October 22th
2009
2:14 PM
This is further to what I has posted here below on the 16th of October.(you may look at it for symptoms). My dad passed away last night. The doctors had administered steroids to him saying it is the only solution to healing him out of this in order to save his eyesight.I am crying to myself now remembering how he suffered those last 10 days of his life due to this drug. He had never experienced anything more horrible in suffering like this during his life. His death report says, cause of death: Steven Johnson's Syndrome.
-- By trustinthelord | Reply | (1) replies | Private Message me
October 6th
2009
12:08 AM
Googled and found this site. Could not believe all that I read! I've been taking Lamictal for several years for Bi-Polar disorder. I also have GAD for which I control with another drug BUT...I guess it's been so long since I began taking Lamictal that I had forgotten, or did I ever even know, the side effects of it. First if all, the memory loss is incredible! Not being able to complete a sentence...never able to find a "word" that should be so simple to remember...going somewhere and within 2 seconds, forgetting what in the world I'm doing or where I'm going...happened today TWICE!
And to top it all off, my eyes are so bad...I didn't even attribute the L to this until I came to this site but it makes PERFECT sense! I feel such a sense of loss in my eyesight that it has begun to really scare me. I have not been to eye doc yet but plan too.
Also, someone mentioned in here that they feel the med just wears off before next dosage and that is exactly what I've been telling my doctor so at first, we just upped the dosage until I was on 450mg a day but even the, it still was not working. SO...now I'm decreasing and the doc added Depakote Er 250mg. But doc says I have to be almost completely off L to get fully on D. So...feel like crap a lot of the time!!
I'm like someone else on here who said, "just start fresh" and that is what I'd like to do but how do you go "cold turkey"? I know it isn't good! Even decreasing this L for the last several months has been hell!
I have been on a roller coaster of meds for 10 yrs. Have yet to find the "combo" that works! Sometimes I wonder if the diagnosis of BP was/is even correct.
Another person in here said he feels like he may have some side effects of OCD and I feel that way too. Nothing major but...enough for me to notice.
Damned either way, right?
One thing I DO KNOW is that I cannot take this eye problem anymore and now that I know my memory and all that other stuff has to do with L, I'm getting off it no matter what! I'm calling my doc tomorrow and we HAVE TO MAKE A PLAN!!!!!!!
I'm only 42 but my memory is that of an 80-yr old (except for my grandmother who died at 96 and could remember details of when she was 4 yrs old...lol) I guess it's good I can kinda laugh at all this but I DEF know it is not funny!!!
Anybody out there with insight to diff. meds...combo of meds?? I really am worn out!!
Right now, I am down to 375 mg of L and this has taken me several months now to decrease from 450mg...don't see the D working that well yet but it's only 250mg so...
I really am worn out!! My anxiety shoots through the roof bc of all of this! Esp. when I feel the L wearing off around 5p or so...
I'm game for any advice ( I did see where the one woman talked about changing the time you take this in the morning but that won't work for me)
Thanks!!
September 22th
2009
4:01 PM
Just so you all know this, clonidine is used by sleep researchers to destroy REM sleep in lab rats. I gather that for some folks sleep does not become an issue, but I didn't sleep more than two full nights during the entire 9 months or so I took this filth. On average, I only got 2-3 hours, which was devastating. I also had perpetual sinus congestion, the worst I could imagine. And my eyesight was compromised. Everything got better, dramatically, when I was eased off this drug (my eyesight, however, has never returned to the 20/20 I had before, and in fact is pretty mediocre now). However, don't try going off this drug on your own, or fast. You must EASE off it over a period of weeks or more, else you could have a potentially fatal BP rebound into hypertensive crisis.
-- By pdxwriter | Reply | Private Message me
September 22th
2009
3:50 PM
Hi all.
I just discovered this website, and reading all these comments makes me want to comment also. I, too, am on Lisinopril and am suffering many of the side effects mentioned here.
I'm a 54-year old male, and have had high blood pressure since around 1998-99. Nothing really controls it, although I've had episodic success from time to time. I lost a lot of my hearing last year due to a BP-related disorder called "hydrops" (my right ear particularly), and my eyesight has declined from 20/20 to "mediocre" in record time (although it's been largely stable now for 5 years).
