November 6th
2009
8:58 AM
Hi- I am a recovering alcoholic four years sober with Bipolar II diagnosis. I previously was treated with only an antidepressant/anxiety med- lexapro,
but 9months ago was put on lamictal 250mg. After the initial slow buildup in dosage I felt pretty stable. Now I am experiencing depression again. I have to get a new psychiatrist, my current one is going on a leave of absence. I am wondering if anyone else has experienced initial positive results and then after a while a recurrence of depression. Anyway- others have asked about "mental fogginess", short term memory loss, mine went away about a month after I reached my current dosage.
October 26th
2009
8:34 PM
Am on day three of Omeprazole for pangastritis, ulcers, acid reflux disease and duodenitis. I have cried every day. This is not like me. Mother died of stomach cancer so am afraid to stop taking medication following endoscopic diagnosis last Thursday. After reading this I believe I will have a discussion with my gastrointestinal specialist about just cleaning up my diet to the 'n'th degree.
-- By kberglass | Reply | Private Message me
October 10th
2009
10:22 PM
I have been taking Neurontin for almost two years and am on 2800mg per day for severe headaches and face pain. I started it when I was pregnant and thankfully my baby is perfect despite feeling extremely stressed about what may happen to her. I can't wait for a diagnosis so maybe I can get off these damn tablets as I haven't felt 'myself' for so long.
-- By gronk | Reply | Private Message me
October 6th
2009
12:08 AM
Googled and found this site. Could not believe all that I read! I've been taking Lamictal for several years for Bi-Polar disorder. I also have GAD for which I control with another drug BUT...I guess it's been so long since I began taking Lamictal that I had forgotten, or did I ever even know, the side effects of it. First if all, the memory loss is incredible! Not being able to complete a sentence...never able to find a "word" that should be so simple to remember...going somewhere and within 2 seconds, forgetting what in the world I'm doing or where I'm going...happened today TWICE!
And to top it all off, my eyes are so bad...I didn't even attribute the L to this until I came to this site but it makes PERFECT sense! I feel such a sense of loss in my eyesight that it has begun to really scare me. I have not been to eye doc yet but plan too.
Also, someone mentioned in here that they feel the med just wears off before next dosage and that is exactly what I've been telling my doctor so at first, we just upped the dosage until I was on 450mg a day but even the, it still was not working. SO...now I'm decreasing and the doc added Depakote Er 250mg. But doc says I have to be almost completely off L to get fully on D. So...feel like crap a lot of the time!!
I'm like someone else on here who said, "just start fresh" and that is what I'd like to do but how do you go "cold turkey"? I know it isn't good! Even decreasing this L for the last several months has been hell!
I have been on a roller coaster of meds for 10 yrs. Have yet to find the "combo" that works! Sometimes I wonder if the diagnosis of BP was/is even correct.
Another person in here said he feels like he may have some side effects of OCD and I feel that way too. Nothing major but...enough for me to notice.
Damned either way, right?
One thing I DO KNOW is that I cannot take this eye problem anymore and now that I know my memory and all that other stuff has to do with L, I'm getting off it no matter what! I'm calling my doc tomorrow and we HAVE TO MAKE A PLAN!!!!!!!
I'm only 42 but my memory is that of an 80-yr old (except for my grandmother who died at 96 and could remember details of when she was 4 yrs old...lol) I guess it's good I can kinda laugh at all this but I DEF know it is not funny!!!
Anybody out there with insight to diff. meds...combo of meds?? I really am worn out!!
Right now, I am down to 375 mg of L and this has taken me several months now to decrease from 450mg...don't see the D working that well yet but it's only 250mg so...
I really am worn out!! My anxiety shoots through the roof bc of all of this! Esp. when I feel the L wearing off around 5p or so...
I'm game for any advice ( I did see where the one woman talked about changing the time you take this in the morning but that won't work for me)
Thanks!!
