August 28th
2009
2:03 AM
Well this is my second go around with Lupron. In 2004 I was on it for 7 months for the treatment of Fibroids, at the time I was 25 and I was told the only other choice was a hysterectomy. Well my doctor at the time said the side effects would not be bad and so did not give me anything for the mood swings and hot flashes. This almost caused a divorce, I guess I was pretty bad! Well it did the job, but I did gain 30lbs. Five years later, I was diagnosed with endometriosis. I was informed that I needed another go of Lupron. Well in those 5 years I had lost 100lbs and was feeling good. I started the Lupron in Feb. of 2009 and have gained almost half of that weight back and still no period. I have not had any children and it is looking like the next step for me is a hysterectomy. My depression that I thought I had under control worsened considerably and now am on 2 different depression medications. The only positive thing I would have to say is that the pain is gone for now and this time they gave me something for hotflashes and mood swings.
-- By starfish58701 | Reply | Private Message me
July 19th
2009
1:09 AM
OMG, I don't even know what to say 66 pages of comments about the "oh so wonderful Mirena, (sarcasm totally intended there). I had Mirena put in 7/28/08 and here i am almost a year later and multiple symptoms are popping up. Depression including suicidal thoughts, mood changes, tightness in my chest, difficulty breathing, night sweats, spotting - which has never been a problem until now - weight gain, constant nausea, starting to get numbness and muscle spasm in my hands, the list goes on and on.
Heck i was at work today and i felt like i was having a heart attack...no joke...I'm only 22 years old. It is a relief to know that there are so many others going through the same thing. It is also a relief not only to know that I'm not alone, but now my husband and I are doing better. My mood swings and depression were causing serious problems, and we were on the brink of divorce. I'm really nervous about taking it out though for a couple reasons - what if i found out it really has nothing to do with all the changes i'm going though and also what if I go and find out that this stupid things has actually caused more severe issues to me. I don't know, I just know that something has to change.
July 16th
2009
9:49 PM
Hi. I just had a laproscopy done 3 weeks ago for endometriosis. I am 26 yrs old and have been dealing with this pain for almost 2 yrs now and it is the worst pain in my entire life. My doctor is now suggesting Lupron because even after the laproscopy the endometriosis was level 4 and had bonded to my intestines and literally trapped my ovaries and uterus against the lining of my stomach. The pain was a 15 to say the least and the past 3 mos it had landed me in the E.R. Finally the docs figured it out. I started my period 2 weeks after the surgery and the pain was still pretty bad. An 8. Now I am seriously considering Lupron. My health is on the line and this pain is not right. At this point I am considering a hysterectomy if Lupron does not work. Any help suggestions please? Monday I follow up with the Dr.
-- By bkbomber | Reply | (2) replies | Private Message me
July 6th
2009
1:35 PM
I am a 39 year old mother of two teenager daughters. I had my original Mirena inserted in July, 2002 due to extreme bleeding for many months. I would bleed for about 24 days out of every month and felt horrible. As I was only 32 years old at the time, my GYN did not want to perform a hysterectomy and suggested the Mirena. I bled for a couple of months after insertion, but shortly thereafter I had no bleeding and have had no period ever since. This is the side effect that is fantastic!
Shortly after having the Mirena inserted, my marriage fell apart and I was feeling very depressed, EXTREMELY EXHAUSTED and overall "crappy". I assumed that this was all due to my life circumstances. I gained significant weight in my mid-section, I had (and still have) constant headaches, I am always still very very tired, am dizzy, fuzzy-minded, blurred vision, achey, etc. etc. etc. I never once thought about the Mirena being the cause of any of these symptoms.
My doctor has checked my bloodwork numerous time to ensure my iron levels, etc. were okay as well as my thyroid - every time the results were normal so I thought it must all be in my head and all be due to me being somewhat depressed, etc. due to my marital breakdown.
