September 16th
2007
7:28 AM
I have been taking levoxyl for 13 years. I have experienced a lot of the symptons you describe. It took almost 5 years to find the right dosage that I feel normal on. Just because the TSH is in the normal range doesn't mean you'll feel normal. I went to a specialist who tweaked the doses till I felt my best. For me that is a TSH of between 1 and 2. If it goes lower or higher, even though it is in normal range I get symptons of either hypo or hyperthyroidism. Each time a dose is ajusted it takes a good 3 to 4 months for your body to adjust. So finding the right dose is a long process. And finding the right Doctor to work with you can be a long process. The Doctor told me the thyroid is the theromstate of your body and if it isn't set exactly right you'll feel it. It regulates everything. I have never had an allergic reaction side effect of levoxyl just dose related side effects and they can be very depressing. To give all of you hope I can say that once you find your dose you'll feel like your old self again.I feel better then ever.
-- By bopa | Reply | (1) replies | Private Message me
October 27th
2006
12:51 PM
Sophie, Sarah, BitterRN,
so glad to see that you are here. And even if you think you couldn't help, believe me: YOU ALL DO IT alone with your encouraging words. Thank you so much for trying to help me not to loose hope again completely. It's relieving to see, that I'm not alone... Every single post of you three moved me to tears.
Sophie, yes, you maybe right. 5 years with Yasmin were definitely a long time, MUCH TOO long. And yes, perhaps I should have much more patience than others who have only been on this hellsent drug for a few months. That's what my mum and my husband also keep telling me every day. But it's so difficult to accept, that there always can be a setback after a time, where you feel pretty good (as I did for the past few weeks, or 2 - 3 months...). You just think "Well, it HAS to stay that way now and I have to be through that all for good!" And it's been such a long time without Yasmin and still everything in my body is so incredibly out of whack sometimes.... :(
And BitterRN, you are also right, hormones are fluctuating over the weeks and even month after month. I still felt that changes every 2 weeks (well, though never that heavy as I now do again.....). And your theory about the testosterone sounds more and more interesting to me. I was really wondering, why that first period about 3 months ago was that heavy and long and why the last two periods where that light (the second was nearly not there, just a kind of spotting for 3 days...) and short. Well, at the moment I've got that sore breasts again just like every time around the 20ieth until the end of a month. That always happened the last 3 months!! So I'm just wondering if my period or at least the spotting will come again too around starts of November......
Perhaps that bad cold was the reason for the testosterone to get low again (well, the immune system surely had to work very hard to fight against that virus and that may have caused an imbalance in other things again....).
But I really think I should have a hormonal test done and see, how my hormones might have changed in the meantime (last hormonal test was around June 2005....). Wish me the power to go to another doc..... I haven't visited any of them since June 2005! I was so done with all that senseless docs visits..... And I still don't have very much trust in them since I went through so much bad experiences with doctors in 2004/2005.....
My only hope is: The last time I had a cold (October 2004!) I still took the Yasmin and that DEFINITELY was the reason for my complete breakdown in December. So I just try to believe (and hope), that this time everything will be different and my now again upcoming muscle problems, the dizziness, tiredness and so on won't get worse and worse, because my body surely will get better in balance because there's nothing "disturbing" it anymore......
Sarah, yes, I've heard of that, too (things have to get worse, until they finally get better fo good) and I so much hope that you are right!!
Thank you again for being there and god's bless to you!! We HAVE to get through this and WE WILL!!!!!
If only there were a few women who have been on Yasmin as long as me or some who have been off Yasmin for longer than 1 - 2 years already... Is there anybody??? Would be so good to hear, how you all are doing!!
See and read you all soon!!
love,
Silke
April 14th
2005
3:38 PM
I have a friend who was on Prednisone (80mg.) for a severe skin allergy and weaned herself off of it because of a severe headache. While she is now off of the drug X 3 weeks, she is still experiencing the headache and nothing relieves it. She is discouraged. She was on Tamoxifen prior to taking the prednisone. Any encouraging words?
-- By judie809 | Reply | Private Message me
June 6th
2009
1:34 PM
Three and a half years ago i suffered a heart attack, i had three stents put in and was put on Aspirin 75mg, Cardicor, 1.25mg, Tritace 5mg and Lipitor 80mg. I was fairly fit at the time, didn't drink or smoke and ate properly.
But now i'm suffering, i've been to the hospital and my GP, but are told there is nothing wrong, my hear tis good. So why am i suffering with light headedness, pains through my body, back, neck, chest, stomach. So much so i thought i had gall stones or kidney stones. My right knee can't be touched, it is so sore. Chest heaviness, eyesight getting worse, slurred speech, depression i could go on.
I've said this to my doctor, he just brushes it off and says i'm on them for life, ....apparently standard treatment for anyone who's had a heart attack. I walk 5 miles a day, eat 5 or more fruit and veg, don't smoke or drink, do all what i'm meant to. My cholesterol is really low, but so is the HDL too. I was never recommended CoQ10 or a vitamin B complex.
It was my mother who told me to research the side effects of all the meds i'm on. I agree, we all want to live a long and healthy life, but at what cost. I am now of the opinion that doctor's are so use to thinking they are near god like, they have forgotten that we are individuals, that we know our own bodies. I'm sick of the fact that the large pharmaceutical companies send out there sales reps to doctor's surgeries and that is what is deciding what the patients end up taking and not the patient's problem.
DOCTOR'S WAKE UP TREAT THE CAUSE NOT THE SYMPTOMS!!!!!!!
-- By dorset | Reply | (7) replies | Private Message me