February 22th
2008
10:27 PM
I was on Entocort and I have such bad anxiety, racing heart, that the doctor has put me on anti-anxiety medicine just so I can function and had to stop Entocort cold turkey due to side effects. Also they took me off Entocort because colonoscopy showed no crohns or colitis.
-- By ilovemarc1 | Reply | Private Message me
January 19th
2008
5:35 PM
I am 25 and I have a severe case of Ulcerative Colitis. I have been taking Prednisone for about ten months, about as soon as my little daughter was born I started taking it, and I have gained about fifty pounds. I am so depressed because before I was pregnant I had just lost a whole bunch of weight and was very happy and healthy, and had just gotten married before I became pregnant. Things were going great. Now I don't even want to leave my house because I don't want people to see me. I feel like a balloon. If I am able to stop the medication, will the weight gain stop and will some of the weight I have gained go away on its own or am I going to have to get working on a fitness plan again, because I am still pretty ill and it is difficult for me to work out. Help! I am so frustrated and I don't know what to do.
-- By agntorang1 | Reply | (1) replies | Private Message me
January 3th
2008
10:40 PM
I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.
QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?
Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!
-- By tesa | Reply | (4) replies | Private Message me
September 13th
2007
9:47 AM
Hi, I was on Prednisone for a little over a month for Crohn's disease. I had minor side effects while taking it: couldn't sleep, no patience, dehydrated, dry eyes. It is the side effects from AFTER stopping prednisone that concern me. I''ve been off Prednisone for 3 weeks and I think I am losing my hair and getting acne-that I didn't have before or during taking Prednisone. Anyone experience side effects that started after stopping the med?
-- By strowmc | Reply | (5) replies | Private Message me
February 22th
2008
10:41 PM
I was on Entocort and experienced terrible anxiety, racing of my heart, and would cry at anything. Doctor took me off Entocort cold turkey and put me on anti-anxiety medication which is not really helping. Another reason he took me off Entocort is that i had colonoscopy it showed that I did not have crohn's and colitis like they thought I had. What I was wondering is how long after stopping Entocort will my anxiety and racing heart go away does anybody know. I was on it for 4 weeks.
-- By ilovemarc1 | Reply | (1) replies | Private Message me