August 2th
2009
10:09 PM
To all the women still taking this drug: I beg you to stop taking this medication and read all of the posts on this site!!!! Here is my story... I was on Yasmin for 6 years. About 4 years into taking the drug, I noticed a mass on my right side. It was a painful mass that I could easily feel, and it eventually because so uncomfortable that I could no longer sleep on my right side, and it affected basic movement. At the same time, I was beginning to show some side effects of Cron's disease (which runs in my family), so my gastro doctor told me to get a CT scan and an MRI. The tests revealed a gigantic mass on my liver and I was told to see a liver specialist right away. I went to KU Med and was told that I had to have emergency surgery right away, and that I was basically a walking time bomb.... If I tripped and fell, it could cause this mass to rupture and I could bleed to death. He also told me that if I had gotten pregnant while I had the mass, it would almost certainly lead to death for me and the baby. Nonetheless, they cut me open from the middle of my chest clear down to my belly button. They did a liver resection and removed my gall bladder and several lymph nodes. The mass on the scan turned out to be 2 grapefruit-sized benign masses, called Focal Nodular Hyperplasia - most commonly caused from the hormones in birth control pills!!!! Ladies, this was major surgery.... I was in the hospital for 9 days and out of work recovering for nearly 2 months.... and this all took place 2 months before my wedding!!!!!! The MASSIVE stress I endured caused me to have panic attacks and I thought I was going to literally die. Keep in mind that my CT and MRI were purely coincidental. If my GI doctor had not ordered the tests, I would have never known about the masses, and God only knows what would have happened to me.... Anyway, this whole ordeal has DRASTICALLY changed my life and affected all of the people I love, my husband included, who has to endure all of my pain and anxiety. BOTTOM LINE - IT'S JUST NOT WORTH IT! TELL EVERY WOMAN YOU KNOW!
-- By lindzmarie | Reply | (5) replies | Private Message me
March 17th
2009
12:46 PM
I am so glad I heard about this site. I have had the mirena for almost 4 years. I thought I was doing great until reading all of these symptoms from other people. I have noticed a lot of weight gain, anxiety, swollen ankles and hands, very low sex drive, pain after intercourse, heart palpitations and stomach problems. On March 23, 2009 I was scheduled for gallbladder surgery, which I have canceled. I believe all of my gallbladder symptoms are related to the mirena. I have experienced pain in the ribcage, cold sweats, fatigue and even the butterfly feeling in my stomach. No matter how hard I try to get the weight off, it will not budge. I thought this was just because I have reached my 30's. The mirena is coming out in April, thank goodness for this website.
-- By knk | Reply | (2) replies | Private Message me
March 13th
2009
11:54 PM
This is amazing to me to hear all of these side effects from the yaz. I have been experiences all of them but really didn't make the connection. I have been experiencing knee joint pain since I have been on these pills but really didn't make the connection. I only started researching this since I received an email from someone about yaz and the warnings about it. This message went into my spam out of the blue, and I opened it to read it. That was about a month or so ago, and I am scheduled to see my doctor in a month or so and I don't want to abruptly discontinue without having a plan. I am 46 years old and was an anemic due to heavy periods, so this was the solution to get my blood count up to what it should be. This was a real issue because I had to have emergency surgery but had to have 2 units of blood before the surgery. So after that, it was suggested that I take bc to control my periods. I really didn't want to do this but I had to for the mean time and I have been on them for about 8 months. My blood count is back to normal now but I have to figure out what else I am going to do because I cannot continue on these pills now that I see what it is doing. I will be going into menopause soon also, but that's probably not until 5 more years and I am not going to take these all that time. I have some decisions to make.
-- By deadeye | Reply | Private Message me
February 14th
2009
12:48 AM
google the class action lawsuit for mirena. i joined in. so should you. it has ruined a part of the happiest time of my life. don't let them get away with it.