Really, everything bad started when the medications began in 2002. For example, I now have Type II diabetes, almost certainly as a result of the diuretic I was prescribed from 2002-2007. I could also tell horror stories about clonidine, Toprol, Accupril, and others.
Latest event: I ended up in the hospital ER last Wednesday for what seemed like a minor stroke. I am now suspecting the Lisinopril because the symptoms so mimic much of what folks describe here. I've never had the bad cough, but the joint aches are awful. As for the stroke (actually, a TIA -- Transient Ischemic Attack) -- we'll know for sure after the MRI tomorrow, but my regular doc and the neurologist suspect it was NOT a TIA. Then I see descriptions here of tingling, neuralgia, and other symptoms identical to what happened to me!
Sadly, I don't have any simple answers to share. I've tried to cut all sodium from my diet, and I know that's helped. I am now trying a device called the Zona Plus (******), some $300 but possibly worth it. I used it for 90 days in 2007, then gave up and went to a no-salt diet ... and my BP dropped like a stone. I thought diet would do it all, but I was wrong. I should have continued using the Zona. So now I've started a new trial of it. We'll see what 60-90 days on it PLUS a low-sodium diet can do.
There's another device called the Resperate which is also kind of spendy. Anyone tried it and had success?
I'll be seeing my doctor this week or early next, and asking him to get me off the Lisinopril. But what to replace it with? Any ideas will be welcome.
-- By pdxwriter | Reply | Private Message me
September 2th
2009
10:35 PM
I never thought I would ever be posting my experience with BC but I think this could be useful to other women worldwide. I have been using Yasmin now for a year and a half and I agree with everyone here at the beginning I felt great, beautiful skin, controlled short term periods, stable weight. My body changed in all the right places. My breast turned a cup larger (I was a 34B) my buttocks got larger and rounder. My boyfriend was enjoying the changes as much as I was!! I thought this was the perfect pill for me and I actually recommend it to all my friends. Things started changing for me about three months ago. I started to feel tired, I use to work out 5 times a week now I can't even work out one. My eyesight started to change, I started getting cramps in my legs at night, my legs started feeling heavy as if I was losing circulation, fast heartbeat, and the occasional migraine to top it all of. Then I found the commercial about the lawsuit on TV and I panicked!! I googled the lawsuit and I found this websi
te and after reading everything here I went straight to my Dr. this afternoon with all my side effects. I am 39 now 18 on diferent types of BC and up until now I have been a very healthy and active person. When I read everything here I was decided to get off thie pill inmediately. But here goes what my Dr. said: (I trust his opinons because he is a friend and has been my obgyn for the last 15 years) " first Yasmin is the best hormone BC on the market, very women has different side effects and giving me another pill wouldn't solve my problem. I could actually get worse. He gave my the option of going of the pills but asked me if I was ready for all the changes that would bring. Weight gain, acne, anxiety, depression etc. Another option he suggested I try was taking an antioxidant complex, omega 3, and lecithin. All natural supplements which he firmly believes will make me feel much better, help my circulation, and minimize the side effects. I will start this treatment tomorrow and stay on the Yazmin for at least another month. PS. My health is in perfect conditions after blood tests and sonograms. thank God!! I will keep everyone posted on my progress. And I hope this is useful to all you ladies. God bless!
-- By laurita | Reply | (1) replies | Private Message me
August 10th
2009
2:12 AM
I am 24 years old. I started using the Nuvaring about 9 months ago, back in November shortly after my youngest son was born. In January, only two months after starting it, I was beginning to have severe stomach pains and a lot of nausea that would come and go throughout the day. I went into the emergency room one night because it got so bad and they told me that I was going to have to have my gallbladder removed due to large stones. I'm trying to figure out whether anyone else has had any similar issues with the ring. I have read here and there that gallbladder disease is a side effect but I also have issues with it in my family. Has anyone else had a problem with this? I have also dealt with a lot of depression, headaches, slight weight gain, mood changes (just as bad, if not worse then while I was pregnant) and I am going to have to schedule an eye exam because it seems like the past few months, my eye sight has just gone down hill fast. I have never had to wear glasses or contacts.
