October 11th
2009
11:26 AM
I have been on vytorin for about a year and a half now and I do experience some side effects. I get up at night at least 2 times to urinate. Now about a week ago I started getting double vision. I will be calling my doctor in the morning because it is getting worse. I stopped taking vytorin until I consult with my doctor. But I know I will not go back on vytorin any time soon. I just hope my double vision clears up. I can't even drive a car now. Vytorin is a poison that we are putting into our systems.
-- By annvickm | Reply | (1) replies | Private Message me
August 30th
2009
9:50 AM
I have been on this horrific drug for just over two years and have wanted to be off of it since the six month mark...i am not on it for depression but for focus...FOCUS, i cannot begin to describe the memory problems that i have...i can be standing in front of a person i have known for years and i will not be able to come up with their name or how i know them...luckily it does not seem to cause problems with my actual work but it is rather embarrassing when your boss walks up and you have to think hard to figure out who they are...side effects...i have gone from being a so called gorgeous man to a frumpy 30 lbs heavier man, and i still run five to ten miles a day and i eat less than i ever have...try to explain that...it is almost like i am swollen...i have horrible dreams, i sweat, i panic, i shake and i have a constant feeling of having a heart attack...try and live thinking you are having a heart attack when you are not but then again do you really know...in other words what if i have been desensitized to thinking i am actually having a heart attack when i actually am, may i rest in peace if that is the case...
when i have actually tried to come off the pills i have been violent (i never have been before in life), irrational, can't sleep, double vision, electrical shocks just by moving my eyes, can't move and bruise to the point that i look like a junkie who has injected himself everywhere...
my doctor never warned me of any of this, nor can i find it on the wyeth website (with the exception of the memory issues, which was not there when i started taking the drug...
i am so very sad over all of this...don't become like me
-- By cgg | Reply | Private Message me
August 26th
2009
10:28 PM
I'm no stranger to BCPs but Loestrin 24 has me quasi-suicidal. Yes, I've actually had thoughts of jumping out the window - I would never do it, but it scared the bejeebus out of me to actually have those thoughts.
I have two young kids and just went back on BCP's after finishing breast feeding my youngest. I have extremely heavy and awful periods so I was looking for a way to manage that. In the past I'd had only good experiences w/ BCPs so I didn't think twice about going back on them.
It's been three months since I started Loestrin and I've suffered from extreme fatigue, crazy mood swings, mental fogginess, forgetfulness, spotting (the least of my concerns), double vision, dry eyes, nausea, insomnia, no sex-drive, menstrual migraines that last up to 72 hours and lots of other fun stuff. Someone below mentioned they thought they had a brain tumor and I chuckled because I was pretty sure I had one too!
I forgot one measly pill this month and boy, did I pay for it.
Loestrin leaves me barely capable to take care of my children because of my fatigue and mental fogginess (it's the only way I can describe what my brain feels like on this drug) PLUS they have to deal w/ a very curt, impatient, unhappy and mean mommy - something I'm normally most definitely not!
When merging on the highway I ALWAYS do shoulder checks to make sure no one is in the way, but the other day I almost got in a wreck because even though I checked, I didn't see a car coming up behind me! I know this was because of my vision changes thanks to Loestrin.
I called my ob today for a new script. She gave me some generic. I hope to Zeus it's better than this stuff.
I think I'm more annoyed because I was never sensitive to meds before. I don't know if it's age (36), having had kids or what, but my body definitely doesn't handle the same as it used to. : (
August 3th
2009
11:43 AM
this is probably the worst thing Avelox caused, besides death, which would have happened without help..
7th day on Avelox for sinusitus - massive pain back of my head, sweating so much my clothes were soaked, threw up 2 times, legs were uncoordinated when trying to walk
Called 911 - paramedics took blood pressure - guess what.. 210/180.. something was definitely wrong. Rushed to hospital - passed out in ER - woke up with wife and family present - CT scan found my brain bleeding and brain surgery was performed to remove the clot..
But wait, it gets better... 2 days in the ICU my brain swelled from the surgery and the fluid stopped circulating.. I was semi conscious in the ICU for probably 4-5 hours and nothing was done. My wife came in early in the morning and thought I was sleeping, but could not wake me.. The nurse said that a doctor was called and will be there later. I'm DYING right before their eyes in the ICU!!! My wife demanded I get a CT scan immediately. If she didn't I would have stopped breathing. Later CT showed my ventricles enlarged with fluid backed up so much that my brain and brainstem was ridiculously squeezed so much, my head was all ventricles and barely any brain showing in the CT. I attribute my current brain damage to this episode.
