Email symptoms and conditions

I had my mirena since 2002, I recently found this site and really started paying attention to my body, MOODY, definitely, IRRITABLE, definitely, DEPRESSED, for sure, NO SEX DRIVE, my husband hates it. BACK PAIN, is unbelievable. OMG, I’ve spoke with 2 Doctors about these being possible side effects of Mirena, OUT OF THE QUESTION. In Feb of 2008, I was diagnosed with FIBROMYALGIA, I wonder how much of that is really the MIRENA. Can some one post to my private email (******) to let me know the side effects AFTER having the Mirena removed and if you are better now. Thanks for saving a life.

I have been on Cymbalta for close to 2 years for the last several months I have been forgetting more and more.. more frequently! My doctor increased my dosage from 90mg to 120mg. Now, I have had a nervous breakdown/anxiety attack was admitted to the hospital's outpatient treatment program and have lowered it back to 60mg. It is very hard to ween off of. The hospital doctor has prescribed Lamictal and Trazadone and my gastroenternogist has put me on Amitryptiline. Gee I feel like a Pharmacist now. This sucks! All for Clinical Depression and Fibromyalgia and IBS, Does anyone else have memory problems while on Cymbalta??? email me ******to talk.

I was wondering if anyone else was having the same experiences and then I came across here!!! Hopefully there will be someone out there who will be able to relate to me. I had my Mirena placed in August 2008. It wasn't that bad going in, actually went right back to work after that. About a month into it I just wasnt feeling right. In September I tried to get it taken out, but the hospital talked me out of it (military hospital, and said the cost blah, blah, blah, blah...) Well since then my life has been a living hell. It started as a small little headache but has literally grown into a DAILY dizziness and headache "fest" that is so bad that it's effecting my daily life. has anyone had this??? I've had CT scans, MRI's, spinal taps.. All says i'm ok... Plus "foggy brain" to go along with it.

Hey ladies- I have had mirena almost two years now, when i first had it implanted it was horrible, cramping and spotting for months. then i had a normal light period at the same time every month just up until a few months ago then no period, which scared me! i am not pregnant just no periods anymore, which i'm not so sure i like. besides that i have had so many rotten symptoms from mirena. Cramping, cysts, stomach pains on either left or right side that all i can do is lay in bed, mood swings, eating a lot, gaining a lot, acne which i haven't had in years, so much more that i try and forget about yet i feel like not the same person i was before. I am going to have it removed this week and am unsure of what to use for birth control now. What did you ladies do that have had it removed? Any pill that doesn't have so many effects that have worked for you? I am in a time crunch and really need advice from all of you who have gone through this mirena bs too! Please please email me your tips thanks!!!!

I have been making inquires as to how and if the fda will conduct investigations in to permanent damage left from this drug.Although on taking my son off this drug i saw a 90% improvement,i am still missing the final piece,is it that he lost 3 years to this drug or did it do damage that cannot be fixed,we as parents need to know.The FDA responded to my letter,they said if they see a trend in reports from medwatch,it may prompt an investigation .I am asking all who still have missing pieces to file a report.What has happened is a tragedy,we need to explore ever option for continued success for our childrens future.Good Luck to all,Keep Fighting

My 5 1/2 year old son began taking 4mg Singulair in the p.m. and an inhaler (asmanex) in the a.m. We were still having trouble controlling the asthma and his Sing dose was raised to 5mg. & within 1 week of the increase he began having terrible facial tics and aggravated behavior (defiant, poor listening, easily frustrated and angered) The tics were in the form of opening and closing his mouth, as if you were trying to clear your clogged ears after a plane flight. This caused him much pain in his jaws and facial muscles, so he would tic and then cry as he was in pain. This ramped up his anxiety and it made the ticking worse. He has been off of all asthma medication (cold turkey) for 5 full days. He has episodes where the tics happen for 10 min -1/2 hr, other times during the day it is one here and one there. He does not want to leave the house to do anything, even his favorite activities. Thank god I found this site (and others like it), as I got some answers and some hope. We went to see my cousin this week who is a neurologist and he never heard of the correlation of Singulair and neurologic side effects like these. He said that (hopefully) the medication side effects will cycle through and resolve the ticking and behavioral changes. If not we are probably looking at a Tic Disorder which is in the Tourettes Family.He put my son on a very low dose of Klonopin to mellow out his anxiety and help reduce the tics, but has only been on it for 1 1/2 days and it usually takes a wk or 2 for full absorption and results.I have since sent him and my pediatrician and allergist links to this site and others. I think that I see some improvement in my son, yesterday I thought he did better and my husband thought it was a worse day, I think we have totally lost our perspective and objectivity on this. If anyone out there has a time frame on when they saw significant recovery and positive changes I would love to hear from you. This is a total nightmare and if it is this drug, someone is going to pay. My prayers go out to all who are going thru this.