I had my 2nd Mirena put in in December, 2009 as the first one was in for the full 5 years. It was a little painful getting it taken out and the new one put in, but for me the pain was worth it to continue to be period-free for another 5 years!
Recently I have been experiencing hot flashes and night sweats so I asked my doctor if I could be going through menopause. She ordered bloodwork to check my hormones and informed me last week that yes, in fact I am quite far into menopause!!! (remember, age 39)! Because I have not had a period in almost 6 years, I did have the early warning signs of menopause such as missed or irregular periods.
I wondered why I would be going through it so early so googled "Mirena and early menopause" which brought me to this site. When I started reading all the side effects, I wondered if it was maybe the Mirena that cause a lot my problems over the years and it wasn't in fact the dissolving of my marriage and change in life circumstances.
I now have to decide what to do. My doctor stated that I should (because of my young age) go on Hormone Replacement for quality of life. (I am close to my decision and believe that HRT is beneficial for me) - hopefully this will help with the terrible symptoms of menopause I have been having.
I am wondering if having the Mirena inserted had any part in accelerating my body into menopause. I am thinking of having it removed before starting HRT because even though the doctor told me that there is a very low hormone dosage in the Mirena, I don't want to over-do it with hormones as that could cause me even more problems. It would be amazing if I had it removed that I would feel the way I used to feel back 6 years ago (minus the husband)
FYI, before I had the Mirena inserted the first time I read and re-read the pamphlet which contained all the possible side effects, etc. But, as I stated above, my life changed dramatically very shortly after insertion so it never occurred to me that some of my problems may be related to the Mirena.
If this device does accelerate a woman's body into menopause, this should be well publicized as it would be tragic for young women who use this as a form of contraception early in their life to only find out later that they are no longer able to conceive due to their body going though "the change".
-- By 39yearold | Reply | (7) replies | Private Message me
July 6th
2009
4:10 AM
I am so glad I found this site. i had the mirena inserted in march of this year. i am having horrible side effects with the mirena. because of this iud my relationship with my amazing boyfriend is completely falling apart. I am angered by him for no reason at all. I make assumptions towards him all the time. I started to realize that i was going crazy when he surprised me with an amazing new car, and all i could do was complain, and treat him like crap. i feel lousy for the way i have been treating him. I have felt that he is the one to blame. I now realize it is the mirena that is making me paranoid, and mean. I am going through a horrible depression, when actually I am a very happy upbeat person. I am tired all the time. I am moody, and I explode a rage of anger on people all the time, from my mother to my coworkers, and my boyfriend. Right now i feel so guilty for not realizing that i have been the problem all along. I also have bad memory loss. which is very unusual for me. I am known for my great memory. My school work suffered because i was sleeping through homework assignments, and class. i am bloated, and swollen every day. I am also gaining alot of weight. at first i was using diet and exercise, but with no results, and weight gain during the diets, I have given up and have been giving into my cravings. for the past month i have thought i was pregnant due to tummy flutters, lack of bleeding, crying a lot, and cravings. after taking a pregnancy test that came out negative i decided to do some research, and found this site. I also have headache, swollen throat, and vomiting. I am a very healthy person so this is also unusual. i am getting acne which has never been a problem, and am also getting back pain. I am calling my doctor in the morning to get this thing removed asap. i can not take these side effects any longer. i just hope that I have not lost my soul mate due to this stupid iud. does anyone know how long it takes for these side effects to stop after removal of mirena? I really just want to be my normal happy self again.
-- By hmpf | Reply | (2) replies | Private Message me
July 3th
2009
1:17 PM
I'm 35 and had Mirena inserted on April 7, 2009. I didn't notice any side effects, until now. I've always been on the petite side 4'11" & have weighed between 94 - 98 lbs. I could eat everything & anything, never exercise and not worry about gaining weight ever. Now I weigh 106, which doesn't seem like a lot to most people, but it is for me. The weight I've gained is in my stomach area. My pants now fit snugly around the waist & I've thus developed an ugly "muffin top". So I can't wear form-fitting shirts because I feel like everyone can see my "muffin top". I've never felt so unattractive before. Most people get mad & say I look the same. But I know my own body & know this is unnatural.
