Doing the right thing symptoms and conditions

I am relaying the story of the granddaughter of my boss. She was 15 when she got the first shot of Gardisil in May of 2007. Within hours of the shot, she collapsed and an ambulance was called because she had distressed breathing. She was taken to a hospital and was in intensive care for 2 weeks in and out of consciousness. In the meantime, her mother tried to get the shot records from the doctor's office that gave the shot. They did everything in their power to:
A.Dismiss the correlation between the shot and the girl's collapse, despite the girl being in good health before the shot.
and
B.Keep the parents from getting hold of the vaccination records.
It was like pulling teeth to even get the vaccination batch numbers, and finally the office told the parents that somehow, the girl's health records went "missing". Luckily, the parents still had copies of most of the doctor visits, plus the "aftercare" paper following the shot with vital information on it.

When the girl finally began to be able to sit up again and eat on her own, she experienced mental fuzziness, memory problems, and speech problems. She had perpetual tingling and jolts of pain on the arm that had gotten the shot, in her side and abdomen and down both legs. Three weeks after the shot, she tried to get up out of bed and found she could not walk. She was diagnosed tentatively with Guillain-Barre Syndrome, also with nerve damage. It took her three full months to walk again without help, and even now, a year and a half later when she comes into the office she still has a bit of a limp. She lost over 25 pounds, which is pretty sad as she was not overweight or anything. She now looks very skinny and sickly. She had to quit school and started being home schooled because of the physical and memory problems and depression. I feel so sorry for her and her parents, who thought they were doing the right thing.

I am currently 58 years old and lead a very active, healthy lifestyle. I began taking 10mg of Zocor, along with 1000mg of niacin in the summer of 2004 to reduce cholesterol (251) and triglycerides (571). The therapy dramatically improved my blood tests, however, within 6 weeks, I began to experience minor chronic skin infections, both fungal and bacterial. They were easily controlled with topical over the counter type medications, but they were annoying. At no time was this new condition linked to the statin/niacin therapy by my doctor(s). The infections became progressively worse over the next 3 years, and evolved into chronic folliculitis in my scalp, neck, and face, cystic acne, and persistent fungal infections that were becoming more difficult to control. In addition, I began to get chronic eye infections. It was as if my immune system was becoming ineffective. I stopped taking niacin in December of 2007 and the symptoms immediately lessened. I stopped taking Zocor in March of 2008 and within 2 weeks, all the skin problems and eye infections completely ended. My health was restored completely and I am glad to have put that whole mess behind me! I have been taking Omega 3 supplements to control my cholesterol and triglycerides and have had results that equaled the Zocor and Niacin therapy, with cholesterol at 160, triglycerides at 91, and a favorable HDL/LDL ratio. My physician is skeptical, but I know that my body was not functioning correctly with the statin/niacin treatment. I have found anecdotal reports from others who seem to have experienced a change in their immune system, but no mention of this as a side effect by the medical establishment.

EVERYONE PLEASE READ!!!! GARDASIL HAS DESTROYED MY LIFE! I am 24 years old and a year and a half ago I was graduating college and planning to be a professional dancer and go to law school...I was perfectly healthy and energetic! In February of 2007 I received my first Gardasil shot. After a few days I started to feel as though I had a Urinary Tract Infection and was also feeling more tired than usual. The doctor gave me an antibiotic and sent me on my way.

In May of 2007 I received my second Gardasil shot and yet again, a few days later I started to feel like I was getting another Urinary Tract Infection. I went to the doctor numerous times between the second and third shot...all for bladder and urinary tract pain. For months I was on different antibiotics and they were not making the pain go away. After visiting a number of urologists, I found out that the urine cultures had all been coming back negative - showing no sign of an infection, so the antibiotics were pointless. All tests that I had run, both blood and urine came back normal. It is not standard procedure for a doctor to call you if your test results come back normal, but there was clearly something wrong, so I searched for a urologist who would believe me that I wasn't making up the pain I was in.

In August 2007, I had a cystoscopy done (they took a scope and went into the bladder to look in the bladder wall) and they concluded that I have an incurable bladder disease called Interstitial Cystitis. This is a condition where there becomes a defect in the bladder wall causing it not to have the protective mucus layer inside of it. The pictures of inside my bladder show red, raw skin, obviously showing the severity of my case of it.

