Education symptoms and conditions

I have been on this for 6 days for a UTI. I personally am not allergic to sulfa drugs and have had absolutely no problem while on it so I can't speak to specific side effects but I do have something to say about it. I'm a little confused as to why so many of you believe that this drug should be taken off the market. Surprise, a lot of people are allergic to sulfa drugs which accounts for the vast majority of adverse events described by nearly everyone on this post. And guess what, every single drug comes with side effects (Tylenol, Advil, Tums, etc. are no exception) and you accept the risk of those side effects when you put it in your body and weigh that risk against the possible benefits. It's not your doctor's or the drug company's fault you're allergic! Antibiotics, including this one, have saved millions upon millions of lives. It seems intuitive but it evidently must be said: if you're allergic to it STOP TAKING IT and call your doctor so he can prescribe a different antibiotic. Seriously people, it's not rocket science. Hives are a pretty straight- forward symptom of an allergy and one that can be diagnosed by the lay person. I am a medical professional, but even if I wasn't, you don't need an MD behind your name to figure that one out. Why would you continue to take it after having an obvious reaction? (a reaction that, by the way, is a well documented, clearly stated possible side effect of this particular medication if you'd taken the time to ask any questions whatsoever regarding your own health, not a surprise adverse event of a bad drug) It's not rocket science, it's common sense people. When I'm prescribed something I'm not familiar with, my first question is, "What do I need to know about this." Even after a satisfactory explanation, I look it up before taking it. In fact, that's how I found this post. Which brings me to my last point, why is it that people blindly put things into their bodies that they know nothing about. If the pharmacist doesn't explain drug information to you in person, that's what the little drug safety pamphlet attached to your Rx is for. Read it, that's why it's there. OR, there's always the option of using this wonderful resource called the internet. Use your brains for god sake and take a more active, responsible, and informed role in your own healthcare process. You are ultimately responsible for your own health, and to be completely honest, you're one of the only people who actually cares about it (guess what, your doctor probably isn't one of them because he has a hundred other pain in the ass patients with no common sense to keep track of). Think people...

My 11 year old son started singular in March of 2009 for exercise induced asthma. Within weeks he started having symptoms of heartburn - which he had never had before. I brought him back into the dr. mid June- they said wasn't related to singulair and actually increased his does from 5 mg to 10 mg. Since increasing his does, he started experiencing, daily headaches, stomach pain, leg cramps, night sweats w/ shaking & overall FEAR. Last night he was in tears - he kept saying there is something seriously wrong with me - I can't stand feeling this way he was afraid he was going to die and didn't want to go to sleep.

Last night I did my own research and found this board. THANK GOD!
He didn't take his singulair last night & he never will again.

I called his dr. this morning to tell them I think he is having negative side effects from singulair. They actually told he it was "HIGHLY UNLIKELY" his symptoms were related to singulair and NOT TO STOP USING IT. They instead said I should start giving him pepcid. I told them he had stopped it - for good and that we need a plan B for is exercise induced asthma. Looks like my plan B is finding a new Dr. that isn't in bed with Merck.

Has anyone had any experience with a NATURAL approch to controlling exercise induced asthma?

An update to my husband's experience after taking Lipitor 10 mgm/day for 4 yrs. He developed Parkinson's disease and stopped taking Lipitor at that time--summer 04. He is taking anti Parkinson's drugs as well as many vitamins and suplements in an attempt to correct some of the damage done by Lipitor. He is fairly stable. My niece's husband who was diagnosed with Parkinson's at the same time as my husband and had been taking Lipitor also, continued on Lipitor for another 1 1/2 yrs. He had a progressive neurodegenerative disease course and died 2 yrs ago. 3 other individuals with whom I am acquainted who have been diagnosed with neurodegenerative diseases have not stopped their Lipitor--one individual's diagnosis has progressed from Parkinson's to Parkinson's with Lewy Body dementia to Multiple Systems Atrophy. this is the same progression my niece's husband experienced. The other 2 individuals are currently diagnosed with Parkinson's disease.
Husband started taking 1200 mgm of coenzyme Q10/day upon diagnosis of Parkinosn's. This amt has been shown to be beneficial to those with early stage Parkinson's--irregardless of their statin status. Seem all parkinson's patients have abnormally low levels of CoQ10 in their blood--and statins DEPLETE CoQ10. What a set up!!!!!

