Demon symptoms and conditions

I had my demon mirena inserted in July 2004 after the birth of my son. Since then my life has been one nightmare after another. I have had body/muscle aches, swelling in ankles and hands. Slight fever all the time, skin rashes, dizziness, depression, my hair texture changed, insomnia, and night sweats. I was so tired I couldn't even do normal daily activities. My mood swings were so severe I began to think I was bipolar. I have been to about 15 different doctors over the past 4 years and I have been diagnosed with everything from Rheumatoid Arthritis to Lupus to Graves Disease and after finding this blog and others I know realize it's my Mirena! I called my doctor and am having it removed ASAP! She agreed that is was more than likely the mirena that has been ruining my life for the past 4 years. I didn't equate my symptoms with the mirena because they didn't start until about 7 months after I had it inserted. It was SO not worth it. I would have MUCH rather had another child than to go through all this misery for four years. I can not wait to get this thing out of my body.

Hello Fellow Women Against Mirena (WAM! O.K. I'm going to copywrite it) I am so, so, so relieved that I'm not alone. Don't get me wrong, I wouldn't wish this ....on anyone, but just like the support groups for any cancer (which I have to take a blood test for), or disease, it helps to know your not alone. I know that sounds corny, but I have always been a person who's feet hit the floor at 5:30a.m. and don't stop until 11:30p.m. and was able to lift 75lbs over my head, handle a charging stallion (not the hubby as noted by you all...not happening), now I am 50lbs overweight, don't eat at all, I used to be a grazer, ate little bits all day long just like my horses. Now if it wasn't for them waiting for"Mom" with their big brown unjudging eyes,cuz animals don't care about you being fat etc, but they do want their Mommie time back. I think that we should keep our removed Mirenas in little viles or zippys and chuck them on the desks of the CEOS who manufactured this demon ...then ask them to try their product out on their wives, girlfriends, daughters. mothers...I bet they wouldn't...I think after surgery to get it removed, I'll be mailing a package to Bayer and the company who makes it in Finland.....Look out Bayer in Wayne, NJ...your going to get your product back and I want a refund!...Thanks WAM, you have lifited my spirits..and if I happen to flat line in surgery, guess who I am going to haunt!!!

I was given this demon drug for a UTI, in May 2003. I have had severe skin rashes ever since. Cannot get in the sun at all. I have a beautiful back yard w/a pool. All my friends and family enjoy it, but not me.

Hi all I am so glad I found this site. I had my Mirena in for 3 yrs and could not figure out why I was falling apart. I had a constant headache, lower back pain , night sweats, insomnia,weight gain(30 lbs.,), low sex drive I thought I was getting ready to go thru menopause then I found this site. I called the Dr. that inserted the demon and .they could not give me an appt. for 1 month . I found another Dr. and he saw me right away and removed it no questions asked other than ,"Why did the Dr. offer you a BC loaded with progesterone knowing you were already depressed...this was just making you feel worse" Having it removed was the best thing I actually feel a lot better a week later . No weight loss yet but no more headaches , back aches ,night sweats that is a blessing already.

I have had my mirena removed 1 week & a day ago....the demon is gone. Oh my God, I can't believe how back to normal I feel. I thought it would take much longer if not forever. My constant bloat has improved, no more sweats & hot flashes, my back acne is gone & my face/malsma has cleared up...w/ help from bleaching cream. There is hope for all feeling desperate. Just get rid of it. it's not in your head...any ? e-mail ***

Well here is the male point of view. My spouse had her Mirena inserted Monday 4/14 like the FDA website says she had cramping and spotting. Literally the next day 4/15 the first mood swing hit. It did not matter what I did it aggravated her or annoyed her. Before the Mirena we were having sex 2-3 times a week. Zero sex this week. This morning 4/17 she reported her first bloating. She said she thought she had gas. What baffles me is most of the symptoms reported on this site are listed by the FDA as side effects common to more than 5% of test subjects. So why are your doctors telling you ladies this is all in your head? My spouse’s doctor said that Mirena was known for low weight gain, yet from the post that is like the number 1 common side effect. Am I every going to have sex again? Last night I did everything I could to seduce my spouse, flowers, wine, caressing, you know all those things men are not good at, and nothing....I got snubbed :-(
I'm going to give it some time but god I hope her case will be different. I'd rather wear condoms than deal with the moodiness. God forbid she gains weight (she just lost 15 lbs and that weighed heavy on her decision) that will throw her into a real mood.

