October 31th
2009
12:07 PM
I have been taking 20mg Lisinopril for six days for 140/100 BP reduction. Muscle cramps, muscle pain, dizziness, ringing in the ears (which I already had, but this medication has made it MUCH worse),some heart palpitations...generally scary and, on balance, I am going to find some other solution. Frankly, this is like taking a slow acting poison.
-- By michaeltheprofessor | Reply | (4) replies | Private Message me
September 9th
2009
11:14 PM
My daughter is now 20 years old. she received her 1st gardasil shot in 3/08 and the second in 8/08. She didn't get the last one and will not be getting it. From the day she got the first shot we should have known something. She nearly fainted immediately after both shots and complained of weakness and flu like symptoms. Started feeling poorly in the days and weeks to come. It was the end of her senior year the doctor tested her for mono. and it was negative but she had an extremely heavy schedule at high school. He chalked it up to the stress of that. Between the two shots she started having numbness and pains in her hands,elbows and arms. She continued to feel poorly and terribly irritable in the upcoming months. We saw a orthopedic doctor for her pains in her arms. He referred us to a neurologist. She was beginning her first year of pharmacy school and we put off the neurologist because she didn't have much time until spring break. During her 1st year of school after her 2nd shot. Her personality changed completely. Became insecure, moody, very anxious , constantly complaining of flu symptoms, bladder infections and had a hard time urinating. When my daughter returned home from her first year away at college I knew immediately that she had changed. She had been a very bright, intelligent, independent daughter and came home the daughter from hell. I couldn't believe what I was seeing. She was miserable, disliked pretty much everything. I had been talking with the doctor and friends over the course of the year and they all said that she was in a very stressful field (pharmacy) and college life takes some time to adjust. Then just a few weeks home from college she was complaining of dizziness, light headedness, headaches and saying she was having an episode. I thought maybe low blood sugars.....until I witnessed one. She was having Myoclonic seizures. She could feel them coming on but couldn't move or react. By the time I witness one of them she hadn't slept in 3 days. She was diagnosed within a week seeing a neurologist and having 50 to 60 a day. It took 4-5 weeks to get them under control in and out of the hospital . She has been on many seizure medicines it seemed like if it worked to stop the seizures she had crazy side effects. She was diagnosed with Juvenile myoclonic epilepsy. No one in our family has ever had seizures. I asked about the shot right away everyone said no and it was dropped. Since last July 08 we have been trying to help our daughter get her life back and it has been the worst year of our lives. She was unable to return to pharmacy school. The first fall 08 she was completely disabled. It looked as if she had had a stroke. They were saying it was the meds or maybe she had a breakdown of some kind. I am learning that it was side effects of this horrible shot. This is why I am posting this lengthy message because I wanted to let other people know that you and your daughter are not crazy!! We just started 2 weeks ago investigating the possibility of the gardisil shot being the reason for this madness. We have learned many things and are very sure that it was the shot that change our daughter.. I was contacted by a friend of a friend about a similar girl having the same pains in her arms and the focal seizures. I am learning more and more everyday about similar situations.. If this information can help one person it was well worth the time to jot it down. I will be praying for all of your families out there dealing with side effects from this vaccination.. I will let you know what we hear when we visit the neurologist at the end of the month. Any comments or information that may help us help our daughter can be sent to ******
-- By tdrich | Reply | (3) replies | Private Message me
September 8th
2009
1:08 PM
I took Cipro for 3 days back in March 2009. After 24 hrs, I was completely disoriented, had HUGE blisters appear on my feet (they are scars now) and lost my memory. Thank God my husband realized something was very wrong and took me to my Dr (the ER had prescribed the meds) He took me off of it, and my symptoms got better.
Since then, I have had pervasive short term memory loss, loss of vision (periods of blindness), and extreme exhaustion, joint pain, and body aches. My doctor is getting ready to send me for an MRI and EEG- this is after full body X-rays and huge amounts of bloodwork.
My life is not what it used to be. I have 3 small children, and I am terrified to be alone with them for fear of forgetting something crucial. My grades have suffered, and I can barely function.
-- By rxy1981 | Reply | (1) replies | Private Message me
August 7th
2009
9:03 AM
My son has been taking Keppra since his first seizure last year when he was 18, starting out with 500g. He kept having the seizures (all grand mal) off and on and because he was planning on going into the military, he was told that because of the seizure disorder, he could not serve. Given a medical discharge and coming home, he still had them, but the cause was because at times he forgot to take his meds or he worked out over exerting himself, stuff like that. From the end of April until July 6th, he did not have a seizure (his Keppra was increased to 3000g a day), and that seizure was not as bad as the previous ones he had.