There is no evidence as to what causes Interstitial Cystitis, and there is no proven successful way of treating it. The initial signs are exactly the same as a Urinary Tract Infection (painful bladder spasms, painful urination, body aches and back pain). The main difference is the fact that it is not an infection. There are thousands of people with Interstitial Cystitis who are misdiagnosed as having chronic Urinary Tract Infections.

I received my third Gardasil shot in October of 2007 and that is when EVERYTHING fell apart. The bladder pain became constant and there has not been one minute in a day since that shot I have not been in unbearable pain. This is when everything else in my body began to crash down as well. The other health problems and side effects from the Gardasil that I am having are constant sore throat, vicious migraines, vision changes, back pain, body aches, joint pain, sinus problems, vomiting, constipation, dizziness...I could keep going on forever!

I have tried all of the conventional treatment for Interstitial Cystitis and have gotten NO relief from the pain and other side effects. The doctors didn't know what to do, so they put me on OxyContin and a diet consisting of no acidic foods. That has now posed its own set of problems seeing as now my body is addicted to the narcotic, and I have gone from 5'6'' 125lbs to 100lbs over the course of a year due to the diet. I am extremely malnourished and have to take B12 vitamin shots once a week due to the severe anemia. I am 24 years old, and feel like I am 100. I can not live a normal life, I am going to lose my job from numerous absences, I lost my fiancé and am not able to have an intimate relationship anymore, I am extremely depressed, I have to have my family clean my apartment because I am too sick to do it, I can not do social activities because I am too tired and in pain. This vaccine has DESTROYED my life! I am desperately seeking out someone else who is having bladder problems due to the Gardasil so that I can contact an attorney. This needs to be OFF the market a soon as possible so that it does not run any other lives! Gardasil has caused some deaths, but in my mind, I'd rather die than live with the pain I am having. I did notice there are some posts regarding girls getting urinary tract infections... PLEASE PLEASE PLEASE have your urine cultured because there is a good chance it may be Interstitial Cystitis!

I am desperately looking for someone who is having some of these symptoms so that I can go to a lawyer and get something going before things like this happen: Numerous states are pushing to make it mandatory that girls receive the vaccine before they enter the 6th grade. We can not let this happen! We all need to stick together and somehow fight this and get out lives back!

Let me know if you are IN - and also what you thought about my post!

You can email me at ******

Bless All of You!

*~Amber~*

I have been on Micardis for years and have had no side effects at all. Ran in two marathons and worked out daily. Now I have been on Lisinopril-HCTZ 20 MG. and have not been able to work out without feeling dizzy, seating and cannot remember the last time I got a good nights sleep due to persistent coughing. The best moment was today finding this website and reading everyone elses comments. I plan to flush my remaining pills down the toilet and paying full price for Micardis since my insurance company will not pay.
This has to be thek worst pill available! If I knew today what I knew when this pill was first prescribed I would have never taken it. Hopefully it will not take long to get this out of my system and I can get my life back.

I know this is a not support group, but I am having mine out Wednesday via day surgery (see my other posts). If I do not feel significantly better shortly thereafter I think I may admit myself into a hospital for the mentally ill. 80% kidding. Please someone send me a line who has had it out and how you now feel. Aussiegirl did a while back and I appreciate it. Any other good news is welcome. I feel horrible.

Hi all. I would just like to agree that PredniSone sucks but it is the best out there for these diseases especially the auto-immune diseases. Drug companies do not make any money on prednisone because it is generic and there is no patent. I know I picked up 98 10mg prednisones yesterday for $5.00. Believe me when there is a better steroid that works as well and has less side effects it will be available to us all. It will cost tons but it will be sold. Researchers have been working for so many years trying to find an alternative, some have been found but do not work well enough. As bad as the prednisone makes us feel it does work on the diseases. You always have the choice to say no - that is why we should all have a health care power of attorney - just remember that when you decide not to take the prednisone you are agreeing that the disease may worsen and may be life threatening. I hate to sound so morbid but patients must be informed. When you are at the physician ask about the side effects, ask if they can give you something to counteract any mood swings, ask what lotion is best for the itchy skin (AmLactin works well for me and is over the counter). Also, my physician advised me yesterday that the side effects are worse on women due to our precarious hormones. I have told my husband to just stay out of the way and don't piss me off because I am not sure how this next 7-8 weeks is going to fare for him. I am 4ft 10in 110lbs and he is 6ft 1in 200lbs and believe me he is scared for his life. I am using prednisone for my ulcerative colitis so now that I am feeling better physicially I can return to exercise and that has definitely helped. So has turning up the music really loud and dancing and singing poorly. Yelling at the tv helps me whether it be politicians, soap operas or idiots on game shows who get the wrong answers. I also have been keeping a journal of all the rage I have and what kinds of things I could do to people who keep getting in my way at the store, on the road, in line at the pharmacy - I guess I need to put that in a safe place so it can't be used for evidence :}

