October 30th
2008
12:08 AM
I just received my Patient Medical Alert card from the Charcot-Marie-Tooth Association. It is a wallet size card for me to carry with me that list drugs that have or possibly have severe side affects for people with CMT. Seeing MACROBID on it reminded me of my experience with it about 10 years ago.
I am very prone to UTIs. My GYN prescribed MACROBID. After only 1 pill, my right thumb went numb. It spread to my index finger and then my middle finger. I was scared and called my GYN who told me there was no way that the Macrobid was the cause. I didn't stop with that answer. I then called the drug store, where I purchased it from and spoke to the pharmacist. I explained what was happening. He also told me that the Macrobid couldn't be the problem. I didn't take his answer and asked him to please get the contra -indications list and read it. There, in fine print, was possible peripheral numbness that can lead to death. I had 4 small children at the time, so you can imagine my horror. He contacted the pharmaceutical company that makes MACROBID. They called me to record my side effect and told me to NEVER take it again, that I could die if I did. It took several weeks for the feeling to come back in my fingers and hand. They had told me it could have been permanent. I didn't know I had CMT then. And this little card didn't exist then. I am writing this to warn others. If you don't know what CMT is, go to ******. It is a neurological degenerative disease. I am affected worse in my hands. I have a postural tremor in both hands now.
I hope my story helps someone.
June 29th
2008
12:39 AM
Dealing leg pain and swelling fpr over 6 months - having 2 DVT test and 3 MRI's they finally found that I did have a DVT in my left leg and now I am taking Warfarin as of May 30th 2008. I now have severe joint pain, sore skin/sensitivity, my vision is going I can hardly read anything all of a sudden, so exhausted, sleeplessness - even after taking an ambien and getting some sleep, I can take a shower dry my hair and I am ready to go back and lay down because I am so tired. the doctor says thin blood does not carry oxygen as well so this is why I am tired. I am not anemic as I just had that checked. I can feel my muscles getting weaker. From reading what everyone else says it must be this drug, but I don't think I could live without it since my clot is so massive. I feel like my life will end soon I am getting weaker by the day...is this just my imagination? I know I am depressed but I do think all of the symptoms I am having is from the warfarin(besides the pain from the DVT which is still very painful)
-- By jjatl | Reply | (2) replies | Private Message me
March 31th
2003
11:42 AM
Have disc degenerative disease, Paget's disease, osteoarthritis and restless leg syndrome. Prior to my hospitalization of 6 weeks, the ultraset helped with the pain but did cause some insomnia. I was on a feeding tube in the hospital and since returning home, I am still not eating or drinking as I should. I have noticed that the Ultraset makes my restless legs worse, I am now itching, and have insomnia. My legs raced for almost 10 hours last evening.
-- By musicnary | Reply | Private Message me
January 28th
2009
2:54 PM
My dr. put me on Lipitor. I took it for 4 months. At the 4 month mark, I was SO depressed, I couldn't function. Crying constantly, no concentration..almost like I was in a trance most of the time. I had problems finding the correct words to use, was paranoid about everything and everyone. I actually thought I must be in the early stages of Alzheimer. Honestly..I didn't know what was wrong with me. I had an actual "pain" in my heart and pins and needles feelings in my fingers and hand on the right side. My forearm became terribly "achy". I went back to the dr. and she said.."oh, I think you're depressed!" Gave me a prescription for celexa (anti-depressant, and sent me on my way. I went home..decided that I WAS NOT going to take an anti-depressant and began to do a little research on the lipitor. Amazingly..I couldn't believe the info that I found with people who had the same symptoms as me! I stopped taking it immediately and within 2 days..my depression and paranoia went away. However I am left with such weakness and pain in my rt. forearm and bicep as well as both shoulders. I went back to the dr. and explained what I had done (guess I shouldn't have mentioned about what i had read on the internet) Because she wouldn't believe that the lipitor would cause that and also said that I had been off of it long enough now(4 months at that point), that any pain that i was experiencing would be all gone! She wouldn't believe me and made me feel like I was crazy!! So..now not sure what to do. Will the pain go away, I wonder? Is there a way to "detoxify" one's self to rid us of all the bad stuff or is the muscle damage permanent and does it keep on going and just keep destroying the muscles, even though we've stopped taking the stupid stuff?? I wish someone could come up with an answer, because I don't know who to go to ask. I can't believe how weak my arms have become since taking it. Will it ever improve I wonder?
-- By colleen_58 | Reply | (3) replies | Private Message me