We ended up switching doctors because the original doc did not want to do an eeg on my son, so with my husband and my decision plus our primary care physician agreeing, we starting having my son see a new doc. This doc seems to really care about his patients, and after talking with us, he gave my son a prescription for Depakote, 500mg three times a day along with the Keppra. A day and a half after taking the drug (the first day he took it at night then taking it as prescribed daily), he started vomiting. He would eat, later on lay down, wake up EXTREMELY nauseous, and start throwing up. This happened for four and a half days, and the doctor told him to stop taking the meds immediately. He did blood work again and said that his Depakote serum levels had dropped drastically and he wanted to put my son back on the Depakote, but at half strength; 250mg three times a day. Our answer to that? HELL NO!!! My son was miserable; he has a job and hangs out with his friends and not being sure if he would start throwing up again, he minimized going out except to go to work. It is frustrating as all HELL, took that crap for six days and four and a half of those days he was vomiting, unsteady on his feet, eyes were red looking like he was a zombie, and had starting messing with his memory in ONLY SIX DAYS! Yes we all want him to be free from this demon, and so far for these past few months of this year, (from end of April to July 6) he has had one seizure. He has not had another one since that day. As far as we are concerned as his parents, he will never take that crap again, I don't care WHAT this doctor says. And I am going to say that I believe that my son will not want to take it again either, even at a lower dose.
I took the time to call the company who manufactures the Depakote, and one of the reps I spoke to said that even if my son took a lower dose, it could still have the effects of vomiting as with the higher dose, and her concern is that when he is throwing up, he is also throwing up the Keppra which could cause him to have a seizure. NOBODY wants that!
-- By sapphire3578 | Reply | Private Message me
July 20th
2009
1:46 PM
My daughter has been in Hospital due to a side effect from using Nuvaring birth control. She started using this BC on July 13, 2009 and by Wednesday evening she was put in hospital because DR. thought she was having a seizure. My daughter discontinued the nuvering do to a conversation I had with her on Friday morning. Doctor's. say it takes 72 hours to get bc out of system. Now it is Monday 72 hrs later and daughter is better. She may not get out of hospital for a couple more days byt ladies what it. The drs. had to run all kinds of test before figuring out it was the birth control. This is very scary because at first her systems reflected a stroke and then seizures and then drs. did eeg testing over last weekend and discovered not seizures. Any one else have this problem?
-- By breeder | Reply | Private Message me
May 8th
2009
11:57 AM
I had mine taken out today for all of the same reasons. I've also had horrible headaches daily for at least two months. My headaches, nausea and depression have started getting worse every week. Fortunately, I only had Mirena three months before now when I started putting things together. I've never had a problem with birth control pills and I've taken all of them. I used to get heavy and long periods- it took a while to find one to regulate my period. I love, love, love my OB. He told me the same thing today he told me when I got Mirena- that it has less side effects than any birth control pills because the amount of hormones released is lower. Nonetheless, he did agree that it should come out to see if it has been the cause of all of my misery.
I hate to think about the women out there with Mirena who are feeling tired, sick, and depressed and don't know why. Honestly, I don't know how I put it together for myself because I thought, IUD- NO SIDE-EFFECTS, it's just a device right, thrown in with a tiny bit of hormones, but at first I thought maybe I wasn't taking good enough care of myself and that was why I felt so bad all the time. Then the headaches . . . I thought that was sinuses . . . had a CT scan, came back okay . . . thought it was migraines . . . went to the neurologist, had an eeg, treated for migraines . . . still having headaches with nausea.
I almost didn't realize how depressed I was until my husband said something to me. He told me, "you've been depressed for three months now". Eureka!! I got Mirena three months ago. Plus, I am always under the treatment of a psychiatrist who monitors my medicine and am currently taking high dosages of prozac and wellbutrin. I've always had depression/anxiety problems and actually had to continue taking my meds while pregnant, just at half dosage. I had NO problems with post-partum depression (which was very much planned between my psychiatrist and medications). If I were to have problems arise with depression I certainly think it would have been closer to post-partum. I really don't think that my meds just quit working either. I realized that nothing gets me excited. I exert all of my energy into being a decent human being by going to work, taking care of my child, and trying to keep a somewhat-neat house. There is never time, energy, or desire for anything else.
I'm anxious to see how the next couple of weeks go . . . keep posting your progress and I will do the same. I certainly hope my symptoms start to subside . . . if not, I'm in trouble because I know that something is wrong with my body!!
