September 13th
2009
7:47 PM
I had a bulging disk and a pinched nerve and was put on PREDNISONE - 60mg for 5 days, then 40 mg for 5 days and then 20 for 5 days. I had a round face to begin with, which I always hated, but now, my face just looks like a balloon that someone painted a face onto. I have a huge face, a double chin, huge stomach, I look 5 months pregnant and I absolutely HATE myself on this drug. I've been off now for a week and nothing has subsided except the sweats -- very embarrassing! I work and in the middle of a meeting, I sweat so badly that it rolls off my giant red face in rivulets. I'm just miserable. Does anyone know how long it takes to get rid of the side effects of this demon-drug?? I want to stay in the house and hide.
-- By mare826 | Reply | (1) replies | Private Message me
January 11th
2009
2:13 PM
I have ITP, I started out with 60 mg, i am now down to 30 mg. I have numbness,tingling and swelling in the face now. Besides the bodyaches, heart palpitations and stomach aches. Well i was really concerned with my face went to urgent care and they said it probably just the prednisone. So here I am with my big swollen face,numb tingling my ears,neck and jaw with a double chin! I thought it was allergic reaction, sill concerned!
-- By jessy30 | Reply | Private Message me
November 12th
2008
9:36 AM
I was diagnosed with ulcerative colitis in 2003, have been treated with Asacol ever since, and was in remission for nearly 5 years. I flared in December of 2007, and had my first experience with prednisone; I was on 40 mg/day for nearly 6 months. I gained 35 pounds, got the moon face, double-chin, tummy fat, muscle aches, extreme mood swings, excruciating headaches, night sweats, and UNCONTROLLABLE hunger. I, too, noticed the sensitive teeth, and now I feel like my enamel is really thin...almost see-through. Anyway, I've been off prednisone for about 5 months. The moon face went away for the most part, but my cheeks still seem a little chubbier than before, and my double-chin is a lot smaller, but still there. I've lost about half the weight, but only after joining weight watchers and working out 6 days a week. I feel like I can't lose any more weight to save my life. Does anyone have any suggestions? I never struggled with weight prior to taking this stupid drug. I'd appreciate any input.
-- By cmfournier17 | Reply | (1) replies | Private Message me
August 28th
2008
10:26 PM
I HAD MY IUD IN 2007 AFTER MY BABY BOY AND IN 2008 I GAINED WEIGHT LIKE CRAZY I GAINED ALMOST 30 PONDS EXTRA AND IM GETTING CRAZY WITH THESE SIDE EFFECTS AND THAN I THOUGHT Y NOT USE A MULTI VITAMINS 1 A DAY WHICH IS GOOD FOR WOMEN IT GIVES ENERGY SO I DON'T GET HEADACHES BUT DO HAVE PROBLEM WITH WEIGHT IM JUS NOT LOOSING IT EVEN THOUGH I DON'T EAT FAT FOOD A LOT I JUST SUDDENLY GAINED I HAVE DOUBLE CHIN LOL I LOOK LIKE A FAT COW 157 POUNDS B4 I WAS 130 POUNDS SO U CAN SEE NOW BUT IM THANKFUL TO MULTI VITAMINS PILLS I FEEL MUCH BETTER I DON'T GET THOSE HORRIBLE PAINS IN MY BACK HEAD AND LEGS ...CHEST PAIN BUT IM THINKING TO TAKE THIS SHIT OUT OF ME BECAUSE ITS NOT GOOD BECAUSE IT CAN DAMAGE THE UTRES I THINK AND IM ALREADY HORRIFIED WITH THIS I CALLED MY DOCTOR AS SOON AS I GET HER IM TAKING IT OUT WHEN LAST TIME I TOLD MY DOC SHE SAID ITS NOT MIRENA CAUSING WEIGHT GAIN BULLL S*** THEY JUST LIE I THINK THE DOCTORS I DON'T BELIEVE THAT I CAN GAINED WEIGHT SOO QUICK SO IM GETTING IT REMOVED ..MY ADVISE TO ALL LADIES PLZZ NEVER CHOOSE MIRENA ITS BETTER THAT OUR MEN SHOULD USE STUFF NOT USS I HATE PILLS TOO .. SO I DON'T CARE I WILL NEVER HAVE TO PUT UP WITH S*** AGAIN GOOD LUCK TO YOU ALL
-- By ebtasam | Reply | (1) replies | Private Message me
August 4th
2008
2:38 PM
