Duane graveline symptoms and conditions

June 27/09
I am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!

Hi and please feel free to email me. I was on Lipitor for quite a while (20mg)without any issues. Due to insurance etc I was switched to 40mg of simvastatin-(Zocor-generic)--with in a short time i noticed i was waking nearly every morning with a mouth full of junk requiring a deep throat clearing. Then a low level sore throat that persisted for more than two weeks. I went to my doctor who agreed that it may be related (though I think she doubted it) and had me stop. Now i have been off for 5 days and still my throat is sore (though not sore to swallow) and mouth generally feels "messed up".

If any of you have had any sore throat experiences etc please let me know. Also how long did your side effects last once you came off the drug?

I have had Type 1 Diabetes for many years (54) without any complications of the disease - until I had a mild stroke. Which didn't affect me. Now my doctor makes me take Lipitor. From the very start of taking 10mg Lipitor per day, I got muscle cramps and leg twitches whilst in bed; muscle weaknesses; I even got Plantar Fasciitis and now I limp slightly in that foot. Before I took Lipitor I used to sleep like a baby. Lipitor has made me from a relatively healthy person despite having Diabetes to what feels like an old lady at aged 55. I know it is Lipitor as when I stop taking the drug all unpleasant side effects mentioned above cease. The trouble is my doctor won't give my Insulin without Lipitor and I need Insulin to live, of course. So I am forced to take Lipitor. I find that exercise such as a good long walk during the daytime helps; without it (eg in bad weather when I cannot get outside) the effects of Lipitor are much worse. My cholesterol readings and blood pressure are always good (even before the stroke) so why should I have to be almost crippled by Lipitor?

I've been on Simvastatin 40 mg for about eight months now. Cholesterol levels dropped significantly. But man have I been hating life! Joint pain mainly in the legs. Beginning to walk like an old man and I'm only 62. Also more pain in my back than ever before! I talked to my doctor, who suggested I get off them for 6 weeks. I did, and I feel like a million bucks. I've got to get back hold of him to find out what he recommends? Probably some other pill!!! Just today I was talking with my pharmacist, and I told him my symptoms. He said the muscle deterioration could actually lead to death. I don't think I'll ever go back on them. I'm going to try and watch the old diet and get more exercise. Hope this helped someone? Good Luck!!

I am only 42 years old and have been on zocor for the past 30 months. I've had mild tingling in my feet and achy joints along with slightly elevated liver enzymes and fatigue since then. Ever since my doctor increased the zocor to 80 mg per day ( because although my cholesterol level is normal, my triglycerides are still very high) , I feel like I am 100 years old! All my joints ache so bad and my feet and hands alternately tingle or feel very cold! I am also having trouble focusing when I look from something close up to something far away! I am also clumsier and more forgetful. Could these symptoms be caused by coenzyme-Q deficiency?

omg, im 32 years old been on zocor for 3 months now and am experiencing dizziness and disassociation with myself. I know now that it is from the drug. It seems like i want to sleep all the time. I was pretty convinced it was from stress but i have been in war in Iraq and under stress-post war depression and its nothing like statin side effects!! I went on statins because of a genetic disorder that runs in my family, the cause, well high cholesterol. Now my levels are fine but i feel like im a zombie most days? i know in the long run its healthier for my heart and veins to have low levels but at what extent? i think im going to go off for a few weeks and then back on it.

I am 38 years old and had my second child 7 months ago. My family history for heart disease is very poor and my cholesterol was 6.2 so my doctor prescribed 10 mgs of simvastatins in November. Before taking them I felt fine in myself, since taking them I have felt exhausted, not just tired, I have insomnia, very bad nightmares when I do manage to sleep. On top of this I have started to feel depressed and anxious, short of breath and my hair is falling out! I had myself convinced that i had post natal depression but decided to stop taking statins a few days ago, feeling slightly better. My doctor prescribed me an anti depressant today, should I take them? Does anyone know how long statins stay in our system?

Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.

I have been on lipitor 10mg for about 6 mths (after reacting to lipex with severe hip pain and going off that). Am now experiencing abdominal pain, severe headaches, excruciating neck pain and to top it off a droopy eyelid and loss of extreme peripheral vision after a bout of flashing auras and fluid like waves in the outer edge of my eye. After tests my retina is not detaching so what is the cause then. My cholesterol is high when not on lipitor and am wanting to lower it without drugs. I could do with losing 10kg weight but will that bring down the cholesterol. I walk every morning for 30-40 mins. Diet is healthy, a few junk things each week but not overly so.

My mother is 74 and has been on Lipitor 5 mg for about 6 weeks now and has experienced her 1st TGA. She called me today to tell me that someone had come into her house and cooked a platter of bacon and moved a basket around. She couldn't find her purse and went outside and sure enough it was in her car, but the door was standing wide open and the purse was sitting on the seat. She remembers nothing! This evening she swore that our second child was born in a different house. This from a woman who can remember the tiniest minutia. This Lipitor is terrible stuff! She is now officially off of it. R.

