May 1th
2009
5:23 PM
My son is 5 years old and has been on Singulair for 2 years. I am so relieved to find this website after seeing a report about Singular on the local news.
Just the other day I was telling my husband how much it bothers me that our son is not very affectionate. We also have a 3 year old who hugs, laughs and plays like a normal child should. My son, on the other hand, is very rigid if you try to hug him, very serious if you try to joke, and VERY, VERY emotional when I leave him anywhere...as if I'll never return! I don't know how many mornings I've left day care in tears. I always thought to myself "What are we doing wrong?" "Why would he think we weren't coming back?" He is also very moody and argumentative. He reminds me of a very stressed out businessman in his late 50's. Not to mention the leg pains and the nightmares...we have always chalked it all up to "normal" things kids go through. Now that I have read all of the postings on this page I know there is hope. None of us want our children to be unhappy. Thanks for informing me...we are stopping Singulair Immediately!!
October 1th
2008
6:20 PM
I have a 4yr old boy who has been on singulair for 5 months. Before he began singulair he was the most happy, kind, gentle, loving boy. We had an awesome close relationship. I enjoyed just sitting there watching him play. I could not wait for him to learn something new, but EVERYTHING has changed now. I took him off of singulair on Sept 19, 2008 after accidentally running into this site while looking up children and OCD. Thank God I did. It has been 12 days since I found this and took him off. I couldn't type then because I was to upset. My son who never had ANY mental problems or anxiety is now completely riddled with it. Instead of playing all day care free like 4yr old are supposed to do, my son spends his days now clinging to me in fear that I may leave or go into a room without him and he will not be there to open the door. He obsessively has to open every door now. He spends his days getting upset at the smallest things. He now gets mad at everything I say, or I don't say it right. Our relationship is not the same now, and I am devastated. Before Singulair he slept through the night every night. Now he wakes up every couple of hours to go to the bathroom and say "are you still there mom?" ok "I love you" "Don't let the bed bugs bite" I have to answer "I love you to" and "you either" If anything different is said he will go nuts, and he will obsessively say this over and over and over again. This is not my son. He is a totally different person. I am so very scared that this poison has permanently ruined him. I mean he is so young and his brain is developing. It has been developing with this poison in it, that has ruined him. It has been 12 days and he is still doing the same ocd stuff. He still seems really agitated. His muscles hurt, his tummy hurts, his eyes hurt, his ankles hurt, and he has diarrhea. My beautiful boy is now mentally and physically SICK because of singulair. I feel really bad to, because I did not know at first that the singulair was causing this and I was always getting on to him for his behavior and putting him in his room. At pre-school a couple of days after first giving singulair to him he started crying ALL DAY at school, and I made him stay there because I thought it was just because he had gotten a new teacher and he needed to get used to her. I feel terrible!! Does anyone know if the ocd will go away or has he now learned the behavior?
-- By piercesmom | Reply | (5) replies | Private Message me
June 13th
2008
11:23 AM
Who administers this site? I posted a side effect last night after I registered and then this morning I got an email saying there was a reply to my posting and when I tried to log in, my account was inactive and my posting had been removed, as had the reply to my posting. I don't know if it is because I put a link the an online reporting tool where the FDA is compiling feedback from people/or their children who have experienced terrible side-effects. Here is the link again and I urge you all to report your cases: http://www.fda.gov/cder/drug/early_comm/montelukast.htm
My son is 3.5 and has been on Singular for 2 months and just like all of the other stories about the other young children posted here, he is a different kid after being on Singular. Last night was the first night I took him off of it. All of the side-effects that are mentioned here are the same ones my son is experiencing, nightmares (screaming in the night), hyper, aggressive, reliving injuries from days past, the day care telling me that they now have concerns about how different he has been lately and the even used the term "bad behavior". They said he is hyper, he screams, not listening, aggressive. He is a favorite at day care since he is so loving, polite and kind. I know all parents say that, but pretty much anyone who has met him compliments me on how well behaved he is. I am even nervous to have people over since he seems out of control and I have found myself ensuring people that he isn't normally like this. I have taken him off as of last night and I am hoping he will get back to his old happy-go-lucky self soon. Does anyone know how long it can take to get this poison out of their system? I pray that there are no permanent side-effects.
-- By ryager11 | Reply | (6) replies | Private Message me
June 10th
2008
2:25 PM
Well, we just got out of the ENT and he couldn't believe that his ped put him on Singulair. He said he didn't like it, it wasn't a good drug, and hadn't heard of many good things about it. He also told me to take my son off immediately, to bad I already had. He also wanted me to put him back on Zyrtec but only when needed, not every day like he had been taking it. Told him about how the neb. had been talked about so he listened to my little one's lungs and he said that they are all clear and there is no need for one. While I was in this appointment, his ped. called. She said that she had never heard of any side effects with this and she wanted him to stay on it for a week to see if it worked or not. Sorry we aren't doing that, we had four doses of it and that is more than enough to say we aren't staying with it. This is just his first full day off the med and I shouldn't get all worked up but while in the waiting room to see the ENT we had two huge fits and even hit his head on one of the chairs because he didn't get his way. The ENT said to give him about a week to go threw "detox" and get it out of his system and then he should be back to himself.
