E mail address symptoms and conditions

I have had mirena since July of 2006.. I never thought about the things I was feeling could be related until I just read your blogs! I constantly feel pregnant and I am talking all the symptoms!!! Bloating and stomach pains included! Depression, anxiety, sleepiness here lately, severe back pain, numbness.. I am almost 25 and thought some of these problems were growing pains(I know that probably sounds nuts). Please if anyone has a suggestion as far as what I should do here is my e-mail address ******! I need advice and it looks like the doctor's just want to make a buck!!
Thanks,
R.

We all need to report these problems to the FDA. I filled out my report in about 5 minutes. There is also a number for Merck, I couldn't find an e-mail address. To report an adverse experience with a specific Merck product, please call the Merck National Service Center at 800-444-2080. Don't you wish that someone would have spoken up before our kids had to experience these side effects? Let's spare some other kids, fill out the form, it's worth your time.

Let me start by giving you some history.

My sister is a 22 year old girl who worked full time and was never seriously ill until this summer.

During the last full week of June my sister started having headaches. She told me that these headaches were like none she had ever had before. Days later she started complaining that her legs and wrists hurt. She said that her legs were so tired and achy she could barely walk up the stairs. At that time I dismissed what she was saying. My sister constantly wears heels and I chalked up the complaint to a pair of shoes that were not yet broken in.

By July 4th, the headaches were so intense that she went to urgent care. The physician she saw in urgent care gave her an antibiotic and sent her on her way. By July 7th, she was having difficulty standing up and walking was almost impossible. My sister started complaining about severe joint pain. Her ankles began to swell and her stomach appeared distended.

On July 8th, my sister went to her primary care physician. I believe he sent her for an x-ray and said that she had a cyst on her sinus cavity which was causing her to have severe headaches. He then gave her another antibiotic and referred her to a rheumatologist never even thinking that these two symptoms may be related.

On July 10th, my sister saw the rheumatoid arthritis doctor her pcp referred her to. He dismissed her complaints saying that she probably has some form of arthritis, but that there are over 800 forms and it would takes months to pin point exactly which one she has. He then gave her a prescription for Celebrex and sent her on her way. She spent the entire week in bed because her joints were so swollen and achy that she could not move. She actually crawled to go to the bathroom.

By the middle of the following week, my sister's stomach began to burn. She contributed it to being a side effect of the Celebrex and stopped taking it on July 21st. We had no idea that the pain was so bad. My sister's last normal meal was on July 22. By the 23 she had no appetite and could not go to the bathroom. On July 24, the stomach pain was so bad that she could not work, or sit, or function. All she did was cry. She went back to her primary care physician who then prescribed her prevacid to help with the so called indigestion. He told her if the pain continues she could call him. On July 25th the pain became unbearable. My sister called her PCP as directed and he told her to go to the ER. Never once did he say he would meet her there! I brought my sister to the ER where they did an x-ray and cat scan of her stomach. They found nothing. At that time my sister had not gone to the bathroom or had anything to eat since the 22nd. The physician in the ER said that she was literally "full of shit" and needed to go home and take a liquid laxative. My sister is only 22 and my parents were away on vacation. We were stupid and didn't know any better and were so happy that they didn't find anything that we accepted his findings and got out of there.

My sister took the liquid laxative prescribed by the ER physician as soon as we got home. We waited anxiously for it to relieve her stomach pain. After many hours the laxative did not work and my sister ended up back in the ER. This time she was screaming in pain. One of the doctors there told her that if she couldn't calm down she needed to leave her ER. My sister did just that. At this point my parents (back from vacation) took my sister home and called Digestive Disease. A doctor there told my mom to give my sister 2 Enemas. He said that should relieve her pain. My mother followed the doctor's orders, but the pain did not stop. Sunday, July 27th my sister was right back in the ER - this time at another hospital. This time my sister was admitted to the hospital for severe stomach pain. After 5 days and numerous tests my sister was discharged. The doctors found nothing in her cat scans, x-rays or ultra sounds. The pain was more manageable (she was on morphine every 2 hours) and they said she was ok to go home.

