Dx symptoms and conditions

I had the Mirena placed in 2004 after the birth of my second child. I had weight gain, mood swings, hungry all the time (i would sleep eat), depressed, joint pain and was tired all the time. I eventually got it removed 3 years later and my symptoms got even worse. I was severely depressed, my sleep pattern was abnormal, my mind was fuzzy, couldn't concentrate, joint pain worsened and had absolutely no energy. I started itching and having tingling sensations and "bug biting" pain/sensation especially in my extrementies. It was weird. It stimulated a hormonal response that affected my central nervous system. I know it did. I will never be convinced otherwise. It was a shock to my system. There needs to be studies done in this. I finally drug myself to the my general practitioner 3 months later and I thought that I would get admitted in a psych ward. I was hardly functioning. No kidding. I had no reason to be depressed. My life was better than ever. I was not admitted, but I was put through the ringer for tests and my healthcare bills became outrageous. I had tons of blood work, sleep studies, saw a neurologist, had a myelogram, mri, and put on several medications which added to the weight gain. It has been almost 2 years now and I am just now starting to feel like myself. All of the tests were inconclusive. The neurologist dx was something neuromuscular. I am not on any medication now, but am not 100%. But I know that damage was done and I am older. So I'm afraid that I will never feel great again. I wish I had never had the Mirena. Never. I know I miscarried once and suspect that it happened twice. I didn't have a period for those 3 years but it was not worth it. This product should be recalled.

37 - Dx'd w/ Hyperthyroidism at 20 and have been on levoxyl since then. I started at .075 and was increased to .1 when I got pregnant w/ my 1st child at 29. I always thought I had anxiety so until I started reading the posts I didn't put it together. I was always shaky and nervous and super skinny before I was dx'd with hyper and after the treatment I was still anxious so I thought it was a different problem.

The anxiety has gotten much worse in the last few years w/ pressure, family, and career so I went to a psych last week and he gave me lexapro and klonopin. The klonopin had done nothing and I was treated 10 years ago with Zoloft which made things MUCH worse so I won't take the lexapro.

I recently switched to Synthroid .1 because I thought maybe the generic meds didn't work as well. I developed a small rash on my elbow a week or 2 later, then a week after that I got 2 big patches on my back over my kidneys. A bout 2 weeks later I developed a HORRIBLE itchy rash over my whole body. I thought the itching would drive me insane. I saw a dr who gave me prednisone (made me feel awful), after I took the dose pack it came back like crazy. I went to the ED and the dr gave me scabies medication (I was mortified) but nobody else in the house had anything. I went to the derm and they biopsied two areas and a week later have not given me the result. Meanwhile, I'm back on levoxyl and the rash is slowly getting better. It must have been the cause. Anybody else get that??

I was on Reglan every 4 hours for nausea, GERD, acid reflux,
digestive disorders, now known as Gastroperisis, Gastric emptying syndrome, DRUG INDUCED PARKINSONISM.
I took Reglan for a few years for digestive, stomach problems and nausea.

I had this progressing over several months I couldn't write a check, my daughters had to do it, I couldn't eat food without spilling it, the tremors just advanced so quickly and severely until the neurologist said I didn't have Parkinson's and too get off Reglan. It took a few months but the tremors went away and I got my life back.

But not entirely, I don't know if Reglan caused the Gastroparesis or not. But I was recently diagnosed with that. Still have GERD, and other digestive problem including the recnt dx of Gastroparesis which there is no cure for.

I was prescribed Reglan to increase my breast milk. I have no history of depression or anxiety. After a month or so having taken Reglan I got extreme anxiety and insomnia. I knew I was experiencing something that was NOT normal for me. It was a terrible experience. I had to move in with my mother so she could help me with my baby. I was diagnosed with post-pardum depression/ anxiety and put on antidepressants. Something I never would have believed would happened in my life. I am now weening myself off of them. Although my Ob/Gyn says that this experience was not due to the Reglan I was on. I am not convinced. I was taking it three times a day. I will never take Reglan again.

I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!

Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.

hello again I posted on the 22nd of Aug. So update.. I went to the doc as promised, no help I don't understand why doctors don't listen to u they act like it but they just nodd their head and already have a dx for u. I went and said I am very depressed and feeling crying right now doctor ummhumm, has anything changed in ur life. no everything is the same i dont know whats going on with my body but i think its the mirena. umm hum doctor says. Oh remember the constent yeast infections, well here take this pill and 7 day cream, i don't think none of what u are saying has to do with the mirena but you can have it removed anytime. You would have had the side effects when u first got the mirena inserted not now . I tell her I think my IUD is gone haywire and i want it out.

I am a 56 y/o female who started on Fosamax last Sunday. I have a dx of osteopenia. I followed the directions of taking pill with full glass of water and remained upright for 30 minutes before having anything to eat. I was fine on Sunday but on Monday I woke with SEVERE bone pain! My whole rib cage, back, knees and heels were hurting so bad. It felt like I had pain in every bone in my body. I could not take in a full deap breath as my rib cage was hurting so bad. I could not bend or turn without terrible pain. My energy level was zero. I immediately called my doctor who told me to hold the Fosamax (ya think?) and ordered Vit D lab levels. Apparently when you Vit D levels are off (don't know if too high or too low) you can suffer this bone pain. I am awaiting the results. The pain is better today and I was told it takes 5 days to get out of your system. I only wish I had done my homework and found this site before taking this poison. I have to say I'm a registered nurse and know that ALL medications have side effects and everyone responds to meds differently. Some side effects subside as your body gets use to it and some can experience severe allergic reactions. But it's important to weigh the risk vs the benefit. I would rather deal with osteopenia in another way. So my search begins for alternatives to Fosamax for good bone health. Has anyone had good results with other supplements/meds?

My 13 yr old daughter was put on Singulair along with Asmanex and Clarinex for her asthma about 6 weeks ago. Everything seemed to be going very well at first and her symptoms were starting to get controlled. I started noticing after about 3 to 4 weeks that her temper and attitude were getting much worse. Anyone with children this age knows what I mean but this was like a 180 degree turn for her. Her actions were becoming totally out of character. Before I knew it she would cry and get highly upset over the least little thing. Week 5 came around and things totally bottomed out. She came home from school and WAS NOT HERSELF. Made comments about how she hated her life and it was not worth living. Later that evening we had a big argument because I was telling her nothing was worth saying that. She went totally out of control and I had to physically restrain her to calm her down. It appeared everything was better so she went to her room. I went down to check on her and she calmly told me that she had taken advil and tylenol pm and things would be better for her forever now. We went to the ER where they made us wait for at least an hour, then finally took her back. She had to drink two cups of charcoal and was poked and prodded repeatedly. They did a catheter to get a urine sample. She was very cooperative but also was in a complete daze so who knows. The poor child couldn't even lift her head up when she started the vomiting to get rid of the drugs. It was very upsetting and sad. Her heart rate and blood pressure went very low and I really thought in the back of my mind that this was it. Finally, after several hours she started coming out of it and they sent us home. The next evening when she was starting to really come around she proceeded to tell me how she had been seeing a man walking around in her bedroom at night and she was afraid to go down there. Breaking down and crying telling me about all of the horrible nightmares she had been having recently and didn't know why. I thought what am I dealing with here? This just isn't her. Three days ago I heard about singulair in the news and looked it up on the internet. OH MY GOD THIS SOUNDED LIKE US!!!!! I immediately had her stop taking it and the next day phoned her asthma specialist who agreed she should stop now. We are going to watch her for two weeks and see if any symptoms return and then decide if she needs something else or will be fine on just the Asmanex. As a side note, she also mentioned being unable to concentrate in school (unable to do even the simplest math problems) and that her brain felt confused or like something was missing. She said this had been bothering her for several weeks. I know it was this drug. They really need to take this off the market NOW and stop flirting with disaster. The only reason I posted this was to let others know they are not alone.

