September 19th
2008
9:57 PM
I was put on Levoxyl for 20 years. Hair kept falling out, muscles aches, acid reflux, plantar fasciitis, carpel tunel, tired, cranky, brain fog. I could barely walk and had developed a stutter. I was to be tested for Alzheimers at 45. I was told there was no other drug for hypothyroidism and it wasn't the Levoxyl doing these things to me.
Well I found another drug thanks to the internet and Yahoo Natural Thyroid Group. It was Armour. I have been on Armour for about 2 years now. All those problems I had on Levoxyl are gone. Completely GONE! Wasn't the Levoxyl huh?
-- By liloinker | Reply | (1) replies | Send Private Mail
September 19th
2008
9:42 PM
I was on topamax for about 2 years. I took it for frequent migraines caused by my sinus's. I had all the normal side affects but got used to it after awhile. The only one i didn't get used to was the hair loss. During this time I started allergy injections and now i'm up to my maintenance level. So i decided to ween myself slowly off the topamax. I have been off for about 2 months now and I have been fine on the headache side, but i have started to get other symptoms (i think withdrawal symptoms). They have progressively gotten higher in number as the days go by. First my hair loss has not stopped. I gained about 10-15lbs, I am edgy and climbing the walls all day. I have a really hard time relaxing. I recently developed horrible insomnia, and about a week ago i started having digestive problems including water retention, bloating, gas, irregular bowl movements, and acid reflux. And I've recently had bouts of tightness in my chest and throat which make it difficult to breath (lasts about an hour). I didn't have any of these symptoms while i was on the topamax (except the hair loss), nor did I have them before it.
I am seeing an endocrinologist in a few weeks to make sure nothing on that front is causing any of this, but i really feel it's from taking and going off the topamax. If you can find other ways to deal with your migraines, DO!
September 15th
2008
3:10 AM
I was on Yasmin from November 2005 to February 2007. I didn't have a period until June 2007, and have only had 4 periods since then (and one was medically induced). I have been to a gynecologist and an endocrinologist. I have had a battery of blood tests done and all have come back normal. I have some more coming up.
Before going on Yasmin, my periods were relatively normal. I didn't have a "set your watch by it" kind of period, but I did have a period every single month (just different times during the month). While on Yasmin, I can't name specific side effects that I noticed. Looking back, breast tenderness increased (and continues), increased propensity to headaches and fatigue, and weight gain were all present. It is going off of it that has really messed up my system. My doctor originally thought I had PCOS, but blood tests have come back normal. I was even convinced, because since going off Yasmin, I have developed some of the classic symptoms. I am at a loss as to why my cycle has not returned to normal.
I am so frustrated, and while it is nice not to have periods, I want to know that I am okay. I am wondering if my being on Yasmin is still haunting me.
Has anyone else had difficulties for such an extended period after coming off of Yasmin?
September 8th
2008
11:41 AM
Here is our daughter's story, and believe me the tears are pouring down my face as I am writing this.
Our daughter, who had completed her series of 3 vaccinations has been experiencing considerable hair loss. Her first shot was in May 24, 2007, the second on July 26, 2007 and the third and final on November 27, 2007.
Here are the other specifics....our daughter was 13 turning fourteen.
She has had every blood test imaginable to rule out the obvious which may cause hair loss such as thyroid disease, polycystic ovary disease, diabetes, and the list goes on and on. Everything came back negative. We even have a future appointment scheduled with a rheumatologist this coming November 08. We have seen the Endocrinologist and two dermatologists (a scalp biopsy proved negative to any infection, disease, etc. Granted, she had a typical amount of stress during the school year, as any young teen would, but nothing to cause this. Everyday our daughter says to us, "you should see how much hair fell out in the shower today". She's so afraid to brush or comb it because of the extreme shedding. She literally, to date has half the amount of hair she had one year ago. Let me tell you she had beautiful hair. The hair loss is becoming quite visible at the forward part of her scalp. This has been devastating, hair is everything to a teen. (to anyone this is devastating) We must also mention that her periods have been totally out of whack. She went 6 months at one point without one. It finally came back, but it is so sporadic, getting every two weeks, at times extremely heavy, etc...
