September 9th
2009
7:55 PM
Hello,
How long do side effects last after completing steroid treatment? I've been off of pred for 4 months for crohn's first time. I was on 40/30/20/10 for a 6 week period. When I got to 30 my legs went into extreme pain. They felt like they were on fire, burning knees. Went to several doctors. One said steroid withdrawal, one said inflammation of nerves from Crohn's. Neurologist put me on neurontin to get off of the pain meds. I am still in excruciating pain and wondering if it really is steroid withdrawal. I can barely walk at times with extreme sharp pains, like someone is stabbing me in the legs. Can't stand for long periods of time and pain pills barely touch the pain. During steroid treatment, they gave me 3 rounds of Dilaudid in the ER and I was still crying, and I don't cry. Has anybody ever had this effect this long after being off the drug??
August 15th
2009
10:12 AM
I am 43 yrs. old and have had 2 back surgeries and other procedures to help elevate my pain, but to no avail. I am now on 60 mg of oxycontin and dilaudid for pain which seem to be finally making a difference. And for some reason my doctor has put me on zanaflex also. I took one dose and I don't know if I wasn't to continue, last night was the first dose and I had a strange feeling as I was falling sleep that I was going to die!!! As I tried to wake myself up out of the drowsiness it subsided and I fell asleep. When I woke up I remembered having strange dreams about my mother and my brother both who has passed away in the past 2 1/2 years. I mean really bizarre dreams that make no sense. I believe it to be because of the zanaflex. Does anyone else have these problems??
-- By iieyesblue13ii | Reply | (1) replies | Private Message me
May 20th
2009
2:51 PM
They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.
-- By sbl315 | Reply | (6) replies | Private Message me
November 16th
2008
2:38 PM
I have been prescribed cipro 2x for diverticulitis and has adverse reactions (after completing the recommended prescription) to dairy and fruits (citrus acid). When another bout of diverticulitis occurred, I asked my doctor not to give me cipro. He does some research and prescribes levaquin. I completed the prescription and now more than ever have adverse reactions to dairy and fruits and anything that has whey or citric acid in it. I think this is just the tip of the iceberg of exactly what I am allergic to. I have done extensive research of the adverse reactions from cipro and levaquin which for me once I eat these particular foods is extreme case of hives and skin rash. I have to take benydral. Sometimes it helps and sometimes it does not. I went to my gastroenterologist and allergist with complaints from taking these drugs and they have told me they have never had anyone come to them with complaints. Who are we kidding? With all the reading I have done, these drugs are poison. Although I know I am among the extreme side effect category, I need help and I can't get it anywhere. I have also read that these quinolone antibiotics are given to the animals, foul and fish that we eat. So does that mean we are ingesting extra quinolone into our systems when all we want to do is have it wear off? My wife feels that we should eat organic meats. I tried organic milk and I have reacted to it. I just want a bowl of cereal and a normal cup of coffee. Whey also gives me hives. Whey is in almost everything and so is citric acid as preservatives. If there are anyone of you out there that is or has experience similar to what I am, please let me know. My doctors cannot help me,nor do they seem to really even care. My wife has given them a lot of information she has been downloading from the computer. Hope this wears off soon. Every time I take one step forward, I wind up taking two steps back. Where is the help out there that we need? Since we are the minority who suffers from these drugs, doctors don't care until they have to deal with it. What is wrong with our medical society?