Also, a Naturopathic Doctor told me to take Evening Primrose and it should aid in getting my hormones back to a natural level more quickly.
-- By sydneynewsom | Reply | Private Message me
May 7th
2009
10:59 AM
After 2 years and 7 months, I had my Mirena removed on 5/4. I had it inserted 3 months after the birth of my first child in 2006. At the time, it seemed like my best option due to problems I’d had with the Pill. I was on the Pill for 6 years, the first year or 2 weren’t too bad, but things gradually got worse. Because it was so gradual, it took me years to realize the cause of my problems. My blood pressure slowly got higher, my heart would often race, and I had anxiety and mini-panic attacks to the point where I never wanted to go anywhere. (My heart rate got up to 160 while waiting for the Dr during an appointment and my blood pressure was up to ~145/99) I also started getting migraines that got more and more frequent. I had an EKG and stress test and everything came back normal. I stopped taking the Pill and within a couple months felt a million times better and my BP went back to normal. I had no idea how much it had affected me and it still makes me sick to think of the years I lost because I felt so awful. I didn’t take anything for 6 months before we started trying to get pregnant and they were the best months in a very long time.
After I got Mirena, I thought it was great. I bled for about 2 months, then never really had periods after that (just some occasionally spotting). Three months after it was inserted, I lost the final 10 pounds of baby weight just by dieting. If I was emotional or moody during the first year, I just thought it was my hormones after having a baby. Slowly over time, I began to get more and more irritable. Everything and anything would enrage me. Rage is the best word for it. It would take a split second for me to fly off the handle. Everything irritated me, particularly anything my husband did. The more it happened, the worse it got and I began to worry if I would eventually lose control completely. Meanwhile, I slowly lost my desire to do anything. I’ve never been a big housekeeper, but our house has become a wreck and I have to force myself to get things down when people are coming over. If it weren’t for family coming to visit frequently, we’d really be living in a mess. I just never feel like doing anything and I’ve lost my passion for everything.
I’ve always had bad skin and have taken everything made for acne, including Accutane. My skin was the best it’s ever been the weeks after my son was born. Over the past 2.5 years, it gotten worse and now it’s as bad as it’s ever been. As my 30th birthday approached, I began to wonder if I’d have zits when I’m 70, then began wondering if the IUD might be causing it.
Also in the past year, I have begun to struggle with my weight. It had slowly started to creep up even though my diet hadn’t really changed. The past 6 months have been the worst. I constantly have a desire to eat and crave anything sugary which I’m sure has contributed to my weight gain. I’ve tried dieting and exercising more than ever before and couldn’t lose anything. Then I gained 10 pounds in 2 weeks. If I diet and workout, my weight stays the same – if I eat normally, I gain weight, just as many others here have mentioned. I’d say 80-90% of my excess weight is on my stomach and I’ve been asked twice in the last 6 months by strangers about being pregnant. I now weigh what I did when I was 7-8 months pregnant (25lbs over my pre-preg weight) and I look 6-7 months preg.
All of these issues have gradually gotten worse over time, but significantly so in the past 6 months. My fits of rage began to scare me and I would feel like my head and/or chest were going to explode when I would yell. I started to realize from my previous experience with the Pill that my blood pressure was going up again. I had also begun to get migraines again which I hadn’t had since the Pill. Then I began to feel like I was living in a depression medicine commercial. I’ve never dealt with depression before even when my husband was gone for months at a time in the Navy. Yet all the sudden I felt like I could check off all the symptoms for depression. I started having irrational and scary thoughts that I had no control over and they would go as quickly as they came. I began to get frightened because I felt like I had no control over myself, my thoughts, or my emotions. For whatever reason, I decided to look up Mirena and depression and couldn’t believe what I found - pages and pages of people describing exactly how I felt with all the same symptoms. I had been contemplating it anyway, but I decided then that I was going to get it removed. I went to the doctor and my blood pressure was higher than I expected. She gave me BP meds and offered me meds for everything else. I got the impression that she probably thought I was blaming too much on the Mirena. I would have agreed if not for my experiences on the Pill. She had never removed one, so she referred me to an OB/GYN. They couldn’t see me for over a month and there was no way I could wait that long because I knew it would take a while for my body to get back to normal. Amazingly, I found someone who got me in 4 days later. I was so excited! As everyone says, it’s a lot easier coming out than going in – just a pinch that lasts a second. So far, I haven’t noticed a huge difference (it’s been about 3 days). I felt less bloated the second day, but it seems to have come back a little yesterday. I have been very thirsty since the evening after I got it removed and have been peeing as much as I did when I was pregnant. I slowly feel like my desire to constantly eat is going away and I am not craving sugar as much.