I am a 44 year old female with diabetes. I have high blood pressure and as a precaution was prescribed simvastian(zocor). I have only been on it for about 3 weeks...I have been feeling tired and very moody lately...but yesterday I woke up with my right leg swollen from the calf down my foot with severe burning pain and numbness. Now I have experienced Neuropathy in my left foot for years and somehow thought maybe this pain and numbness and swelling had to do with that...until this morning when I woke up to a severe pain in my right calf ( I immediately thought blood clot).. well I have a doctor's appt tomorrow to see what this is....right now Im sitting at work in so much pain and discomfort I want to cry...my feet are burning, my right leg and right shoulder are in burning pain...and my hands are numb and burning and in pain. I have to sit for hours at a time and cant just take a break when I need too...Ive only been taking this medication for 3 weeks and can not believe that all this pain and burning is from one little pill. Has anyone else had severe swelling from this medicine. Any other diabetics taking this medicine and having the same side effects? Im certain they are going to want me to stay on this medication and at this point after reading all these wonderful post, Im going to stop...Im even having difficulty in typing this post my hands hurt so bad. Im so angry that when I asked my Doctor about side effects he never mentioned these. he told me about being nauseated, constipated and so one...Ohh and I have also gained about 10 pounds in 3 weeks without changing my eating habits...anyone else have that? Thank you for letting me vent here. I was scared to death until I found this site. I was seriously considering leaving work and going to the ER room...Now Im just going to stop taking it and waiting this out till tomorrow....

I had a Mirena inserted October 2007. I had it removed in October 2008. I am SO GLAD I had it taken out!!!! When the device was in my body, I had instant weight gain. 5 pounds the first two weeks. Put on a total of 10 in about 3 months. I was working out liek a fiend!! I even did two a day cardio sessions for a month and did the Special K diet with it. Couldn't lose a pound. It was awful.

I had horrible acne. Not just on my face. On my scalp, my back, really gross on my neck. I even had occasional zits on my legs. AND I have DRY skin.

I had no sex drive. And just felt generally in a funk and had frequent headaches. I still had weird sludgy periods at irregular intervals. It just wasn't right. It was a grey mucky color. It was thick. I had never had a single yeast infection in my life until Mirena. I can't tell you how awful this thing is.

Since having it removed a little over a month ago, things have gone back to normal. My face cleared up in a week. I just feel better. I lost about 2 lbs. of water weight the first week. I have since lost another 3 that just slipped off (I cardio about 30 min. 5 times a week and lift weights 3 times a week, but that's not new. It is my routine with or without Mirena.). My husband even commented the other day how much healthier I looked.

DO NOT PUT THIS THING IN YOUR BODY!! My new GYN said to me, "If I won't do it to my wife, my mother & my sister, I won't do it to my clients." He doesn't recommend Mirena and won't use it except in very rare cases. He said if you have one you're unlikely to have your pap come back normal as long as it is in because of the strings. Really, don't listen to the sales pitch. These devices are high profit items for the Doctor's so that's why we women are getting the big sales pitch on them. Don't fall for it!!!

I was encourage when i read the post of the lady a few posts down,who picked up her prescription and it was covered in stickers telling her of post market side effects,a long time coming yes ,but it is happening none the less.Several articles on merck have noted flat Singulair sales,due to safety concerns,the word is getting out slowly but surely.I know we have been frustrated with how slow it is all happening,but it is happening.One of our hospitals here in cleveland now will list a doctors affiliation with a pharma company,important news for us that know what the implications of that could mean.We have had an education in the medical system,which quite frankly i found shocking,i don't think any of us will every fill a prescription again with out research,we have learned ,we are not the same,we must continue to change a system that is broken ,the dollar must be secondary to the health of all of us.I again urge all that still have issues to file a report with the fda,Keep on fighting

This is an update. I have experienced "some" problems trying to get Doctors to believe that my muscle problems are Lipitor related. I was sent this by a nurse. It is not the full page.

"2005 Mosby's Nursing Drug Reference (pg.155)

atorvastatin
Lipitor

Uses: As an adjunct in primary hypercholesterolemia

Interactiions:
*Risk of possible rhabdomyolysis; azole antifungaals,
cycloSPORINE, erythromycin, niacin, gemfibrozil, clofibrate".