A shunt was placed in my head for about 3 days.. basically a needle is inserted into my brain and left there to drain the excess fluid.. After my condition stabilized, the shunt was removed.
Spent 1 week in the hospital, then transferred to another hospital to stay in for inpatient PT and treatment. I didn't know left from right, had double vision, was throwing up constantly, was hot, then very cold, my legs hurt, had hallucinations (was believing certain things were happening, that really weren't) was incontinent, had a new catheter inserted every single day, was taught to walk again, had to use a wheelchair.
I had always been healthy, was vegetarian and did not smoke cigarettes.. I exercised regularly, did not use drugs (i.e. - cocaine or methamphetamine which can cause high blood pressure leading to a stroke)
Didn't know what happened to me, but realized I had to be there.. After 1 month, decided to go home (the hospital was becoming too stressful, somebody was always screaming and yelling at night and the daily catheters were uncomfortable), to be back in the lifestyle I knew.. my wife, my granddaughter, my house, my dog, cats, and other pets were sorely missed.
Once home I found that I couldn't do what I used to anymore - could not mow the lawn, drive, speak well, walk properly, had double vision, a tingling on my face, a metallic taste in my mouth so bad that good food tasted bad.
My wife set me up for physical therapy three times a week daily outpatient at the hospital I was at. Vomited regularly from the daily dizziness.
This was most disturbing, I developed a pain in my left hand and left shoulder, to the point where I could not raise my arm above my head and had to sleep with my arm straight down for at least a year. After playing guitar for 30 years, I found myself unable to play my guitar anymore. My left hand had lost all its dexterity and was not usable. I did not realize what happened to me until my wife explained the entire thing to me.
In the next few weeks I spent each day trying to put "2 and 2 together" and figure out why this happened to me. When doing research on strokes, I realized that certain things happened to me that were not consistent with having a stroke. In my brain damaged condition, I remembered taking the antibiotic Avelox, based on a physicians prescription. I researched the adverse effects and to my amazement, the listed side effects were consistent with what happened to me.
I began a quest to file a lawsuit - was unable to find a lawyer willing to tackle such a huge case.. although one lawyer did file before the 2 year time limit expired.. I had MRI's performed on my hand and shoulder which revealed scarring and previous ligament tearing.
During the time of having more outpatient and in home therapy, I regularly visited a psychologist and my physician confirmed that the Avelox most likely caused the brain bleed, tendon tears, and other mysterious symptoms when I presented him with my research. I was unable to work and my only income was from monthly Social Security Disability benefits that didn't begin until 6 months after the incident.. leaving me with no income and unpaid bills for 6 months. The mortgage payments fell behind and soon foreclosure notices arrived. We decided that an alternative would be to sell the house.. it could not be sold after 1 years attempt, so my wife and I moved to an affordable apartment. I put household items in a storage facility. I either sold to pay bills or threw away much of my personal things,since I was devastated by what happened to me, I didn't think I was going to survive long after reading statistics on strokes.
While in the apartment, I needed an income and was forced to take what was in the scpoe of my limited ability. I accepted an early morning paper route and then made deliveries for a courier company using my own vehicle.. That was a 12 hour work day. Being completely upset over what happened, losing everything including my house.. I decided to attempt to escape the overwhelming things that happened and were still happening. I found a house for rent that was less than the apartments rent, except it was in North Carolina. At the time that seemed perfect, a 3 bedroom house located in a far away place where I could forget everything that happened and make a fresh start. Only problem is my wife not want to go, but I was adamant upon doing it. She helped me move everything, including all storage items.. I had moved to North Carolina, but soon found being alone and unable to find suitable employment unbearable. I was being contacted for back rent owed, but could not do everything alone - I became more depressed to the point of feeling suicidal, so I called my aunt in NY and she said just leave everything and get myself to her house. I did, leaving everything behind, and stayed with her for a month until my cousin invited me to stay with him.. which I did. I stayed with him for 3 months, all the while searching for employment.