October 1th
2009
7:22 PM
10-1-09 For the past year my husband has complained of severe headaches, muscle and stomach cramps, nausea, diarrhea, hot flashes weight gain and severe depression.(he takes anti depression meds) He sleeps 8 to 10 hrs during the day and all night. He has seen a stomach specialist and a neurologist. He has had numerous tests done by both Drs. He had his gallbladder removed in Dec.08 He had over 100 gallstones His thyroid is very low, (has been since diagnosis 6 yrs ago) his medication has been increased 2xs in the last 2mos. He is not any better. He will see an endocrine specialist 10-5-09. I have researched for hours on the internet for anything that will help the drs. find what is causing all of these complaints. He has so many symptoms, nothing matched and from head to toe. No luck until now. He has every symptom that you good people are describing. I will most certainly use this information and share these stories with his Dr. I have seen the LIFE being sucked out of my husband. None of these "Specialists" have ever suggested that perhaps the lisinopril might be the problem. I GUARANTEE YOU I WILL!!
Thanks to all of you for sharing your stories, GOD BLESS EACH AND EVERYONE OF YOU. A. A.
September 25th
2009
9:15 AM
There are so many of us with depression/emotional issues from the NuvaRing.
For me, the NuvaRing saved me, only by revealing the MESS it created.
I was diagnosed bipolar in 2000 and spent 5 years on heavy medication in an attempt to manage it. In 2005 I went off the medication and my oral contraceptives in order to become pregnant. Following the birth of my son, I never returned to oral contraceptives AND never followed the typical path of a bipolar mother. There were no PPD issues, and I ended up not returning to the bipolar medication. I was symptom free without an explanation.
In May 2009, after years without anxiety symptoms, I went on the Nuva Ring. Within 12 hours, all of my old symptoms had returned. Within 5 days, I realized there could be a correlation and removed the ring. By the next day, I returned to myself.
With a call to my psychiatrist, who I hadn't seen in over a year, I described what had happened. She explained that the hormones do not process through the liver with the NuvaRing, unlike the oral contraceptives. This direct route into the body made the effects of the LOW dose hormones that more apparent. Thankfully, I learned that my issue all along was the hormonal birth control, and not my mental health.
My option is now a non-hormonal IUD, which has it's own messy issues, but I embrace fully in exchange for the emotional instability.
I feel that I have one of those stories that women need to hear. I do believe we are not realizing the full effects of these hormones. I took it as far as one can take it, with a full diagnosis and years of medication. I have to wonder how many women are experiencing milder effects and just don't realize that it could be the hormones.
-- By mmmmm | Reply | Private Message me
September 24th
2009
1:27 AM
I have been on Nuvaring for 2 months now and after the first month I went back to the doctor and she said that the side effects were normal and would go away after a few months. I don't think I believe that, cause I just feel so bad. I use to never fight with my boyfriend and now it is an every day occurrence. I get headaches all the time now it seems almost everyday. I feel so depressed and before I got on it I was happy go lucky and the peaceful one and now I am just on edge all the time and I hate it. I get nausea and for a moment i was thinking maybe I am pregnant but I am not and it is just frustrating and irritating. The best things about the ring is I don't really get cramps and no period pimples and no weight gain and no pill everyday. I never had there problems on the pill lo overall or on the patch. I must say though that it feels great to know I am not alone cause I was beginning to think it was just me and also i don't know if anyone has this but does your chest or heart feel tight at time like a palpitation? I am 24 and I never had this until now and I am so tired that all I want to do is sleep and I feel faint from time to time. I feel like i have all the bad symptoms except a few and no yeast. I honestly think this is my last month on this and thank you all so much it is such a relief to know I am not alone. Oh and I do get hot too and everything.
-- By alex808 | Reply | (1) replies | Private Message me
September 22th
2009
1:02 PM
Wow, am I ever glad I found this site. I'm taking Bactrim for Pouchitis. I thought surely I was going crazy. Just a few days after starting the meds, I ended up in the emergency room because of a headache so severe and fever I thought I had meningitis....I was treated with a Zpack and sent home with a diagnosis of Sinusitis. I had even told the doctor that I just started Bactrim and she said it shouldn't cause these symptoms. Not long after the episode with headaches and fever, I began having joint aches primarily in my legs, but now it's starting up my back. I called the Dr. that prescribed it today, but plan on stopping it whether he recommends to or not. This is crazy...also noticing signs of depression and fatigue...