Guess what? I have been using an azole antifungal intermittently for the entire time I was on Lipitor. It is not a medication I "take". It is used topically for a fungal nail which refuses to clear up. You may have been using it for athletes foot.
Now one pharmacist says a topical application cannot cause this interaction and another pharmacist says it is almost certain that the azole antifungal gets into the blood stream and will interact with the Lipitor. I have to laugh.
Next week I start Physical Therapy on my left elbow.

hi I had my mirena put in a year ago. . . needless to say i had really bad depression.. I pulled it out my self once I started to hear thing and started hurting myself. I started to fill better once removed. My doctor told me it was not the IUD causing my depression, so I had it put back in. The day after I started to feel irritated about everything. I didn't even last a month. . i became so depressed I tied a phone cord around my neck and tried to hang myself in the shower, if it didn't break I wouldn't be hear to tell you this. . .
I pulled the IUD out myself and didn't go back to the doctor I am never taking birth control again. Looking back I blame birth control for all my depression I took the depo. . I was in and out the hospital on suicide temps, on the pill all I did was cry. Women if you have a problem with depression and you are some type of birth control. . .think about it!!

I am in a loving relationship, yeah we are not ready for a baby right now we both are in collage but I could loss him and my education over some stupid birth control. We decided to avoid having sex when I am fertile - yes its a lot of work - but I feel so much better not being on hormones. . .and if I do end up getting pregnant. . .well. . .we will be having a baby. . than snip. . snip!!

Good luck women.

I have extreme thumb spasms, often both thumbs at the same time. i had an episode a few weeks ago of a severe pain in my hip running down my leg. I was in bed all weekend as a result and needed a cortisone shot to help relieve the pain. I forgot a name right after they tell me and I am only 50 years old. I lose my balance and sometimes almost fall and have vertigo every now and then. I wonder if all these symptoms are from lipitor. I have been on it for at least 3 years.

Today is 4years exactly that Matt had his one and only asthma episode,that sent us done the road of singulair disaster,7 months of the drug now thanks to Kate who went public with her story.Each new day brings more hope for a full recovery,although the road is long and strewn with guilt and anger.First i was angry with my doctor,then Merck now the FDA,but the guilt always stayed with me.Ive spent hours on wouldas couldas and shouldas but none the less it is what it is.I have had an education in things i really didn't want to know,the medical system,the justice system,and our government.I have written hundreds of letters reported 3 times to the FDA,never a response other than your email was received,called and reported to Merck twice,they were always ready and willing to take my info,so today i wrote to the FBI asking if they could investigate corruption at the FDA,proberly they will laugh and trow it out,or maybe even put me on a list of some kind,but i will leave no stone unturned until some one explains to me how this happened in America

Hey to All.
I know that the ALA study got everyone upset and I am happy we all emailed her.We all pretty much got the same response from Heather,defending the study and the integrity of the results.If only this investigation would conclude!
The Merck company contacted our Senator and indicated there was a conclusion and then ,they never got back to her before the weekend.I will have news early in the week.Please everyone just keep on voicing your concerns by reaching out any way you can.Sometimes it seems unbearable and I have to take a break with the communications on this website but,I continue my communication with my local contacts and the FDA.
I would love quick results and everyone would love this to get the publicity this story deserves but,if you look at how far we have come getting attention focused on this drug it is amazing.
This website has been here for years and people have complained and nothing has been accomplished until now.Our system is so broken it will take time to fix it.Drugs get approved everyday and when they are put out for multi use,the population benefit -risk ratio changes and there is little oversight on this matter.
The problem is much bigger than just notification of updated side effects,which indeed is why our son died from this drug.It is reporting adverse events to the FDA and the drug company and following up on your report.We can only fight within the system of the government that is in place at the moment and push for change to take place in there programs.
This is what has take place as of this year,The FDA's new 'Safe Use "iniative(which when it gets further developed will increase our partnerships with physicians as well as patients) and the July 2008 AAM report" Education in Safe and Effective Prescribing Practices" which aims to address the education of the next generation of physicians on how to best use medicines.This may help in notification practices and over prescribing but, we want the drug companies to lose the unprecedented control over the clinical research and and evaluation of there own drugs.What other company in the USA, gets to self regulate.Change will come ,we have asked for accountability by having a signature exchange when new and updated side effects are found.Full disclosure of all reported adverse events to doctors from the company representatives,with signature required upon full understanding of the benefit -risk ratio change. A prescriber should know all the good and the bad about a medicine they have chosen to dispense,if not then they should not be able to dispense it.If we were not knowledgeable about selling mushrooms and we sold the poisonous ones ,because we did not take the time it would take to educate ourselves about them,would we not be legally responsible for our actions.
Accountability is what we are asking for and maybe the candyland doctor prescribing practices would stop.They seem to ,not have a responsibility to their patients and the company has no responsibility to the prescribers,so who is responsible for our safety?
I will keep fighting for real change and all you people must do the same ,make an appointment with your representatives and have them contact our Congress representative of NY,maybe with enough onboard we can get the legislation we need to put a law in place for proper notification practices.Kirsten E. Gillibrand Member of the US House of Representatives 120 Cannon House Office Builing Washington, D.C. 20515
This is how change is made ,if you want to help please go forward and do this and don't stop until they listen.I am always willing to do whatever I can,it is physically exhausting and sometimes I just have to step away but, my daily review of this site has not stopped and my fight will continue.Dave and I sit here and our hearts just break for all but, we need people to push their Representatives they do work for the people just remind them of that.Any one with questions or that wants to communicate via private email just ask for my email address or phone number or leave me yours and a time and I will be sure to contact you,Kate M.