I am taking Wellbutrin and it has helped my depression and desire for drugs every day. I have bad ringing in my ears all the time but I can deal with that compared to the good it has done.. The problem is I'm a engineer which requires a lot of concentration that I have lost since I've been on Wellbutrin. I also have memory loss. I can't remember peoples names 2 minutes after they told me. I am a support engineer so I have to tallk to many people every day as well as typing cause and solution. I find myself having to read everything I type over again because I leave out words and sometimes what I type makes no sense at all. Wellbutrin has helped me so much but I think I will have to stop or lose my job. What a choice. Before I started taking Wellbutrin I never felt like I was in tune with the world. Smoking pot worked for me but we all know what the long term effect of that is. Codine also made me feel like I fit in. So Wellbutrin has fixed all those needs and feelings but I just hate the loss of memory, concentration, and ringing in my ears.

Today is 4years exactly that Matt had his one and only asthma episode,that sent us done the road of singulair disaster,7 months of the drug now thanks to Kate who went public with her story.Each new day brings more hope for a full recovery,although the road is long and strewn with guilt and anger.First i was angry with my doctor,then Merck now the FDA,but the guilt always stayed with me.Ive spent hours on wouldas couldas and shouldas but none the less it is what it is.I have had an education in things i really didn't want to know,the medical system,the justice system,and our government.I have written hundreds of letters reported 3 times to the FDA,never a response other than your email was received,called and reported to Merck twice,they were always ready and willing to take my info,so today i wrote to the FBI asking if they could investigate corruption at the FDA,proberly they will laugh and trow it out,or maybe even put me on a list of some kind,but i will leave no stone unturned until some one explains to me how this happened in America

I'm 39 and have been on Coumadin for about a month. Was diagnosed with DVT in right calf after taking Yaz birth control for only about 4-5 months (no other pre-conditions - I'm a non-smoker, fairly active, not overweight, no recent airplane trips or long car rides.) I was on Yaz to treat severe problems with my period which has been the case since I was a teenager, but I was tired of having to call in sick to work every month, and had hoped Yaz would eliminate that problem. I had been on other BCPs when I was in my 20's, and never had any symptoms of clotting, so didn't think that it would be all that risky to try again, despite me being slightly older than the typical woman on BCP. Obviously, I am not taking Yaz anymore, and will not be able to take any other hormonal therapies for the rest of my life. But I guess that's minor compared to the risk of developing PE from an undiagnosed blood clot.

Anyway, I've been noticing I've been getting sudden, severe headaches since starting the Coumadin. I have a history of migraines but I usually only get one or two per year at most. Now I've had what feels a lot like a migraine twice in a matter of a couple weeks. My husband has also commented that I've been irritable and acting "spacy".

My INR has also been all over the place. They've been alternating me between 5 mg and 7.5 mg per day. For the first few weeks I was right where they wanted me - between 2 and 3, but then last Friday my results were 4.6!! Way too high. I go back this afternoon to see if anything's changed over the weekend, after skipping a dose and then doing 5 mg Sat. and Sun. I do hope they can find the right balance and don't have to keep tinkering with the dosage. I'm wondering if that's what's contributing to the headaches. Maybe if they can stabilize how much I'm taking from day to day, my body will adjust.

I wonder if anyone "official" is tracking the number of DVT/PE patients that can trace their onset of symptoms to Yaz. My sense is that this is a much more serious and prevalent side effect than their marketing dept. would like to admit.....

My son has been on singulair for the past 6 to 8 months and my husband and i have had a very difficult time with him and his behavior. We have noticed him being very angry, mad, sad, screaming out for no reason, very defiant and not listening. He has been making threats to me for a while now, saying he wants to kill me, but only to me, his mother. He has become physically violent to himself and household items and me at times. He has night terrors and screams out at least 6 nights out of the week. He has bad headaches and often doesn't feel good. His stomach bothers him a lot. He makes constant threats to me and seems to not be able o handle the simplest task. I will not be giving my son this medication ever again after reading on this site. My son has suffered long enough as have we, his family. I want my loving sweet baby boy back! It makes me wonder what the hell is wrong with our society that they would continue to prescribe this medication knowing the horrible affects that our children endure. Shame on you! You deserve more than a slap on the hand! You should have your licensed stripped and e put out of business!