Has anyone else out there had issues with their gallbladder and eyesight? Most of the posts that I see are saying issues with hair loss and depression. I am seriously thinking about talking to my doctor about changing methods, I was just wondering if there are people having symptoms like mine or whether I need to attribute them to something else. Any information would be helpful, Thanks.
-- By shastavie | Reply | (2) replies | Private Message me
July 29th
2009
12:44 AM
My boyfriend was prescribed sulfameth (10 days/ 2x) for these bumps that appeared on his arms and legs and would appear anywhere that he would scratch. Within 5 minutes of taking the first dosage in the evening, his eyesight became blurry. He had a severe headache that night, chills and a high fever that lasted through the night. He took 2 ibuprofen pills but they didn't help. He couldn't get to sleep the entire night. He also became even more itchy than before he took the sulfameth. He couldn't move due to muscle pain and fatigue. His fever was still there by the time i got there at 7 in the morning and he was shaking uncontrollably. His heart rate was up. It looked to me that more bumps appeared on his body and some became a dark purple blotch, like a bruise. His fever broke around noon and stayed away for a couple of hours but it returned. His skin started to peel after his fever returned. At first i noticed it was on his nose and ear but i didn't think much of it since i didn't see it anywhere else. An hour later he texted me and said his whole body started peeling as if he had sun burn. His temperature is still slightly raised after over 24 hours.
I refused to give him the second dosage of sulfameth that morning and proceeded to call the doctor who had prescribed it. All she said was that he needed to come back in. No way in hell was i bringing him back there. She didn't even look at him for literally a minute and prescribed this crap. She said nothing of the side effects. There was no warning. Even though i looked it up before he took it, I didn't think it would be this bad.
July 13th
2009
6:07 PM
Ugh, this has to be the worst medicine I have EVER been on. I was having anxiety attacks that occurred every evening and lasted for hours. Hot flash, nauseousness, inability to concentrate, thought I was going crazy.........
they started after my mom went in for open heart surgery in Nov of 2008. They put me on Xanax for attacks, and Clonazepam (double ugh), and I didn't take Effexor for a while, but my aunt convinced me to do it as I wasn't doing much better.
The thing is I'd been having issues with fatigue, heart palpitations, facial hair, etc. for several months to years and the doctors ran blood work and said everything was fine........
With the clonazepam and effexor I didn't have mood swings so much, but it was because I spent 16-20 hours a day in bed. When I first started the effexor I was told that the side effects go away after your body adjusts, and as it was the fourth or fifth anti-depressant I tried I figured I would suffer through. I lost 40 pounds (as I was/am overweight it was a good side effect in some ways) in a matter of 6 weeks, lost my appetite to the point that when I realized that I needed to do something about it I had to force myself to eat 1/2 piece of toast a day, slowing eating more...........I went several weeks only able to eat an average of 500 calories a day. I was so nauseous all the time. I was pretty much having a break down. I would only be "functioning" for 2-6 hours a day.
After going to the ER because my muscles began shaking while standing or trying to climb stairs (I'm only 28), having racing heart beats which they just prescribed more medication for, absolutely no energy, my hair falling out by the handfuls, I would wake up with it on my pillow............could not concentrate for the life of me, falling behind in school work (back to school mom), unable to do papers because I couldn't think.............
They finally tested my thyroid (runs in the family, have been telling them it sounded like my thyroid from the beginning........) my levels were finally off the charts, my TSH wasn't even registering. I was diagnosed with Graves disease........which can cause the panic attacks that they put me on the medication for in the first place.
As I figured it was probably the Graves, I tried weaning off my meds, only to feel as though I was going nuts and going to die............... I cut my clonazepam and effexor dosages in half, and within 2 days I could concentrate, and within a couple weeks I could go up and down the stairs again.............