-- By shopalotnikki | Reply | (10) replies | Private Message me
October 10th
2008
12:58 AM
I have Autoimmune Hemolytic Anemia (AIHA), was diagnosed in Feb. 2008. Have been ill for several years and finally it came to a head in Feb. I had a blood transfusion and then in the hospital 6 days later with a hgb of 4.0. I was so toxic and my blood so screwed up I nearly died. I was given another transfusion then (total of 5 pints of packed red blood cells) and started on Prednisone. For 3 days given liquid Pred injections, starting at 1000mg, tapering down to 250mg., then on the pill form at 100mg. Sweat poured off of me dosing down. I was off work for 2 months. I am still tapering but am now at 1mg. DR. added another drug, Danazol, after getting to about 10mg because my blood started going crazy again. My side affects with Prednisone have been, Euphoria, no depression, LOTS of hyper brain activity, thoughts running a 100 miles an hour but body at slow speed.Visual problems and a feeling of being highly drugged. 2 to 3 hours of sleep each night, compulsive behaviors and a lot of pacing back and forth. Couldn't hold my concentration because my mind wandered so much. Extreme Tremors in my back, hands and head. Wanted to talk constantly, if no one was around I talked to my Chihuahua or the TV. My cheeks puffed up and became hard and had a fat pocket puffed up on left side of my neck. My dog thought I was crazy, she was tired of the lights being on at 3 or 4 in the morning. Legs looked skinny but didn't gain weight until I got to about 60mg. Gained 25 lbs total. Tapering caused bad spasms in my calves, feet and hands. Thigh muscles would get extremely weak each time I went down a dose. At 50mg I started getting sleepy and could hardly stay awake. Went back to work at 35mg and couldn't remember how to sign on to my computer. Some memory problems since I was in the hospital, couldn't remember how to spell words I knew as a young girl. Started having hip pain about 3 months into the Pred, that hasn't stopped. At 10mg feet, knees, shoulders hurt deep in the sockets, muscles below my neck knot up, may take a while to totally get off this. Read on a couple of blogs where people cut a 1mg tab into 4 pieces to taper off the Pred. because of side effects. Had thrush in the beginning and break outs of shingles. I hope to God I never have to get back on this drug again, it is so HARD on the body but it did do what it was given for, to repress my immune systems. My next step is Spleen surgery, hope this is a cure for me, am sick and tired of being sick and tired. Wouldn't advise anyone to take Pred unless it's a life or death situation. It's prescribed too liberally and people have multiple problems, worse than I have experienced. I've probably forgotten some things, but there's enough I've mentioned to give you an Idea it's not good, but if Pred is all you have then you do what you gotta do!! My puffy cheeks have went down though, now my hair has become curly but at least I have hair and my chihuahua stills loves me!!!
-- By linn | Reply | (4) replies | Private Message me
April 10th
2008
9:30 PM
Okay now i'm really scared- I just got the Mirena put in yesterday, I used to get the depo and had some horrible side effects from that. I have not had any major side effects as of yet (too soon i know) except some minor cramping.
I know if any of the same side effects come back as the depo i will have this thing out so fast.
I had lost 15 pounds since stopping depo and a am so worried that will come back now that i have read all of the side effects on this page.
The one question i have is since having the mirena put in i kind of feel like i have a tampon in and was wondering if that feeling is normal or will maybe go away with time.
April 1th
2008
3:36 PM
Perforated Uterus, Pelvic Infection
The Mirena IUD perforated my uterus, and was found inside my abdominal cavity, completely outside of my uterus. The nurse practioner who inserted the IUD at Planned Parenthood, insisted everything was fine. She did not know she perforated my uterus. After a week of internal bleeding, I ended up in the ER. I had emergency surgery to remove the IUD, and to repair my uterus. I had complications form the surgery, and had to be readmitted to the hospital. Six months after the surgery, a pelvic infection resulted. I urge anyone considering the Mirena IUD to consider the very serious consequences to your life as well as future fertility.
March 28th
2008
4:36 PM
I had Mirena inserted in Feb. 2007 and it was the most painful experience of my lif (and I have 2 children). I cramped and bled for weeks. All of which I was told was normal. I would have sharp pains that would come and go as well. On or about December 17, 2007 I was having terrible pains and became nauseated and was vomiting uncontrollably. I told my husband something was wrong and that I needed to go to the hospital. As he was trying to get the kids ready to bring me to the hospital I fell on the floor in pain and could not walk. My husband called the ambulance to have them bring me to the hospital. When I got there they thought I had a stomach virus or a ruptured appendix. After completing an MRI they found that the MIRENA was lodged in my fallopian tube and I needed to have emergency surgery to have it removed. I had to wait in agony and pain until the next day for them to perform the surgery and I am still recovering. DO NOT GET MIRENA!!
We need to file a class action suit to get this product off the market. It is harmful and they lie and say there is a less than .1% chance of this happening which just isn't true.
