Eosinophilic esophagitis symptoms and conditions

My 3 yr old son has been taking Singular for about 1 1/2 years. He has been diagnosed with eosinophilic esophagitis. That dx came after an upper endoscopy. From about 10 months until starting Singular he vomited after every meal. Eventually had failure to thrive. He was on the Singular about 1 wk when he stopped vomiting. I am scared to take him off this med because it seems to work for him (with decreasing the vomiting). It doesn't actually decrease the eosinophils in his esophagus but somehow stops him from vomiting.He is a more difficult child but it is all we have really ever known from him. By difficult I mean- overly emotional, has trouble controlling impulses, occasionally mean. Does anyone have insight?

My daughter, who is eleven, now, was on singulair for about 5 years. She has been having a number of problems for a while now, but we never thought about it being the singulair until recently. She was having anxiety problems, tremors, being very argumentative, irritable, angry, depressed, pulling her hair out, (trichotillomania). I started doing research on her meds. (Zyrtec & Singulair) and was shocked to find so many other people were having these same symptoms, including several with the hair pulling. I took her to her allergy doctor and just told him I wanted to change her meds. and that I didn't care if they say these are "not" side effects. It was worth trying to see if things would get better. Well, she has been off the Singulair for about a month and half, and I am happy to report her hair is growing back, and she says she feels happy again. It breaks my heart to know that medicine that we had been giving her for so long was doing this to her. I also have decided a few days ago to take her off the Zyrtec after reading a lot of the same symptoms for it on this website.

I started taking Singulair several years ago and it did wonders for my asthma. I did not see the connection for a long time, but I had really bad rages and mood swings. It was terrible. I just thought I was being very hormonal or stressed out from work or something. I became pregnant with my daughter and I stopped taking the med. Unfortunately my asthma got really bad about 5 months into it and my oxygen stats were getting to the point where I had to get back on it. My doctor said it was safe. Maybe it's just coicidence but my baby was extremely active in the womb. She was born and I nursed her for 6 mos. She was very irritable and high needs and had a hard time getting settled. She is now 6 years old. She has always been very emotional, lacks some impulse control, and is still very high needs and defiant. It is getting better with age somewhat. I took her to a psychologist and my daughter was found to be very intelligent but had autistic like qualities at times. She does not have true autism. She also had sensory processing problems that are getting better with time. I also continued to have the spells of anger and sarcasm. I never took it out on my daughter but I did take it out on my husband. I was also depressed but not clinically depressed and suffered from back pain constantly.

I became pregnant with my second daughter and I went into preterm labor with her about halfway into the pregnancy. The medicine I was given to stop the labor contractions was an older asthma med, so I got off Singulair at that time. My mood lifted but I did not get the connection. I just figured it was bedrest and being more rested in general. When I had her I went back on the Singulair. I had more anger, mood swings, etc. Was just not a happy person even though I *wanted* to be happy. My daughter was born with severel food intolerances and ended up on a stomach feeding tube. She has eosinophilic esophagitis, a rare condition where the body recognizes all or most foods as allergens and there is inflammation of the esophagus. She cannot eat any foods now at all, just her special medical food. She is 3.

I stopped taking the Singulair about a year ago. I have felt myself lifted up and I feel like a new person. I decided to start a new career and am taking classes. I have more energy, sleep better, no back pain, and am a better wife and mother. I only fear that my children may have been harmed from me taking this during pregnancy. I am especially worried about my first daugher's mood swings and such. She is a very intense person. I wonder if her developing brain was affected somehow. She acts like I acted on Singulair but there is no easy cure for her of taking her off of it. My second daughter has the severe allergic condition. I wonder if somehow the Singulair affected her immune system response. The disease that she has is emergent and new and increasing in number all the time. I would love to see a study on what their moms took in pregnancy, because the disease seems to happen in families where there is a history of asthma/allergies.