Even now it is hard to say how much of my issues were caused by the Graves and how much was due to the Effexor combined with the Clonazepam. I was able to wean of the Clonazepam within 6 weeks by cutting my dosage in quarters every two weeks, but NOT the Effexor. I tried cut it and started having panic attacks, couldn't think, major migraines, and bed ridden........so I had to reduce it even slower.
Once I got down to half a dose, all of my symptoms went away except the fatigue. That is why I associate a lot of it with Effexor and NOT the Graves, because the symptoms did not go away until I reduced the drugs. I am now finally free of Effexor for about a month, and it was a hard road. It took me six months. I still have some issues with concentration and the occasional panic attack, but they are very minimal. I have read that this could be due to either both or one of the drugs I was on as it can take a year or more for your body to adjust.
Anyhoo, I wonder if the medication didn't trigger the Graves, or what.............but I would NEVER EVER suggest this medication to anyone.
I have gained most of the weight I lost back........but that is to be expected since my metabolism probably hit rock bottom not eating anything but toast for weeks.......
Anyhoo, I really wish that Doctors would tell you what could happen before giving you a drug. At least then when you start having these symptoms you know where and why...........rather then going in, and them having no idea?!?!?!? Funny, as if you search online you see lists that match exactly what you are going through.
I am now VERY leery about taking any meds at all, including Tylenol.
-- By plainome | Reply | (1) replies | Private Message me
June 6th
2009
1:34 PM
Three and a half years ago i suffered a heart attack, i had three stents put in and was put on Aspirin 75mg, Cardicor, 1.25mg, Tritace 5mg and Lipitor 80mg. I was fairly fit at the time, didn't drink or smoke and ate properly.
But now i'm suffering, i've been to the hospital and my GP, but are told there is nothing wrong, my hear tis good. So why am i suffering with light headedness, pains through my body, back, neck, chest, stomach. So much so i thought i had gall stones or kidney stones. My right knee can't be touched, it is so sore. Chest heaviness, eyesight getting worse, slurred speech, depression i could go on.
I've said this to my doctor, he just brushes it off and says i'm on them for life, ....apparently standard treatment for anyone who's had a heart attack. I walk 5 miles a day, eat 5 or more fruit and veg, don't smoke or drink, do all what i'm meant to. My cholesterol is really low, but so is the HDL too. I was never recommended CoQ10 or a vitamin B complex.
It was my mother who told me to research the side effects of all the meds i'm on. I agree, we all want to live a long and healthy life, but at what cost. I am now of the opinion that doctor's are so use to thinking they are near god like, they have forgotten that we are individuals, that we know our own bodies. I'm sick of the fact that the large pharmaceutical companies send out there sales reps to doctor's surgeries and that is what is deciding what the patients end up taking and not the patient's problem.
DOCTOR'S WAKE UP TREAT THE CAUSE NOT THE SYMPTOMS!!!!!!!
-- By dorset | Reply | (7) replies | Private Message me
May 18th
2009
2:10 PM
My symptoms started with aches in my ankles and I thought I should stop wearing heals for a while. But then the tingling pain moved up into my lower legs and then my arms/wrists over a period of a few days. I felt like I was having constant shin-splints. I was heavy joint/muscle pains. Then the back of my head hurt really bad on the left side, just at the top of my neck/bottom of my head, and was also really sore to the touch. Then massive headaches. Probably migraines, although I have never had them before. My MD immediately put me on celebrex, which did nothing. I was eating Advil and Tylenol like candy and couldn’t sleep. So the doc put me on steroids (prednisone). That took the pain away. After a few days, while at work, the vision in my left eye went in and out (perfect vision to completely gone). I have never had any issue with my eyesight before - perfect vision. Then at one point (actually while I was in for my first MRI) my vision never came back. No one thought it was serious enough until I demanded to go to the hospital. I spent three days in the hospital, where they ran tests after tests (including MRI, Lumbar Puncture, blood work, neurological tests, echogardiogram, dobblers, etc). Upon leaving the hospital actually diagnosed me with Optic Neurosis, and gave me a 15% chance of getting MS later in life. We were all relieved it was not MS, like they originally suspected. After going to the Eye Dr, they told me that was not the case. This kind of eye stuff only happens to people in their 80’s! I will never regain my vision. If my diagnosis had been optic neurosis, it would not explain the joint pain. I have seen specialist after specialist over the last two months, and they still have no idea. Every test I have undergone has come back clear and I am perfectly healthy. My doc said we might have to go with the retinal specialists theory - which was a piece of cholesterol that clogged the artery in my eye. I just don’t get why a piece of cholesterol would have caused me so much pain over the rest of my body. After viewing this site and the Mirena pamphlet that I found online they give to the doctors, I really think it was the cause. The packet even notes, if you have symptoms like visual loss and headaches/migraines for the first time, to remove it immediately! I did not get mine removed until a month after my vision loss. Every doc I have seen I have asked if it was Mirena and not one of them thinks that could be the cause. But it is ironic, that when you see someone for the first time, the first question they ask is if you are on birth control or any other medications! I think I need to show them this site, so they can read other women’s symptoms. I did also have all the other symptoms as well - weight gain, irritable, oily skin, cramps, moodiness, vaginal odor, gross discharge, headaches, nausea, low sex drive, hot flashes, anxiety, restlessness at times, fatigue, and the list could really go on and on.