-- By deshonna1 | Reply | (1) replies | Private Message me
March 27th
2008
2:26 AM
I was on 200 mg/day of topamax for migraines. It did lessen the frequency and severity of the migraines. I lost 20 lbs and looked great. I felt horrible. I was suicidal and paranoid, cried frequently and thought that I was going to die. I was very tired, probably due to the topamax and the fact I was only eating about 500 cal per day on a good day, I was only rarely hungry and then would feel full after a few bites. I loved being thin, but was too tired to enjoy my life. I'm a nurse and couldn't remember anything, so I wrote everything down. My husband said that talking to me was like playing charades, because I couldn't remember the words for what I wanted to say. People would talk to me and my comprehension was very poor - it was like they were talking in another language that I didn't understand very well. I had always been sharp and quick witted, but on Topamax I was lost in a brain fog. I went off the drug under an MD's care. It took a while to feel like my old self, but life is now normal.
I was considering going back on it to lose the weight I put back on, but after reading all the other posts, I realize it's just not worth it. No, not everyone experiences all the awful side effects, but the side effects are not rare and some of them are horrifying. One of my friends who went on it couldn't even remember her children's names and she was on just 25 mg. I think this drug can make you feel like you are dying - just like a cancer patient at end stage. You don't want to eat, there is little enjoyment in life, your brain is foggy like you've been going through chemo and you feel incredibly sad as if you're going to die.
My advice would be to use the drug only if absolutely necessary. Try acupuncture, other migraine meds or seizure medications before this one. If you are taking it and notice that you are having extreme side effects, ask your doctor to be taken off it. If you can take it and the only side effects you get are a little pins and needles and an aversion to soda, go for it! But please note if you have strong emotional changes and try to eat healthy while on topamax.
-- By working4ever | Reply | (1) replies | Private Message me
February 16th
2008
9:16 PM
I came across this site when looking for information on Mirena lawsuits. I feel I should be part of one. I don't care about the money- just about getting this device off the market. Here's my story:
I had the Mirena inserted in April 2006 (eight weeks post birth of my first child). At insertion I had the usual pain. Nothing compared to birth! Within a week I was experiencing painful intercourse, foul odor, and stabbing pains in my stomach. I had lost a lot of baby weight by this time, but now that I look back, I really didn't lose much since. I worked hard just to stay at the same weight. I also developed a rash all over my body, which I later had diagnosed from a dermatologist as some sort of skin disease, usually caused by an allergic reaction- bad news- once you get it, you have it for life.
After several rounds of varying degrees of antibiotics (I was nursing at the time and for one round had to pump and dump), my doctors felt the infections were gone and I was okay. Soon though, I'm back in the office still complaining of these stabbing abdomen pains, painful intercourse, etc. My doctor tells me it's not the Mirena, it's something else. He convinces me to keep it in, after I asked to have it removed. (I'm the one who spent the money here, right?!) Now I have gone through PID diagnoses, you're in menopause diagnoses (I'm 24 at the time). They check to make sure the IUD is in place, and it is, so they basically write me off as crazy.
My next step is to go to my primary care and ask him if the stabbing pain could be something else- I do that and he sends me to a gastro doctor. I end up with a colonoscopy and endoscopy which reveal nothing wrong. After a few more months of pain, I go to a new GYN. This one says, let's do a new ultrasound and get the thing out. But unfortunately, I had to have shoulder surgery before he could schedule- so I'm out of it for a few months (and pain medicated so not feeling the pain down there).
In January 2008, I finally have the time to schedule to get the IUD removed. I get it out and it's not painful at all and I don't even bleed. I start menstruating normally again (hadn't had a period most of the time I had the IUD in). A few weeks later I start hemmoraging. I get an ultrasound. I have a mass on my uterus. I have surgery to get it removed. Biopsy comes back. It's benign (praise God). But, it's inflammatory tissue, cause from the IUD. More money down the drain and more time and mentally draining. Basically, the IUD got so infected that the tissue formed around it and attached to my uterus. YUCK.
Now I'm not one for lawsuits, but if ever there was a product that shouldn't be on the market- I'm going with the Mirena IUD. Every girlfriend I have that has had it, has had it removed within the first year (save my mother- but she had that old IUD in her for over 20 years-another yuck).
It's a money making machine for doctors and the drug company. And it's a super-pain. I'm feeling so much better and I'm losing weight again! Now if I could get rid of this rash! (Not likely!)