I pretty much don't have a sex drive either. I'm never "in the mood" and just go through the motions numbly.
I've also become a mega-bitch. I feel like I'm angry at the world & always trying to pick a fight with my boyfriend. I hate being this way & am thinking of having Mirena removed very soon!
The only positive thing about Mirena is you don't have to worry about anything: no daily pill or messing with condoms. Also, my periods are super light.
Of course, I know everybody's body is different and will react to Mirena in certain ways. Just thought I'd post to see if anyone has had similar side effects.
-- By kmb73 | Reply | (1) replies | Private Message me
June 15th
2009
1:58 PM
Please help me. I have had the Mirena for a little over a year now and I have been miserable ever since. I just yesterday one of my very frequent depressive states. I has become so bad that I often think about hurting myself. I am very petite, 4'11 to be exact and I have never weighed anything over 115lbs. I just recently went to the doctor and I weigh 147lbs. I have always eaten healthy and I couldn't explain my weight gain. It has become so depressing I refuse to take pictures and I no longer want to look in the mirror. I have horrible headaches and my periods are longer. I am now going through a divorce and I don't have a job or health insurance. I really need to take the Mirena off but I don't know what to do!! Every day that passes by I keep getting more and more depressed. I am afraid for myself...help me
-- By gigi618 | Reply | (7) replies | Private Message me
June 8th
2009
1:19 PM
My husband has been on Simvastatin for a few years, six months ago his dose was increased to 40mg, since then he has become someone I don't recognize, we have been married over twenty years and he used to be a very placid and wonderful man. He is now both verbally and physically abusive, he threatens me with divorce on a regular basis. He lies about me to others telling them he does all the housework (never) there is never any food in the house ( Totally untrue) He disappears for hours on end, and sleeps much of the time. He can be quite plausible with other people but turns into a monster when he returns home. Doctor told me I don't think it can be the statin, don't believe everything you read on the internet! She said to be sure for him to come off it for a few weeks - he refused! His aggression is escalating and I now dread him coming home. he has odd moments of being nice but within hours he is back to being nasty. He had been impotent for 7 years but now during his "nice moments" becomes amorous! I am at my wits end, has anyone else experienced this!
-- By ataloss | Reply | (5) replies | Private Message me
April 8th
2009
8:20 AM
IF YOU FEEL/EXPERIENCE ANYTHING ABNORMAL FOR YOU OR DO NOT FEEL QUITE YOURSELF SEE YOUR G.P./NURSE AND SERIOUSLY CONSIDER GETTING THE MIRENA COIL REMOVED
This medication may be suitable for some people but if you experience any of the following, I urge you please, please please, 'demand' that you want the Mirena removed. My symptoms were noticeably worse around my time of ovulation. I've also found out that people previously treated for/suffering from depression should not be prescribed this medication. (I've been on Prozac in the past). I had it fitted in Aug 2007 to combat very heavy periods and severe PMT at the recommendation of my G.P.and had it removed Sept 2008. Symptoms I experienced :-
Dry/furry mouth
Headaches (over time these became migraines)
No concentration
Poor memory
Lethargy (constantly tired and drained)
Smelly discharge (still noticeable straight after washing)
Very heavy legs
Numbness in my legs
Joint pain and clicking (mainly in my shoulders and knees)
Developed facial hair (mainly under chin and jawline)
Hair loss
Weight gain around my stomach (without increasing my food intake)
Feeling constantly bloated.
Spotting randomly for duration of Mirena being fitted. (Brown spotting)
Panic Attacks ( awoken in the middle of the night with them) escalating to the following:-
Palpitations (for no apparent reason)
Clammy/sweating palms and feet
Aggitation ( during an episode if someone was talking to me I wanted to really yell at them 'Just shut the **** up! You're doing my head in!)