I also wanted to mention, I started the blood pressure meds the day after I got them. I will say that it has helped my irritability a little and I no longer feel like I’m going to explode when I get angry. Now that the IUD is gone, I’m sure it will go back to normal on its own in month or 2. It’s frustrating because I got Mirena because of my BP problems on the pill. I was under the impression that there wouldn’t be any side effects and now I’m back to where I was when I stopped the Pill. I lost several good years with my husband because of the Pill and now I’ve lost almost 3 more and the first 3 years of my son’s life because of this stupid IUD. If it weren’t for our son, I don’t know that our marriage would have survived the last 3 years. I just pray that I will get back to being me and will be able to be the mother that my son deserves.
A few other side effects I’ve noticed after reading all these posts that may also be related are greasy hair and skin, hair loss, facial hair, memory loss/lack of concentration, and the strange odors and various infections that others have mentioned. I used to not be able to wrap my fingers around my ponytail. Now I can almost wrap them around twice. Like most of the other side effects, I blamed it on aging, stress, etc. I’m interested to see if it starts coming back now.
I know this is a really long post, but I wanted to include as much info as possible in case it might help someone else. I probably would have gotten it out sooner, but I didn’t think there were any side effects. For now, I am not going to take anything. I want to know whether the side effects go away and not have to worry if something is caused by a new birth control. I may try something else in 6 months or so, but we’ll see. My husband doesn’t want me to take anything ever again, but I really don’t want to get pregnant. I don’t think I want any more kids, but I’m only 30 and not ready to do anything permanent yet. My new OB/GYN mentioned Implantation, which uses a different hormone, but I don’t have much faith that it won’t have the same effects. I will probably just try different pills and keep an eye on my blood pressure. I plan to post updates when I can to let you know if things get better. I hope that my story helps someone else.
-- By khall10 | Reply | (2) replies | Private Message me
April 27th
2009
4:07 PM
First of all, a big thanks to all of you who have shared your experiences. I am a biochemist, with a background in pharmaceutical research...I chose the Mirena IUD after careful consideration of it's active ingredient, Levonorgestrel. The side effect profile seemed pretty acceptable...until I started to experience nearly ALL of them...I am 33 years old and had the Mirena IUD placed in October of 2008 after the birth of my second child in June of 2008. The initial reaction was to be expected...cramping, a little spotting etc...nothing to be alarmed about. I still have yet to have a period (which I really don't miss so no problem there) I never gave a second thought to this until now...for the past month or so (coinciding with the weening process, since I have been nursing the entire time, I believe the side effects were not as noticeable) I have been experiencing the following (that may or may not be related to Mirena as my OBGYN has so adamantly pointed out, but after reviewing your posts I'm willing to bet they're connected) and are in order of occurrence: Major, but temporary, hair loss after 2 months or so; Major respiratory infection lingering over a month with difficulty breathing, tightness and pain in the chest at around 6 mos; And in the past month, several instances of motion-like sickness/ nausea, dizziness, blurred vision, major impatience/ mood swings, loss of appetite (pregnancy-like symptoms...yep, I was thinking man I'd be pretty pissed if I was that 0.01% pregnant statistic), and as of this past weekend, my first aurora migraine with tunnel vision and serious nausea and vomiting, to the point where I went to Urgent Care...who referred me to the ER...who wants to perform a battery of tests including a head CT. I have an appointment with a trusted GP tomorrow to discuss possible root causes...but it is to coincidental that so many women are experiencing these same symptoms! I am certainly leaning towards having this removed. CAN THOSE OF YOU WHO HAVE HAD THIS REMOVED PLEASE RESPOND IF YOUR SYMPTOMS SIGNIFICANTLY IMPROVED OR WERE RESOLVED!!! THANK YOU!
These side effects seem to go well beyond a 5% rate of incidence according to all of you who have reported. I will investigate further and keep everyone posted. As someone who is highly experienced in the pharmaceutical industry, you bet your a$$ I'm going to get to the bottom of this! Good luck ladies!
March 8th
2009
12:07 PM
My 13yr old niece has always been a healthy, active and straight A student. Then on 11/5/08 during a routine physical, she received her 1st dose of Gardasil. On 11/28/08 she started to complain that she felt weak and had a headache. Since it was 2 days after Thanksgiving we thought that she was tired from all the holiday activities. On 11/29/08 she had a headache and stayed in bed all day. She got up that afternoon & had 2 seizures. She was rushed to the ER.