I was searching for a site with the side effects of Singulair for my son who is 10 and has been taking Singulair since he was 2. It was a life-saving drug for him and his life has been wonderful since then (as far as asthma goes). He is a very athletic boy who plays every sport he can and he is still a little overweight with cellulite and love handles. I had heard that maybe it might be the Singulair so I decided to check it out. Little did I know about all of these other side effects. He's been taking it for so long that I assumed his depressed personality was just the way he was. He has also had such horrific nightmares and he's convinced he has a ghost in his room that shakes his bed that I was really starting to consider that maybe he might. His brother sleeps in the same room and does not have any of these experiences (also on Singulair). I am SHOCKED! I only read about 20 entries but I'm going to read more. Has anyone had the weight gain problem? Thank you for anything you can share.

Here is our daughter's story, and believe me the tears are pouring down my face as I am writing this.
Our daughter, who had completed her series of 3 vaccinations has been experiencing considerable hair loss. Her first shot was in May 24, 2007, the second on July 26, 2007 and the third and final on November 27, 2007.
Here are the other specifics....our daughter was 13 turning fourteen.
She has had every blood test imaginable to rule out the obvious which may cause hair loss such as thyroid disease, polycystic ovary disease, diabetes, and the list goes on and on. Everything came back negative. We even have a future appointment scheduled with a rheumatologist this coming November 08. We have seen the Endocrinologist and two dermatologists (a scalp biopsy proved negative to any infection, disease, etc. Granted, she had a typical amount of stress during the school year, as any young teen would, but nothing to cause this. Everyday our daughter says to us, "you should see how much hair fell out in the shower today". She's so afraid to brush or comb it because of the extreme shedding. She literally, to date has half the amount of hair she had one year ago. Let me tell you she had beautiful hair. The hair loss is becoming quite visible at the forward part of her scalp. This has been devastating, hair is everything to a teen. (to anyone this is devastating) We must also mention that her periods have been totally out of whack. She went 6 months at one point without one. It finally came back, but it is so sporadic, getting every two weeks, at times extremely heavy, etc...
She also complains of intermitent dizziness. We are reporting this to Merck today (the Co. who makes this horriffic vaccine), along with the FDA. If anyone else is experiencing anything close to what we are, we all need to pull together and make the public aware of what's happening so we can prevent this from happening to our loved ones.
Please share your experiences. Feel free to write me if someone you know is going through this same tragedy.

I am a 43 year old male in good health that decided to get off lipitor about 3 days ago due to the advice of my physician. I have been on it for 3 years at 20 mg daily. I am an avid runner completing 3 marathons in the last 4years, but lately haven't been able to run more than a mile or so without feeling tightness in my abs, legs, hips, and most recently my hands and elbows have mild to moderate pain. I've been noticing this over the past few months or so. I always thought it was due to over training, but I am convinced these are not normal muscle soreness/strain and I am eager to share my results as to how I feel in a few weeks/months. Today, which is day 3 without the drug, I have INCREASED pain in my hand, and an overall fatigue feeling. Has anyone else noticed this upon stopping the drug? God help all of us. This can't be doing mankind any good other than making the drug companies rich, and unfortunately, most physicians believe that these statins are wonder drugs, and prescribe them like candy.

Just read an FDA article out today, I believe. The FDA is looking to publish quarterly a list of "potential problem drugs". That is fantastic! But where will this information be posted, and how often should a medical prescriber visit and hunt for such information?

I still maintain every medical professional with the appropriate credentials to prescribe any medication should be required to register with an email address with a database within the FDA to immediately communicate this new-found quarterly list, as well as any investigations launched (as with Merck/Singulair). Wow - what a concept.

I suppose I should be somewhat more optimistic with a slight move in the right direction - but I know with all my heart neither my daughter's pediatrician, nor my personal intern will receive, nor be aware, of any of the quarterly "lists".

Will keep trying to get a change within the FDA.