Our son started taking Singulair when he was 2 for severe allergic rhinitis and cough variant asthma (in addition to Zyrtec, which didn’t control all of his symptoms). He is 5 now. For the last three years, he has been an increasingly violent, difficult, defiant, argumentative, volatile child who has intense mood swings--one minute he’s laughing uncontrollably, the next he’s weeping over nothing. His doctor and therapist recommended that we see a psychiatrist to have him evaluated for bipolar disorder, which used to be unknown in children. Because he has such chronic sleep problems, the doctor also suggested we take him off Singulair (and increase his Zyrtec dose) to see if it improved his sleep issues. Within a week, he was sleeping much better and was a calmer, happier, gentler boy. He suddenly could take “no” for an answer without flipping out and trying to hurt me. We thought that we were just in an unusual, calm window that would shift either to mania or intense sadness or both, any minute. We also thought that his behavior change might be due to sleeping better. We were enjoying the rare reprieve. Over the last weekend, his springtime allergies really flared up. We gave him Singulair on Monday and by noon, he was completely out of control. I had to strap him into his car seat at one point to keep him from hurting either me or himself. It finally occurred to me that Singulair might be causing his “bipolar” disorder. Of course, we stopped the Singulair. After two days he was a new boy. Yesterday, I Googled “Singulair bipolar children” and got a few hits. I am stunned to read how similar other families’ experiences have been to ours and I feel sick that we gave this drug to our child for three years.

Addendum here to my orginal post.....dated
November 2th
2007
1:34 AM
New side effects and sufferings!!
I am at 4 mgs A Day now... In fact, I have been at 4 mgs a day for four days... (reducing by 1 mg every seven days)
I feel like I am (my brain) is dying/melting away slowly...by increments daily. It seems to get a little worse every day in fact. I dare not rest or sleep during the day. Every time I do, I wake up with complete brain fog! Actually, the brain fog comes and gets to me every morning by 9 am anyway and I feel like I'm losing my mind all morning until about 2pm when it starts clearing up a bit!!....Its scarey for me to go thru everyday here! What can I do? There's no one to help me!!??

I tried to split the dose I need to take (maybe three mg in the morning and 1 mg in the afternoon) and was unable to do so because of frightening heart palpitations, nausea and dizziness this morning. I thought I was dying because my body felt like it had been beaten with a meat tenderizer all night long . (flu-like symptoms~ I wanted to die and lay there, completely exhausted until I forced myself out of my bed.)
Every day its the same thing. A NIGHTMARE that I am unable to wake up from!!
I am fairly quiet all afternoon and then all evening long until about 11 pm. I Look and 'act' completely normal in spite of symptoms boiling barely under the surface. Then the 'hot-flashes' start around 11 pm. Then, By say 0330 am the chills and cold sweats join in with the hot flashes until about 0630 am. Around that time, my head feels like its expanding from the inside like a huge balloon thats going to pop....and I feel like I can't breathe....then the 'antsiness' begins and I feel like I am vibrating all over inside like a million ants are crawling all over just under my skin and skull! Then 'That Pacing Thing' and horrible Severe Brain Fog starts up and I am unable to sit or lay down! I *must walk/pace all over the house and/or outside....for hours and hours on end ~until about noon hour when I can calm down and the cycle starts all over again. THIS is what this damned Prednisone has done to me since it was prescribed Sept 14th 2007 !! There's no guarentee that this behavior pattern will stop once I am off the drug completely either!! I feel like I am getting sicker and sicker by the day here. Anyone else out there have anything even remotely like this ?? and then get better after they stopped the prednisone?? HELP! :o(

I can't believe what I am reading. My son, who is 10 now has been on this med for 5 years now. The same amount of time that he has been dx with ad/hd. He started a new med for adhd this past summer and was doing wonderful, at the same time I had run out of Zyrtec for a couple of months and was giving him Claritin instead. Well we got a Zyrtec prescription on Oct. 1 and since then his behavior has went down hill. I thought that the adhd med had just stopped working, now I am wondering if it is the Zyrtec. The time the med seemed to stop being effective is the same time we had the Zyrtec filled. I am taking him off of it immediately. He has been angry, smart mouthed, disrespectful. Doesn't listen to anything I say. This summer and even until last month was wonderful. He did what I asked the first time, I didn't have to repeat myself, and he was calmer and nicer. I can't wait to see if this is the cause of a lot of his problems.