Basically anything that could make me feel horrible emotionally and physically advair has done to me. I am 24, been on this ride to hell for 5 years or so, I wish I could sue GSK for every penny they have taken from people like me who have been affected by this demon medicine. I frequently tell my friends,family, and even my boss (a Dr.) to sue when I am dead from this stuff on my behalf. I am on day 2 of cold turkey. Wish me luck. DON'T TAKE ADVAIR!

Has anyone had hot-flash like symptoms with Mirena? I am having mild to sever hot spells since having my Mirena inserted.

I'm just posting an update on my daughter tomorrow will be 1 week since she's been off of it and she's doing great! laughing,singing,playing with her sisters and happy again. It makes me really mad when people come in and say this is not true. How about you rewind my life back five years ago and live my life. With a child that acted like she was a demon filled with hatred and wanted everything in my world gone. Have the people forgotten how just a year ago our pet food was poisoned,our own food, our childrens toys, our drinking water, and now our medicines? We don't live in the kind of world we use to..where doctors use to listen to you and stayed in the examining room longer than just 5 or 10 minutes. How on earth can you really get a true diagnoses these days. All I know is that my daughter for the first time in 5 years is happy again and not destroying everything in sight. Never again will I put her on Singulair again so a big company and their share holders can make a huge profit for themselves.

I would just like to thank all who left posts on this page. You can not imagine the relief I feel that I am not going mad. I have been taking Yasim for about 4 years now. I have been getting very dizzy, been having heart palpitations, sweating, chills, panic attack like symptoms, feeling faint, blurry vision, feeling foggy in my head and lack of concentration. I have been to 4 doctors who ALL found nothing wrong with me. I spent 4 days in hospital with these symptoms and was told that I had vertigo. I am so annoyed that no doctor made the connection between Yasmin and my symptoms. I have wasted the last year of my life in a foggy haze over this pill.

Thanks... I no longer feel like I should be committed...

PS Does anyone know how long it takes to get this demon pill out of your system???

I posted last weekend about my side effects with Mirena. To refresh everyone on the facts, I've had it since Sept 2006. I tried to have it removed in December but my doc wouldnt do it. She said it was extremely rare to suffer from depression due to Mirena. She put me on Prozac which has helped immensely. I have changed my diet and exercise and I can't lose weight and its all belly fat, I look 6 mo. pregnant if I dont hold my tummy in. I've never had a problem losing weight when I try. I had a feeling it was hormonal so I googled Mirena Side Effects and it brought me here. After reading all of your posts I decided it definately wasn't "rare" like my doc said and it wasn't just ME being crazy.
I went in today (to a different doc) to have my Mirena removed. The doctor flat out told me she would not remove my Mirena unless I wanted to get pregnant.
She said there was 100% no possible way that the Mirena would cause any of these side effects (sweat, fat, depression are the big ones). She drilled me on my diet, exercise and personal life to try and shoot down my symptoms. I told her my life is GREAT, and my diet/exercise is GREAT. She told me "You need 5-7 servings of produce, not 4" I said "I doubt 1 more serving of produce is going to magically make this GUT go away".
I also told her I have NEVER suffered from depression, and the Prozac helps but I shouldn't have to be on medication.
In any case, she still insisted that there was no possible way the Mirena was responsible for these things, because it doesn't go into your blood stream, yadda yadda.
She finally took it out anyway, I wasn't leaving with that demon still inside me!

I'll update everyone in a few weeks as to how I am feeling. I'm wondering how to ween off these meds... I don't really want to have to go into the doc and have her tell me I'm not allowed to. So frustrating!

My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona

My five year old was in the hospital for 4 days for a sinus infection and they put her on Omnicef. My daughter is a very cheerful little girl and these last couple of days she has been everything but cheerful. Its as she has turned into a demon over night. She has been having the worst mood swings. She has been screaming, yelling back, and kicking her legs and just being really mean. I remember the nurse advising me the possibility of a change in mood swings but I never imagined this. Omnicef did it's purpose BUT I hope to never have to use it again. I was not prepared for the mood swings my child acted out. I thought it was just my child until I started reading online and asking around.