-- By trlee | Reply | (2) replies | Private Message me
May 16th
2009
7:52 PM
Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!
I wish all of you the BEST! Prayers for all of you.....
-- By shellfulton | Reply | (1) replies | Private Message me
May 4th
2009
10:38 PM
My 90 year old, very mentally sound, grandmother was admitted to the hospital 2 days ago after complaining of severe pain in her back. While in the emergency room, after being diagnosed with a pinched nerve, her blood pressure rose and the staff doctor decided to admit her and put her on this horrible drug! He started her out with 100mg 2 times a day. My grandmother went from her usual calm perfectly sane self to a combative, babbling, lunatic within 6 hours of her first dose! It scared my aunt so bad that she started calling everyone to come say goodbye while there was still a chance that grandma would recognize us! I just knew that there was no way my completely lucid grandmother could go into dementia overnight so I told her to find out if the doctors had administered a new medication since they admitted her. They had and it was toprol XL. The stupid doctor tried to tell us that her behavior was related to a very low dose of prednisone that she taking for 2 years. We immediately demanded that the toprol be stopped and within 8 hours she started to return to us. She had spastic tremors, severe dementia, hallucinations, shallow breathing, agitation(went from laughing to combative in the space of 10 minutes!), dehydration, very frequent urination, extreme mood swings, brain fog/confusion, eyesight and hearing loss, her tongue swelled up, and her eyes were rolling back. It has been 36 hours since her last 100 mg dose and she is still fading in and out. We pulled her out of the hospital and brought her home today where the side effects have decreased but continue none the less. Since 11 this morning she has had bouts of not recognizing her own home and asking us to do things like take things out of the oven that she said she put in it, which of course she had not. I am praying to God that this medicine does not leave permanent damage. My grandmother is an unusual case for mental soundness at her age and it would be so unfair for that to be stolen away from her because of some stupid medicine that she was not only forced to take but over dosed with as well! DO NOT TAKE THIS MEDICINE WITHOUT RESEARCHING IT THOROUGHLY!
-- By vgreiser | Reply | Private Message me
March 27th
2009
3:59 PM
I'm 46 and have been taking Advair for 7 years and I'm amazed at all of the side effects I've noticed of Advair that I've never had before. Asthma aside, I've always been healthy, moderately active and eat healthy yet noticed over the last couple of years I constantly feel like a puff ball from water retention and bloating - it's awful. My eyesight is worse, blurry and dry eyes. Constant muscle and joint pain, occasional dizziness and lightheadness, mood swings, just about everything . I've also noticed a decrease in libido and an increase in blood pressure. Does anyone have experience with a better replacement for it that I can discuss with my physician that does not cause any additional side effects from switching from Advair to a different long-term inhaler?