hi all. thanks for writing your comments here. it has helped me today, another HORRIBLE day of prednisone hell. i have been seriously ill for 8 months been told ever other week I'm likely going to die from lung disease (i'm 35) and after a painful lung biopsy have been told my lung problems are almost all reversible... after a year on high dose prednisone. i was on 40mg a day for a month a while back and was so out of control from rage and crying and insomnia and panic/suicidality, ravenous appetite, that they lowered me to 30. then after biopsy they said i should be on 100mg to cure me, we settled at 60mg. it's been 24 days. The moon face started about one week in. i've gained 8 lbs. i am an emotional wreck. i have at least one rage filled attack per day where i am screaming and want to kill somebody or destroy something. some days i am so filled with hopelessness and worry i just want to die. my body changes (after just losing 30 lbs and being a work out fanatic my shortness of breath makes it impossible to walk up 2 flights of stairs without resting) face changes, acne, excess body hair (oh my god please make it stop i'm like a chia pet and i'm so afraid it is going to get worse) double chin, puffy eyes and cheeks, absolutely uncontrollable emotions and mood swings, inability to be logical or reasonable. i don't want to leave the house, i'm panicked and scared all the time. i never sleep. ambian gives me minimal relief (just started taking it) i feel like i'm losing everything, except my lung functioning is returning and i'm not going to die from this illness (they assure me THIS week) i understand light at the end of the tunnel, but living like this is unbearable most days, almost impossible the rest of the time. am i alone with the severity of this? or are all the others like me too busy hiding the sharps and crying in a corner to write on this board? thanks for listening :)
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
December 9th
2007
7:47 AM
I'm a 50 year old male, very active but plagued with hereditary induced cholesterol. My first experience with Lipitor was that it was a miracle drug for me. Unfortunately after taking continually for 6 months, I keep on developing muscle strains on my legs which forces me to stop playing tennis for a month. I also believe I ruptured my Achilles tendon about two years ago because of taking Lipitor.
Anyway, after stopping taking Lipitor, in just 3 weeks, my legs felt stronger and I'm pretty quick in my game again.
Another side effect is the aging effect it makes on my face. It sags, making me a lot older. Stopping my medication also quickly tightened my facial skin, making me look younger again. In fact , on the street I will know if somebody is on Lipitor even if nobody told me. The skin will be like very soft, double chin will be really sagging.
The problem is doctors don't believe this. When I tell them they dismiss it.
-- By ramonqs | Reply | (1) replies | Private Message me
December 9th
2006
7:30 PM
I was diagnosed with a kidney disease when I was 14, and was put on prednisone on and off for a few years. After being free and clear for four years, my kidney problem is back, and I am back on the prednisone, 60 mg a day for the past month. My doctor said I can wean myself off and go to about 40 mg a day for the next two weeks, but this is when I used to have relapses in my condition. I am looking for ward to getting off of the prednisone though, my face is so swolen, and I feel like I look like a bobble-head. My cheeks are so full, and I have the worst double-chin. At first, the prednisone gave me so much energy, which was fine with two kids at home, but now I am just irritable and tired. I am starting to gain weight in my stomach now too. This time of year is the worst too, because the prednisone reall effects my immune system. I have to worst cold, and I had to get a flu and pneumonia shot.
The worst part of the prednisone is the swollen face though. There is no way to hide your face. The weight gain in m stomach can be hidden with a bigger shirt, but I can't seem to hide the ound cheeks. I wish I knew how to apply my make-up to hide it, but I can't It's awful!
-- By catherineyoung59 | Reply | Private Message me
December 9th
2006
9:36 AM
I'm 17 years old, and I have Ulcerative Colitis. I was diagnosed at 15, and was put on Prednisone then for three months. I didn't gain much weight in my tummy that time, but my face swelled to huge proportions, and while ON the drug, my hair grew like crazy but was very dull and lifeless at the same time. The minute I stopped the drug, my hair started falling out. Within a month, I had lost 40% of my hair.