Also, on top of the big mood changes and swings we didn't sleep good last night and had another fit of rage in the waiting room of the ENT. Not fun at all.
-- By coopersmom | Reply | (2) replies | Private Message me
April 4th
2008
12:42 AM
Update: Our son has been off of singulair since the 28th of March.....he had experienced most of complaints and ailments that affect other children. Since then, he is still tough to get to sleep - probably a 3 year old thing - but is better that before. He is also sleeping much more soundly and waking on the right side of the bed. He is still complaining of the leg cramps and sometimes still limping around for a while, and also complaining of stomach aches... I suspect those too should disappear after some time, however, he is no longer complaining that the lights and sun hurt his eyes. It is as though a major fog has been lifted - he is listening to us more the first time we speak rather than having to fight over things such as cleaning, or behaving. He is not as physical with us or his brother as before. And, the most important thing....he seems truly HAPPY - he has been napping all week at day care, and is proud of his accomplishment! He is focused in Karate class - listens to his Sir - engages in the activity with the other children - is more vocal and energetic....and once again PROUD! His Karate teacher - Sir - noticed an immediate difference in our beloved son - he was so surprised that Singulair is to blame - he said that our son is a complete different child without a trace of the drugged, insecure, and quiet boy he knew a week ago.
This Saturday our little boy will be testing for his yellow belt and he is so excited that he can hardly contain his HAPPINESS!!!!!
One last thought though.....I am extremely worried of any lasting mental or physical implications this drug could have on him - what does the future hold for our son - could this drugs nasty side effects cause some crazy long term side effect we have yet to see???
-- By mommybaby | Reply | (3) replies | Private Message me
April 2th
2008
9:33 AM
Here is some perspective for you all. I take Singulair and do well on it and in ACTUAL studies it has one of the safest safety records. Understand that post marketing reporting does not mean there is a correlation between the event and the product. Throughout the life of a drug the companies must disclose any report of side effects reported to them REGARDLESS of causality. A popular antihistamine that is OVER THE COUNTER also has suicidal thinking/behavior listed in its post marketing section. However, just because patients who had reported having these thoughts while taking the product doesn't mean it was a result of the product! Maybe they had a depressive personality and were also on multiple other medicines to treat that. You must look at the "Adverse Reactions, Warnings and Precautions" sections of package inserts to see the side effects that were actually seen in studies. You can die from ulcers derived from over use of aspirin or ibuprofen. Decongestants can throw off your blood pressure and these events are documented in actual studies! Listen to your bodies when taking any med. If you feel differently report it to your doctor.
These are all drugs people, there are potential side effects. There are also side effects to those "natural" over the counter remedies that are not nearly as regulated by the FDA or studies by the drug companies.
To anyone out there who has experienced side effects to singulair timed to when you started it, talk to your doctor, stop taking it and see if it goes away. Same advice for any product prescription or over the counter medicine. Side effects can be a combination of many factors (what other meds are you taking?) But understand for many people this product is the safest and most effective treatment for them. The FDA and Merck are reviewing all information to see if there is any correlation to the reporting. But singulair been around for about 10 years and prescibed to billions of people and is known to be one of the safer medicines out there overall.
In between the legitimate posts on this site I get the sense there is a lot of ambulance chasing going on. People looking to cash in on this big drug companies. We want drugs, we want them cheap and with no side effects which is not a reality. Keep stepping up the regulation and make the companies hire more lawers to protect themselves and jump through even more hoops and see what happens to the price and access to new meds. Even better, see how regulation has impacted the development of new medicines around the world (here's a tip, it will dramatically decrease). Drug companies certainly aren't perfect but which industry is?
Please, when taking any medicine over the counter, prescription or herbal supplement listen to your bodies to see if the potential benefits of the product outway the risks or side effects. Report any changes to your doctor.
-- By bachaman | Reply | (15) replies | Private Message me
October 9th
2009
11:54 PM
What a great website....My 2 year old son has been taking singulair for about 1 month, I know that he's having nightmares, his appetite has decreased substantially,and his behavior is unusually aggressive (I thought it was bad behavior picked up from day care...) I'm really having second thoughts about this medicine. confusing...this medicine does break up the thick mucas leading to labored breathing attacks...this is worth investigating more....what to do to have ur child diagnosed and treated properly.
-- By deebs | Reply | (1) replies | Private Message me