With help from my family I moved back to my familiar area in NJ in the summer of 2008. I had lost everything..unable to be physical with my wife and being seperated for 18 months, she has requested a divorce. Currently I live by myself and am still slowly recovering, yet my left arm and hand are uncoordinated, my talking is difficult, slurred and gravely (diagnosed with dysarthria), my balance is bad and am dizzy every single day for the past 4 years.. Although brain damaged, I am attempting to rejoin the computer support business again.
My entire past, everything I knew and did, everyone I knew, who I was, etc.. is all a strange hazy memory. If I don't take a sleep aid, I wake up around 4am with racing thoughts, unable to sleep.. My depression and anxiety are so bad, it is difficult to function and interact with others. My psychiatrist has diagnosed me with post-traumatic stress disorder and prescribed Zoloft and Xanax.
Upon proper research, I have to blame the prescription and subsequent use of Avelox for causing the brain bleed which led to my life being completely and utterly destroyed. My intentions are to file suit against the manufacturer Bayer and/or the hospital for allowing me to die in the ICU
-- By greg830 | Reply | (1) replies | Private Message me
July 24th
2009
2:07 AM
Hi there
Apart from all the above mentioned,
Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
Depression
Fainting followed by temporarily blindness (my studies n that scary matter came up with an explanation that this only occurs when your body organs are switching off. Scary thought.
I have also developed Polycycstic Ovarian Syndrome very serious case
I only had it for 6 month and would recommend to ant woman to take in out NOW!!!!!!!!!!!!!!!!!!!!!!!!!! I hope the manufacturer will pay for slowly killing us or making a whole generation of females sterile, let's face it who like to have their health tempered with?
M. AM
Australia
June 21th
2009
8:35 AM
Hello all, I Don't no where to really begin. I just started taking ambien cr for the first time last Wednesday. I was given the 12.5 mgs. I used to be on Restoril 30mg, but ive mustve built a high tolerance quickly because it stopped working. So i went on Ambien Cr. THe night before i took a restoril before my doctors appointment, then on the next day when i was prescribed ambien cr i took it that night, just one pill. It took a while for it to kick in, id say like a couple of hours, but i did manage to fall asleep. Next night I took one again, this time it was taking it a bit longer for it to work, so i chanced it and took a second pill. 30 mins later I finally started feeling the effects of the medicine kickin in which were drowsiness, blurred and double vision, and dizziness. So i thought to myself Maybe i need to take 2 of the 12.5mg every night. SO the next night i tried to experiment, i took 2 pills at one time, and in 30-40 mins time.. i felt the effects kicking in and went to sleep and woke up good., the next night did that again and fell asleep like a baby. but the next night. those two pills two much longer to kick in, id say it took about 5 hours. Im thinking and thinking why would this suddenly happen. I cant grow a high tolerance that quickly! Then it hit me that i was on Restoril for about 3 1/2 months and maybe my body is going through some withdrawal effects. Today I did feel really anxious. I took 2 ambien at 10:30pm Saturday night and im still up and its 5:20am Sunday. LOL. What do you guys think is happening to me? Could it be just that my body is detoxing itself of the restoril and im feeling some withdrawal effects?
-- By franciscor | Reply | Private Message me
May 13th
2009
11:10 AM
I have had migraines for years and as I got older the migraines got worse. I was having four a month when my doctor started me on Topamax. I was to take 25 mg at night for a week and then increase each week until I was up to 100mg. I never made it 100mg. At 50mg I woke up with double vision. My doctor said the Topamax was so great for migraines that I stayed at 25 mg for over a year. Thats when the side effects started. I had lost of concentration and inability to find the right words. I thought I was just getting old...even thought I was in early stages of Alzheimer. I had mild depression but thought it was from things I was going through in life. Then I notice that my morning urine would smell. I cant even describe the smell just different and I knew something was wrong. I haven't had a menstrual period in over five years but started spotting. Thats when I looked up the side effects. I stopped taking the Topamax immediately. The smell in my urine went away after a few days off of it. I am hoping that my memory and concentration improve gradually. Its not worth the problems it causes. Now I'm looking for another way to lessen the migraines.
-- By sduser | Reply | Private Message me
March 3th
2009
1:10 AM
I am so glad I'm not the only one that has the crazy symptoms. I am being treated for an inflammation in my optic nerve. I woke up over a month ago now with double-vision. I was on 100mg a day for seven days then went down to 60mg. I feel like I'm high all the time though. I have to take my pills at 7 in the morning and they are still effecting me until about 2 or 3 in the afternoon. I can't drive or do anything that would take a lot of concentration cause I just feel out of it around my eyes. Also I have tingling in my face and arm. Not sure if this is a side effect or if its the possibility that I may have Multiple Sclerosis. (getting an M.R.I. done for further testing) Does anyone else have those tingling sensations?