She also complains of intermitent dizziness. We are reporting this to Merck today (the Co. who makes this horriffic vaccine), along with the FDA. If anyone else is experiencing anything close to what we are, we all need to pull together and make the public aware of what's happening so we can prevent this from happening to our loved ones.
Please share your experiences. Feel free to write me if someone you know is going through this same tragedy.
August 11th
2008
5:45 PM
I was started on Methimazole for Graves, 10 Mg daily. Three weeks after I started taking it, I broke out in hives all over my body - not little itchy spots, huge welts that had red edges and yellow centers. My endocrinologist said it was likely an allergic reaction and I should stop taking it.
I did stop, but four weeks later, I am still not well. I have mild itches and am weak, I have trouble sleeping and concentrating. I cannot walk for more than a few minutes without sitting down. The interesting part is that proprinal has a 50% chance of the same reaction.
We are back to monitoring labs and going nothing. I have never been so sick in my life, and I am now going to try non-traditional medicine to see if I can address the thyroid issues that way.
-- By cronenorth | Reply | Send Private Mail
August 7th
2008
4:10 AM
When taking YAZ there is only one question to ask yourself, do you feel lucky? Well do you? I am the fiance of the daughter of y_oung_a_american_z_ombie who was laid to rest on Aug 4, 2008. (See posting) She was misdiagnosed with pleurisy by what we thought was a trusted doctor, and passed away from a pulmonary embolism. I want all who are planning to take this drug or currently taking this drug to know that YAZ is a silent killer. Be aware that although you may tell your doctor that you are on YAZ your doctor should look at ALL the possibilities when making a diagnosis. God bless and watch over those that have perished at the hand of this crap and also to the survivors who are telling the true story of this "Wonder drug"
-- By s_ilent_k_iller | Reply | (1) replies | Send Private Mail
August 7th
2008
12:27 AM
Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf
July 20th
2008
12:09 PM
I'm experiencing some VERY concerning symptoms and have a feeling it might be from the Mirena. And my doctors think it's just stress! SOMEBODY HELP!
I had a baby 4 months ago and at my postpardom appointment I was talked into getting the Mirena. After I had it inserted it all started with severe cramping and light bleeding that still has not subsided. I have been suffering with chronic headaches, dizziness, and facial numbness. I've also had bouts of anxiety and leg cramping and recently starting to have pain in my neck and one of my lymph nodes on my left side has become present and tender to the touch.
I mentioned all the these symptoms to my OB/GYN and he said "it's NOT related to the Mirena, go to your Primary Care Dr. and get some tests done" Well, I did that, got a full CBC and had my thyroid checked and all of my blood work came back normal. My Dr. said I am stressed after having the baby and to get some rest. I really wanted to have a CT done but after reading this I am beginning to think it's the Mirena as I had not had any of these symptoms prior to the IUD. I think i'll make an appointment to have it removed.
Anyone ot there have any of my exact same symptoms???
-- By betha1114 | Reply | (5) replies | Send Private Mail
July 19th
2008
12:25 AM
I had mine inserted 5mo ago. I have all the same symptoms (no sex drive, severe moodiness, possible depression, high irritability making it difficult to deal with my 3you). I was hypo-thyroid before, and unfortunately for me - my new GP lowered my thyroid dose at nearly the exact same time I quit my mini-pill to get the IUD. I do feel better for that day, when I take my higher dose pill, but I don't know if it'd be sustainable over time (as my doc won't prescribe me out of normal lab ranges).
The only thing I haven't gleaned from the posts attached, is were folks on versions of the pill before Mirena? I believe my mood swings/depression/(not sure of low libido) are probably my normal state. I had had pills switched on me, with drastic mood changes. My mother has drastic mood swings/depression. I had been on the piill for the last 17 years, minus my two pregnancies. My OB did tell me that Mirena wouldn't fix my "moodiness" problems, if I had them w/o the pill - but I wanted to try it and see.