Well, I'm on it again, and this time it's worse. I started out at 40mg back in October, and am down to 20mg now, but it's just as bad as when I started. I'm VERY moody and snap at my best friends, who I am usually the calmest around. I often find myself just wanting to hit and yell at something. Before I started Pred, I weighed 138. I weighed myself yesterday... 150.2. This is very disheartening. I have a moon face, the makings of a double chin, unhealthy hair, I wake up about 5 times every night because I'm restless or I have to pee, I can't focus in school, my knees hurt, etcetera. I'm miserable.
I work out 6-7 times a week because I'm so concerned about my weight. I do 30-45 minutes of the treadmill and/or elliptical, and do all the happy little toning machines, in hopes that my tummy can be a bit more toned. But no. It's a useless blob. None of my favorite jeans or shirts fit me anymore, and this - not the drug itself, but the side effects - make me very, very unhappy.
-- By hunterjumper903 | Reply | (1) replies | Private Message me
September 8th
2006
10:04 AM
I have been on Prednisone for seven months and these are my side effects.
Severe gout six times .
Bloody nose for five weeks during my sleep at night. I woke up with blood all over my face and bed covers.
At first constipation then runny stools.
Blurred vision.
Teeth ache.
Face so swollen that I am biting the inside of my cheek. Big double chin and a gaggle below that.
Pains moving from joint to joint.
Headache.
November 19th
2005
8:03 PM
I have gone from 125 to 175 in weight, stomach is like I'm having twins. Also the double chin. Takes me forever to get things done, have to write a list. Times I'm so short temper, have been know to tell the family members off. Love my grandbabies but at times I just can't stand the noise. I have been on the med for over 1 year now, and starting to go down slowly on mgs. I love my doctor and he is so concerned about how it has affected my body. Also on oxygen 24hrs. No good at trying to lose weight it just comes right back. Yes there are times I would love to run away or just quit altogether. Linda
-- By flying_ranch | Reply | Private Message me
July 15th
2005
11:20 AM
This shit sucks, I keep on gaining weight and now I have a double chin. I feel depressed all the time and I don't want to do anything but sit on the couch and eat. I have purple stretch marks on my thighs and I can't sleep for more than two hours.
-- By mandalore34 | Reply | Private Message me
July 5th
2005
8:59 PM
Extreme Fatigue, Insomnia/Disturbances of Sleep Patterns, Increased Appetite/Weight Gain/Fluid Retention/Increased Fat Deposits, Changes in Mood, Nervousness, Increased Blood Pressure (now need RX), Depression, Bruising, Extreme Facial Redness (all over), Inflamed Esophagus, Muscle Weakness, Profuse Sweating (especially entire head and face), Distended Abdomen, Swollen Eyes, Acne on Back (excessive), Sun Sensitivity, Increased Thirst, Roundness of Face/Moon Face, Thick Neck/Double Chin...or more, Messed Up Sense of Taste, Teeth Sensitivity, Moodiness, Hair Loss....
SEEMS LIKE I'VE FORGOTTEN TO INCLUDE SOME OTHERS!
This is RUINING MY LIFE!
June 25th
2005
3:34 PM
Avascular Necrosis - Beware!
I have been taking Prednisone off and on for about threee years now for reoccuring iritis. Have been up to 60 mgs./day a few times, and many of the times I taper, no matter how slowly, the iritis comes back. Since you can go blind from iritis, I guess Prednisone is the lesser evil.
Anyway, during my first longer period of taking it, I had many of the common side effects - weight gain, double chin, facial hair, hyperactivity, moon face, etc. After visiting a classic homeopath, he gave me a remedy which kept the iritis away for a few months. Subsequent attacks did not respond to the remedy though. I have been back on Prednisone for about 8 - 9 months now, and have a drastic side effect to report, which I haven't seen before here.
After a long road trip (10 hours) I began to have strange pains in my upper right hand thigh, which seemed to eminate from the leg joint. No matter what I did, they didn't go away and not even 2 Lortabs could help the pain. I went to the orthopedic doctor and he diagnosed avascular necrosis. The is a condition where the blood flow has been cut off to the bone, in this case, the femur, and the bone begins to die off. If it can be detected in an X-ray, it is already pretty far along. An MRI, which I had yesterday, shows best what is going on.