My vision has almost come back to normal now. The Prednisone has done wonders for that, but I really hate taking it.
February 16th
2009
10:35 AM
I have been on Singular for 2 months. I have noticed dizziness and almost passing out. I thought it was my other herbal supplements, but now I am still having the feelings and I will discontinue the Singular! Today I have a headache and just don't feel right in my head, almost like double vision feeling. I'm glad I found this website. I went on Singular for dog allergies, but it is not worth feeling this way!
-- By 712dawnh | Reply | (1) replies | Private Message me
February 5th
2009
10:40 PM
I'm feeling ill with this Mirena. I haven't felt like myself in over a year and half. I have had all the same symptoms as listed above. NO SEX DRIVE AT ALL. How do you all think I had kids in the first place? Since having Mirena I haven't had a normal period. First it was constant for 6 Months. Then now it's every other week. I feel so dizzy it is hard to stand up without wanting to fall over. With my low blood sugar problem I feel like my body is actually dying. I'm not kidding I feel so sick right now. I can't hardly interact with my own 2 kids. I have this double vision all day I can't hardly concentrate. It's very hard for me to see things. Is even hard for me to type this message to let people know that I hate Mirena. I can't wait for it to be removed asap. I wish I never got it. For some people it is ok but for others it's not so great.
-- By got_stuck222 | Reply | Private Message me
January 21th
2009
4:03 PM
I had the mirena inserted on Dec 5 2005, I had bleeding for about two weeks and nothing much, up until 3 weeks ago I "loved" my Mirena, I was happy not two to have a period not that I ever had any problems with mine's. I was not until I found this site that I started to realized that my "chronic fatigue" that started in April 06, the hair falling out, sudden anxiety and panic attacks, blood pressure going off the chart for no reason 175/96, after always having low blood pressure, being put on Lexapro and Valium, feeling sad, gaining 20 pounds, not able to lose them no matter what I did, the horrible headaches, migraines and tension headaches at the same time, the fidgeting, nausea and just a general feeling of not being well, that I decided to have that thing removed. Had it removed on 1-15-09, had to be put on a beta blocker 50 milligrams twice a day to lower my blood pressure. I "cried" when I read some of the entries, I almost got diagnosed with lupus, the doctors could not figure out what was wrong with me, I was given all kind of excuses, "well you are 40 now" maybe it is your family life, etc, etc, my mom whom is 74 has more energy than I do!!! Don't let anyone con you, this thing is evil, and Lord knows what kind of other damage it has done to my health. And like many of you I did have a period occasionally, I did not know when, but it was nasty smelling and brownish. Also as of late I started to feel a burning sensation on top of my vagina, I have not been intimate in over a year and had a full exam last year ;therefore, I know I done have any STDs. The headaches were the worst, I could not even comb my hair, I felt like if someone was cutting it in two. Post removal I have not had more bleeding, but I know it is quite early, either way, not having that thing, and even after taking beta blocker I have more energy than I ever had in three years. My son was born in Dec 2002 and I have never felt as tired as I felt while on Mirena. I had double vision, could not control my thoughts and everything was a major disaster, somehow I lost my ability to take control of my life, never again will I put my body through something like this
-- By maria6715 | Reply | Private Message me
January 7th
2009
10:02 PM
As a follow-up to my post earlier today about my daughter's severe reactions to Avelox.... I wanted to add that we weren't given a prescription -- the doctor actually put a weeks worth of samples into a bag, individually wrapped pills. So even IF there was a warning on the box or a pamphlet included with this toxic drug -- we wouldn't have gotten them. Doctors get these samples from the drug companies and hand them out like candy with no regard for their patients and obviously no knowledge of what they are giving them. This is very wrong in my book. If anyone knows of anything that can be done to stop this drug from being given out - please post here.
-- By diane567 | Reply | (2) replies | Private Message me
December 14th
2008
11:05 AM
headache,nauseous,leg cramps, pain in my left breast, around heart...now, around each period my breasts hurt, and i have terrible stomach ache, like cramps, which i never had before..i also started having acne on my back and shoulders...but the worst thing is, my room-mate, she was using Yasmin for 9months, died a week ago. she wasn't sick at all.she actually did have a few headaches, and weird stomach ache, but we didn't seem to connect the two...