-- By shock | Reply | (1) replies | Private Message me
August 5th
2007
4:16 PM
I was a very healthy 23 yr old female. I cant believe that I finally found someone going thru almost what I am going thru. My name is Liane and My life changed on July 7th, 2007. I went to the hospital for frothy urine. They told me it was a UTI and gave me Levaquin for 7 days. I took it for only 5 days cuz ( I was allergic too) then were gonna start me on macrobid. Mean time my hands,face, and bottom half began to swell up. Me thinking it was from my period but this was different. I work in a jewelery store and once my rings that are a size 6 DID not fit at all I panicked. I had extremely bad back pain, high blood pressure. I did not feel same. On July 13th (Friday) I went to a hospital here in southern california and talked to a doctor and she said.."sweetie u don't have a UTI, I don't wanna scare u but I think that U have a Kidney Disease called Minimal Change Disease"!!!! WHAT!!!! Am I gonna die? She says no but come Monday u need to see a specialist and confirm. Now here is a Lasix pill to help take some of the water weight that u have gained away. Its already about 1:30am on Saturday the 14th. She says u will not sleep cuz u will be urinating all night. I said well anything to help me, i had went from a very healthy 5' 7" 155lbs woman, I worked out in the gym 5 days a week with my boyfriend who is a Police officer and bodybuilder for fun, so me swelling up and devastated me. I took the pill. and went to sleep. Nothing happened to me. That meant something was wrong. Later that day Saturday I felt BAD. My face kept swelling, blood pressure kept going up, heart racing. I went to E.R and told them I felt like I was gonna die, I think I have minimal change disease I need a specialist now. They admitted me for 5 days. My specialist came in and saved my life. I had a ultrasound and kidney biopsy and they confirmed what I already knew. I had Minimal change Disease. I ended up being allergic to Dilaudid, and compozine in the hospital. I was released on the 20th of july. and now began my treatments. 3 x's a day of Prednisone at 20mg each, simvastatin 20mg once a day for high cholesterol now, lasix 20mg once a day, and omeprazole 20mg once a day to prevent ulcers from the Prednisone., I hate the Prednisone. I broke out so much on my face. And its not pimples it bumps. I wake up every morning at 5a.m with nasty heart burn. then wake up every 2 hours after. Doctor told me to take all my meds at once and it helped a bit but still not completely. I too feel bloated in the mid section. I still suffer from edema in my legs down to my ankles. During the day gets worse but once I put my feet up and elevate them I'm OK. I have bad mood swings I don't know how my loved ones put up me. One minute I cry, 20 minutes I'm happy and wanna go out for a walk. This drug is gonna help me but then Do I really need to put myself thru this? But there is not other way. Just thought of sharing my story.
-- By lianerhymes1 | Reply | (2) replies | Private Message me
December 30th
2006
7:43 PM
My 24 yr old daughter started taking Biaxin on Chrismas for sinusitis. On Saturday am, she woke up with excruciating abdominal pain that seemed to be worse on the left side, and would radiate to her back. we took her to the ER. They gave her dilaudid ( a heavy duty narcotic for pain) and that helped but didn't take it away. They took an ultrasound and found her ovaries to be normal. They they did a CT scan of her entire abdomen. They also did a urine test and CBC. All tests were fine. They gave her a 2nd dose of diauded, which again helped some, but she still had pain. Finally, after 5 hours, they gave her a big dose of anti-inflammatory and then the pain went away. They sent us home and said it was just some mysterious thing. Now I'm wondering if it could be the biaxin
kd in Ohio
July 24th
2003
6:06 PM
It seems to control my pain quite well at 1.5 ml (that is 1 1/2 dropperfuls) I had to use it after a uterine ablation and that was after several other heavy narcotics were ineffective, one being dilaudid. I was finally able to get some peaceful rest and it really helped dull the sharp stabbing pains that I was having.
-- By xena2000 | Reply | Private Message me
May 1th
2003
6:28 PM
Ultracet was given to me for chronic back pain. I have tried Hydrocodone, Dilaudid, Demerol, Fioricit, you name it, I tried it. I have to admit that this has been a painstaking problem. How do you treat pain using Narcotics and then not get classified as an addict? I am angry how this drug, hydrocodone was pumped into my body for 6 months and then taken away, cold turkey. No discussion on any withdrawals or scale down procedures. Doctors mainly don't care once they have dismissed you as a patient. They don't care to follow through the proper procedures to avoid addiction. Ultracet has now been dumped on me to help with back pain. It works fine but not as well as hydrocodone. Ultracet does give more energy and yet a relaxed state of mind.
-- By guest204 | Reply | Private Message me
Dilaudid (5) PredniSONE (3) Hydromorphone Hydrochloride (2) Hydromorphone (2) Zanaflex (1) Biaxin (1) Dilaudid Cough Syrup (1) Oxyfast (1) Adderall XR (1) Levaquin (1) Ultracet (1)
November 6th
2009
8:34 PM
I suffer from severe endometriosis, and occasionally, if something goes awry, I have terrible cramping. The pain is extremely intense and has caused me to pass out. I have tried several medications, some narcotic, some non, and some naturopathic. I would say that Dilaudid is the best I've tried. Not only does it do a wonderful job of getting rid of pain, it also seems to be easier on the stomach than other opiates in its class, and causes less side effects. Of course, highly addictive such as other narcotics, but if taken only when needed it is a lifesaver.
-- By kelnjon | Reply | Private Message me