April 1th
2008
10:22 PM
My thyroid troubles started in 1993. I am not sure how long before the discovery I had the problem. Mine started as a nodule on one side. I was immediately put on Synthroid and had to go see the Endo every 6 months for a biopsy. In 1995 I became pregnant. I had one more biopsy until after the birth of my daughter. The Endo told me he wanted to see me right away after she was born to do another biopsy. I had my suspisions, but didn't think anyhing until after she was born and went for my biopsy. Well, I had cancer. I went through the whole thyroidectomy, the 3 days isolation with radio-iodine, and every year to every few years after I had to go back and get the radio-iodine treatment, while not the high dose as the first time, it went with the complete body scan. In fact, I am due now, but don't have health insurance. My dose has been switched a lot, I have probably been on every dose from the lowest up to .200mcg, which has been the highest for myself.
Symptoms: pre-thyroid disease, I am 5'2. I was always 110-115 lbs, I was 22 yrs old and 120 lbs. when I married in 1993. I did notice gradual weight gain, probably because of my thyroid problems. I am sad to say that now I am around 180 lbs. I cannot seem to lose the weight unless I go on a total starvation diet. I managed to lose 10-15 lbs over the past summer, but unfortunately for me it has come back over the winter. I tried to stay as active as possible by going to stores and malls to walk around. I do for a fact notice that when my dosage for Synthroid goes higher, so does my weight gain. I was on .137mcg over the summer, and I think that was a good dose for me, that was through the regular dr. The Endo is the one who put me back up to .150mcg. My Endo told me the thyroid is a regenerative organ, so it CAN grow back. I guess they don't want that in case of cancer again, and I guess that is why he keeps me on higher doses.
I personally cannot stand it. I feel it is a horrible curse. I feel very robbed of my previous active life. I have been dealing with this now for 12 years not having a thyroid and being on this medication. I feel angry that I do not have the energy to do things with my 12 yr old and 3 yr old. I miss the way I was before having thyroid disease. I feel very sad when they come up to me asking to do certain things and they (nor anyone else I know for that fact) can understand that I just feel so whooped, and no energy. All I ever seem to want to do is take a nap. I have migraine headaches constantly, I am constantly tired. I cannot concentrate, I have some memory loss. My ex-husband, and my current husband too for that fact think I am just being lazy. Well, that is not so. There are moments when I do feel a burst of energy, but then, I have to use that burst to do the things I need to do around the house.
Pre thyroid disease I was always active, never tired, could do anything. After: TIRED, I was 24 in 1996 and felt like an old lady, dry skin, no matter how much lotion I put on. The tub is full of hair, while it doesn't come out in clumps and I still have thick hair, I have hair all over the place. Irritable, mood swings, happy to angry and the snap of a finger. I can have insomnia some nights, constipation, lots of the same stuff others have listed on this forum. Those side affects are the same no matter what dose I am on. And like I said the higher the dose for me, the more weight I pack on. It is instantanious. Over Christmas, and no, it wasn't from eating all the goodies, I gained a lot of the weight I had lost over summer back, and that was because a few weeks before, the Endo had put me on the .150 mcg.
-- By debredz2r | Reply | (3) replies | Private Message me
September 24th
2007
1:45 PM
I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?
-- By maggb1 | Reply | (10) replies | Private Message me
July 12th
2007
8:48 AM
I had a shot of kenalog in my knee for a problem I have when I run long distances. I was told that it would have a 50% chance of helping but it could prevent surgeries. He never mentioned side effects. After the injection- my period came a week late and lasted three days longer than normal. Four days after it ended I got another period. This one was accompanied by severe headaches(I never get headaches) This period lasted another nine days. I went for my follow up and questioned the doctor about it and he said he must have forgotten to mention it but that it can cause some hormone irregularities but that it should go away within a month. I have been so exhuasted and barely able to function. It was five days since my last period and now I got another one today! I am furiouse because I was trying to get pregnant! Now I am freaking out because I am seeing on this sight how long this can really last!
After all of us have had these same problems you think we would be able to sue the company. What can we do becuase I'm on board if you all want to have a class action law suit. How do we start it?
-- By ksyou0817 | Reply | (2) replies | Private Message me
June 22th
2007
12:20 PM
Been on Methadone tabs for 9 yrs. I gained 130 lbs, have edema in my ankles and feet for the past 8 yrs, I have an endocrine problem (pituitary gland doesn't produce testosterone anymore), I'm itchy all over, I get drowsy, and I have hot flashes. I think I should get off this drug and deal with my chronic pain. At least I'll lose wieght, stop itching, lose the edema and aching feet, maybe restore my endocrine system balance, etc....
Whata ya think?