As of today, March 8, 2009 she is still in the hospital in Intensive Care Unit. She has been in critical condition since. Within 2 days after her seizure, she lost the ability to eat,speak,walk and communicate in anyway. She is completely unresponsive. She is on the ventilator, she is basically in a coma. We do know she has an viral infection with a shadow on the left side of her brain. All of the testing that has been done all show negative for any illness or diseases.
We are still unsure if she will come out of this. This has been completely devastating to our family.
We have no answers from doctors. Even though we know in our hearts that this was a side effects from Gardasil. I don't know if they will ever fully admit it.
We are left to watch and wait. That is what the doctors tell us daily..
February 15th
2009
11:36 AM
I posted a short one, would like to add to it. My daughter was taken by ambulance twice last week to the ER, after having violent seizure like episodes. On second visit, she had several while we were waiting to be seen. She spent 5 days in the hospital, having these episodes as few as 10, as many as 30. lasting any where from 4 minutes to 40. She screams out in pain. It's like her entire back, including arms, legs, hands, feet are having a severe muscle spasm at that same time. If you look up dystonia, the definition fits. Dr. said it was too severe for that diagnosis. They ran EEG, EKG, Cat Scan, MRI, X-ray, extensive blood and urine work, video for 24 hours, with EEG. Everything was normal. DR decided it was stress and anxiety. Released from hospital still having episodes. I called a dystonia specialist in Maryland, she asked if she had the GARDASIL shots. Said it sounded like a side effect she had heard of. Well, after reading all these blogs, youtube, I believe it's the GARDASIL causing her problems. I knew it wasn't stress & anxiety. We are currently detoxing with ionizing foot baths, gluten free diet and meds from Health food store, called HMD-Heavy Metal Detox. I feel we are moving in the right direction. My daughter is a cheerleader, dancer and honor student. She just wants her life back. It has been on hold for 2 weeks now. I consider her one of the lucky girls, after reading many blogs. God Bless each and everyone of you. Sign the petition to stop hurting our girls.
-- By robrich24 | Reply | (1) replies | Private Message me
January 5th
2009
4:56 PM
Hi, I am a 34 year old mother of three. I got my tubes tied in Feb 2003. After that my periods were excruciating. My doc suggessted that I get the Mirena. I had it inserted in May 2007. Everything was going well after that. My periods were lighter and there was no pain. Well, in June 2008 I had a wreck. I was not hurt, but ever since then I have had really bad headaches and ringing in my ears. I thought that it could possibly be a case of whiplash, but I have had an EEG and MRI and neither one of them showed anything. Also, a couple of months ago I went to the emergency room because my back and stomach hurt. I thought I had a kidney stone. The doc said that I probably had a cyst on my ovary and that it would desolve. He gave me something for pain and sent me home. The 16th of December 2008 I started, what I thought was my period for Dec. It ended on that Saturday. Then on the 23rd of Dec I started again. I have been bleeding off and on since then. Also, when my husband and I have sex he can feel the Mirena but he says it doesn't bother him. Afterwards I have some spotting. I can't explain the ringing in the ears but everything else points to the Mirena.
-- By dlang355 | Reply | (1) replies | Private Message me
December 4th
2008
9:21 AM
my 4 year old daughter suddenly went in a coma.she has one change in her life that was using singulair.MRI was normal but EEG was abnormal.İn our family history there is no epilepsy.we stop using it and now all the things are ok.Today we are going to have EEG again.I wonder how will be the results.Reading all this made me shock.We were nearly loosing our baby.
-- By musculus | Reply | Private Message me
November 21th
2008
8:30 AM
November 14 I was given Avelox for a sinius and ear infection. My husband had taken the sam medication 4 weeks earlier and had absolutely no side effects what-so-ever. When my infection reaccured my doctor decided to give me Avelox since it was a stronger antibiotic. I took my first pill prior to going to bed. I woke up Saturday with a headache and a general feeling of being agitated and moody. I took the second pill and as the day went on I began to feel some tingling in my arms but contributed to a neuro test that I had had 2 weeks prior where they shock your nerves. The tingling got worse by that evening (Saturday). Sunday I took my third pill still relating the the tingling to possible nerve damage from the EEG. I had to keep shaking both arms from time to time because I was also experiencing some numbness. I took my 4 pill on Monday early am. By 9:00 the tingling was extensive and the numbness was also becoming more regular. During all this time I was having intermittent severe headaches as well. By Monday night I was going crazy with both my arms tingling constantly and then my left hand got really heavy, I reach up to rub my arm and realized I could not feel my shoulder. I got a needle and pricked it and could feel nothing. This brought back a severe allergic reaction I had back in the 80's to Vistaril. It clicked in my brain at that point that it was not nerve damage from the EEG but possibly an allergic reaction. I immediately went to the web and keyed in allergic reaction to Avelox and found this site. I was stunned. Needles to say I did not take the pill Tuesday and went straight to my physician. He was hard pressed to believe that my symptoms were being caused by the Avelox. I even brough copies of some of the entries on this site. He did not want to accept that but changed my antibiotic and said that if it was the medication then the symptoms would start to subside by Wednesday. Wednesday afternoon both arms were considerably better and by Thursday mid-day I was back to normal. I did tell my physician that although he might not be convinced I was 100% positive that it was an allergic reaction. I will be calling him today to let him know that I was right.