August 1st my sister had a great day. She was sitting up in bed and seemed to be in good spirits. The following day she couldn't get out of bed. This time it was neck pain. My sister said the pain in the back of her neck was so severe that she could not lift her head up or move it side to side. By August 4th she was admitted to the hospital again. This time we brought her to University Hospital in Syracuse, NY. We were sure to get some answers there...or so we thought. As soon as my sister arrived in the ER they started treating her with antibiotics. They were certain she had an infection. They then told us they would have to do a lumbar puncture to check her spinal fluid for infection. We thought we would finally have an answer to what was wrong with my sister, so we agreed. The spinal fluid came back fine - no infection. At that time they admitted her to the hospital. While at University Hospital my sister was treated by a team of doctors. They tested my sister for lyme disease, west nile, lupus, leukemia etc. They performed a spinal tap, cat scans, x-rays, ultra sounds, blood smears, etc. All of these tests came back negative. The doctors could find nothing abnormal except for an elevated white blood count -22,000 (it was also very high during her last hospitalization), an elevated C reactor and a very high SED rate. After 4 days of numerous tests and pain killers (first morphine, then Dilaudid, then Dilaudid with a fentanol pain patch) they discharged my sister. The head doctor told her that he believed she had viral meningitis and that it would eventually work its way out of her system. By this point my mother and I were skeptical. We did the research and viral meningitis should only last approximately 10 days. Mig had been sick since the last week in June. No one was putting all these symptoms together. On the day of her discharge my sister started getting her stomach pain back. The pain was mostly on the left side of her lower stomach - under her belly button. Again she was told the pain was due to constipation and she should buy some Miralax when she got home.

My sister was home for a mere 2 days before she would be hospitalized again...for the 4th time. Her stomach pain was back and worse then before. My family could not believe this was happening. My sisters spirits were down and the excruciating pain was making her mentally unstable. This time the ER physician recommended a hematologist come in to see my sister. We just wanted answers so we agreed. This hematologist, Dr. R stated that she believed my sister had drug induced lupus. We were shocked as my sister was tested for lupus twice before and both times the test came back negative. Dr. R explained that she believed my sister got drug induced lupus from the Gardasil shot. My entire family was shocked. We had never heard of any severe side effects like this from the Gardasil shot. Dr. R asked my sister for her permission to test her again. My sister agreed and a week later my sister learned that she was positive for drug induced lupus. My entire family was so happy that my sister finally had a diagnosis and could begin treatment. We were told that after a 6 week steroid treatment (Prednisone) my sister would be back to her old self. We were ecstatic!

My sister was home from the hospital and on the steriod treatment for 10 days when things started to go wrong again. The doctors were very concerned with the dosage of Prednisone that my sister was taking (80mg. I'm not sure how many times a day). They cut the dosage down in half over the course of a few days to prevent kidney damage and other side effects. Once the Prednisone was decreased, my sister started getting sick immediately. Her forearms were very weak - she could not put any pressure on them. Her shoulders would tingle and she would get shooting pains down her right arm. One of her doctors believed she was developing fibromyalgia and prescribed her lyrica. Shortly after my sister began taking lyrica she started seeing stars. She had double vision and a migraine that would not go away. My mother called her doctor and told him about this. His answer was for my sister to stop taking the Lyrica. She did immediately.

On August 29th, my sister still had a migraine. This was day 3 without a break. She woke up early Saturday morning and began vomiting every 30 minutes. After a few hours of non stop vomiting my mother called her doctor. His nurse practitioner was on call and she told my mother to take my sister to the ER immediately. My mother went back into my sister's room to tell her they had to go back to the hospital and she found my sister having a seizure. My sister has no history of seizures. My mother called 911 and the ambulance came to bring my sister back to the ER...her 5th hospitalization.

Shortly after arriving at the ER, my sister had another seizure. Immediately after the seizure the ER doctor ordered my sister to have an MRI. My sister had one during her last hospitalization only 2 weeks before. That MRI was normal. This one was not. There are lesions all over my sister's brain. The neurologist told us that he cannot believe she does not have permanent damage. According to him there is no oxygen going to her brain.The neurologist also explained to us that her brain looks as though she has been poisoned. He said that her MRI is very similar to an MRI of a patient who has been poisoned with antifreeze. Later I learned that Gardasil has both aluminum and sodium borate (which is in both rat poison and cockroach killer). However, according to the doctor once your brain looks like my sister's all the poison is out of your body. My sister's team of doctors started debating as to whether this could all still be from the Gardasil shot...my sister's last shot was on 02/22/08. Some believe that the side effects started off as mild, but since they were left untreated for so long they've turned into a serious neurological problem. They told my family the only way to truly know what is going on is to do a brain biopsy.

Yesterday, my sister was transferred to Mass General in Boston. We were hoping for a bigger hospital, better technology, more seasoned doctors. So far my sister has been treated badly. When my mother told the doctors' about the Gardasil shot and the devastating effects it has had on my sister they dismissed it. When my mom asked the doctors to test my sister for heavy metal toxicity they completely ignored her. I fear that she will never get the proper care.

i was recently in the hospital they gave me toradol and now two days later my arms and legs are in very bad pain i have on and off headaches and i am so tired but cannot sleep. i took some ibuprofen and that did not help i have lost my appetite and i have yellow color to my skin now i have tried on the internet to get help right now and have found no relief i do not have the money to go back to the hospital so if any one has any help my name is Nicole my e mail address is ****** please help if you have any information.