Five weeks after my daughter received 2nd dose of gardasil she began complaining of neck pain & stiffness. Fevers accompanied this for about a week. I found her early one morning seizing and foaming at the mouth. By the time we arrived at the er via ambulance she was in respiratory failure and had several seizures. She was intubated and continued seizing repeatedly for several days. She was placed in a medically induced coma for six weeks in hopes of "resetting" her brain to stop seizures, as there was no explanation as to why they started.After coming out of coma seizures continue and still do after one year. She has brain atrophy, gait abnormality, severe behavioral and emotional problems, memory impairment, ticks, numbness to limbs, impulsive uncontrollable erratic behavior, and of course uncontrolled seizures. After several months in hospital and numerous tests there is still no answer. She was perfectly healthy before this vaccine. She also received 3rd dose and was hospitalized again for increased seizure activity. She needs constant adult supervision at all times, falls when seizing, and is unable to carry out simple activities of daily living without reminders and supervision. She is almost fourteen and is living with the mentality of a 5 year old.She has no chance of ever leading a normal life.

Welcome a board singulairsurvivor. I received back an email from the woman at the lung association,she was of course sorry for our experiancr,and went on to say the scientist that reviewed the data were some of the best,and the association has no ties to any product.then as i am watching the updates on the hurricanes,i am inendated with singulair commercials as once again it is allergy season,so what a windfall for Merck that this article came out this month and not next....Coincidense i think not shame shame shame on you.To all those unsuspecting people about to get their prescription .i am sorry

My daughter began taking Singulair in 2003 for asthma and allergies. I slowly watched her deteriorate from a lively, intelligent, and outgoing young woman to a depressed, withdrawn and self-mutilating person who said that she hated herself and everybody else in the world. She was an athlete, a straight A student who had received an academic scholarship to college, she was fluent in German and had been teaching herself Japanese, and she was a staunch supporter for equal rights for children with disabilities and gay and Lesbian teens. On February 3rd, 2007 my daughter hung herself after working at the local community center. I no longer recognized who she had become. I have a degree in psychology, my father is a retired police officer, and my mother is a retired R.N. We were all trained to recognize the symptoms of depression and suicidal thinking, but we were never able to connect it to the medication that she was taking.We must all ban together to prevent other people from suffering the way that our loved ones have! Educate everyone that you know about what Singulair can do to you. They are still prescribing this drug to people without any notification of what the side effects are.

hi everyone, i'm a 36 y.o. male and have been on and off of prednisone for 25 yrs. my experience has always been more positive than negative with taking this drug. it has helped me to breath better and has made me to feel extra healthy and even physically stronger. but i have my suspicions about this drug also. it has given me a false since of good health and i feel like i want to keep taking it just to feel better. i have only taken the drug after an asthma attack for about 5-7 days. early on the only side effect was increased appetite and occasional insomnia. but the last time i took this drug the doctor increased the milligrams and a VERY UNUSUAL side effect occurred that never happened before. I HAD HALLUCINATIONS! i have never had these side effects before and on the leaflet of possible side effects that came from the pharmacist for the very first time i saw hallucinations listed as a possible side effect. the hallucinations were damn near demonic in nature. the experience went like this... i woke up in the middle of the night to use the bathroom and on my way to the bathroom i passed my dresser mirror and in the mirror was writing on the mirror in a mist! just like it would be when you get out of the shower and take your finger and write on the mirror. THERE WERE LEGIBLE WORDS ON MY MIRROR! mind you this is in my bedroom and the shower was off! at that point i refused to read what i saw in the mirror! it was weird enough what i saw i didn't need to read it. i refused to be fearful at that point cause i realized i was hallucinating and not getting a haunting. when i woke up later i went back to the mirror and of course no writing in the mirror. IF THERE IS ANYONE WHO HAS EXPERIENCED THIS PLEASE TELL ME YOUR STORY PERSONALLY! MY EMAIL IS ******! i would like to know that i'm not alone in this. to make it easier for me to see your response please type prednisone in the subject box on the email cause i receive a ton of emails and spam. and i would really like to hear other stories and experiences of taking this drug with very weird side effects!

I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.

Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.

Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.

I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).

I am feeling so tired and let down with the marina. I had it fitted on the 1/08/08 and feel that my body has changed. I am bleeding so heavy, i have headaches, and feeling generally unwell. Has anybody taken this device out themselves my e mail address is ****** I would love anyone who can help or talk about their experiences to contact me. Also I have a good career and feel at the moment I can't cope....does any of this ring tru to anyone else?