I am a 55 year old female. I had a heart attack in July -08. I had a stent placed. Since then I have been on Plavix, Lopressor, Lisinopril and Lipitor. I have been back to the Hospital 2 times since then. The first time they found nothing. The second time I had to have another stent place because the first one didn't work. This last time they did another catheter and found nothing. I have episodes every couple days of Light headedness, heart pounding, stomach upset, confusion , really bad burping and sometimes diarrhea. I am at my wits end. I have lost 30 lbs and am weak most of the time. I was very active before all this and can't get back on my feet. When I ask about the medicines, the doctors say I don't think it's that. Someone please help!

Get off the Lipitor, me and me husband, both had the severe joint pain. The pain moved from one joint to the next. It would be in the shoulder, then the next day or so, it would move to our feet, then to the hand and wrist. It would swell , so bad, that it felt like, that part of the body was going to burst !!! My husband was on LIPITOR for 1 1/2 years, before it hit him. Doctors thought it was gout, and my husband was walking on a walker ,at 49 years old, and never being unhealthy. I was on LIPITOR for only one month, after a stint was put in my heart. Believe me, it is not the stint , it is the LIPITOR. I knew what it was when it got in my joints, so I went off it right away. It still takes about 2 weeks to get it out of your system. I now know of other people, who are on LIPITOR, that have severe muscle cramps. If this is happening to you, then you can not take anything with STATINS , in it. If you are allergic to STATINS, it can cause another muscle disorder , that can destroy your muscle tissue.

In people close to me I have seen the following side effects:

All statins have similar side effects. They can come at once or after many years.

Pain in neck, shoulders, elbows, hands, hips, legs, feet

Pains that keep moving to different parts of the body and could be unbearable -like nerve pains.

Head ache

Burning, tingling sensations in the different body parts mentiond above and numbness

Weakness in hands which caused the person to drop things

Hair loss, difficulties to swallow, ringing noise in the ears, loss of taste, memory problems - particularly with short term memory, difficulties to find words and to remember what just had been read, impotens, extreme sensitivity in the skin (abdomen).

Please "educate" yourself.

Read books and look for information in many different places. Remember to find out who is behind a certain webb-adress. Could it be a pharmaceutical company.

Unfortunately I am not allowed to write webb-adresses here - but Google the titles of the books/writers below and you will find some webb-adresses.

The Great Cholesterol Con (Anthony Colpo)

--------------------"--------------- (Malcolm McKendrick) - this is another book

The Cholesterol Myths (Uffe Ravnskov)

Malignant Medical Myths (Joel F. Kauffman)

Overdosed America (John Abramson)

Lipitor - thief of memory (Duane Graveline)
Duane G. has an interesting site

The Truth About The Drug Companies (Marcia Angell)

Google "Stopped our statins" and you will find this webb-site.

Under print articles to the left you will find an interesting article from Weston Price Foundation.

It takes time to look for information and then read it, but often it`s quite essential to do that and to make up your own mind.

It`s your body and you know best how you feel.

Remember it`s a lot of money involved and that`s why news about serious side effects quite often are delayed.

The cholesterol issue - that high cholesterol should cause heart attacks etc - is very controversial. But it`s only the pharmaceutical companies who have the money to "brainwash" by advertisements, ghostwriters etc.

I hope my suggestions can make you more interested in the medications that you are taking.

Finally - a very interesting book about a certain kind of antibiotics - Bitter Pills by Stephen Fried.

English is not my native language but I was forced to read a lot of English books because of the suffering of my relatives, but without the Internet I would not have found them.

Remember new drugs are not necessarily better than old, but always more unsafe. They are also more expensive and that`s why they are so highly promoted.

My doctor prescribed 40 MG Simvastatin to be taken 1 on Thursday and 1 on Sunday.That doesn't seem like much but I have only taken them 3 times and the pains in my knees are much worse also my feet hurt, my neck is a little sore, I have bad cramps a few minutes after I eat and even during the night....I also have had 2 nights of very strange dreaming.
Several years ago I was on Lipitor and after a year I could hardly walk with my knees so I told the doctor I was not taking that any more..he put me on Zetia and I did well on it and the pain in my knees lessened a lot ,until my insurance co. decided not to pay for Zetia anymore, I told the doctor and he put me on Simvastatin. I am not going to take any more of it and will discuss it with the doctor next week,.

I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.

Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.

Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.

I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).

I was given 40mg Lipitor for elevated cholesterol. I took it until I started having muscle weakness .I am a retired nurse of twenty five years, and knew this symptom was not correct. So I stopped taking the medication and told my doctor of this.He did not protest in any way.My symptoms now include;two torn ligaments, sob,mental deficits, muscle wasting, night sweats, weakness,h/a's, and more. I have not taken Lipitor for two years now. Damage is done.My doctor said it should be out of my system by now. Is this a cover up?

I have never experienced the side effects of statins myself. I have never taken any - nor would I if my numbers should be too high.

I have had the opportunity - or rather was forced to - to "educate" myself on the cholesterol issue as i had 3 relatives suffering from side effects.

They were all over 70 and had taken Simvastatin (Zocor) for years.