I am feeling so tired and let down with the marina. I had it fitted on the 1/08/08 and feel that my body has changed. I am bleeding so heavy, i have headaches, and feeling generally unwell. Has anybody taken this device out themselves my e mail address is ****** I would love anyone who can help or talk about their experiences to contact me. Also I have a good career and feel at the moment I can't cope....does any of this ring tru to anyone else?

i was a healthy 35 year old male but had high cholesterol, so the doctor prescribed lovastatin (mevacor) and tried it for a month but developed muscle weakness. months later, i'm still experiencing severe muscle spasms and my neurologist is stumped -- mri's, spinal tap, emg -- all normal. I just want to feel normal again. can anyone help? please email me!

Muscle weakness, pain, tingling

After taking levaquin, I still suffer from muscle weakness, pain, and tingling several years later. My doctor who is one of the top specialists in New York has seen what this drug has done to me and is doing research for an article in a medical journal to put the word out of the horrible side effects of this drug as well as increasing the knowledge to hopefully figure out how to counteract this.

If you are/have suffered similar results, please contact me at ****** and we can discuss how you can send your case information to my doctor for the study and medical journal article. We need more scientific studies and literature out there about this drug and the side effects.

UPDATE to recent post on May 05 by adashjr:
I haven't taken my Diovan since horrible pain in my feet occurred on May 03. It is now May 18. My feet and knee feel AWESOME!!! the knee is back to it's pre-Diovan state of sporadic soreness but overall my lower joints haven't felt this good in a LONG LONG time. will admit I have no idea what my BP is having not taken DIOVAN for two+ weeks, but
will get back to gym and lose weight and lower my BP the old fashioned way. DIOVAN - GOOD RIDDANCE!!!!!

To all the new posters: please file your complaints with the FDA. You can do it online. Also, you can e-mail Sarah Sellers with the FDA. She is responding to e-mails. Scroll back for links/e-mail address. Thanks Kate Miller.

Kate Kendle Here. I'm looking for Corey Miller's Mom. You had e-mailed me before. My son also committed suicide and you said that it was on your son's birth date. Please e-mail me at my personal e-mail address as I'd like to hear all about Corey and tell you all about my A.J. I'm sorry that we have to share this as a commonality but I'd really like to stay in touch with you.
If I remember correctly, your name is also Kate.
Hoping to hear from you. Kate Kendle

New FDA Warning:

FDA informed health care professionals and patients of the Agency's investigation of the possible association between the use of Singulair and behavior/mood changes, suicidally (suicidal thinking and behavior) and suicide. Singulair is a leukotriene receptor antagonist used to treat asthma and the symptoms of allergic rhinitis, and to prevent exercise-induced asthma. Patients should not stop taking Singulair before talking to their doctor if they have questions about the new information. Healthcare professionals and caregivers should monitor patients taking Singulair for suicidally (suicidal thinking and behavior) and changes in behavior and mood.
This early communication is in keeping with FDA’s commitment to inform the public about its ongoing safety reviews of drugs. Due to the complexity of the analyzes, FDA anticipates that it may take up to 9 months to complete the ongoing evaluations. As soon as this review is complete, FDA will communicate the conclusions and recommendations to the public.

Read the complete 2008 MedWatch Safety Summary, including a link to the FDA Early Communication About An Ongoing Safety Review regarding this issue at: http://www.fda.gov/medwatch/safety/2008/safety08.htm#Singulair

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After a couple of months that my husband started taken Aggrenox twice a day his toes turned red, swollen and hurt so much that he can not walk. He has been in the hospital and they didn't know the cause of that. He has had all kind of test done and the doctors can not find anything. Some days he feels better some days it is worst. Can it be the Aggrenox causing this problem.

Thank you and I hope you can help me.
Hilda R.

13 year old daughter is on lamictal for seizures. Hse has experienced the loss of memory and the muscle aches in her legs, another side affect that she has had was anger and aggitation and one day she actually got so bad she started to hit kick and bite me
anyone else have that side affect?
good luck all

I've been on the pill for almost two weeks now, the first week I had no symptoms then on Monday I started bleeding and have been bleeding ever since. I hope the symptoms go away soon because I don't know how much longer I can take the bleeding espically since I just had my period less than two weeks ago.