-- By kmc813 | Reply | Private Message me
March 14th
2009
9:52 PM
I posted a few times around the 9th of February. That was the day that I removed my Mirena myself. I was told it was easy to remove, just squat reach up and grab the strings and pull it out. I did it and I'm soooo glad I did. It took about two weeks to recover. I had all sorts of mood swings, and I guess you'd call it a hormone crash. I was a wreck. I am now I month Mirena free. I don't have any of the outbursts and mood swings I was having. I am still experiencing the strange fluttering in my stomach that feel like a baby moving. My knee pain took about 3 weeks to go away but I only feel it every once in a while now. My eyesight is actually a bit better now. It had definitely gotten worse after about 5 months with the Mirena. ( I only had it put in July of 08) The cramping and sharp pains are gone. The odor is gone. The headaches disappeared about 2 weeks after I took it out. I don't have the nausea, dizziness, or memory issues at all anymore. My only issue now is all the weight I put on. I am still experiencing cravings. After I had my baby in June I lost a lot of weight really fast. I am normally in about a size 8 pants. At Christmas time I was at a 10 and now I'm a 12 pushing 14!! I feel so awful! I am a very active mother of 4. I am wondering if anyone out there that has removed their Mirena has had trouble losing the weight afterward. If you're considering the Mirena research very carefully. I regret my decision so much! My body is still recovering, and who knows how long those kinds of hormones will be messing with my body. I am just glad I found this sight and realized my mistake when I did!!!
-- By amyhilton | Reply | (2) replies | Private Message me
March 8th
2009
10:49 PM
I've been on Lisinopril 20mg for a week now. I have been having the hoarseness, leg cramps, tired (no energy), getting no sleep, and cough. But what worries me most is my blood pressure has dropped to what I think is TO LOW, (example: 87/60, 90/58, 96/66 89/68. I called my dr. 2 days ago and explained my concerns. They told me to cut my 20mg pill in half and we will decide what to do at my next appt. which is in a few days. Even after cutting the pill in half, my bp is still running 96/67, 98/66. Should I demand to be taken off the Lisinopril and be put on a different medication?
-- By marelange1 | Reply | (5) replies | Private Message me
February 26th
2009
5:35 PM
I got my Mirena removed two weeks ago after seven years of carrying it around in my uterus. I had horribly painful periods before (like vomiting and fainting from the pain horrible), so I was glad to be rid of that.
What I'm not glad about, however, is the thick black BEARD HAIR that I've developed (which returned after expensive laser treatments), losing about a quarter of my previously thick hair (now I have to wear extensions to appear somewhat normal), and walking around for seven years with acne, a pooch that had me constantly pregnancy testing, hoohoo odor that sometime persisted despite bathing AT LEAST daily, and oh, the wonderful gas, bloating, and bowel irregularities that caused me constant anxiety in the tiny, quiet house I live in with my boyfriend.
Then there is the chronic pain for the past two years that they can't find the cause of - could this little miracle have anything to do with it?
I've brought these things up to doctors, all who knew I was on Mirena, and was always blown off. But it's obviously related, along with the my eyesight now being that of an 80-year-old, my very own snowstorm of dandruff no matter what I wash with, and, quite possible, the depression that no medication makes a dent in. None of which I had before Mirena came waltzing into my life.
Here's hoping for a return to normal now that it's out, and perhaps a lucrative class action lawsuit in the future that nets us each at least enough to get electrolysis and a hair transplant.
-- By monikac23 | Reply | Private Message me
February 23th
2009
1:28 AM
I THINK WE WERE DUPED!
Is anyone thinking that the drug company knew all of this, and therefore has been marketing specifically to women who have just given birth... this way, the postpartum symptoms are the scapegoat:
bleeding
cramping
hair loss (very common 3 months after.. I believe I lost more than most)
insomnia (very common after delivery due to motherly hormones have
you on high-alert))
No sex drive (because we're either breastfeeding, hormonal, or just feel
fat)
Mood swings (because of our ever-changing post-partum hormones)
depression, crying (must be Post-Partum Depression!)
Joint pain, back pain (we're carrying our new baby around too much)
Bingeing and Food cravings (we're home alone and bored or
breastfeeding)
No sex drive (we are bitchy, unsociable, depressed, feel overweight and have no energy.. I'm surprised they still want to have sex with us?!!)