-- By rjc1959 | Reply | Private Message me
October 18th
2008
11:19 AM
I was prescribed Levaquin in July 2008 for a kidney infection - 500 mg for 7 days. I experienced insomnia, muscle cramping in my calfs, and aching a chilies tendon while taking the drug. Approximately 5 days post Levaquin I started having generalized muscle twitching (head to toe) which is intensely noticed at rest, severe anxiety, burning sensation, vibratory sensation, and most recently weakness accompanied w/ pain in my right arm. I have seen 4 separate doctors in 3 months and have had blood work done along with an MRI of my brain. All tests came back normal... I am scheduled for an EEG and EMG this coming week - which too will probably come back normal. Between all of my doctors I have been diagnosed w/ a virus, anxiety disorder, fibromyalgia, and a mild case of Guillain-Bairre Syndrome. Luckily all the doctors have agreed that they do not believe I have MS or ALS. Before the kidney infection I was healthy and RARELY made a visit to the doctors. I have issued a Medwatch Report to the FDA as I am completely convinced that my medical issues are related to Levaquin. I have been dealing with these symptoms now for 3 months and would appreciate any feedback from individuals who have experienced the same side effects and what they may have done to ease the symptoms.
-- By jmorasch | Reply | (2) replies | Private Message me
September 25th
2008
1:08 PM
i'm a fourteen year old girl, who has been completely healthy my entire life. about a week or two after i got the gardisil shot, i went on vacation in the outer banks. when i returned i started experiencing severe abdominal pain, feeling nauseated, fatigued, having muscle pains and confusion. i went to my family doctor, who diagnosed me with the flu and gave me antibiotics. days later, i wasn't getting any better so my mom took me to the emergency room where i was put on an iv for dehydration. i was sent home with medicine for the abdominal pain, which gave me no relief. i returned to the emergency room several days later due to the same issues, and was put on an iv for dehydration again. they took blood to test for a bunch of different things, but everything came back normal. i was sent home again, and over the next month i was referred to a gastroenterologist, where i had a CT scan of my stomach, an upper gi/barrium swallow, an upper endoscopy with biopsies, a MRI of my brain, and tests done on my liver and gall bladder, all of which came back normal. i was admitted to the hospital on august 20th, the day i was supposed to start high school. i was put on an iv again, and had liquids dripping in me for about 12 hours. my gastroenterologist seemed to think i was bringing everything on myself and might have a minor case of IBS. the doctor made me talk to a psych, who basically told me i must be stressed and had to be bringing it on myself. the doctor sent me home, telling my parents to force me to go to school. i cried the whole way home from the hospital, no one was even trying to make me feel better, and i hated the doctors for thinking i could bring something like this on myself. i started my first week of high school later than everyone else, i felt completely exhausted and threw up in the bathroom between classes. a day at school takes everything out of me, and i have to spend the next day in bed. my mom and i just saw all these side effects of the gardisil shot and are convinced that's what caused all this. i couldn't try out for the volleyball team, i've lost 14 pounds, i might have to re-do my freshman year because i'm missing so much, i can't hang out with my friends, i can't even go to homecoming and im honestly depressed because of all. this has ruined everything for me. don't let anyone tell you it's all in your head, its not, this is real and its effecting a lot of girls. please think twice before getting the gardisil shot
-- By kenziex3 | Reply | (3) replies | Private Message me
September 14th
2008
9:07 PM
Hi,
I just turned 25 years old, and was diagnosed with ADHD as well as anxiety after taking an EEG about three years ago. Before that time, I had been suffering from depression, anxiety, and I couldn't control my ridiculous cravings for sugar and carbs. I know that this sounds weird to people who do not have ADD or ADHD, but for those of us who do, these symptoms might not seem so odd. I had been in counseling and seeing Psychiatrists from age 15 on. Finally, I developed a terrible eating disorder due to not being properly medicated. Some deal with their issues differently than others, but I needed to feel in control of something in my life. As it was, I was completely unorganized, unable to focus on any one thing, unable to study and recall information, tired, unmotivated, and eventually Bulimic/Anorexic. Once I was forced to go to an in-patient clinic for a month and a half, I