Hi I was a nuvaring user. I am 18 and my gyno told me that nuvaring would be better than any other birth control on the market. I really wanted to start on the patch but my gyno insisted on nuvaring.....yea that was the biggest mistake ever!! I had it for only 15 days because a 15 day period wasnt exactly what I wanted... I had no smile on my face for 13 days and I hated it! My back felt like I was constantly carrying boulders on it and I felt tired all the time. My coworkers had to constantly crack my back for me because I was almost in tears from the pain. I stopped using it and within a few days I was fine. I felt better, my freakin back felt better, and I finally felt clean for sex! But now im experiencing a problem that I hope someone out there can help me with... I stopped nuvaring about 3 weeks ago and ever since I have had gross brown discharge come out of me... Yea lost alot of nice underwear due to that. and now I have my period but its like alot!! minimal cramps but the blood sucks but im assuming that its normal? but does anyone have any advice??? maybe been through it???

I started to take Doxycycline 100mg approximately 2 weeks ago and it makes me feel real bad. I also lose some weight in a matter of weeks. Since wehn I started to take it until now I lost like 10lbs at least :(:( I think that is something people who needs to lose weight should be taking. I was taking it thinking it would have help my acne problem, but look likes it makes me worse now. I am losing weight and I am not sure what to do to keep my weight. Can anyone please help me? My e-mail address is thepunisher0561@yahoo.com, I am panicking and do knt know what to do :(:(

I want people to know my story. I am an RN of 23 years currently 44 years old. I was on Lipitor for 5 years started at 39. It did it job with lowering the blood levels etc.

Ten months ago I developed numbness, tingling and burning pain in my entire lower legs. I could not stand in one place it made the pain worse. I work ten hour shifts and I am on my feet the whole shift. I remember coming home and I could not stand the pain in both legs. Feet both would go numb. No back or disc problems. They ruled out diabetes. I had developed a perpheral neuropathy. Neuroton does help take the pain away folks. I would take 300mg at night at needed. I had the restless leg at night. My MD did not think much of all this ran the blood tests and that was about it. I kept mentioning it. Mind you my 47 year old MD also takes Lipitor.

Next fatigue exhausting I can't get out of bed fatigue. I have missed more days at my job in the 20 years I have been employed there. I knew something was wrong as I was so exahusted. I could hardly finish me shift. I got short of breath at the end of me shift.

I took MYSELF off the lipitor. Things got better a little. Four weeks later I still have the severe calf pain, fatigue still missing work, . Now more lab tests are orderd.

Ask your MD to do CPK levels on you this tells you if you have muscle injury or damage.Ok I have been off Lipitor for 4 weeks and my CPK level that I asked to be drawn is 1,225 normal high is 190. I have muscle injury and damage. I hope it is reversible. No wonder why I could not get out of bed.

Ask for those CPK levels. I think any prudent MD should check CPK levels along with the liver enzymes periodically.

I still have more lab test pending. I am on steroids prednisone for 10 days. I hope I can make it to work soon -they are shooting up all my vacation time with this.

This drug caused me a lot of pain , emotional distress, time lost from work.......... stress period. With my RN knowledge I have thought of possibly looking more legally into a Pfizer lawsuit. However; I live in Kalamazoo a lawyer my take my case but I would bet not many MD's in this town who their drug reps bankroll in free lunches and lavish gifts may not back me.

Educate yourself from my story and don't have to suffer atleast 10 months maybe 12 by now. I missed social and family events........... I was always in bed and could not get up just to shower and get ready for work.

Any questions email me. Vicky RN

Silke-

Thank you so much for your reply. It's encouraging. I wish there was a way to know what may be available here in the states thats a natural remedy for anxiety. I looked up the 'baldrian' on the internet and every site was in German. I may call a health food store here and see if there is anything equivalent.

I ended up taking the Xanax and I must admit for the first time in weeks; if only for a few hours that it may last I feel like ME again. I am very laid back and care-free. I guess after getting to this feeling of normalcy from a pill I guess I can see how people can become addicted to them. I plan to NOT get that way and I am going to soak up every bit of the relaxed demeanor I am experiencing right now.

My e-mail address is ******

Incidently, how long did you take Yasmin prior to getting off of it? I was on it for only 3 months.

Thank you again for your reply.
Denise

Dec. 9, 2004 - earlier this week (2-3 days ago) I wrote an item about my side effects of prednisone. I think I failed to give my e-mail address which is ******. I wrote regarding rying to get off and about the burning I have around my rib cage and breasts. I guess I will have to try and rewrite it. Sorry about this. Barb ***