Reading these posts makes me realize, this is my real problem - I need a regular dose of BC pills to feel normal, have my whole life - not my thyroid. I guess I'll stop getting so concerned that I cannot get in to see an endocrinologist for another month - hopefully my 5 min appt to get this thing out will happen next week!
Thanks to all and good luck to you!
-- By need_my_bc_pill | Reply | Send Private Mail
July 17th
2008
1:32 PM
Very disappointed...I became Hypoglycemic!
My story: I became Hypoglycemic within weeks of having the Mirena inserted. My symptoms were; anxiety, shakiness,irritability and nightmares.
I went to a primary care doctor and then to a endocrinologist complaining of that my blood sugar was becoming a problem. I was aware of the feeling of low blood sugar because when I breast feed my two boys (ages now 7 and 10) I then easily became hypoglycemic. However, I have not had this problem since.
Both physicians thought that i had reactive hypoglycemia because my fasting glucose was within normal limits.I have a healthy diet but i changed my eating habits even further (e.g. gave up all caffeine, sweets, alcohol. I started eating more whole grains and had small meals every 3 hours).
Even though I change my eating habits the side effects still became worse.I was starting to get panic attacks, I had never had these before. During one of my worst panic attacks (9 months after I had the Mirena inserted) I called my sister. I kept saying "I don't know what is causing me to be so anxious, I have never been like this before." Well, that statement sank in, I started to think about what was different. The only thing was the Mirena. That night I look up side effects of the Mirena and came across several blogs all describing their disappointment and many speaking about anxiety related issues.
I have to say I felt relief. It was not going crazy. The following day I read the official FDA Mirena web-site and that is when I found out about the effects on blood glucose. It is stated that Levonorgestrel may effect glucose tolerance and the blood glucose. However, my gynecologist never mentioned this side effect so I was not aware of this potential reaction. Btw, I had told both the primary care doctor and the endocrinologist that I had a Mirena IUD but neither of them new about the effects to the blood glucose.
The other interesting thing I noticed on the official FDA Mirena site is that when the list the Adverse reactions (depression,nervousness, weight gain etc...) they say reported by 5% or more subjects...hmmm, MORE...i think that is a key word!
I had it removed one month ago and I am starting to feel better. From what I understand, it may take up to 3 months to get the Levonorgestrel to get completely out of the system. however, my hypoglycemia is starting to diminish, I recently had a cup of coffee without getting the shakes and I can now enjoy a glass of wine at night too. My anxiety is almost completely gone.
What a relief to have figured this out!
-- By sooz1 | Reply | Send Private Mail
July 2th
2008
11:03 AM
I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.
-- By bcantrell | Reply | (9) replies | Send Private Mail
June 30th
2008
5:05 PM
I was diagnosed with graves disease last year, I had a really acute case that turned me into a total nut job.
In October after going through several thyroid storms and the doctors not being able to keep me stable with medications, I had a full thyroidectomy in October.
I started on .100 mcg of levothyroxine and then the dosage was gradually decreased, I started having a lot of random body aches, mood swings, lots of muscular pains and no energy.
They ended up raising my dosage and detected that I had a large vitamin D deficiency, after several treatments of taking 50,000 units of vitamin D, and also adding my levothyroxine dosage I started feeling better. I still have mood swings here and there, and feel sad periodically, but the last month or so I've been feeling more fine than I have in a long time. They have me on .170 mcg of levothyroxine for two months now. Last week I started getting headaches more frequently, and one of the times I got this nose bleed.
This past weekend I got a headache, and then later that night I had another nose bleed.
I don't usually get nose bleeds or this many headaches so I'm a little concerned.
Also the last time I was getting headaches and constant nosebleeds was when I was really hyperthyroid.
As far as the doctors go, I'm in between insurances and quite honestly I've been frustrated with both my pcp and endocrinologist...