-- By a218robin | Reply | (8) replies | Private Message me
January 10th
2008
11:37 AM
I've had my Mirena for about 15 and a half months and I am having it removed today at 2 o'clock. At first I had sharp pains when I would sit down and I felt like the cords were poking me and irritating me. My OB/GYN requires patients to come back one month after having it put in so he can check it and make sure it is still in place. At this visit he also trimmed the cords although he acted like he didn't believe me when I told him that I could feel them poking me when I sat down and that it hurt. At first I didn't notice any bad side effects, but I did have one good one: my periods stopped, but I still had occasional and sporadic spotting. I didn't think to look for any bad side effects because I got the device under the impression that it had no bad side effects. I thought it only had a rare complication of perforating the uterus, but since mine was in place at the one month check, I didn't think about anymore until I started thinking about having another baby recently. I went online to see if I had to have a doctor remove the Mirena or if I could do it myself, and I found out that it's best done by a professional because bad things can happen and then you'd have to go to the doctor anyway. Plus, I didn't want to hurt my chances of having another baby. While online I discovered this whole world of message boards where women were having a lot of the same problems I'd been having in recent months and they all blamed their Mirenas. Some claimed that their problems had gone away since having it removed. I never thought to link my circumstances to the Mirena, but when I saw how many women are having the exact same problems as me I knew that I needed to go ahead and get mine out ASAP. Here is a list of my side effects, and I've found other women have had them as well with Mirena: weight gain, bloated stomach, depression, short temper with husband and daughter, acne, low sex drive, spotting, cramps, constipation, and back pain. There may be more, but I can't remember them all right now. Some of them may not even be related to the device, but I've read of so many women with Mirena who are having or have had the same issues, so I suspect a link between my problems and Mirena. I hope this helps someone out there looking for answers. God Bless!
-- By melathome | Reply | (56) replies | Private Message me
September 13th
2007
9:35 AM
I took 75mg of Topamaz for 3 1/2 months for my chronic migraines. The side affects for me were nearly as bad as the headaches: I lost 17 pounds, tingling in my toes and fingers, tiredness, food intolerances, and still had the headaches. I went off the Topamax 2 months ago and thought I was going to be OK. But last week, I developed appendicitis and had my appendix taken out by emergency surgery. I am curious if any other patient has had appendicitis but just didnt relate it to the Topamax.
-- By flmom | Reply | (3) replies | Private Message me
January 16th
2006
7:20 PM
I was given A shot of Kenalog into the eye. I had a terrible reaction. It settled on my iris, all white, nearly covered the iris up to the pupil. Eye pressure hit the roof. Went to 48. Had emergency surgery to remove debris form shot. Lost my sight for 3-4 days. Took 2 weeks before I could even make out whose face i was looking at when only 3-4 feet from them. I am still having vision and pressure problems. This has been going on for four months. This has lest me with double vision in the lest eye.
Has anyone experienced this?
Thank You!
Cary ***
-- By caryduncan | Reply | Private Message me
May 22th
2004
1:52 PM
I went to the doctor because I had a stopped up nose . He told me that a kenalog shot would help me. I got the shot and within two hours my left hip and buttocks were very discolored and burning really bad. I returned to the doctor the next day and he gave me some cream to put on it. The cream did not help at all. I kept going back to the doctor for about a week and he said that it would clear up on it"s own. Well, it did not clear up. It just got worse. I finally had to go to the hospital because the pain got so bad. The doctor at the hospital was very surprised because my skin was dead from the shot . He called in a surgeon and they did emergency surgery on me that night. They removed the left side of my hip. I have been in and out of the hospital for the last 5 weeks and had 2 surgery's. I have also had to have a skin graph from my leg to cover up th sight on my hip. Now I have to wait for this to heal and have plastic surgery to make my hip look back to normal. This was all because of the shot.
-- By smith1912 | Reply | Private Message me
Mirena (7) Kenalog (2) Topamax (2) PredniSONE (1) Yasmin (1) Lupron (1) NuvaRing (1) Yaz (1)
November 11th
2009
6:53 PM
I got diagnosed with endometriosis about a month ago and had emergency surgery. I had my first shot of Lupron a week after my surgery. I am now experiences the hot flashes, mood swings,and not being in the "mood". I have not noticed anyone else saying anything about the side effects being not in the "mood". I am only 24 years old and getting married in February. I need help!!!! I am suppose to get my second shot on the 23rd of this month. I am not sure if I should get it or not. My husband-to-be and I would like to start a family right after our wedding. I feel so bad for him I don't want him to have to turn to movies or anything else to have to get pleased. I am still young and should not be going through this. I need help and don't know what to do.
-- By mpluv05 | Reply | (2) replies | Private Message mempluv05