Hi! I JUST had the Mirena put in Yesterday...Tues. And within one hour I started to feel foggy, light headed and crazy! I started getting a pressure headache. Being the last patient of the day, I knew the office was closed. So I looked online and found you all. I am horrified at this point! I couldn't sleep last night at all! I was so nauseous and had the poops. (sorry, tmi) Today I feel full of anxiety and my heart is racing. I feel like I'm on drugs or drunk! My head is still pounding. I kept calling my OBGYN and didn't talk to him until about 2 hrs ago. He said none of these symptoms are from the Mirena. So I hear that is most of the Docs words around here! He suggested I give it more time and call him in a few days and if I want it out, he will take it out. Well the thing is, I am ready to pull it out myself! I feel like I'm crazy! Seriously! I don't know what to do! I called my PCP and they refuse to take it out b/c they didn't put it in. They suggested going to the ER. Well my insurance for sure won't cover that!! So what do I do? I feel like I'm going crazy and no one will listen! We are moving to Italy in a month nd I need this resolved AWAY before then! Any advice will help! I just know when I call my doc, he will try to make me keep it in! What do I do?? HELP! Thanks for being here! Wish I had found you before. I am really good about researching things and I didn't with this. I trusted my doc! The other thing is I hear a ton of you have gained weight!!! I JUST had a full tummy tuck June 5th and I freaking better not gain weight!! LOL I want this out!! Calling my doc tomorrow and demanding he take it out. Has anyone had a doc refuse taking it out and if so, what is our recourse? It's our body right?? Thanks again for listening to me gripe!!! ;) God Bless!!
Danielle

Please contact me if you would like to help by sharing your story with the media,I am looking for stories of recovery after stopping the medication.Please use my private email under kate2 or just reply under this posting.Kate M.

i have been using lantus for about 1 year.i have bloating,sweating,depressed,short of breath,belching,sugar gets low,does anyone have these problems?my email is *******

0This is a followup to an email I sent on July 22nd about my mirena experiences. see samsmom on on July 22 for original email.)

I AM SO HAPPY!!!!!

I got in early with my ob/gyn, she had a cancellation!! WOO WOO!!

That was on Monday, July 28th. I cannot tell you how good it felt to get out. No really, when they pulled it out it cramped for a second, but it felt like my body breathed after that. You know what it feels like when you get a kernel of popcorn out off your teeth and how relieved your gums feel after you finally get it out. Well that was the feeling!!

My hand to GOD--by Tuesday, the fogginess I was feeling in my head was gone. I sneezed all night long Monday night and my nose ran like the dickens, but I think that the sinusitis I started to get (never had it before mirena) was actually draining itself out of my head. NO longer did my face feel like there were rocks in it, no longer did I feel like I was walking around in an out of body experience type state. I even felt less mean and moody. These were my instant results.

I am looking forward to weight loss again, this is the biggest I have ever been (excpet pregnancy 143), I am now 130. But I am not as VORACIOUSLY hungry anymore--and the sweets craving is gone.

I forgot to post this, but I also noticed when mirena was in that I was getting facial hair on my chin (like a guy). Not like a beard, but a few stray whiskers here and there that seemed to grow back like weeds. Unfortunately I cannot say that getting rid of mirena stopped the whiskers, because I got them lasered---but that was how bad it was. A lot of unusual hair pattern growth issues in women are linked to hormones. Also what I find interesting is how can the progestine time release in mirena be a one-size-fit-all for women. I mean you have women who are 6 feet and 150 lbs and 4.5 feet women who weigh 90. Does that mean there bodies are equipped to handle the same dosage? HMMMMMM Questions I should have asked.

I hope you consider getting yours removed. I hope that you see results like mine. I feel more in tuned to life, my son and my husband. More energy, less anxious and stressful, the night time nausea and dizziness is totally gone!

Take care!

i started taking yaz a couple months ago and developed a blood clot in my lung, a pulmonary embolism. i was hospitalized for a week in may of this year. i have visited many websites to see if other women have developed blood clots due to yaz and i have found a startling number of women that have developed blood clots, and a couple girls who even lost their lives. the side effects of birth control are explained to us before we start taking them, and it is expected that some women will experience the side effects, and this is normal. however, when a disproportionately large number of women start having serious health problems due to yaz, then something is not wrong with us, something is wrong with yaz. i have seen many women express an interest in starting a class action lawsuit and i am trying to do so. i have worked in a personal injury law office for the past 2 years and know an excellent lawyer looking to take on a case of this nature and magnitude. if you or your loved one has developed a blood clot, lost their life, or have developed another serious health problem due to yaz than please email me at ****** with your name and an email address i can reach you at. A class action lawsuit requires a large number of plaintiffs. I have already gotten a few emails but need many more before we can make this happen. please email me... help me and yourself.