Feelings of madness (actually wanted to run away from my own mind)
Pins and needles/Tingling in my hands and feet
Electric shock like surges going through my body (my nerve endings were obviously suffering)
Muscle tremours/shaking (mainly arms and legs)
Eyes became extremely light sensitive
Heightened awareness of sound
Insomnia
Terrible nightmares
Depression
Feelings of detachment from the real world.
Visual disturbances
Episodes of blurred vision
These symptoms did not appear straight away but appeared gradually and with more veangance the longer I had the coil. The more concerning episodes I experienced happened after about 3 months and very erratically. I could not predict when or what time of day I was going to have an episode or pinpoint any reason for bringing on an attack. I had no control over the effects, was absolutely petrified when I experienced a panic attack and just had to ride it out.
All my G.P. did was prescribe me anti-depressants to which I reacted badly. Blood tests also failed to show anything abnormal.
I even tried herbal medicines as an alternative and experienced similar reactions to the prescription drugs. I've now become very pill-phobic and would rather ride out and get over symptoms myself. Paracetamol & Ibuprofen being the only medicine I trust to take now. I had a horrendous year and everyone suffered. Not only my family, but I was signed off of work for 3 months. It was a very worrying time for my husband and my children, who all had to keep an eye on me and witness the effects of my symptoms. On looking back now, I don't know how I managed to function at all and even do my job. Most of the time my energies were spent concentrating on trying to appear normal and held-together to the outside world.
Although I feel 100% better in myself, I noticeably experience more migraines and headaches than I ever did in the past, along with palpitations, usually during my week before. Two days before it I often really feeI like I'm losing the plot! I also really bloat up now a week before my period, feel sick and have a feeling of being ' very full', so am hungry but don't really want to eat. One of my big toe-nails has gone black over the past few months and not through injury. This has just been sent away for analysis. The one on the other foot is raised/ridged/thick/yellow, but normal growth has resumed half-way up now, which I feel co-incides with the state of my health on having Mirena removed. The nurse I saw recently explained that it is true that nails and hair show the history of our health so, for me, this would seem true.
I wish I'd been made fully aware of all possible side-effects of this medication and am now actually concerned that the effects I've suffered may have left some permanent damage.
In spite of all this, it's so good to be me.
March 18th
2009
10:53 PM
I have had a lot of experiences since having the mirena put in where my heart would start racing could hear my heart beating in my ears and just a panicky feeling. I blew this off as part of going through a divorce.
I have had the iud for five years now. I am in a very happy loving relationship now, soon to married again. Have every reason to be in peace now and am still have the "panic attacks". Maybe I misjudged them and it was really caused by the iud.
Also toward the last two years of having the implant I have gained thirty pounds. Thought that was part of getting older. I am only 26.
I also have had a yeast infection at least every other month for the past five years. Been scared to death something is wrong with me. Its a relief to hear that other women are going through all the same symptoms and also have mirena. Having it removed tomorrow. Hope doesn't hurt
-- By okiegirl | Reply | (1) replies | Private Message me
February 18th
2009
10:33 PM
Hi, its me, Mrs.B. again. Just wanting to say that today, exactly 3 weeks post Mirena, I was feeling really bad. I had been feeling GREAT but I was restless last night. Ended up sleeping 10 hours, woke up tired, bloated and with an itchy rash on the back of my knee and hand. stayed tired and weak all day and was really moody. I cant believe how bloated I feel. I feel just like I did when I had the Mirena in. I am hoping this is PMS and I am about to start my period and that this is not an effect of the Mirena "post partum".
Also I really am concerned about all the women out there who ARE having all these horrible side effects, and are possibly having marital problems and life problems and have not yet made the connection to the Mirena! I know I didn't for a LONG time!