-- By micheleleewv | Reply | Private Message me
September 22th
2009
10:02 AM
I was reading your post and had to reply to it!! I have been on toprol xl for about 10 years or a lil longer! Started out at 100mg a day now take 200 mg a day. Am a 37 year old female,feeling like a 90 year old female! For the past 3 years or so experiencing numbness started in my toes, now my left foot to right below my knee is completely numb,right foot and leg getting that way!My hands stay real tingly also! When they are not numb they hurt me so bad. I just couldn't believe your post when I read it! Been to neuro telling me I have severe nerve damage in arms legs and feet? I am like from what? Had all kinds of tests and MRI, nothing.... Thank you for your post,printing it out and taking it to my doc! Maybe we have finally got a diagnosis!!! Sounds like it is the meds to me,Not to mention I am also on 3 other bp meds! Just scared me saying I might have M.S. More like toprol xl huh? How is your numbness now? Was wondering if u experience pain w/ the numbness? Thanx T.
-- By pigluver71 | Reply | (1) replies | Private Message me
September 9th
2009
11:14 PM
My daughter is now 20 years old. she received her 1st gardasil shot in 3/08 and the second in 8/08. She didn't get the last one and will not be getting it. From the day she got the first shot we should have known something. She nearly fainted immediately after both shots and complained of weakness and flu like symptoms. Started feeling poorly in the days and weeks to come. It was the end of her senior year the doctor tested her for mono. and it was negative but she had an extremely heavy schedule at high school. He chalked it up to the stress of that. Between the two shots she started having numbness and pains in her hands,elbows and arms. She continued to feel poorly and terribly irritable in the upcoming months. We saw a orthopedic doctor for her pains in her arms. He referred us to a neurologist. She was beginning her first year of pharmacy school and we put off the neurologist because she didn't have much time until spring break. During her 1st year of school after her 2nd shot. Her personality changed completely. Became insecure, moody, very anxious , constantly complaining of flu symptoms, bladder infections and had a hard time urinating. When my daughter returned home from her first year away at college I knew immediately that she had changed. She had been a very bright, intelligent, independent daughter and came home the daughter from hell. I couldn't believe what I was seeing. She was miserable, disliked pretty much everything. I had been talking with the doctor and friends over the course of the year and they all said that she was in a very stressful field (pharmacy) and college life takes some time to adjust. Then just a few weeks home from college she was complaining of dizziness, light headedness, headaches and saying she was having an episode. I thought maybe low blood sugars.....until I witnessed one. She was having Myoclonic seizures. She could feel them coming on but couldn't move or react. By the time I witness one of them she hadn't slept in 3 days. She was diagnosed within a week seeing a neurologist and having 50 to 60 a day. It took 4-5 weeks to get them under control in and out of the hospital . She has been on many seizure medicines it seemed like if it worked to stop the seizures she had crazy side effects. She was diagnosed with Juvenile myoclonic epilepsy. No one in our family has ever had seizures. I asked about the shot right away everyone said no and it was dropped. Since last July 08 we have been trying to help our daughter get her life back and it has been the worst year of our lives. She was unable to return to pharmacy school. The first fall 08 she was completely disabled. It looked as if she had had a stroke. They were saying it was the meds or maybe she had a breakdown of some kind. I am learning that it was side effects of this horrible shot. This is why I am posting this lengthy message because I wanted to let other people know that you and your daughter are not crazy!! We just started 2 weeks ago investigating the possibility of the gardisil shot being the reason for this madness. We have learned many things and are very sure that it was the shot that change our daughter.. I was contacted by a friend of a friend about a similar girl having the same pains in her arms and the focal seizures. I am learning more and more everyday about similar situations.. If this information can help one person it was well worth the time to jot it down. I will be praying for all of your families out there dealing with side effects from this vaccination.. I will let you know what we hear when we visit the neurologist at the end of the month. Any comments or information that may help us help our daughter can be sent to ******
-- By tdrich | Reply | (3) replies | Private Message me
August 24th
2009
1:08 PM
I've been on Advair 500/50 for about five years now. Nothing seemed to control my adult onset asthma before then. Singulair worked great but caused shin pain. I seem to tolerate the Advair well in most regards. About 3-4 years ago, I started having a productive cough. It is not all day long, but usually upon first rising and occasional bouts during the evening. I am also hoarse, but it could be due to other meds. I have had pulmonary workup which was great. I have recent cardiac workup, also great. Breathing is fine, better than ever. It is this cough that makes me sound worse than tv's Felix Unger. I am beginning to think it is caused by the Advair, as no other diagnosis is forthcoming.