-- By mefovka27 | Reply | (4) replies | Private Message me
October 30th
2008
2:40 PM
I work at a computer all day. I have just begun taking Wellbutrin and I have noticed that my eyes seem to be getting more and more sensitive to the light on my screen. A couple days ago, I was looking at a paper and then back at the screen while I typed and, my eyes just went out of focus. It was like I was looking cross-eyed. There were two of everything and it made me really dizzy. I have had inner ear problems in the past and I don't know if the Wellbutrin is triggering them or what. I am not using alcohol or other medications other that Benadryl at night. Has anyone else experienced this? This is scary.
-- By mtgranny | Reply | (3) replies | Private Message me
July 21th
2008
6:18 AM
UNTIL READING DIFFERENT REACTIONS TO BACTRIM, I THOUGHT THAT I MAY POSSIBLY HAVE A BRAIN TUMOR. I STARTED BACTRIM FOR POSSIBLE STAPH INFECTION AFTER HAVING POISON IVY AND SOME SPIDER BITES. AFTER TWO DAYS ON BACTRIM, I DEVELOPED A LOW FEVER AND HAD DIFFICULTY SLEEPING ALSO HEADACHE. I STOPPED TAKING IT ABOUT HALFWAY THROUGH MY PRESCRIPTION AND DEVELOPED DOUBLE VISION FOR THE NEXT SIX DAYS OFF AND ON. THE WORST TWO DAYS FOR ABOUT FOUR HOURS STRAIGHT. I SAW A OPHTHALMOLOGIST WHO COULD FIND NOTHING WRONG WITH MY EYES AND SUGGESTED THAT MANY THINGS COULD CAUSE IT FROM MEDS TO A BRAIN TUMOR. I FEEL BETTER AFTER READING OTHER ADVERSE REACTIONS. I ALSO DEVELOPED HIVES ON BOTH THIGHS. NASTY MED.
-- By lindaleone | Reply | Private Message me
July 18th
2008
8:39 PM
I began Doxy in Sept of 2007. The first week into it I noticed the roof of my mouth felt strange, kind of rough and sore. I attributed it to the drug and figured it would go away once I was off of it. I began to get a very sore tongue which I attributed to candida....it was a little white too. I was on the drug for five weeks and the mouth symptoms never went away, just went on to become a chronic burning tongue and mouth. Scalded feelings in the mouth as though I had slurped boiling hot coffee. Also, noticed I began feeling very tired and melancholy on the drug....those symptoms have never really gone away. It's been nearly a year and I have tried multiple remedies for my mouth and nothing helps. Has anybody else had the burning and inflammation feeling in their oral cavity. It shows no outward signs.
-- By rmorita | Reply | (1) replies | Private Message me
July 8th
2008
3:00 PM
I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obese, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.
Here is my list:
Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
PIMPLES ( I am 38 for Pete's sake, I didn't have pimples as a teen!)
My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!
-- By kcleblanc | Reply | Private Message me
July 8th
2008
2:56 PM
I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obeses, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.
Here is my list:
Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!
-- By kcleblanc | Reply | (1) replies | Private Message me
June 28th
2008
9:51 PM
I am suddenly experiencing double vision and wonder if Advair is at fault. Would be interested to hear of such a side effect.
K
June 22th
2008
3:26 PM
I have had EXTREME hair loss and I did not know what from. I never thought it was my advair. I checked all of my other medications and only one other one said there was a possibility of hair loss (PREVACID) so I went off of that but my hair was still falling out. I have been so desperate that I scheduled and appointment to see a dermatologist tomorrow. Today I happened to google "advair/hair loss" and I cannot believe all of the articles that came up with people expressing the correlation.
I have been so depressed from this hair loss. I had the thickest, shiniest hair and now I barely have a pony tail. I wear hats all of the time because I am embarrassed.It has been totally devastating.
What I need to know is which other asthma medication will NOT cause hair loss so I can switch? Too bad I just dropped $100 on a 3-month supply of Advair and now cannot use it.
Also, those of you who went off the Advair, how long did it take for you to experience hair growth or it not falling out?
May 24th
2008
4:06 AM
I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!