February 17th
2009
1:20 AM
have to agree with Mrsbarrett's post right below mine...I have been a lurker on this board for the past couple of months and thank God for it or who knows how crazy i'd be right now!! Here is a list of my side effects and pertinent information:
DOI: October 2008
Side effects were gradual and most evident around the Christmas Holidays:
Dizziness
Weird eye/vision disturbance where i'd lose focus for a moment and then be okay.
Constant spotting of "old blood" nothing much but did require pantiliners 24/7
Anxiety
Hypertension (more than ever, like when I was pregnant, 150-170s/100)
Panic Attacks
Face Dryness
ZERO SEX DRIVE
No "natural" lubrication, but who cares when you have no drive, are spotting all the time, and it hurts to have sex
Vaginal Odor
Mood Swings
Depression
FATIGUE to the point of wanting to stay in bed despite having to care for my 7.5 year old.
Chest pains (kept thinking maybe I had heart trouble, had cardiac workup that came up PERFECT and bloodwork was perfect, Thyroid test was perfect)
Nausea (morning sickness type, would get slightly better in evening but not so much)
IBS symptoms (diarrhea)
DOR: January 23, 2009
2 days later heavy bleeding for a couple of days.....had somewhat of a "crash" the first week where I was still not better. By the 2nd week post removal I was still nauseated in the morning but improved in the late afternoon and got energy boost in late afternoon.By the 3rd week I was totally back to normal!!!!! (well what's normal for crazy me! hahahahha)
My husband came with me to the doc, and she had no problem with removal. I went back for a follow up this past Friday and she saw how normal I am and that I have lost several pounds as well. She realizes I am extremely sensitive to hormone changes but says i'm the only one that she has seen like that. (how many have problems that don't think it is the Mirena...that's what I want to know???)
Anyway, that's my story and i'm sticking to it!!! If anyone would like to chat or share please let me know. I will also add that I have a Masters in Physician Assistant Studies (just not practicing since becoming a SAHM) and so I looked up tons of information to figure out what was wrong with me, I really am thankful to have found this site....medical mumbo jumbo is NOTHING when you have your body telling you something and all you fine ladies......Thanks again!
~G
December 4th
2008
12:48 PM
I am shocked and outraged at the "NEW" list of side effects that were attached to my newly refilled Singulair prescription. I am an adult and have been taking this medication for 3 years. I also know that I have not been happy in three years and every day I feel more and more hopeless and withdrawn. I have little interest in leaving my house, being with other people or anything else. Everything in life seems like an overwhelming task for me. I am filled with ideas about how to 'get away-far away'. I am a decent person, a wife and a mother of 3, but lately I would have done anything to be able to get a divorce and run. I have hated myself for these thoughts, which makes it all worse. I'm always reminding myself that these are people that I'm supposed to love! I ran out of my Singulair right before Thanksgiving and kept putting off refilling it, quite frankly, because I just didn't have the 'energy' to go to the store and pick it up. I did pick it up 2 days ago and that's when I noticed the new labels all over the bottle and was shocked when I read the description of the side effects. It was if they had been written about me. I have not taken any more of it and have now been off for more than a week and I feel like a human being again.
-- By laura_5 | Reply | (1) replies | Private Message me
November 14th
2008
11:15 AM
After reading these posts I am connecting some of my experiences that I attributed to other things. Glad to know it could be the IUD and not just me. I'm 46 so things are changing anyway. Thought the dizziness was from my blood pressure medicine... Anyway I got my Mirena in '05 so I've had it for awhile. I got it after my divorce. I like not having periods but I don't like the occasional brown discharge or spotting.