-- By sajwife01 | Reply | (1) replies | Private Message me
August 14th
2009
6:13 PM
Is anyone experiencing confusion, trouble thinking, trouble concentrating, decreased cognitive function, mental sluggishness, trouble solving problems or situations which require logical thinking and sequencing, and memory loss? Would love to hear from anyone experiencing any these symptoms and if so, how long were you on the drug.
Thanks!
P.S. I just happened to visit the Alzheimers Association Sites Forum as I was interested in a connection between BP meds (particularly this crap) and guess what...you will not believe the those folks diagnosed with Early Onset Alzheimers who have taken Lisinopril for years before diagnosis...Hmmm...any connection here...bet there is...? This crap has been around since the early 80's...wonder how many people now in there 70's were taking Lisinopril in their 50's and are now suffering dementia. This is not coincidence folks. These BP meds that cross the blood brain barrier are doing more harm than good. Can't understand why if this drug can cause depression, it can't be doing other things to the brain. It is...I tell you it is....get off this crap before you're sitting in a Nursing Home and don't know your ass from a hole in the ground.
-- By bellabear | Reply | (2) replies | Private Message me
August 9th
2009
3:22 PM
wow- glad I found you guys! I'm female, 54, thin, healthy, have always exercised and watched my diet. cholesterol went up to 280 a couple of yrs ago- tried more diet/exercise but it only came down to 250, so since then have tried 4 low-dose (40 mg) statins (crestor, lipitor, zocor, and now pravastatin), all of which after 2-6 months made me feel like I was jumping out of my skin and caused chest pain and palpitations that stopped almost immediately when I discontinued them. Also, I've always fallen asleep quickly and now take an hour or more, and recently my fingers have started falling asleep/tingling. I'm stopping the pravastatin today! Maybe 250 isn't so bad, if this is the alternative. Does anyone have any remedies to suggest besides low fat/low sugar diet? I just read that we should avoid reduced-fat milks (I drink 1%) because they contain oxydized cholesterol, which irritates the artery wall.
-- By fish58 | Reply | (7) replies | Private Message me
August 7th
2009
3:28 AM
A week ago I went to my first "psych appointment" in about two years. He was a new doctor, so the "new questions" he asked me brought up some thoughts about my past...medically.
Every time I tell a professional, where they're behind the clipboard & i'm in the chair, how much lamictal & abilify I was on, they look shocked & ask questions.
Simply because everyone thinks it was TOO much for a manic depressive diagnosis.
200mgs of Lamictal & 30mgs of Abilify for about two years.
I am a bright, young, witty girl...or well, I was.
It's not that i'm technically old now, I'm merely twenty..
It's not that i'm dumb, I just can't piece all my jumbled thoughts together anymore....
Word vomit is getting old...
"Brain Farts" are embarrassing...
& I feel like I'M getting old..
Thinking of actually being sixty makes me want to cry, who knows how tired i'll feel then..
Reading these comments make me feel re-assured that it's not "just me"...but I feel like my brain is fried sometimes, ya know? Then 60 seconds later, I'm thinking clearly again...
If it's because of all the medicine I was on, that has shocked so many doctors & therapists at the dose, I'm really glad I came out of that "phase" mentally *****.hah.
Thanks you, to those who were in control when I was under the age of 18. Thanks a lot :)
-- By hatscat33 | Reply | Private Message me
August 6th
2009
10:27 PM
Just started my six year old son on Zyrtec again. The dr. said he could take the adult pill now 10mg. The last few nights he has wakened with terrible nightmares/night terrors. And after reading these posts i remember taking him off for the winter (he was on the liquid 5mg) and i remember him always itching his arms and legs. i remember giving him oatmeal baths. Now i know it is from stopping the Zyrtec. I am calling the doc tomorrow about these nightmares. He was also on Singulair 4mg for 1 1/2 years then one year ago was upped to 5mg. Within one dose we noticed he was very depressed and cried easily. After a week called the doc about it, stopped it then had our son back in a few days. Will Never give Singulair again and now stopping Zyrtec. All these meds are so scary. A part of me feels these meds are created because it is a HUGE business. They have side effects then you have to take other meds for those side effects and it is a never ending circle i feel purposely created by pharmaceutical companys to make money. And we are all suffering because of their greed. Shame on them
-- By kristih | Reply | (1) replies | Private Message me
August 5th
2009
7:13 PM
had #13 root canal, 2006 using septocaine 1:100,000 4%. diagnosis: permanent and chronic neuropathic facial pain to date.