June 27th
2008
6:14 AM
I have just been switched to Synthroid (by my Endocrinologist) after being on Armour for 4 years. I have to tell all you out there that think "Armour" is the save all drug..and believe me I am not an advocate of Synthroid either because I have not been on it long enough to know what possible side effects I might have..however when I first started on Armour I felt like I did before I had been diagnosed with Hypothyroidism ..then about 1 yr ago I started to gain rate rapidly like 40lbs in 6 months feeling sluggish, off and on skin problems, puffy hands, face, feet,hives, pimples in the back of my head almost hive like,some hair loss that is noticeable to me as I have had very thick curly hair all my life now it is getting noticeably thin and It is making me very nervous...My Endo put me on .75 mcg Synthroid and .5mcg Cytomel which she calls a "controlled Armour"..Armour does not stay consistent with your T4's and T3 levels and that is what cause my thyroid to become suppressed and these are the symptoms I was experiencing...she also put me on Spironolactone which is a mild diuretic to lose the puffiness in my face,hands,and feet and so far so good...Like I stated earlier, I am not an advocate of Synthroid or Armour our any drug for that matter, I just want to find what is right for me and stick with it..and if Synthroid doesn't work for me, then I will try something else...Just remember one very important thing.."You" are the only one who knows how you feel and Dr's are not God they can't fix everyone that is why its very important to read about your disease and find out what things might work for you..I suggest getting this book I bought that was recommended to me by my Endocrinologist called "Screaming to be Heard" Hormone connections women suspect and doctors still ignore written by Elizabeth Lee Vliet, MD...its a fabulous book and I am sure all you women can relate to this book...its all about us....Most important thing is to stay healthy eat a well balance diet and exercise..also find out about the foods that only worsen thyroid problems...
-- By alleekat219 | Reply | (3) replies | Send Private Mail
June 24th
2008
1:53 PM
I have been on synthyroid for the past 4 months and my doses have been increased from .75 to .112 which I am currently on. I weigh 92 pounds, which is my normal weight, but it seems this new increased dose has increased my appetite (I always had a fast metabolism) given my palpitations, flushing, sweating, high and low blood pressure and generally feeling overstimulated. It's been two weeks since my dose was increased and I felt better with the lower doses. My endocrinologist keeps increasing my dose since my TSH levels are still not in the right numbers, but this new dose is making me sicker than I was before. Could this new dose be too high for me.
-- By jackcharles | Reply | (1) replies | Send Private Mail
June 10th
2008
12:25 AM
I had Mirena inserted in August 2007. I was diagnosed with High Blood Pressure, and the doctor had to take me off of NuvaRing because of the connection of the hormones in birth control and HBP. My Gyno said that Mirena was very low hormone and would not affect my BP. Since I have been on Mirena, my BP has stabilized, but now I get dizzy spells, often, and I constantly have a headache. I also have cramping, sometimes very severe. I have gained ten pounds, and I have bad acne. I work out religiously and eat very healthy. I kept wondering how I gained this weight, and couldn't get it off, until I found this website. Also, I have never had an acne problem, and at 31 years old, I don't think I should have the skin of a sixteen year old, especially because I had perfect skin at 16. I found this website because I was having spotting, again, tonight, so I decided to GOOGLE the phrase "Mirena Side Effects." The spotting is not unusual since I have had the Mirena. It is one of the side effects that I experience regularly, especially after intercourse. Intercourse has been a problem, too. I have been married, happily, for ten years, and our sex life was great until I had the Mirena put in. Now, I don't want my husband to touch me, and I have even told him several times, since having the Mirena implanted, that I want a divorce. I think this has to do with the physical and emotional changes that I have had since getting Mirena. I have thought about having it removed, but I am finally starting my career after staying home with my three children. So I am torn because I don't want to get pregnant. My husband has said several times that he thinks that the Mirena has caused the problems in our marriage, and after seeing what others have to say, I am sure he is right. Although I have been thinking the same thing for months. Just a couple more points to make: Like some of the other woman, I have insomnia. When I had the Mirena inserted, I think I experienced TSS (Toxic Shock Syndrome) because I had an extreme pain where it was place, followed by immense dizziness, nausea, blurred vision and a rushing sensation in my face and head. When I went to get a checkup, I was told that the Mirena was "lost," and the doctor had to do an ultrasound to locate it. I have lower back pain and strong, period-like cramps. And I have an irregular period with spotting throughout the month. (It is getting expensive having to buy new panties all the time.) I think that I have made my decision to have the Mirena removed.