The worst side effect that I've experienced is the total lack of sexual sensation. Many of the other women report loss of libido but I think this might be different. I want to have sex but when I do it's like I have no sexual sensation from vaginal penetration at all. Almost as though it was dead down there. I also don't have the same sensation in my breasts as I used to. I've never been overly sexual but this is really frustrating. I've been seeing the same man for the last 2 years. He's very sexually oriented so it's a good thing we can only see each other every other weekend when he doesn't have his kids. It's really important to him so I indulge. Otherwise the relationship is great. I can orgasm sometimes but not from penetration. I asked the doctor but she kinda blew me off saying there was nothing I could do except teach him how. So I mostly suffer in silence and fake it sometimes.
Been thinking about getting the Mirena removed but I was worried it might not help. Wondering if anyone else has had a similar experience and if everything goes back to normal when it's removed. I do like not having my period but perhaps it's not worth it. Please let me know!
-- By drea333 | Reply | Private Message me
November 12th
2008
12:28 PM
I have been taking Ambien off and on for 10 years, I first used it after the death of my father, went to it again years later during my divorce and again when my sister was told she had breast cancer, now again while I am out of a job. My doc gives me 10 mg which I split in half, it seems to be enough for me. We did try the Ambien CR...omg my hubby found me walking around the house naked after setting off the alarm system. So now I stick with the regular Ambien. For those of you who have problems, find what med works for you, "one size" does not fit all!
-- By momof3_grandma3 | Reply | Private Message me
October 9th
2008
12:45 PM
I can't even type fast enough to describe how astonished (and relieved) I was to run across NUMEROUS web sites with women describing the same symptoms as have been perplexing me the past few weeks. I had the marina iud inserted a little over a month ago and the past couple of weeks I"ve noticed such a dramatic change in myself, but couldn't figure out what was wrong with me. Depression, lethargy, extreme irritability, mood swings, cramping, back pain, swelling in my abdomen, abnormal and irregular bleeding, headaches, nausea, dizziness, lack of motivation, reduced interest in sex...these just top the list. I thought maybe I was pregnant again, but knowing that it wasn't possible when you haven't had sex because I've either been bleeding, in pain from cramping, irritable, or just couldn't get "excited". These are all things that I've never experienced before and I cannot place blame to post partum depression because I had 6 weeks post partum that I felt "normal"....energized, happy, motivated, patient...all the things that are "normal" to me. I wish I had done further research about iud placement before I decided to go with this form of birth control, but the pamphlet made it sound so dreamy and my doctor swore by the thing. Before this thing does any permanent damage to my body, or my relationships; I'm having it removed. Pregnancy is a better option for me at this point (at least without the iud I wouldn't be so frustrated with my children!) I couldn't imagine dealing with these symptoms for years. I've read of women even being driven to attempted suicide and being on the verge of divorce. NOT ME....I knew from the beginning I had a bad feeling about getting the iud....and I wish I had listened to my intuition!
-- By cynrama | Reply | Private Message me
August 23th
2008
11:42 PM
Hi, I recently went back on to YASMIN because I thought it would clear my face. However, it did the EXACT OPPOSITE. My face is a train wreck. My mood swings are horrible. I just got married, and all of the sudden, I can't stand my husband and want a divorce, and I have absolutely no reason why. I can't stand anything. Im so tired, hungry, depressed, my breasts are killing me, I just hate it! I am going to start taking the other birth control pill that I was taking. After reading a lot of these blogs, I am glad to know that I am not insane. I certainly feel like a wacko, and now I know why. I have never felt depressed or even anxious. My anxiety levels are through the roof! I am done with Yasmin.