-- By mandelkern | Reply | Private Message me
August 3th
2009
7:12 AM
Had Mirena coils for 10 years before having it removed 2 years ago as I was 52 and was told I didn't need it any more. Had always had acne while it was in place and that didn't clear up after having it removed. A few months ago, by chance, a 7cm tumor was found in my pelvis, which defied diagnosis by ultrasound, MRI and CT scans. My CA125 ovarian tumor markers were over double the normal rate. Gynae Oncologist told me I must have Total Abdominal Hysterectomy, Bilateral Salpingo-Oophorectomy and Infracolic Omentectomy. Had the op 3 weeks ago and am now recovering. Finally had histology report back last week and luckily it was a benign Fibrothecoma! Strangely, my acne disappeared with it and I reckon the tumor had been there for some time. Is this a coincidence? I can't convince myself it is and would urge users to be very vigilant.
-- By mags54 | Reply | Private Message me
July 23th
2009
10:10 AM
There is a class action lawsuit for anyone that took Yaz/Yasmin birth control. I just saw the commercial the other day from an attorney in Denver and it's nationwide. Please call Nolan Law Group - Valerie Romo at 888-630-9340. They are handling it nationwide.
-- By hglasser | Reply | (6) replies | Private Message me
July 15th
2009
9:48 PM
jesus its really comforting to explore the possibility that all this unnecessary havoc is the synthroid! i have wasted the last four years in complete confusion, and utter weirdness .and frankly feel old as hell ..
ive always felt up until 5th grade, the times would never be so jolly, but the last four have been dead since my diagnosis at .75 mg; i feel like a numb, lifeless, terrified kid trying to feel something, if anything at all. I have experienced many of the symptoms below, hair loss, anxiety, extreme bipolar moods, and depression. I want to cry for keeping my mouth shut for so long and i constantly fret and worry that age twenty is killing me faster than other people for no apparent reason- im done and would be thrilled to cash in my manic depressive cynicism for a sleepy and happy soul. now i have to figure what to do next...any suggestions other than throwing the shits in a fire?
June 29th
2009
10:12 AM
Hi everyone, like almost all of you I was so glad to stumble across this site. I had my mirena put in 4 months ago and when I was getting it put in my partner took the day off work and decided to tell his boss it was because he was coming with me to get the Mirena (I was horrified that he told him at the time!). But it turned out to be a blessing because my partner came home 3 days ago and told me that his boss asked him whether I had been getting deep pimples that never come 'to a head' and that his wife had them all over her face and couldn’t get rid of them and that she had put it down to the Mirena. I said to him, "Don’t be ridiculous, the Mirena does not give any side effects", and that was that. See I was told from my gyno that "The Mirena is perfect" and she said that the only people that go back to her to go off the Mirena "are people that are never satisfied with any contraception". And then over the past three days I realized that the bumps on my face that are deep under my skin have only appeared in the months after I got my Mirena and I have had worse pimples than ever before, and they have been untreatable with new ones appearing every day and I had never before had lumps that remain under my skins for months. It also wasn’t until I got onto this website that I realized the anxiety I have been feeling in the last couple months, weight gain and itchy skin have also all come about since the Mirena. I am tired all the time and never want to move or do anything and hate getting out of bed even with 14 hours sleep!!!!! Also - I have been pulling clumps of hair out of the shower drain and my comb over the past couple months - yet have had the same hairdresser and hair routine for the last 6 years.... I could not figure out why I was losing my hair and ended up having it cut from a mid-long length to above the shoulders 3 weeks ago, because there was just hardly any hair left. Also - about 2 weeks ago I told my partner (in an emotional uncontrollable episode which has become a frequent event since Mirena) that I had no reason to live anymore and just didn’t want to go on. First time I have ever felt like this, it was awful. I am normally the happy person at work who gets along with everyone and yet now I cant stand the look of any of them or even the sound of their voice makes me want to scream at them. WHOA, CRAZY!!!!!!! I have also lost any interest in self appearance and in the past few months have completely let myself go. I have also had sex twice since going on it. YES thats right - SEX TWICE IN FOUR MONTHS, aaaaaarrrrrgh. And to the most disgusting part of all - I have been getting an awful discharge that smells bad. I am a really clean person and was considering going to my gyno in the coming week to ask why it was happening….. I have been on many pills and the depot and whilst I experienced side affects with all of them, none of them were anything like this, I would get a side effect here and there on the others, nothing like this. Biggest waste of $800 ever. p.s. I wear panty liners every single day and night of the week.