Many strange things have been happening to me for the last year and a half, that I did not ever experience before. I just turned 38 years old. I am now suspecting these are side effects from the MIRENA. I want to get opinions about what I'm experiencing and what happens when it's removed.

The most profound thing is the feeling of being in a mental bubble. Even though I'm aware of it and I try to be alert, I feel cloudy minded and can't even rely on myself to remember things or commit to things because I never know how I will feel when I wake up each day. Some days are okay while others are completely LOST because I may have struggled to sleep the night before, sweating and soaking my pillow case and waking up with a rapid heart beat, panicking for no apparent reason right out of sleeping. Or, I'm irritable due to discomfort which takes several forms like these:
- major moodiness, like feeling totally peaceful one minute and then something small triggers me and I'm angry for hours, later realizing that I was overreacting
- visibly shaking hands, especially when I drink just 1/2 cup coffee.
- increased oily skin and acne on face, back, shoulders and even in ears, along with thinning hair around face
- fatigue and stiffness in the morning, so it takes me forever to get out of bed
- off and on fatigue that has me uncontrollably dozing off during the day
- bloated tummy (visible), gas and menstrual cramps in no predicable pattern, but I never go more than a week without these things
- strange libido, one day I wouldn't care if I ever had sex again, the next night wake up horny as heck at 2 am
- ears ringing, jaw pain, mystery pains in back and joints regularly

All along I've been assuming these odd things were stress and age related but the more I think about it, there's just too many things, and these things don't necessarily represent the stress of a typical stay at home mom.
Sure, I have had stress and anxiety in the past, but they could always be connected to something large going on in my life. Now, the anxiety and moodiness hit unpredictably and indiscriminately, it seems. For a long time now I feel like I'm a total mess physically and mentally, even more so because I realize something is wrong
I am pretty sure as of right now that I should get this removed. If the symptoms go away I'll then know what caused them in the first place.
I am wondering what happens upon removal, will it also be a roller coaster of physical and mental anguish???????? How long will it last?

Hi.. I have been researching birth control pills for a while now, as I knew I wanted to take them for acne and irregular periods. The doc gave me yasmin so I narrowed my googling and got a bit of a scare, after all the discussions I've read it almost seems now that it has a life of it's own.. it is a "DEMON PILL" that "RUINS LIVES" and it's "NOT WORTH IT" .................. but as someone who has never been on birth control at all before I'm trying not to be convinced that it will do nothing but make my problems worse, and I think I'd like to put it out there that you only hear the negative in places like this and all potential side effects ARE already listed right in the package. Everyone is different.. so I'll continue to try to read comments by girls who have been on it for as long as me.. So far it's only been a week, but already some girls describe horrific side effects of which I've experienced NONE. Maybe it's mind over matter lol I'm quite determined to have this work for me. Anyway just saying to anyone like me who is reading these.. if it's been prescribed to you don't be afraid to try it just because it didn't work out for someone else, NOT saying horrible side effects don't happen, it's very clear that they do.. but don't let the negative convince you so easily that all of a sudden it's all yasmin's fault that your life sucks.. try believing it might make it better!

hey gypsi, I, for one, am sorry for not responding to the weight gain issue. I know very well about the weight gain problem. After stopping pred. on June 10th, I've lost so far, 32 lbs. I've got about 25 to go. I'm glad that the problem for u was water retention. I'm still struggling with blood pressure problems but today is a good since last Friday when this all started. I still have alot of the withdrawal effects but have noticed I'm calming down alot which may help my blood pressure. Still don't sleep much but able to tolerate it better. For those who r going thru this, U R NOT ALONE. I wish that the doctors would do indepth research on this demon drug before putting us on it. I pray for all of u. If u have family members or a spouse that doesn't understand, print out some of these posts and show them. I've been blessed that my family and friends know and understand. My husband works all day so I get alot of frustration out during my time alone. If u can't sleep try benadryl or something otc. It will take a while for me to feel "normal" again. Thanx for listening