-- By spanishfortmom | Reply | (1) replies | Send Private Mail
June 2th
2008
7:59 PM
I have been on Lipitor for 5-years. I've been on 40mg of Lipitor, and just today my Endocrinologist (I am a Type 2 Diabetic) just increased the Lipitor to 80mg. I am not filling the prescription until I speak with my Cardiologist who is the original prescriber of the Lipitor for me. But after reading posts here, I have determined that most of my symptoms are all related to this Drug, including I think, my chest pains. I had a heart attack in 1995 and double-bypass surgery, and am on a plethora of drugs, and would like to talk to more of you about this and your experiences - So please email me and I hope we can talk about this together.
-- By denman55 | Reply | Send Private Mail
May 30th
2008
9:01 PM
I'll just reiterate what everyone else here is saying. I've had Mirena in since April 2004 after my first child was born. For three years, everything was fine (at least I thought so. I was diagnosed with depression one year later), but last summer, my periods returned, I spotted a lot in between, my weight began to increase despite significant exercise, acne, facial hair, irritability. When this all began, I was training for a half marathon and was running daily between 4 and 10 miles a day. In November, I ran that half marathon, then decided it was the running that had whacked my system. In December, I started working with a trainer to help me figure it all out. I've lost inches in my hips and legs while my stomach continues to pudge and my body fat continues to rise. I eat egg whites, low-carb protein shakes, uncooked rolled oats, tuna, chicken breasts, grapefruit and fresh spinach almost exclusively. I've forgotten what it's like to eat like a normal person even occasionally or not think about everything that goes into my mouth.
In utter frustration, I went to the GYN to have blood drawn and battery of hormone and thyroid, etc., tests. Everything came back normal. Except for pap.
Could it be the IUD, I asked her. No. Definitely not the IUD, she said. I took her word. She shrugged and suggested I see an endocrinologist.
After putting my symptoms (only the symptoms and NOT the words "Mirena" or "IUD") into a search engine and getting page after page after page of message boards filled with Mirena horror stories, I'm trying to figure out how to get the thing out ASAP.
Does anyone know if so-called "doc in-a-box" doctors at med clinics can remove these hideous things or do they have to specially trained to remove like they do to insert?
And finally, why are doctors dismissing our symptoms? I'm furious!
-- By jcs772 | Reply | (2) replies | Send Private Mail
May 29th
2008
1:18 PM
My BP had been slightly elevated for over a year and my doctor felt it was time for medication. He started me on 25mgs and continued to increase it till I reached 100mgs. I started having anxiety attacks, lightheadedness, dizziness and finally ended up so sick that I was in bed for three days. It was the toprol. I was only on toprol for 3months but found out that trying to come off the drug was the hardest thing I have done. I never had BP spikes before but at the end of the first 24 hrs. without Toprol my BP was hitting 200/104. I went to ER. Matter of fact, the spikes continued and I was in and out of ER until I was finally admitted for tests. The spikes were also accompanied by flushing, rapid pulse(122 beats per minute), lightheadedness and diarrhea.Many times I thought I was having a heart attack. I have seen two cardiologists, an internist and now an endocrinologist for these "BP spikes". All tests come back normal. No matter what the new medication is, nor how low my BP might stay for up to three days....the episodes still happen. My BP can go from a normal range too 200 systolic in a matter of less than 1/2 hr..........Has anyone else had spikes in their BP when coming off toprol. It has been 11 months since stopping this awful drug and I still I no answers....but I have a pile of medical bills.