In 2003, when I had just got an Internet connection, I started to look for information and was surprised to find these sites:

******

I also found "Stopped our statins" (google for those words) where there is a lot of information.

Under print articles you will find a very informative article from The Weston Price Foundation about the different statin studies over the years and also about the side effects.

Are you sure that a high cholesterol will cause heart problems - or is it just propaganda from the pharmaceutical and health industry?

After having visited some of these webb sites and read some of the books you might have changed your mind - like I did.

Your cholesterol is very important for your body and essential for your brain among other things.

Why should you live better and longer if you use medications to lower it?

It`s just to read all these patient stories - what quality of life is this?

I would suggest that you also read the messages for the other statins such as Lipitor, Zocor (=Simvastatin) etc.

All statins have similar side effects.

Here are some books that you might find interesting. Some about the cholesterol issue.

The Great Cholesterol Con (Antony Colpo)

The Cholesterol Myths (Uffe Ravnskov)

Lipitor - thief of memory (Duane Graveline

Malignant Medical Myths (Joel F. Kauffman)

--------

Overdosed America (John Abramson)

The Truth about the Drug Companies (Marcia Angell)

-------

Bitter Pills (Stephen Fried)
about quinolone antibiotics such as Cipro, Ciprofloxacin, Levaquin etc.

-------

The Antidepressant Fact Book
Your Drug May Be Your Problem
Toxic Psychiatry
Medicine Madness
(Peter R. Breggin - all books about psychotropic drugs)
____

What if medicine disappeared?
(Gerald E. Markle and Francis B. McCrea)

How doctors think
(Jerome Groopman?)

4 months ago I was diagnosed with Statin induced Myopathy. I researched on the topic of statins and the dangerous side effects through the net and corresponded with some caring people with medical backgrounds, whom were very helpful and supportive.They have pointed me in the right direction for the information I was seeking, and gave me encouragement not to give up! EDUCATE YOURSELF ON STATINS FIRST, THEN TALK TO YOUR DR.
For anyone interested, I have a list of places to google that you may find helpful. To mention a few...

-Adverse drug reaction monitoring

-Investigate statins Petition signatures-Go Petition

-WHO The safety of medicines

-Statins warning out

-Drug induced and toxic myopathies ( www.pubmed.gov)

-Statins.com

-FindArticles-Evaluation of the patient with muscle weakness

-Duane Graveline M.D. (or) Spacedoc

-RateMDS.com

I consider myself very fortunate. I'm able to walk again.The muscle pain and weakness has subsided but not completely gone. I believe at the rate that I'm improving I should be back to my old'self by the time summer rolls around. Oh yeah, and I fired my Doctor. I value my life!
ttfn,

I have never taken any statins. Hardly any other medications either, but I have seen the consequences in people near me, particularly a close friend who died on May 1st, 2007 after several years of suffering from pain all over, weakness, ringing in his ears, loss of taste, difficulty to swallow, loss of memory and concentration and so on.

As he had several medications it was heard to know which caused a particular symptom.

I am sure the doctors doesn´t have a clue either and they know nothing of what statin treatment can do in the long run.

My advice to everyone is to search on the Internet - that`s how I discovered this site and many others.

Also read as many books as possible.

Here are some:

Overdosed America (John Abramson)

Lipitor - thief of memory (Duane Graveline)

The Great Cholesterol Con (Antony Colpo)

Book with the same title (Malcolm Kendrick)

The Cholesterol Myths (Uffe Ravnskov)

Also search for - stopped our statins.

I am so glad my English is good enough to share this advice.

I live in Sweden and I do my best to tell as many as possible about this site because there is no such thing here and more and more people are put on this kind of medication without having a single clue what could happen to them.

I am totally shocked at what I have learned about Lipitor. My physician prescribed 10mg for me over 4 years ago. No major problems until recently. Severe neck/shoulder pain for about 3 months. Dr said it was a pulled muscle. Gave me Skelaxin. No help. Went to Chiropractor--yanked, cracked, beat, etc--no help. In the past 2 weeks or so I have developed pain in my hips, back and legs. Blamed it on being 52 years old. As I read some of the experiences on here I could relate to each one. I also have gained about 30 pounds in the past 4 years, short term memory is terrible. NO ENERGY> 3 years ago-Dr started me on Wellbutrin for depression, then added Zoloft. I am to the point now I want to get off of all this and see how I could really feel. Not sure about withdrawals. Any comments on stopping the meds?

from my understanding, one month is not long enough to determine if the symptoms are caused by Lipitor--please read the postings in the archives about side effects from lipitor, and you might want to google "peripheral neuropathy, statins" . you could also access dr. duane graveline's web site, "spacedoc.net" and read the information he has. best of luck to you

please research dr. graveline's web site (google dr. duane graveline) and find his recommendations for stopping statins--he suggests decreasing the dosage and considering daily aspirin(unless you are taking plavix) (at least until the rebound period of increased platelet stickiness is over??) though my husband and friend stopped their lipitor cold turkey 1 1/2 yrs ago with no sequelae, rather scared me to find the information about the rebound platelet stickiness--obviously it does not happen in everyone and if it does, it does not affect everyone adversely. best of luck to you