learned from numerous tests and great specialized doctors, I was finally able to start living again. At age 22 my doctor, at the time prescribed Adderall XR and Xanax XR and three years later, I am still taking both medications. I admit, sometimes I don't want to take it, because I like to feel my emotions and be in the moment of life, but I know without it, I am a wreck and completely out of control again. I let things go, become a total hermit, sink into my own pool of sorrows, and am not anything resembling my old self. Just one problem though, I am a singer and find that when I take my Adderall, I am so dry that my range is cut short- very short, and the tone of my voice is dull. I sing for a living, so this is a major concern. I also find that I don't seem to have the same emotion when I am singing. I can handle the emotional thing, but you can't hide not hitting the notes! What can I do? Is there anything to counteract this side affect? I asked my doctor and she said lemon drops- well, if you are lucky enough to find lemon drops- that's great, but they definitely don't do the trick. I drink nothing but water all day and still- I just can't stay hydrated! What am I going to do? If anyone has any advice or is experiencing the same problems, please drop me a line. Thanks so much for reading and take care!
September 5th
2008
1:47 PM
I am a 51 y/o white female that has been on Lipitor for 2 years. I am 5' 1" and when I had to go on it my cholesterol was 267 I weighed 112 lbs. I was shocked.... my doctor told me weight had nothing to do with cholesterol. She kept a close watch on me and my cholesterol came down...... and then my ex-husband of 17 years and I re-connected and got back together and I moved so I had to get another primary care physician. I took all my meds to her, she also kept a close watch on everything. At this time my cholesterol is down to 109 and I asked if I could stop taking it, as I take quite a lot of meds, due to different things and if I could stop anything it would be great, but she said it I stopped it, my cholesterol would go right back up. So since I am not experiencing any side effects I'm okay with continuing it.
I surely hate to hear what you all are experiencing with your Lipitor..... could your doc try another cholesterol medication?
The only one of my meds that is giving me any problem is TOPAMAX........ that we are using as a Migraine preventative! HORRORS!!! Today is pretty good day. But my cognitive abilities are in the trash... I say the wrong word when I mean something else...... I search my mind looking for a memory...... I am also on disability since 2002 because of the Migraines....... I have has them since 1978, but they got progressively worse over the years until I was sick more days per week, sometimes more than 7-10 days at the time, having to be in the hospital being rehydrated and on IV pain meds.......... and as awful as the TOPAMAX is.....it has been reduced the migraines to approx 2 per month and they do not last nearly as long.
So sorry, I got waaay off topic, but I know that it is not the Lipitor that is giving me the side effects as it the last med I had to go on and I had no new side effects....... but that TOPAMAX is kicking my behind.
-- By hayneslori57 | Reply | (6) replies | Private Message me
June 3th
2008
3:22 PM
My son has been on Singulair since the age of 6. He is now 13 years old. He developed seizures 3 weeks ago - temporal lobe aura epilepsy during which he was hearing voices. EEG abnormal, MRI normal. He hasn't started medication for the seizures but I have stopped his Singulair immediately! This was just a hunch - searching the net to see if there is any correlation. I have been to the Pediatrician AND the GP the past 3 weeks and no one said anything. I think a great number of children are on Singulair in SA. Does anyone know about the possibility of this danger?
-- By katryna | Reply | (4) replies | Private Message me
May 21th
2008
1:22 PM
My nephew is 7 and has been on Singulair for probably 4 years. His symptoms developed over time but recently have exploded. He has epilepsy so most of the things that he has experienced has been blamed on that. However, today his doctor took him off singulair and said he believes his symptoms are caused from the drug. He started having head drop seizures, fell out of his desk and cut his face one day. He has also been depressed, had severe anxiety attacks for the past 8 months. Several months ago, he started having such severe nightmares that it is almost impossible to get him to go to bed and go to sleep. Recently he began "seeing dead people" and "monsters" that we trying to kill him even when he was awake. He has also cried many nights with leg cramps and severe stomach pain. I will update this page in two - three weeks to let you know if these problems go away now that we have stopped the singulair.