February 12th
2009
12:45 AM
UPDATE on removal 14 days ago.
It has been 2 weeks now since removal and I am reporting in. Everyone reacts to removal differently so here is mine:
Right away my breasts went back to normal size and are pain free. My hair immediately stopped falling out and vaginal odor is gone.
I immediately got an extreme energy surge/mood lift to the point that I could not go to sleep! I did not have sleep issues with the Mirena IN. It started when I got it OUT! But I am starting to be able to sleep better now.
No more headaches.
I feel so much better as my mood has improved.
My eyesight improved so much that I don't need my reading glasses anymore.
I am still fat but noticed the water retention is gone so I can tell I have lost a few pounds of which would not BUDGE before.
I STILL do not have my energy back or my sex drive back.
Also I immediately started bleeding and clotting heavily for about 5-6 days then it was GONE.
I have always been very very young for my age in every way. But after the Mirena was inserted I quickly went down hill. I feel like I aged 10 years with all the fatigue, hair loss, lack of sex drive, weight gain, aches, poor eye sight, etc. I just felt like I really aged so much. I hope to GOD I get my youth back again. I went from age 30 to 40 in one year!!!
I would rather accidentally get preg than have to live with the Mirena another day.
February 3th
2009
5:21 PM
The reason is when you stop taking the Lipitor, and your symptoms don't go away is this: Lipitor cause hearing loss, which is what causes the Tinnitus! I have been having severe tinnitus for months now, seen all kinds of Dr.s who didn't have a clue. And I finally went to the House Ear Clinic, and they told me what it was, but they didn't know how I got it. I got Tinnitus a few months after my Dr. upped my dose. It's taken me this long to put the puzzle together. The Physician's Desk Reference lists hearing loss, tinnitus, and dizziness as side effects of Lipitor. I am appalled that not one Dr. asked me what kind of medication I was taking!
-- By lesliechuntley | Reply | (6) replies | Private Message me
January 25th
2009
7:06 PM
I can't believe I found this info, two days ago I was ready to make an appt with my Dr for some type of anti-depressant, I have never been depressed before so I started looking online at different meds, and I found all these sites about Yasmin. About 10 months ago I started taking Yasmin after I gave birth to my second child. Every month got worse and I really am changing into a totally different person, crazy (sad, numb, mean, paranoid ext..) No sex drive, vision problems. I kept waiting to be happy again. Thanks to all the women who have shared these experiences, I stopped taking this pill yesterday and I am finally excited about having control over myself again.
-- By mary123 | Reply | (1) replies | Private Message me
January 14th
2009
1:36 PM
Wait a minute!!!!! Let me say that I have really been spooked by everyone testimonials regarding Yasmin. Although I AM sympathetic and very sorry to hear of all you r health problems, I think that before we all get into a panic over this, we need to take other things into serious consideration. We have no clue what one anothers lifestyle is. Their diet, weight, allergies, stress issues , medical issues, other medications, exercise, genes, and sometimes age. I myself have suffered from hair loss, digestive issues, constipation, eyesight changes, fibroid/fatty lump in my breast, migraines, moodiness & poor circulation. And that was BEFORE I went on the pill. Sorry to say….but I’ve learned that these issues all come with age. I’m 39. And at age 35 I started seeing all these changes in my body. I was on NO medication and in pretty good health and would see a doctor regularly just to make sure. Some of these symptoms that were experiencing just might be due to the fact that were getting OLDER!! I even became somewhat lactose intolerant literally overnight. And one lady said in here that there is lactose in the pills. So maybe some of you are more susceptible to it.
