently, the constant urge to pee when I didn't, but it was NOT the birth control.
ANTIBIOTICS CAUSED THIS!
In the last month I have met 3 more women (& 1 man) with the same/similar problems and diagnosis, All on heavy antibiotics in the last year.
The good news is that it is Not cancerous to my knowledge, there are foods you can eat, like those that are good for reducing swelling, and it's a good idea to Avoid certain foods such as soy, anything too acidic like tomatoes, cranberries or citrus fruits & juices, preservatives, additives, really spicy foods, etc. **It is Very Important to take a Pro-Biotic capsule with At Least 4 different types such as Acidophilus, Bifidum, and others, depending on your symptoms & areas of concern (look up what bacteria does what). Taking these only during antibiotic usage Is NOT Enough!
The bad news? If a few months to a year of partial/full diet change does not help, it is considered either too late to help (get used to the pain, it's not going anywhere) or it may be an auto-immune disease, though this is quite rare.
PLEASE, LADIES -- Take Care when dealing with antibiotics, they are much more dangerous than many people/doctors know/are lead to believe. (And as for the yeast infections and bacterial vaginosis? Take 1 part Hydrogen Peroxide, 3 parts water, douche (rinse, do not let it set for more than 10 sec's) once a day before bed/naptime for a few days, splash Outside Only with cool water if needed, but Not inside. Burn/irritation for about 1 min. but Absolutely worth not waiting for a doc's prescript. or spending endless $ on crappy worthless ointments/creams. Totally safe when Diluted -- Hydrogen peroxide is made naturally on its own in All Vaginas, this just helps to kill yeasts and bad bacteria which are Anaerobic (do not like oxygen).)

This is very near and dear to me-- my cousin's husband just died and they believe it was from contaminated heparin and on top of that, I am also a secretary at a medical malpractice firm and I have been talking to clients who have gotten very sick after using heparin. Sounds like all of you have experienced some side effects, but its hard to tell whether or not they were related to the other drugs or procedures that were going on. My first suggestion is to DOCUMENT EVERYTHING. This stuff is bad news. I'm not a lawyer, but I work for lawyers that do this and I am in contact daily with the doctors and nurses that work for the firm. I would be more than happy to help if you have any legal questions. Just email me and I will do what I can.

Does anyone suffer from interstitial cystitis? I've been on Loestrin 24Fe for exactly 12 days and have felt perpetual PMS symptoms, horrible mood swings, cramps, depression and bloating/weight gain. I swear my IC has flared up, but my doctor swears none of the symptoms I have could be a cause of it.

I used NuvaRing in March of 2004 for 2.3 days and I've been paying for it ever since. My doctor's say it's just a coincidence, but I believe it was all triggered by the NuvaRing.

By the second day I had it in, I had the symptoms of a UTI and it was hurting to even walk. I pulled it out, called my OBGYN, and told them I had a UTI. They put me on the patch instead and prescribed me some antibiotics for my UTI.

After finishing the prescription, my UTI symptoms had not decreased, so I went in and gave a urine sample. They put me on a different antibiotic and after finishing that, my UTI symptoms still had not decreased.

They referred me to go see a Urologist at this point. I went in and they said my urine was fine, however I still did not feel ANY improvement. A week or so later I went back to the Urologist, and then a UTI did show up, so they treated me. Once again, I did not feel any improvement, but I went back and my urine test came out negative.

I had a done to look for possible Interstitial Cystitis, but the results were normal. Basically the Dr. told me I am fine and gave me Pyridium to use as needed to numb the bladder.

Ever since then, I've been to doctor after doctor, trying to find answers. Luckily the pain now is a lot less intense but still happens on average about 2-3 times a week, randomly.

None of the doctor's I've seen know what I have. The last dr. I saw said it's probably Chronic Urethral Pain Syndrome, but he is not sure. He'd want to do several tests, which don't sound fun. I've done so many already and to this day now I've had 3 cystoscopys, DSMO treatments that didn't help, PST tests, and so on.

My suggestion: DON"T EVER EVEN TRY THE NUVARING! Also, I was on the pill (many different brands over ten years), and don't recommend that. After getting off birth control, it took just about 3 years to get my cycles back to normal. The change in hormones also made me break out like a teenager, and I'm 34. Talk about no fun.

Hi!
I have ulcerative Colitis. I had a bad flare up since Thanksgiving 07.I have been on Prednisone since the beginning of Dec.07. The first 3 days it was giving to me by IV every 6 hrs.I was hospitalized due to tremendous blood lost. After this my doctor put me on 60 MG a day. 6 pills of Asacol and I also was on ennama with Cortisone which totally almost killed me. The side effects were sooooooooooooo bad,let say I had them all.Right now I'm dealing with the side effects of the evil Pill " Prednisone" Moon face and this awful bloating in my upper abdomen, tiredness, no energies, heavy legs. It makes it really hard for me to get out & around.I hope my doctor will get me off this Prednisone. Not only messes it up your normal living no it also makes you look like a ugly bulldog! I hate it!

I am a 38 yo female. Took bactrim for UTI. Two and half days into treatment, I could not sleep. Strange dreams, agitation. Next day, absolute feeling of panic, anxiety, restlessness, loss of appetite, weakness in hands, confusion, sweating, heavy heartbeat. Went to ER, they were unfamiliar with this reaction. Seems to take quite awhile to get the medication out of your system. I will never take bactrim again.

After using Yasmin for three months I started to get syptoms of Cystitis.... Needed to go to the toilet all of the time and it was really uncomfortable. The doctor told me it wasn't because of Yasmin and that I should try special drinks etc to ease the cystitis. After a few weeks of pain and awkwardness I decided myself it must have been Yasmin causes these problems and stopped taking it. Instantly the apparent 'cystitis' disappeared. Remember, no-one knows your body better than you do.

Ive been prescribed Trimethoprim for Cystitis, and it worked after an hour or 2, stopping the dysuria and haematuria, although it gave me a headache at the back of my head and made me sleepy for the whole day.