I have been on singulair for 4 days. My ears hurt, my throat is sore and I have been getting SEVERE muscle spasms in my feet and legs when i go to bed. Taking med in p.m.____getting little sleep and feel very "fuzzy". I have asthmatic bronchitis and mild to moderate copd. Is anyone with these dx. on this med? any good effects with breathing? I can't take the pains and am stopping the med tonite.There HAS to be a better way!

Hi all
I was dx with hbp when I was approx 15. I was then rx a Beta Blocker and had lost weight and it seemed that my bp was great no need for meds any longer and was fine till I was approx 32 years old when my bp went to 157/120 my gp asked if thier was a family hx of hbp and of course thier is and then asked what family members were taking to lower thiers and the only thing I could find out was that everyone took hctz and the gp rx this for me and it has worrked till recently when readings were 157/110, 160/100, 147/127 ect very bad I felt horrible..fast pulse headache and chest pain also a feeling as if my heart was going to pound out of my chest!!! the dr rx a med called toprol and sent me to a internal medicine specialist who kept me on the hctz and the toprol and added lisinopril to the mix...OMG what a mistake after ONE dose I felt like I was a HUGE muscle Cramp Aching all over and upset stomache a HUGE headache my legs ached SO bad that I was in tears!!! The only thing different is the Lisinopril!!!

I started taking Diovan about 9 years ago. At the time my doctor prescribed it because the medicine I had been on (Lotensin) was causing me to hack and cough (which was keeping me up all night long).

I started out at 80mg & then 3 years ago my bp began creeping up. I was then prescribed a 80mg dosage with 12.5 diurectic. I am now taking one 160mg/12.5 & one 80mg/12.5 pill each day.

Since I have been on Diovan I have experienced significant, yet unexplained weight gain (approximately 150 lbs), drastic hair loss, insomnia, itchy skin and more recently, brittle teeth (2 of which have broken off).

Over the years I have been blamed by the doctors for not taking control of my weight. Yet with swimming 4-5 days a week, walking & using an elliptical machine, and changing my diet (and eliminating processed/bleached food) I could only get down to 220lbs.

At this point, I do not know where to turn for advice. The doctors use more meds to mask the side effects of other meds & I have yet to find one that doesn't play into that mindset.

I have been taking Lamictal for just over a year. Some of the side effects have been noticable for a few months, but others seem to just be appearing and getting worse. I have loss of balance and coordination, my vision is gettng worse, I have a hard time concentrating and finding the right words, I forget how to spell common words, I have short-term memory loss and feel spacey. I can always figure it out, but it takes longer. I began doing Pilates every day about 3 months ago and still cannot get the routine down and it is just as hard for my muscles as it was in the beginning. I can't seem to lose weight and have horrible acne on my face. I had 2 seizures before beginning Lamictal and am suppose to be on it for 2 years before trying to go off. Without insurance though, I am unable to do follow-ups w/ my neurologist and she seems unconcerned and unsypathetic to my situation, not giving me the time of day. She never even told me all of these side effects could develop, much less that they might begin long after I started taking Lamictal. Has anyone had these side effects after having taken the Lamictal for so long then stopped taking the Lamictal? Will these side effects go away after I stop taking it??

i have a family member on zocor. he has been dx, and rx for anemia without a known cause. can statins cause bleeding disorders.(anemia)

Mt daughter had encephalitis march of 2005 since then she was dx with intractable multi focal seizures she was doing well. She is now 9 on phenobarbitol, trileptal, topamax, ddavp, she got her first lupron shot in june of this year from starting puberty early then got her period 2 weeks later. since then she has an increase in seizures nosebleeds, and swelling in the face not sure what is causeing this. Any one with any info or similar expreince. Thanks

I have been on Levaquin for 9 days following a DX of COPD exacerbation, + acute bronchitis. My coughing has become worse, but more dramatic is the black and red blotches on my skin - 1 area of about 5" by 9" on my left flank below ribs, and another below my left under arm - about 6" by 6".
I do not exaggerate about the color of the skin, the black skin is not a coal black color with some dark cherry red blotches around and mised in the central shape..
My only guess is that it is some strange reaction to the coughing - which has been severe and difficult to control. The muscle pain when I cough is truly horrible, but I have never seen anythin glike this.
I was seen in the emergency room, and all personell who saw the blotches commented that they too had never seen anything even like what I have. Several staff members insisted that I fell and injured myself, but I didn't.
Two days after stopping the Levaquin - the marks began to slowly disappear, but not fade to yellow like a black and blue mark does.