March 9th
2006
10:03 PM
Yasmin should be taken off the market. I had GI bleeding, and when I discontinued taking Yasmin, my body went into Post Partem depression. My heart began beating irregularly, my adrenals got messed up, my thyroid, and my progesterone and testasterone were almost non existent. I felt like I was going crazy. I have been off of it for 1 year now, and by the grace of God I am healed. It has been the biggest nightmare that almost cost me my lif. No more women should have to have their bodies messed up. Our endocrine system is so delicate, and it runs our bodies. This pill messes it up. The damage is severe. I am not alone. Let's get it off the market. There is no need for it. Ortho Novum was just fine-if there is such a thing. This pill is evil. No more woman being hurt by drug companies. We are not test mice.
-- By daisy496 | Reply | Private Message me
Levoxyl (1) Toprol-XL (1) Kenalog (1) Synthroid (1) Methadone Hydrochloride (1) Yasmin (1)
September 7th
2008
3:16 AM
I HAVE BEEN ON TOPROL-XL FOR 2 YEARS. 25 MG. IN AM AND BLOOD PRESSURE WOULD FLUCTUATE UP TO 170/116 AND GO BACK DOWN TO 140/85. THEN WAS ALSO PUT ON NORVASC 25MG. IN PM. I ALSO AM HYPOTHYROID WITH HASHIMOTOS. MY SIDE AFFECTS HAVE BEEN EXTREME. SWEATING, HAVE TO CARRY A PAPER TOWEL OR SCARF TO WIPE SWEAT OFF, SPACED OUT, TIRED, FORGETFULNESS, RACING HEART, LEGS ANKLES SWOLLEN, THEY FEEL SO HEAVY, WEIGHT GAIN, EYES WATER, NOSE WILL HAVE NASAL DRIP, CONSTIPATED, SORE NECK, HEADACHES, THE LIST GOES ON. THIS SUMMER I WENT TO THERAPY FOR MY NECK, HAD ECHO AND WORE 24 HR. HEART HALTER, WHICH I HAVE FOUR EXTRA BEATS, WENT TO ENDRICONE DOCTOR WHO RAN TESTS FOR EVERYTHING, 24 HR. URINE, TESTS CAME BACK WITH TSH HIGH, EVERYTHING ELSE WAS NORMAL BUT FOR MY HEART EXTRA BEATS ENDR. AND FAMILY DOCTOR TOOK ME OFF NORVASC AND PUT ME ON TOPROL-XL 25MG IN PM ALSO AM. WELL FEELING LIKE I WAS READY TO GIVE IT ALL UP, LIKE I WAS DYING, I QUIT TAKING IT LAST NIGHT AND HAVE THOUGHT ABOUT THIS ALL YEAR, TRYING PEPTACE AND CELERY SEED EXTRACT. I FELT SO BAD THAT I KNOW IT COULD BE DANGEROUS TO QUIT THE TOPROL-XL LIKE THAT BUT I FELT LIKE MY HEART WAS GONNA BURST AND IT WAS GANNA TAKE ME OUT ANYWAY, AND DOCS. WOULDN'T LISTEN AND I HAVE BEEN IN TO THEM A LOT WITH ALL MY ISSUES. I AM 56 AND HAVE ALWAYS BEEN ACTIVE, OUTDOORS TYPE PERSON. I WALK 2 MILES ON TREADMILL EVERYDAY AND 30 MIN. OF TAE-BO EXERCISE. I WORK 5 DAYS A WEEK AND HAVE LOTS TO DO AT HOME. THEY TRIED TO PUT ME ON CYMBALTA, LEXAPRO, ELIVOIR FOR THEY SAID WHEN YOU FEEL THAT BAD YOU CAN GET DEPRESSED, I TOLD THEM NO, I AM NOT ADDING ANY MEDS. KNOWING I WOULD GET WORSE. PEOPLE AT WORK, MY FAMILY WILL SAY YOU DON'T LOOK LIKE YOU FEEL GOOD OR IS SOMETHING WRONG, HOW COMPLICATED IT WOULD BE TO EXPLAIN. SO I AM LISTENING TO MY BODY CAUSE FEELING THAT BAD ISN'T RIGHT SO I HOPE THIS WORKS. I COULN'T FEEL ANY WORSE ANYWAY. SO GOOD LUCK TO YOU ALL AND ALL OF US ARE UNIQUE TO FIND WHAT MIGHT WORK FOR US, AND MOST THOSE PRESCRIPTIONS ARE FOR ONE THING AND THEN TRIGGER OFF OTHER THINGS THEN YOU GOTTA TAKE ANOTHER MED. FOR THAT. I AM GLAD TO FIND THIS SITE.
-- By debbie56 | Reply | (2) replies | Private Message me