Endocrinologists symptoms and conditions

Hi everyone, I have just read all thirty pages of posts to try to find some answers to my crazy reaction to prednisone. My thoughts are with you all since I have had an usually severe reaction to prednisone. I was on prednisone for 1 week in October 2008 at 60 mg/day for a sinus surgery. I am still having the following side effects at full force:

Axiety to the point I can't socialize
mood swings
hot/sweating even in freezing weather
whole body shakes
severe migraines
tooth sensitivity
muscle pains
extreme thirst (I drink almost 2 gallons/day)
hungry all the time
moon face
water retention around waist
acne
hair loss
rapid heart rate
dizziness
nightmares
night sweats
high blood pressure
high hear rate

I'm not exaggerating, my parent's can contend to that. I do have a history of having sever reactions to medication and I've had all the gland and blood tests which all check out. I never had a single one of these before the prednisone - I was a healthy 22 year old.

I was wondering if any could tell me when this hell will end - my job and well-being depends on it!

My hair loss actually started 10 years ago with the advent of menopause. It was less an issue of hair loss but that my hair started to grow in baby fine. With that came a depression. A hormone implant helped. Later, celexa and then lexapro helped particularly with the symptoms of irritable bladder. Other symptoms that started 10 years ago included a slowing pulse rate, lower body temp, lost my eyebrows on the sides, etc. I was bounced between cardiologists and endocrinologists -- blaming a marginally low thyroid. An MD, alternative doctor, blamed mercury which did not abate with two separate rounds of IV chelation. Finally, my heart slowed into the 30s and the exhaustion was extreme. Got a pacemaker which helped but did not cure the exhaustion. Sleep apnea study showed a sleep disorder but no apnea. I am on thyroid meds (125 mg.), mycardis, and .75 patch of estrogen. Wellbutrin 150 mg was added about 6 months ago and that helped tremendously with the tiredness. It was great but I finally noticed that I could see my scalp -- my hair had thinned that much with that low dose. I went to various doctors (including a dermatologist) who never mentioned the connection with any of my meds. They could not tug hair out of my head and suggested a genetic problem (the women in my family have big heads of hair until they die in their 90s). Finally a physician friend in Florida suggested that Wellbutrin might be the problem. I am off of it and tired. Too soon to see if the hair loss is getting better. I just want the loss to stop and to start regrowing my hair. Suggestions? A new doc recommended Provigil for exhaustion but there is some hair loss with that noted on the blogs. I have been taking a b complex, biotin, minerals, a vitamin for hair, zinc, D, MSM -- a handful of supplements. I need something for energy (I am a college professor of graduate students) but will not put my hair at risk. I am lost in all the information about how to stop hair loss and help my hair grow out.

I am 25 and I have endometriosis, and every side effect of yasmin that you all have is what i have been experiencing with endometriosis, the only difference is that i have a perfectly normal cycle, its either 28 - 30 days no more no less but still i'm not getting pregnant. I started taking Yasmin about a week ago and to date i have no symptoms. I think what happens is that we search online for information about these medication and what we read freaks us out and we start making our bodies believe that we have these symptoms, in-fact we are constantly looking out for these symptoms. when i read up on endometriosis i wanted to become pregnant so bad for the first time and i would make my self feel pregnant because i would go to these endo forums and read peoples symptoms who got pregnant with endo and i would find myself looking for those symptoms and then my body tricks me into thinking i have all the symptoms they describe on the endo sites and at the end of the 28 days my period arrives in full force as usual. but i schedule my self to take yasmin around my lunch time where i guarantee i will have a bite and i notice that with any pills if you do not eat while taking it, it can cause nausea, headaches. I know that it is very possible for people to get side effects from these medications, but i think we need to relax a little and take our minds off them and put our trust in God and let him take charge, pray everyday, and i don't mean pray for your problems, i mean give God thanks everyday for what he has done in your life and for waking you up because God already knows your problems, he just wants you to show acknowledgement for all he has done. This is the path that i am trying to take to overcome my endometriosis and just hope that one day he will look deep in my soul and help me and women just like me with menstrual issues, and help me and my husband to concieve our first child. the only side effect i am looking forward to while on Yasmin is falling pregnant at some point (you know how some people mistakingly fall pregnant on BCP's well i am looking forward to that) (smile)