To taylorry and everyone on this lovely drug called Prednisone. I have Ulcerative colitis. Recent flare up last year March. Talked to dx, not take me seriously. Had colonoscopy it was bad. Statred 1st time 40mg, felt better next day. Night sweats, no sleep for a month on sleeping pills. I too looked forward to my next meal. I weaned myself off, I think I did it to fast, I could not take it anymore. When does your body stop hurting. My family/friends don't understand why I am so withdrawn. We have to help each other. Love the site.

I've also had more trouble seeing after using 1 spritz of Nasonex in each nostril once a day (for several months). I've also felt progressively more tired. Most concerning, and my reason for being here, is that I developed a Rosacea-like condition. My dermatologist dx'd me with mild Rosacea, which is unbelievable to me, as my family line has nothing like this in it. When I did a Net search on Rosacea, it mentioned that steroids can cause this condition. Also, Rosacea is progressive and can damage the eyes and even cause loss of vision. So, if you suspect that this nasal steroid is affecting your vision, I'd recommend getting off of it. Oral and nasal steroids can become systemic if taken for long periods of time. This is common knowlege in medical circles. I took myself off of Nasonex today and am already starting to feel better.

44 yr opld white male dx'd w total chol of 290. Rx'd 20 mgs of Pravachol per day. Had increased liver enzyme in blood and very sore muscles (esp arms and legs). Reduced dosage to 10mgs per day and ulitmately to 10mgs every other day in combination w Zetia. Muscle pains reduced but liver enzymes still high and was switched to Zocor. Now have whole new set of side effects.
Seriously wondering if its worth it!

Hello,

For pneumonia I was rx'd erythromycin, became very sick so rx'd Levaquin. Pharmacy printout listed some side effects. I saw "torn ligaments" listed and was told it was a very rare side effect.

I started Levaquin January 30th. On February 3rd I developed pain in my right elbow area then even worse in my left shoulder, then in collarbone and surrounding area. Since then these symptoms have shown up in left elbow, right shoulder, calves of legs, hands, my right bicep is killing me, along with severe headache and overall weakness.

I am barely able to dress and undress or from this pain. Typing this with one finger right hand.

I have no transportation w/o spouse, finally called doctor on Friday, Feb. 14th and have appt Tuesday, Feb, 18th.

Her dx will be posted if possible.

I have fibromyalgia, chronic myofascial pain, chronic fatigue so I've certainly had no energy to injury myself. I am concerned this is a result of taking Levaquin.

Also since I have the above dx at first I thought it was just more pain, however, I am now positive that this is unrelated.

Joanne Diffenbaugh

I am having problems with my fingernails and tips of my fingers since I started Welchol 2 months ago. The white of my nail is very deep and irregular and the tips of my fingers are sore with raised bumps that split and itch. Dr. dx. Onycolysis. Strange that it all started to the day I began Welchol. I am still on it but I may stop. Cholesterol did drop 21%.

I am a 41 yr old woman w/high cholesterol. I am on 1200 mg of Neurotin and 200 mg. of Cyclobenzaprene for spinal injury & resulting surgery 2 years ago. I have been dx'd with fibromyalgia, but I am cautious with that label. I couldn't tolerate lipitor due to new muscle pain and weakness tied to onset of lipitor usage. I was put on 20 mg. Zocor 15 days ago & I feel my life has slipped away from me. I didn't even equate this to my new drug. Today I went on the net & found this message board. So it's the zocor. :>( I cannot sleep. I can't really seem to function. The joint pain especially, and in all of my limbs is red hot & debilitating. The muscle pain, well, I feel that this must be what it's like to have a broken shoulder. Most muscle groups affected. Right now, my doc is running every test, but based upon what I am reading here, I think we know the culprit. This new, harder pain in my joints is comparable to the severe neuro hits I would get in my extremities just after the neuro surgery. It is akin to red-hot electrical hits. I hate it. I'm beginning to hate everything. Sorry for the long post.