As MANY of you have posted, "I thought I was just getting 'old." Now I know it's the statins. I thought I was doing the right thing because I have family history of cholesterol problems. I was first on pravachol, then lipitor for a few years, now Vytorin - which dropped my numbers to the lowest ever - 190.

HOWEVER - I have never felt worse. I have all the 'symptoms' described in this blog. Reclusive, depressed, extreme shoulder/neck stiffness and pain. Low back, and hip joint pain (severe). I can't even workout because I don't have the stamina to go through my routine. LOSS OF MEMORY!! This is severe. I use to be able to memorize hundreds of numbers or addresses and now can't remember a number that I looked at 2 seconds ago! This is insane! They need to remove this drug from the market. I'm done with statins.

I would be interested to know how many of those who took Singulair needed to take antibiotics more frequently than they did before they took Singulair. I'll see the response then I will tell you why if it turns out that is a predictable side effect.

My daughter who is 3 was on Singulair for severe allergies. We stopped it 4 days ago and her allergy symptoms are returning. Does anyone who used Singulair for their children for allergies know of any Safe alternatives to try? We used Claritin and Zyrtec in the past and both were not successful. Thanks!

When I saw this story on in the news I could not believe it. My 9 year old has been taking this for 2 years and has had all of the problems I have read with other children. We too were told it was add or ocd or bipolar or some other
medical term. Never once was this one and only medication questioned.
I cried when I realized I had been torchering him with this allergy pill.
He has been off of it for 4 days now and says he " feels like a brand new me"
He is happy, fun, interested in everything and no more headaches or stomach pain, or depression.

Please take your child off of this medicine if you are not sure and contact your MD. Listen to your child and your instinct as a parent.

what happens when you take children off this drug cold turkey? my doctor said it was ok to do that. but this am my son (he's 4) woke up (day 2 off drug) and started screaming that the lights were hurting his eyes...and ran around turning all the lights off. i sat up and watched him sleep all night. I'm flipping out. what has this drug done to him and thousands of other children? will it go away now that they are off? anyone else have withdrawal issues?

I HAVE A LOT OF PROBLEMS DUE TO A TRAUMATIC BRAIN INJURY, HOWEVER MY PROBLEMS ARE MUCH WORSE. I ALSO HAVE NEW PROBLEMS LIKE A HEART MURMUR; HEARING LOSS; TINNITUS... ALL NEW & WITHIN THE LAST YEAR OR SO... I'M NOT SURE HOW LONG I'VE BEEN TAKING SINULAIR... MAYBE 2 YEARS? SO I STOPPED LAST NIGHT. HOW LONG BEFORE SYMPTOMS STOP IF THEY ARE GOING TO DO SO!!!???

I started taking Toprol XL on Wednesday 11-14. I had been admitted to the cardiac unit after having to be given 2 nitro pills and also a nitro patch to get my chest pain to go away and my blood pressure to come down.

That evening my cardiologist put me on 50mg of Toporol XL. I have had a headache pretty much since that night, that just won't go away. I had an anxiety attack last night that left he crying for no reason pretty much all night long, I have not slept well since the night they put me on it, I have been sick at my stomach since that night, I have been dizzy and not feeling like myself since that night, and I also continue to have a feeling of something being wrong, even though all the bllod work and the stress test came back good.

They told me that my problem was stress related and for the next 2 weeks am to try and remain stress free. But everytime I take the medicine I continue to feel worse with these same symptoms.