-- By bjsand | Reply | (1) replies | Send Private Mail
May 29th
2008
3:00 AM
I started Metoprolol 6 months ago while in the ER. I was weak with a virus and every time I got up and did anything, my heart would race and would feel weaker. I have white coat syndrome so while I was in the ER my BP went up to 227/110. They gave me 25 mg of Toprol and a prescription for 12.5 mg a day. I have gained 17 lbs in 6 months, have zero energy, tired all the time, insomnia, and am depressed for the first time in my life,ad I know it has to be from the Metoprolol. I tried to quit it and 3 days later my heart was racing so bad and my blood pressure was real high. I want to try to quit it but am afraid to. Any suggestions on how to quit it?
-- By conniegragan | Reply | (1) replies | Send Private Mail
May 16th
2008
10:49 AM
I'm 29, have been on birth control pills for 10 years, and switched to Yasmin about 2 years ago. I a small varicose vein in my right within 2 months of switching, but didn't think a relationship between my vasculature and the pill existed. I can now trace the entire vein from my right hip to my ankle. In the 2 years since starting Yasmin, my ankles and lower legs swelled heavily...but at very random times. It often began at the start of the 7-day sugar pill regime and finished by the time I started a new pack. I assumed that the estrogen withdrawal going into the sugar pills was too much for my body to handle and that the diuretic effects of Yasmin were obviously absent during that time. I also noticed leg cramping, heart palpitations, and I started waking up in the occasional hot sweat in a drenched bed.
So, after making sure that my heart and kidneys were healthy, my gynecologist prescribed continuous hormone Yasmin and claimed it as the "ultimate solution". For 4 months, I have skipped the sugar pills for each pack and started new packages immediately. I have not had a period since, and the edema has continued (still at random) and has become exponentially worse. In the last few weeks alone, the vein in my right leg has become massive, my legs are so distended by the end of the days on which they swellI that I can't fit into pants which are otherwise loose, I am noticing other large veins "surfacing", little veins are breaking everywhere, and I can now see most of the blood vessels beneath the skin in both legs. My primary care physician told me I have chronic venous insufficiency...a diagnosis I'm not okay with. I'm very worried...the changes and ensuing damage have happened way too quickly to be venous insufficiency. I am going to ween myself off of the pill, but don't know what the next step should be. Endocrinologist? Another OB/GYN? Anyone have ideas or similar experiences to share....
-- By alpinekunst | Reply | (2) replies | Send Private Mail
May 6th
2008
5:32 AM
Hi ladies... I'm not surprised that you folks comprise most of the posting population considering the fact that this drug is prescribed to you. Well I'm quite interested in this drug and I do prescribe it to my patients however I am surprised at the magnitude of side effects listed here. I am based here in south-east Asia and I do prescribe Yasmin to my patients and I rarely here of these side effects. Perhaps this can be contributed to the fact that it (Yasmin) is available here under a different brand name however consists of the same chemical position. I am interested in the ones available in the U.S. Does anyone know how I may go about purchasing them. You can contact me personally on ****** thank you.
-- By slicvic169 | Reply | (1) replies | Send Private Mail
April 30th
2008
2:39 PM
I have had Hashi now since 2000, i got it when I was still in high school. They though that was rare that this would occur at such a young age. No one in my family had it, well not quite yet. I was the first to get diagnosed. My gyn mentioned that there is a link between autoimmune and preeclampsia. I had a terrible preg. I take synthroid now well the generic. And I do not feel much better at all. But people who use Armour should be careful. My endocrinologist strongly disapproved to this. It is Pig tyroid. This is from a site "The prevailing opinion is that everyone converts all the T4 needed into T3 automatically, and that drugs such as Armour and Thyrolar are outdated and old-fashioned at best." Also does not mention much on Hasimoto patients like myself. I would like to try it though to feel better. The side effects are higher as well. Esp long term.
Unfortantly, what works for one, does not always work for another person. So though some have problems with there synthroid others do not. Also it takes a while for you to notice a difference with this. IF you take it regularly at the same time and follow instructions on eating as well as not take it with vitC then you should be experiencing something. If not then you really need to get a new endocrinologist. Regular doctors are not made to deal with these issues, though they try, you need to see a specialist. Just remember that you know how you feel and if Synthroid is not working for out then change.