And remember, the chemicals and hormones they’re putting in the pill…isn’t All Natural. They’re chemicals!!! Which can be hard on the body. (God did not design us for them). And a lot different from what I remember 20 years ago. When I used to take the pill you had to wait at LEAST a month before you can be safe from pregnancy. Now it’s only a WEEK! Hmmm…..that’s an obvious difference/change/warning….whatever you want to call it. Maybe the pill isn’t such a necessity for some of us. Maybe just a change in diet and vitamins might help us. For just pregnancy protection…maybe try another method like condoms, shots, diaphragm, etc….. I admit that I was having headaches ever since I started the pill 4 days ago. But then I realized that I only got them when I would sneek a cigarette 4 times a day. Shame on me!! That’s the ONE THING they tell you NOT to do. But now I know it’s not worth the pain and risk to my health. I didn’t smoke yet today and….no headache!! But I have not had any other side effects……YET. But when I do, I will look at other issues in my life that are going on….Diet, water intake, stress, genetics, normal woman changes, etc. I’m not saying that all your symptoms are nothing or not related toYasmin, but maybe look at the big picture before you overreact.
December 28th
2008
4:34 AM
Started taking xalatan 3 month ago. I have very poor sleep and was wondering if xalatan had something to do with it? Also dry eyes, more than before I started taking xalatan. Also my vision is more blurred than before. And my eyesight is diminished some. But I think one should ask the question: "Maybe my psycological situation is also effecting me". If you get glaucoma and start with eyedrops, it could also make you think: "I am really having a problem", and then you start to sleep bad i.e.
-- By jesperchristensen | Reply | Private Message me
December 26th
2008
11:57 PM
I am a 39 year old female in relatively good health. In the past year since taking Lipitor, I have had SEVERE thinning of my thick hair. I have lost nearly 2/3 of it, and luckily I had a lot, but I am thinning more quickly on the top of my head and you can now see my scalp. After reading this, I am stopping my Lipitor, tonight. I hope that my hair returns ... I have also had chest pain, leg pain, trouble sleeping, trouble with eyesight, trouble focusing, unexplained weight gain and extreme fatigue. I think I would rather take my chances with high cholesterol than be bald at 40. Nice eh? I complained to my doctor when my hairdresser called this to my attention, and she poo-pooed it and referred me to a dermatologist- who after months of waiting rescheduled. I will be BALD!
-- By terricat | Reply | (5) replies | Private Message me
December 2th
2008
7:30 PM
I'm 52 y/o male, started warfarin 6 weeks ago and the last 10-12 days I have noticed a LOT more hair in the tub drain when I shower. Also, my eyesight is getting worse by the day and if I lay down on the couch to watch TV, forget about it...sleeping right away! Had more to say, but can't remember! I do know my neck and back hurt and I am supposed to be on this crap for 2 more months, but I think I am going to pass. My Doctors already love me, so I'm sure this will be the straw...good luck everybody
-- By momob56 | Reply | Private Message me
PredniSONE (13) Yasmin (12) Advair HFA (8) Topamax (7) Lipitor (6) Mirena (6) Advair Diskus (4) Levaquin (4) Lisinopril (3) NuvaRing (3) Lamictal (2) Omeprazole (2) Xalatan (2) Diovan (2) Zocor (2) Effexor (2) Warfarin Sodium (2) Yaz (1) Geodon (1) Sulfamethoxazole (1) Loestrin 24 Fe (1) Yutopar (1) Solu-Medrol (1) Guaifen-C (1) Dyazide (1) Tegretol (1) Aciphex (1) Avelox (1) Neurontin (1) Clonidine (1) Simvastatin (1) Plaquenil Sulfate (1) Toprol-XL (1)
November 6th
2009
12:53 AM
OMG! SO glad I decided to research Loestrin24Fe. I am on my 2nd pack now well into the 2nd week. I used to be on Ortho-Tri-Cyclen Lo, but that made me moody, emotional, crampy, bloody and fat. I was switched to Trivora which was 10 times worse. I quit BC pills for a year. Now, I am on Loestrin 24Fe. I have for sure experienced some changes good and bad. I feel my sex drive has gone up! But my eyesight is getting blurry, my breast and nipples are sore most of the time. I'm very constipated all of a sudden. I'm also feeling exhausted and started experiencing headaches. I do get heartburn, but I think that's not related to the pill. I will start paying close attention to the things you ladies pointed out. My husband wants me to stop the pill (due to the eyesight thing) but I want to see if things get better by the 3rd pack. I'll let you know.
-- By liz_1982 | Reply | Private Message me-L.