-- By rin | Reply | (1) replies | Private Message me
June 25th
2009
12:56 AM
I have had panic attacks, depression and general anxiety disorder for most of my life. Sometime during my teen years I became well enough to go off medication and manage my issues on my own. Before I started taking Yaz seven weeks ago due to a recent diagnosis of Polycystic Ovarian Syndrome, I had maybe one episode every 2-6 months. Since I started taking Yaz (or Dyazide) I have had panic attacks almost every day. I read last week that hormonal imbalances can make anxiety worse, but had no idea it would be this bad. My agoraphobia has returned- I'm scarcely able to leave the house. Today I decided to stop taking this medication. Hopefully it will take less than seven weeks to get it all out of my system because I do not know how much longer this will take.
The interesting thing is, even though the makers of Yaz say that the FDA wanted them to clear things up in their ad, they never mention this. I had never heard of a connection between birth control pills containing synthetic progestins and anxiety. My doctor never mentioned it. If I had been aware I would have asked for a completely different method of treatment, because this is unbearable. If you are at all concerned about anxiety or panic attacks, have a lengthy discussion with your doctor about these side effects.
-- By hellojessi01 | Reply | Private Message me
June 22th
2009
8:06 PM
Me too... I've had a nagging cough ever since an upper resp tract infection (treated & improved w Z-pak). This has been over a month ago. I started Lisinopril:HCTZ combo many months ago & no complaints before. Could drug be the cause of my cough? I've been thinking I aggravated my throat from all of the coughing w the sinus infection. Whatever - it's a drag! My SO is tired of my coughing & fumigating our living space with Hall's cough drops all the time. My BP is good though.... I'm thankful for that.
-- By wait2sea | Reply | (1) replies | Private Message me
June 20th
2009
9:16 PM
I am so glad to have found this site. We are taking my 2 1/2 year old son off Singulair immediately. He has been experiencing a rash on and around his ears, around his hairline, back of his neck and shoulders, down his arms to his wrists and on his face and below his chin - almost everywhere above the neckline. At first we thought it was a reaction Singulair and took him off the medication. When it didn't subside, we took him to his pediatrician's and they told us it was a heat rash due to a reaction to sunscreen and sweat. Since I have had that reaction myself, we agreed with the doctor's diagnosis. We restarted him on Singulair and the rash only got worse. We've taken him off the Singulair and will be contacting his allergy/asthma doctor immediately about this reaction. We are not sure if he has experienced other side effects - we have seen an increase in him crying when he goes down for bed and wanting to snuggle, as well as not wanting to be touched on the legs (not sure if that's due to his scraped knees or not). Unfortunately, it's difficult to get a 2 1/2 year old to tell you exactly where it hurts.
Thanks for the information - we now know that we were correct in the beginning and that our son does not have to go through this any longer and can enjoy his summer.
June 17th
2009
3:46 PM
I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face
my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long
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November 7th
2009
3:47 PM
500mg 3 times a day for 10 days, vomited once, have had a horrible headache that started day b4 yesterday, still kinda have it, comes in waves, sux real bad lol
i have Sinusitis, Bronchitis, and a severe respiratory infection.
i see some guy on here mad cuz the doctor didn't tell him he would have bad headaches, like the doctor was going to know in advance he would. this anti-biotic affects different ppl different ways, its really not his responsibility to go over every single side-effect this very common anti-biotic is going to have, thats why the pharmacy gives you a huge pamphlet informing you on the medication, if you would had read it then you would see that headache, diarrhea, and constipation are all common side-effects
i didn't read it however, until i came here and read what i read, which is comforting really cuz at least i know why i have the headache so bad, and why i lost my lunch yesterday, was actually worried maybe i had an infection in my brain and thats why i had it, i know, sounds dumb, but what can i say, im paranoid lol
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