This is a DIRECT side effect of long-term prednisone use which no one ever told me about! So if you have joint pain, especially at the end of a longer bone, BE SURE and talk to a doctor about it. It is going to be a serious deal to get rid of this.
-- By kghardt | Reply | Private Message me
June 10th
2005
5:50 PM
And the Saga of Prednisone continues:
After a few weeks of 10mg per day (5mg AM 5mg PM) I am now down to 7.5 mg per day (last 3 days). The 10 mg allowed a lot of the side effects to start to fade: weight is steady or decreasing. I only gained about 5 lbs but that is now down to 1 or 2. I'm working out so I'm adding muscle as well as losing fat so I dont expect massive weight loss. (For instance .. I added an inch to the circumference of my upper arm.. muscle..not fat !) The irrationality toward food (cleanup in aisle 5 has new meaning.. like cleaning one's plate !)
Yes, Im hairier ! for a guy it's in all the right places. Not only hasn't that gone away.. it's hairier still !
My face is almost back to it's gaunt thin self :) SOME of the buffalo hump has gone away and my neck has thinned a bit - so no double chin anymore - just in the last two weeks.
Never had insomnia.. never had depression (wasn't thrilled with the side effects but thats a rational reaction.. not depression) never had moodiness. Acne is getting better. I STILL RECOMMEND PHISOHEX and a LOOFAH.
My belly is still distended but then I had a lot of surgery so it could be either or both. Exercise has helped (jogging and situps) and Im a tad fatigued but getting better.
Certainly thats not all of the side effects but the statement 1 month for every week of use seems true.. and the effects go away slower than they arrived.. ]
BUT THEY DO GO AWAY.
The more permanent effects (stretch marks etc) may be permanent.. try vitamin E Aloe etc.. they may help!
-- By ericgoberman392 | Reply | Private Message me
October 26th
2009
12:09 PM
Hello I am 40 yrs old and got a lung infection which cause swelling in my lungs so the put me on high doses of prednisone via IV for 21 days in the hospital. The drug saved my life and took it at the same time.
After I got out of hospital i was on 60 mg for 6 weeks the 30mg for 6 weeks then 20mg the 10mg. It has been a living HELL over the last 5 months or so.
I told my DR. i have very bad blurred vision and he said it because the med runs my sugar up but I check my sugar and limit my sugar and it around 100 all the time which is normal soits not sugar. Then he said well them you need to see an eye dr. cuz your eyes are going bad. I begged to differ with him and told him if there was something wrong w my eyes then why is is one day I see fine and the next day all blurred and then back to normal!? it this stupid steroid if you ask me plus on day my right eye is bad and next day my left uggh!
The WORST side effect it the brain fog as yall call it. OMG I feel like im loosing my mind and going crazy. The dr. says hes never heard of such with a wise remark and says you know where your at now right? I know where i am and what I say but I feel like its not really happening. Its like im dreaming it. I feel like Im trapped in my head and I lookout blurry eyes.
Before I was a very confident independent person but now I feel scared all the time i feel hopeless and ive went through 3 girl friends over the summer because of the extreme forward attitude the med gives me. I am not the same person I was. I some time just want to die. I'm extremely tire if i do any exercise at all.
Plus I have all the other typical side effect like the moon face and weight gain. I don't even look the same cuz my eyes have huge bags under them and a double chin I never had.
I feel for all of you because i know what your going through.
I saw one comforting post in here where someone said within 2 weeks of completely getting off the pred. he was his normal self.
I CAN TELL YOU HOW GLAD I WAS TO READ THAT!
Please if you have finished the med and have got back to normal don't forget about this post. Please let us know because we need any hope we can get to keep our chins up and not loose hope and go completely crazy or worse kill ourselves.
I have about 4 more months of this LIVING HELL and I will surely let you all know if it get better. If you have come off of it and are reading this PLEASE let us know if we get back normal at least w the brain fog. I can take all the side effect ok except for the crazy dream zone zombie feeling.
I WOULDN'T WISH THIS KINDA HELL ON THE DEVIL HIM SELF!!
Let's pray for each other that the Lord keep out minds strong until we get off the nightmare drug call Prednisone.
side effects:
-- By jaspbr | Reply | (3) replies | Private Message mebrain fog, blurred vision, puffy eyes, depression, confusion, dizzy, moon face, buffalo neck hump neck, hopelessness