Through relentless pursuits in trying to stop my hairloss, tiredness, inability to lose weight and increase metabolism, my doctor agreed to allow me for 6 months to take a natural T3 supplement from a local apothecary. I FELT GREAT. The hair loss and tiredness stopped. However my body temperature still was low. 6 months later I agreed to a blood test and the "numbers" revealed I was out balance. Mr Dr. would not OK another Rx for the T3 supplement. Now that a few months have passed, again the hair loss and tiredness is returning. I am going to transfer to a Dr. who supports the T3 supplement. Did you know that there is no T3 in synthroid. However Armour has both T3 and T4.
There is a syndrome called Wilson's Temperature Syndrome. Search it out. A small group of endocrinologists are treating the body temperature (symptoms) rather than the numbers.

I was born without a thyroid gland so I can't compare the way I feel now to the way I would've felt with a thyroid. I've been on Synthroid my entire life (22 years), and I'm up to 112 mcg now. I am very skinny (5'5", 104 lbs) and feel constantly fatigued no matter how many hours I sleep, what I eat, and how much exercise I get. I periodically get pain in my hip joints, heart palpitations, and intense mood swings. My thoughts race but I have very little physical energy. I feel restless and gloomy almost all the time for absolutely no good reason. My doctor tells me I'm depressed but I honestly have no reason to be depressed and I wish she would see it as a symptom instead of a diagnosis. I graduated from a good college, I've got a job I like, I have friends, I enjoy life and my hobbies, yet I feel overwhelmingly sad. This does not seem like depression to me.

I find that after I do aerobics I get a tightness in my chest, which makes me worry about my heart, but again my doctor doesn't seem to think this is cause for concern. I have been irritable/fatigued for YEARS and I suspect I'll feel this way for the rest of my life. The worst of it started when I hit 16 years old and started the 112 mcg. My tests are always normal and it frustrates me that my doctor disregards my symptoms. I've tried other doctors, but they always send me away with my 'normal' test results. Can anybody help?

I am so glad I found this site! Start on Levothroid 100mcg 3 weeks 2 days ago. 1st day - Felt fine... 2nd day - horrible headache starting over my eyes going straight to the base of my head. 800mgs of ibuprofen to dull the pain, never stopped, just dulled. I was lethargic and slept for about 3/4 of the day. Day 3 - same issues. Day 4 - I did not take, felt better but still exhusted. Day 5 - 19, 50mcg of Levothroid: still felt very tired, but mainly I was becoming more and more aggrivated by little things... Things that had never bothered me before! I would think about smacking people or popping them upside the head for stupid reasons. I was getting so upset for nothing - all the time. Day 20, stopped for the day. Day 21, took 25mcg... boy I felt so much better. No where near as cranky! Endocrinologists claimed the meds weren't the problem. Saw my G.P. on day 21, he agreed the Levothroid dose was way too high and prescribed me the 25mcg for now. Says in a couple of weeks go up to 50mcg and see how I do. Thank goodness!

I took Leukeran for approximately 7 months in addition to Prednisone. This was 20 years ago and several of my doctors believed this put my autoimmune condition in remission. At least for 18 years it was in remission. Three endocrinologists believed my hyperthyroidism was the result of my taking Leukeran, not to mention, it also threw me into menopause at age 31. Currently, I just went back on Leukeran, in addition to being on Medrol for the past 3 months. They have tried every other medication that has not worked so well in the past 3 years with many set backs of my autoimmune problem - finally they have come back to Leukeran, which personally I'm hopeful will retain my hearing. My doctors here did not want to put me on Leukeran since they said it is too toxic. (Is there a drug that isn't toxic?)

It appears that many of the medications I have had to take (anti-cancer drugs) can cause secondary cancers. I suppose one has to outweigh the risks and what one has. In some medications, the benefit outweighs the risk.