I am a 36 year old African American Female. I have been on Toprol for 4 years. I take 25mg a day. At one point a dr. recommended I take 50mg a day. That was horrible. All of my side effects were worse. I decided to break the pills and stay at 25mg. The lower dosage is better. At 36, I look like I am in my early 20's! Most people guess my age at about 24. I don't feel like it at all. I am always tired, I don't have orgasms ( which is bad when you have boyfriends in their early 20's all the time) and I have anxiety and depression. I love to have fun but toprol keeps me depressed, uninterested and I cry for no reason at all. I just feel severely sad for no reason at all and cry. It is horrible. I was prescribed toprol for rapid heartbeat and mildly high bp. That it works for, but the side effects are gruesome! I tried another med for a month and I thought my heart was gonna jump out of my chest. I have 2 sons: 10 and 16, I can't be depressed and crazy all the time. I am very attractive and I want to enjoy life now that my kids are older. I'm getting off toprol!

I took my son off Singular a month ago, some slight improvements with the sleep and behavior problems. I voiced my concerns with my doctor twice now he looks at me like Im crazy and then he goes on the PC and says he cant find any of these side affects im talking about. My son was an appointment to see an allergist specialist.

Im 21 and this is the 2nd time ive had DVT-
4 years ago when i was 17 i had 3 extensive clots in my right calf, thigh and abdomen. I was put on warfarin for 6 months.
Last month I had the same pain and swelling in my right abdomen and leg and was again diagnosed with 3 more clots. now im on warfarin for life.
I am tired and weak all the time, aching and sore, itchy, hot&cold, bloating-stomach cramps and diarrhea most days, i am getting NO sleep as well as having depression.
And no doctor seems to want to listen. Its ruined my social life and education as Im too ill to walk etc. Im also an insulin dependant diabetic.

I have come to the conclusion that our pediatricians, allergists and various other doctors, have been brainwashed by the drug reps,possibly even bribed. My friend took her son off of Singulair almost a month ago when I told her about all of this. He already suffers from a learning disability, but she feels that his ability has improved along with his disposition and complaints of various aches and pains. She took him for his usual appointment at his allergist and told him what she had done and why and he literally YELLED at her, calling her a fool and demanded that she put him back on it. She stood her ground and refused and now is under the impression that her son will be dismissed as a patient from that practice. That won't be a problem. From what I read and what I hear, a lot of doctors are dismissing the whole deal. They can't be bothered with finding out for themselves, what the truth really is. No, they might miss out on the "perks" from the drug reps, like free samples of the deadly drug, or free pens, or a chance at a vacation in the Bahamas, and the list goes on. The drug reps are a hazard. They lack education on the drugs that they are "dealing", and if they HAVE been educated and are still promoting it,
they are no better than the crack dealers in the alley.

I have just tried Advair, and after 4 days, joints all over my body started to ache. My eyes hurt alot and my vision got blurry. Lastly, I just have a general feeling of unease. I quit the advair and was much better within 3 more days.
All pain is gone and eyes feel normal again, although my eye sight seems diminished. I took no other drugs and felt fine before taking the Advair.

I am 44 and suffer from mild copd. I can get by with Albuteral, and will do
so from now on. I know that one is safe.

Good luck to all.

I have read many posts about Adderall XR side effects, and wondered if anyone has found another medicine that works better for them. My 12 year old daughter is taking 20mg/day of Adderall XR. It definitely helps her tremendously in focusing at school, but the side effects are just too much. (she has huge mood swings, verbal tics, compulsive hair plucking, etc.) We need an alternative ASAP. If you have something else that you recommend, please let me know. Thanks!