-- By twtyfrk66 | Reply | (3) replies | Private Message me
May 5th
2008
11:11 AM
Like most of you state in your posts.........I cannot begin to describe how relieved I am to have found this site. I honestly thought I was losing my mind. I had Mirena placed in December '06. It was uncomfortable during the actual procedure, but not too bad. Then within a day or two I was in severe pain and bleeding like crazy with severe lower back pain. I was told to take ibuprofen and allow my body to "adjust". I went for my follow-up ultrasound and the placement looked fine although I was still bleeding like crazy and very uncomfortable. After several more calls they brought be back in for another ultrasound, told me that my uterus must have gotten bacteria in it during placement and that I had an infection. They sent me home on antibiotics and pain medicine. I bled pretty regularly for 6 months straight accompanied by lower back pain, fatigue, and headaches. Finally the bleeding let up only to be followed by a multitude of other nasty side effects. Depression, anxiety, fogginess, forgetfulness (severe), waking up with headaches every morning, nausea (to the point that I can't tell you how many pregnancy tests I've taken), weight change (redistribution, thicker waist, tummy, and hips even though actual number only changed by about 5 pounds), feeling swollen and bloated when I wake up in the morning, NO libido whatsoever and feel like crying during sex because it's nearly impossible to reach orgasm (this has never been a problem previously), hair loss (becoming more noticeable over time), dandruff, boil-like acne on my face and back, dry eyes and blurred/double vision, chronic yeast infections and dryness in that area too. The list goes on and on. I went to three different doctors and had tons of bloodwork done, all came back normal (thyroid, hormones etc....) I was told over and over that it couldn't be the Mirena. HA! How can this many women be delusional? I called last week and got an appointment for May 20 to get it removed. After reading this forum my husband called the doctor himself and I don't know what he said, or how he managed to do it.........but I'm going in tomorrow morning at 10:20 am to get it removed and you better believe I'm going in armed with this website and others I've found. Physicians need to be more aware of this! Even if it's not common, it's miserable for the 1 in 1,000 woman who gets the worst of the side effects. It's literally ruining my life and my marriage. It's impossible to be a good wife and mother when you feel terrible everyday.
-Amanda
-- By butrfly9 | Reply | (3) replies | Private Message me
March 29th
2008
11:14 PM
I went blind on 150 mg of Lamictal. I couldn't see anything. My eyes were blurry all the time. I couldn't figure out what it was and when I weaned off of the Lamictal, my sight came back. Not to mention, it did absolutely nothing for my mood whatsoever.
-- By stackmama | Reply | (2) replies | Private Message me
March 25th
2008
2:46 AM
Hi, I'm writing this as well as having posted on the lupron petition. This is a nasty nasty drug. I had endo, adenomyosis, and nearly bled to death. I couldn't get a hysterectomy because I couldn't get insurance for a pre-existing condition. My gyno said Lupron's maker would donate a dose. I had a stroke about three days after taking the drug. I had complete double vision. I lost my memory, my mind, I had to have blood transfusions, I had horrible hot flashes, my memory still hasn't recovered nearly 8 years later. I would recommend that anyone who has taken Lupron do a mercury detox, because it is preserved with thimerosol, that's what turns it silver. The memory problems will subside somewhat when you do a heavy metal detox. Montmorillonite Bentonite can help. I have done some research and have read that endo can be caused by an infection, and that colloidal silver may be of use in treatment. I would go holistic, I would deal with the pain, or with anything other than Lupron, it wrecked me and I haven 't really been healthy since then.
Beware, don't fall for the hype, it's just not worth it. BTW, I finally had that hysterectomy. I've never felt better. But I'm glad I waited until after I was able to have a kid.
PredniSONE (9) Topamax (7) Mirena (6) Toprol-XL (4) Lamictal (4) Remicade (3) Lupron (3) Singulair (3) Ambien (3) Tegretol (3) Avelox (2) Doxycycline Hyclate (2) Levoxyl (2) Effexor XR (2) Advair Diskus (2) 5-Aminosalicylic Acid (1) Desyrel (1) Tobradex (1) Kenalog (1) Xalatan (1) Ocuvite (1) Ambien CR (1) Trileptal (1) Lisinopril (1) Bactrim DS (1) Aciphex (1) Warfarin Sodium (1) Wellbutrin (1) Vytorin (1) Simvastatin (1) Loestrin 24 Fe (1) Advair HFA (1) Yasmin (1) Lithium Carbonate (1)
October 25th
2009
12:38 PM
dizziness,nose bleed, double vision, blurred vision
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