-- By mgross | Reply | (1) replies | Private Message me
August 18th
2008
2:20 PM
I am now weaning off of Wellbutrin after 4 months - I was taking it to quit smoking (I had just been through a very stressful divorce and I was smoking way more than normal.) I did not experience most of what has been discussed here (negative side effects) except for mild headaches. I am posting this simply to tell the few people who have experienced the headaches that I believe this will go away. I (like a dummy) told myself I'd only take 150mg a day rather than the whole 300mg my doctor had prescribed. This didn't work - I needed the whole 300mg, taken at 150mg doses at exactly 12 hour intervals (this makes a huge difference!) About two weeks after beginning this med, I experienced feelings of euphoria (which were quite pleasant!) but feel like I balanced out within a month. One other side effect was a change in menstrual cycle - I'm normally exactly 28 day-predictable, but missed every other month in the four months I've been on this (coincidence? Not sure...) I also drink beer nearly every night (2-4 bottles, sometimes none, sometimes more) and never had any type of seizures. Bottom line...this drug definitely helped me cut way back on smoking - I am a stress smoker and since this alleviated my stress, I didn't smoke hardly at all. Now that I'm weaning off (and yes, I did cut pills in half and have not experienced anything bad) I am curious to see if my desire to smoke will return.
Just wanted to post this out there for anyone who has had similar side effects. Overall, I have been very happy with this drug (but have never taken other Anti Depressants, so can't compare with others).
-- By free2be | Reply | Private Message me
July 28th
2008
10:14 PM
I started Femcon back in October after having my second child. I had been on Ortho Tri-Cyclen for years before that and never had a problem with that, but my doctor wanted me to "try something new". Trying something new actually translated to having breakthrough bleeding pretty much equivalent to a period for two weeks and then having my actual period. So there were only about 10 days out of the month that I wasn't bleeding. I guess it's good then that it depleted my sex drive because I couldn't have sex anyway!! The mood swings were ridiculous and my husband and I were on the brink of divorce because of all of this. I stopped taking the pill last month and let me tell you the difference is unbelievable! I'm getting an IUD at my check up in October and cannot wait. I would not recommend this pill to anyone!!
-- By lbrodner | Reply | Private Message me
July 19th
2008
2:47 AM
I'm back.. I posted back in June when I've had my Mirena for a few weeks... I go to my GYN on july 29 for my check up.
I can actually be one in a million to say I'm very happy I had this IUD inserted. I have never been able to take the pills. I tried the shot once and had a period for 6 months straight... and that was only ONE injection....
The first couple of weeks I did feel like I had a yeast infection... it burned when I pee'd... It hurt to shower... I started to get frustrated..
I didi wait it out.... I told myself that I would tough it out until my check up appointment and IF I didn't feel better I woudll discuss removal ASAP !!!
but I'm fine ... I did cramp for a couple days after insertion. That is now gone .... I was moody for a few days ..... moodiness is gone.... I still get tired but I notice that is getting back to normal also....
I FOR ONE AM GLAD I HAD MIUD INSERTED !!!!
I say good luck to the rest of you...
June 27th
2008
2:13 PM
My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.
-- By cindy48 | Reply | (5) replies | Private Message me
June 23th
2008
8:57 AM
Hi all,
I have spent the last 2 days on the Internet reading about Mirena; as a matter of fact, I had mine removed 2 days ago. For the last 10 months, my life has been horrible. I had the Mirena inserted in November of 2007, I was also coming out of a divorce, so I (and my doctor) was attributing my extreme depression, anxiety attacks to it. I started noticing that my hair was falling out and it just kept getting worse and worse. I went to see my doctor again and she said I had anemia (I was having very heavy periods and bleeding through my periods). Doctor said anemia causes hair loss. I went through different tests, saw a dermatologist, I always mentioned I had the Mirena, but no one seem to relate that to anything. I actually went on the Mirena site a couple of times, but the side effects listed there were very mild so I discarded the thought that the Mirena was causing my depression and my hair loss. There is no mention whatsoever about hair loss. Months went by, I kept seeing different doctors since my hair loss was getting worse and worse, my once beautiful, thick hair had become extremely thin, I have two holes on my scalp. I continued to bleed heavy and my ob/gyn said to give it some more time. My life was a complete mess, going to work was a struggle, dealing with my kids was a struggle, some days I would just lay in bed and cried for hours, I started to believe that my life had no purpose or reason. I was truly in agony, I am sure those of you who have gone through this know exactly what I mean. Anyway, I can't believe in all this months it never occurred to me to google mirena and hair loss....or mirena and suicidal thoughts, etc., etc. I thank you all for sharing your stories and I hope we can figure out a way to let all of those mirena users out there suffering that the answer to their agony is simply to have the Mirena removed. I look forward to my new life, new hair. It has been 2 days and I don't know if it is a state of mind, but I feel so much better already.