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (3) replies | Send Private Mail
April 15th
2008
9:23 PM
I've been on Synthroid for 8 months after gaining 10 pounds in two months. The symptoms started to appear when my Mom was very ill. Doctor said it was caused by stress and started me on 25 mcg of Synthroid. My reading at that time was 5.56. I had blood work done every 4 weeks,and the numbers are going down (1.8 last reading), but so is the quantity of my hair, which I see all over my white tile. My weight hasn't budged even though I am dieting. My doctor upped me to 100 mcgs. My blood work is not good - low white count, low lymphocytes, borderline anemic. Mom died, and I didn't get any better. I feel sick all the time and it's difficult for my husband to understand how bad I feel. I've tried to get my doctor to prescrive Armour, but he doesn't even return my phone calls. When I see him in the office, he keeps telling me it takes time. I hate living this way and want to stop the pills completely.
-- By tennis01 | Reply | (4) replies | Send Private Mail
Yasmin (29) Synthroid (15) Levoxyl (11) Mirena (6) Lipitor (5) PredniSONE (3) Kenalog (3) Toprol-XL (3) Singulair (2) NuvaRing (2) Januvia (2) Atenolol (1) Lantus (1) Gardasil (1) Advair Diskus (1) Methimazole (1) Diovan (1) Levaquin (1) Topamax (1) Wellbutrin (1) Omeprazole (1) Lisinopril (1) Prometrium (1) Armour Thyroid (1) Advair HFA (1)
October 1th
2008
1:09 AM
I am so glad I found this web site!
Let me start by saying I am a 42 year old female paramedic, so I am not big on taking ANY medications, period! My endocrinologist has been after me for 1 1/2 years to start taking 10mg Lisinopril to protect my kidneys since I am a type II diabetic, and now because of my elevated B/P and the fact that my last set of labs showed a increase of protein, something to do with the kidneys. I have resisted taking the medication, in hopes I would lose some weight and get my B/P down. But due to an injury, exercise has not been an option for me and now that I need a surgery, I had to break down and start the Lisinopril ( the doctor will not be able to operate if my B/P is elevated).
I started the drug 10 days ago, and at first was happy I did not seem to have any of the side effects that I read about. I had researched what I could find at the time, and even talked to my pharmacist about it, since he takes it as well.
After a few days, I saw an occasional drop in my systolic pressure, down in to the 120's from the 140's/ 150's, and not much of a diastolic drop, maybe, down to 90 from 94-100. I did notice my pressure would be high if I had been moving around before checking it, and I was disturbed to find that my pulse was now on occasion running around 104 after only walking through my house to my room where my B/P monitor is. My pulse never runs that high unless I have been very active. A few nights ago, I woke up and turned over in bed, and noticed my heart felt like it was fast ( tachycardia) and this happened more than one night. I decided I was going to discuss this with my doctor this week, until what happened today. I went for an MRI on my neck, and noticed I was anxious when they put me in the tube. I felt like I was breathing heavy and figured maybe I was just nervous. Then tonight I had an acute onset of anxiety, and just felt bad all over. I had some numbness on the left cheek and other symptoms that I knew had to be from the Lisinopril, so I got online and started looking for more info, and found this site.
I can absolutely believe everything I have read here. I have taken so many patients to the hospital in my career just because they were having side effects from a medication they were taking. And that is exactly why I did not want to take this or any other medication unless I was forced to.
I am not taking this stuff again, and calling my doctor first thing in the morning. In fact, I am going to tell her that I want my cardiologist to handle my hypertension medication from now on.
I must say to EVERYONE who reads this, please, do not just take ANY medication just because a doctor gives it to you. Research all you can, ask questions, and if the doctor does not want to answer you or tries to make you feel crazy or stupid, CHANGE DR.'S!!!!! I have seen way too many bad doctors out there, and I have seen some outright kill patients. I am not saying not to trust anyone, just be very careful, and follow your instincts. I am very happy to have found this site, and I hope it helps others that read all the posts here. If I get any good info from my doctors, I will let you know.
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