To guest 12068
I'm so very sorry u r going thru this. That is way too long to be on pred. Is there any way your fiance' can go thru therapy with u? No one understands this demon drug and we r not ever told of the long term dangers of taking this. It will be 1 yr. or longer to be rid of the side effects from being on it for 4 yrs. I understand the anger problem. Mine lasts about 10 minutes then I get really quiet and then I'm ok. My husband is great about it. He just says calm down and waits it out with me and then I feel stupid and everything is ok again.(until the next time) It comes on so fast and leaves just as fast. I'm trying to talk to myself before I let anyone else see my mood. Sometimes I just walk away and settle down and then I'll be ok. I've got two wonderful friends who know what is going on and they understand and hug me when I get like that. I still have insomnia. I've been off of pred. for 6 weeks. Fatigue happens real sudden like rigor mortis is coming on. Ha It does feel weird. U r in my prayers even if we don't the names on this website. It will get better. Since u have been on this so long hang in there with the therapy and keep us all posted and ask all of us anything u want. Thant's why we r here. U don't know until u go thru prednisone hell. : )

i was on prednazone until i was 5 years od. in addition to daily antibiotics (penicillin) and other concotions for severe asthma and allergies. i am now 33, and in deteriorating mental health. anxiety, depression, mood swings, you name it. my fiancee leaving has awakened me to how bad it is getting (not violent, but certainly extreme anger, rage, frustration) and i am tired of living with it. counseling is a start but i'm wondering if anyone has any info regarding long term psychological affects of taking prednisone for an extended period, especially during childhood. thank you for any info
r

Sorry, but it is me again.
Eventhough I made the 'demon' drug look bad with bad side effects, you have to look at the WHOLE picture with YOURSELF in it. Is this 'demon' drug going to help you? Are some of the side affects less problems then the one you are curing?
I had both my kidneys fail for some unkown reason. The Doctors never found out why. Today, I have my own kidneys because of the 'demon' drug. However, I lost other parts of me as 'side effects'. Was it worth it?? I keep telling myself it was, at the time they told me my kidneys were starting to work, it seemed like a good idea. Now after 2.5 years looking back, I guess it was a good decision. NOT ALL people have all of these problems from the'demon' drug. Everyone is unique.
Do you take chances with the Power Ball lottery? If so, you just have to take another chance, but this one is on LIFE.

God be with you all. Take care and DON'T give up.

Talk to you later

Angel

Prednisone- what can I say.
I was on 40 mg 3 times a day, then cut to 40 mg 2 times a day. This lasted for 2.5 months before they started to slowly get me off of it. I finally got off of it after 4 months. This was pure hell.
FIRST OFF to any of you that goes cold turkey on getting off of it, DON'T. NEVER DO THAT!!!!!!!! If anything get off of it SLOWLY!!! If you are at 20mg a day, cut / break them in half, take 15 mg for a couple of days, then 10 mg for two to three days, then go to 5mg for a couple of days. The higher the dosage that you are on, the longer it takes to get get off of them. REMEMBER, I'am NOT a Doctor, this is some of my insight on this 'demon' drug.

How long to get it out of your system, well it will depend on the dosage you are taking and how long you have been taking it. With the high dosage I was on and the lenght of time, about 5.5 months, I'm STILL affected by the 'demon' drug and it has been 2.5 years since I got off of it.

One VERY IMPORTANT point to make if you are going to be taking it over a lenght of time is: If you have a wife / girlfriend, family, and friends, let them know right away. They don't know or realize what it is and what you are going through. For your family if they don't understand have them talk to your Doctor.

I have MANY side affects from this drug and will go through more of it some other day, but right now I'm having 'wife' problems because of this stuff. I sat her down three times during the couse of taking the 'demon' drug but she did not or could not believe it. (note: for the first month on it, I average 1/2 hrs of sleep per night. This IS with taking a stong sleeping pill.) To this day, my wife is not really even talking to me because of the way I acted when I was on the 'demon' drug. I don't remember any of it, and try to explain what it is like to not sleep for weeks. SHE doesn't understand that, she just says that it was me and my fault.
There is nothing I can say now to change her mind. So now after 33 yrs of marrage, (30 of them were just great) she wants to leave me. So keep that in mind with any high dose long term use. Side effect possibly lose your spouse or friends if they are not aware of what can happen to you.

To those of you on it, God be with you and stay strong. You are NOT going out of your mind, it is that some people do not understand.

Talk to you all later.

Angel