Thx
Jessica M.
June 18th
2008
3:29 PM
I took Lipitor for 2 years with all the pain in my shoulder, hand and arm as well as fuzzy memory. I had a friend over for Lunch an have no memory of anything that happened including his arriving and leaving on his Harley and we all know how loud they are. I ended up in the hospital with all kins of tests including an MRI all of which I have no memory of to this date. My hospital bills are still coming in as well as all the Doctors that saw me. I just received my Divorce and then this happened , I was out of work for a week , the Doctors thought I had had a heart attack, stroke or aneurysm.I also had all the foot pain making it impossible to stand up , leg cramps, sleeplessness, sheer exhaustion, depression, headache and nausea. The Doctor at the Hospital took me off of the Lipitor and said to take a 325mg. aspirin daily . This happened on March 23, 2008 . I am felling better but I still pain in my shoulder , neck , stomach , and feet and legs but is nothing like it was. Here I am left with a few thousand dollars of Doctor and Hospital bills. Why can`t something be done about all of this we are all going thru? I called the FDA to report it and got no where. Did I really expect anything to happen ! I hope someone gets something done for us . I would be one of the first to sign up to take Lipitor off the market and get what is due us.
-- By ann7173 | Reply | (4) replies | Private Message me
June 11th
2008
9:46 PM
female age 40 started zoloft 9mths ago ,after I found out my husband was having an affair for a year and he left me and our 3 kids for her and her 2 kids.I was so depressed and physically sick.I started at 50 mg and after 6 months the doc upped the dose to 100 mg.It does help me on the every day stress of going through a divorce and im not as depressed,but I find every thing is such a chore,my energy level is zapped and that some times can get me down.My favorite time of day is bed time ,because all I want to do is sleep!!!! I am wondering if I should ask my doc about switching to some thing else.
-- By catslife | Reply | Private Message me
Mirena (18) Singulair (5) Lupron (2) Zoloft (2) NuvaRing (1) PredniSONE (1) Wellbutrin (1) Effexor XR (1) Femcon FE (1) Lipitor (1) Simvastatin (1) Lamictal (1) Lisinopril (1) Yasmin (1) Ambien (1) Chantix (1)
September 27th
2009
11:55 AM
Wow, what a relief. Thank you all for your stories and experiences with Mirena. I had Mirena placed in May 2009 and like others was not warned about the "discomfort" of the placement. I am 45 and have never had a child and my cervix was understandably angry at the unwanted visitor. I am an athlete and I like to think my pain thresh hold is high, and I almost came off the table with the pain and cramping. I bled for almost a month straight, sometimes heavy. I was told this would subside and it did.
Now three months in I was talking with a nursing buddy of mine (yes I am a nurse, cardiac) and she was telling me of her experience with Mirena and hair loss and blurred vision and weight gain. I am beginning to understand my last few months. Allow me to share. I have gained 10lbs in the last two months and have severe hunger symptoms if I go over 5 hrs without food. My typically flat stomach is now round and I feel bloated all the time. (I have even taken some of my girlfriends diuretics) I have night sweats and a few weeks ago I almost ripped my husbands head off for just a small disagreement. I remember planning our divorce in my mind!! My nipples get so sensitive to touch at times it hurts to wear a bra. I could go on and on but I am convinces this little uterine invader is coming out this week. If my obgyn won't do it, I will find another.
Thank you ladies for sharing, this is how we learn. I will keep you updated
-- By lisa92464 | Reply | Private Message me