My 6 year old son has been on Singulair for 2 years and I have noticed a big change in his behavior but it all started with leg cramps and falling down alot..I told my dr about what was going on but she told me that it was nothing to worry about that it is growing pains..Before he started the on the singulair he was always a happy go lucky kid never had problems with him back talking or ever really getting angry. Now that I read all these reports these are the problems I have with him now:
My child has never offered to hit, kick or slap me but in the past year he has gotten more aggressive not only toward me but others as well..
He is fearful of people now thinking that they are being mean to him or picking him out to pick on or make fun of.
He has problems of headaches on a regular basis but just thought it was due to his sinus infections...
I have also noticed that my child has started hurting himself like punching even slapping himself in the face when he gets really angery or fustrated about things..
Sometimes he has problems with nightmares but not that much..
He also has problems with stomach pain as well...
My concern is taking my son off Singulair with his asthma being under control right now and he just recently had sinus surgery but I think it will be the best thing for him just because I want my sweet child back not the aggressive and abusive child he is now.... That is why first thing in the morning he will be taking him to his dr to find another medication to put him on and take him off the Singulair....

I have previously posted; my 17 year old son, A.J., committed suicide in October of 2007. I have filled out two FDA reports, written to Dateline and I will write to every that I can. I'm not getting an attorney. I don't want anything. If it would bring my son back, then yes, I'd put up a fight. I'm interested in providing medical statistics to Merck and the FDA. I'm interested in education and truth. I believe Singulair is a dangerous drug, no doubt about it. But I beg all of you, gather medical records and provide them to the proper entities. Be interested in education and statistics. Not money. It won't bring back the lost years when your child was miserable and bouncing off walls. If you've taken your child off of the drug, you have most likely solved the problem. Thank-you. Kate Kendle

All this new information has me wondering. My 16 year old son has been on Singulair now fro approx. 9 years . He started having some problems in school like worrying about everything and being afraid. When he turned 12 we seen a big change he refused to go to school he would cry and hang on the sofa arm , his father would have to to remove his fingers and carry him to the school bus. No counselors could tell us what was wrong. The school provided a tutor one on one that seemed to work but he would not steo foot in a school or socialize with kids. He is now 16 and I home school him he still at times will show some signs of anxiety but he is happy at home with family. He is also tired a lot and has trouble concentrating for long periods of time . I wonder if this drug has done this to my child and taken away the education he could of had. I will be calling his Ped. on MONDAY.

Amber here again - It's been nearly 2 weeks since I've had my Mirena removed. I have stopped sweating as of about 3 days ago. I can even go on an extremely rigorous mt. bike ride, get home and still smell like deodorant. This is unheard of (since Sept 2006). My stomach feels like a deflated balloon. I still weigh more than normal but it's coming off without hardly any effort. Slowly, but surely. I've even been eating Easter candy. Its unreal. Just now I was feeling my back, just in passing kind of massaging my neck and I noticed how unbelievably smooth my back is. No bumps or blackheads, just silky smooth... unreal.
I am so freaking pissed at the medical community I could SPIT. I am documenting all of my symptoms to report to the government website for drug side effects. I can't BELIEVE my doctor (both of them) told me I was nuts for thinking this was all due to Mirena. OH MY GOD I guess it's all just a COINCIDENCE. Give me a break.
I don't trust MD's any farther than I can throw them anymore. I know they have a huge education but they sure are f-ing retarded.

I am still on my anti depressants due to weaning problems so I can't report on the f-cked up mood swings yet... but soon.. I will be back!

My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona

I took Levaquin 500 mg for 6 days. After about 3 days my left ankle, knee, and the back side of my left thigh became so sore I had difficulty walking. I was extremely tired and slept later than I normally do, which is rare for me. This morning, in bed, my left thigh became so hot it felt like it was wrapped in a heating pad with the temperature turned up extremely high. Later, while getting a shower, I noticed the back of my left thigh had a "hivey" type of red rash on it. I did an internet search and found this page. I'm very concerned because in September 2007 I had a triple heart bypass. I threw the remainder of the Levaquin down the toilet. NEVER AGAIN....

hey picapeach, you first off need to grow up, 17 years old and you think you have all the answers. I think you should be spending your time in a book learning how to spell than to be making nasty remarks to people. First off I am 31 that is not old, and what is your issue with fat people. Some poeple are just not meant to be a size 4 sweety. I am not fat but I dealt with an eating disorder for years. If it makes you happy to put others down than you need more help than you could ever imagine, spend your energy in a book and get an education your are ignorent.

O an by the way woman who thinks im insensitive, how da ya feel now?.... ya thats what i thought,,,you rellly shouldnt talk when u dont know. i learned that when i was 4, i guess ur just a lil slow