-- By brenda999 | Reply | (6) replies | Private Message me
May 19th
2008
10:25 AM
My mother started on Lipator about a year ago, she's been having shakes that last about 30 seconds in her legs and one arm. The shakes come and go and she can go a month without them but they seem to have gotten worst. She also has a hard time walking 4 out of days a week, she feels like her legs aren't under her. She is always tired and has restless leg,sometimes at night. She has respiratory problem that also seems to have gotten worst in the past year.
She is seeing a nuro but a cat scan, eeg and blood have all come back ok. Do you thing these are common problems with Lipator?
May 15th
2008
11:34 AM
Hi. I am so sorry to read your story. My 17 year old daughter’s story is similar. She had her second Gardasil vaccination during the end of January 2008. During the month of February and March, she had abdominal problems. Beginning on March 30th, she had seizures. She had a CT of the head, MRI of the brain, EEG, 24 hour EEG and as I type this note, she are in the epilepsy center at Jefferson Hospital in Philadelphia and the doctor just came in to tell me that every test is coming back normal and that my daughter is having “stress” seizures. My daughter has no more stress than any other 17 year old girl does.
I related to the doctor my thoughts pertaining to Gardasil and I feel as though he has dismissed my idea.
I have found some many stories similar to yours and my daughter’s but I believe because Gardasil is so new, nothing is coming out yet about it.
If anyone has any other information, please advise!! We are desperate here in Philadelphia.
Jodi
***
April 30th
2008
12:13 PM
I have been taking femcon fe for about a month. A week before i was supposed to start taking my brown inactive pills, i passed out and had what they call convulsive syncope. I had an EEG and MRI done to rule out a seizure. Both came back normal. I have experienced anxiety,passing out, muscle twitching, nausea, headaches, a bad taste in my mouth, low sex drive, dizziness, stomach pains, fear and fatigue. I did not have any of these side effects before I started taking Femcon FE. I am going to continue taking another month of this pill to see if the side effects are still there. I just wanted to let everyone know what i have experienced in case someone else has had the same thing happen to them.
-- By sweetpea06176 | Reply | Private Message me
April 9th
2008
6:27 PM
I have posted in the past about my 9 yr old dd who was taking singulair for 3 yrs. Upon finding all this information about singulair and way before it hit the news .My dd was being tested for many different problems nuerologically wise. Trying to rule out depression,bipolar and ADHD. She had an eeg and labs done a few days after stopping singulair. And just today we went in for results and nuerologist says labs are normal but eeg was not . Meaning that she could possibly be having seizures. BUT NOW I AM WONDERING IF IT WAS SINGULAIR CAUSING THIS? I read somewhere that seizures can go unnoticed if they are very mild. But she did having trouble sleeping and concentrating. And at times even just stared off into space after we spoke to her repeatedly. My question is has anyone had any similar experiences with singulair ? Please respond.
-- By momof3angels | Reply | (4) replies | Private Message me
April 4th
2008
10:01 AM
My 6 year old daughter has been off the Singulair for 5 days, after being on it for like 4 years. I have noticed some big changes for the positive... but she is still yelling at me when I have to get her up for school...and ight before bed. She is falling asleep a little better, and waking up less. But this screaming is so bad. I need to videotape it so people will believe me..as to how bad it is! Anyone else have some side effects still left, or did the all go away right away?
-- By 4keaps | Reply | (6) replies | Private Message me
Singulair (19) Gardasil (5) Mirena (4) Lipitor (4) Topamax (3) Levaquin (3) Yasmin (2) Lisinopril (2) Keppra (2) Neurontin (1) Norvasc (1) Meprozine (1) Dynacin (1) Phenobarbital (1) Cipro (1) Guaifen-C (1) NuvaRing (1) Advair HFA (1) PredniSONE (1) Hydrochlorothiazide-Lisinopril (1) Wellbutrin (1) Femcon FE (1) Adderall (1) Avelox (1) Depakote (1)
November 4th
2009
5:52 PM
Are there any meds that are safe? I was taking 10mg norvasc. I started taking 20/25 mg lisinopril. I was doing ok on the norvasc but the added lisinopril has almost killed me. They had cut my norvasc down to 5 mg then to 2.5 mg when I started the lisinopril. 4 days ago I stopped the lisinopril and added back 2.5 mg norvasc. Back to 5 mg. The side effects seem to be letting up. Now im wondering is all of my meds are killing me. I can't live without them. My BP sores. Im so scared of what I should do. Im afraid of all my meds.
-- By ladyrich007 | Reply | (13) replies | Private Message me