June 18th
2009
2:32 PM
It's nice to know that I'm not alone..
I got Mirena in November 08, and since then I've developed a plethora of unpleasant side-effects. Initially, I couldn't put them all together. As I'd had a fainting spell and some restless legs a few months prior to getting Mirena, I've been concerned that all of my symptoms were stemming from a nutritional deficiency like folate or b12 anemia. Nothing seemed to quite fit exactly right though, and I take vitamins regularly, so I was perplexed until last night. After googling "tingly feet" and "heartbeat" I stumbled onto one of these forums.
I have felt like a crazy person all of this year, and I am now quite certain that it's from Mirena. Feeling foolish that I didn't see this sooner.. but I guess I we perceive what we want to, and I was happy to have easy birth control.
I've NEVER had heart palpitations, this kind of foggy-headedness, anxiety like this, unexplainable nausea, tingling in my feet, or depression before. My dizziness and fatigue alone had me fearing for my health, and my extreme mood swings had me fearing for my life.
I'm getting this removed as soon as possible.
Clearly I could've done my pre-Mirena research better, but the pamphlet and pep-talk I was given did not mention everything that I've been going through. I'm a little pissed, to be honest.. but mainly relieved.
I think I'm going back to the Nuvaring.. I'd rather bleed than be a dysfunctional, ill, zombie-person.
-- By suzyleigh | Reply | (1) replies | Private Message me
July 7th
2008
6:39 PM
Update and a question:
I posted about a week ago about some of the side effects I was experiencing from lisinopril:
-lightheadedness (including one fainting spell)
-some discomfort and tightness in my chest
-difficulty breathing (when this happened, I would force myself to breathe deeply and usually found that I was breathing OK ... just felt like I wasn't always getting enough air)
-feelings of panic
-muscle pain in back and neck
-diarrhea
I stopped taking it a little over week ago and my doctor wants to start me on diovan. After my experience with lisinopril, I want to wait a little while before starting a new med.
So my question is, how long does it take to get lisinopril completely out of your system?
I've felt some of the same side effects recently (slight dizziness, some discomfort in back and chest area). But that was after working in the Texas sun for a couple of hours in the morning. (I've heard that lots of sweating and dehydration can increase some of the side effects of lisinopril.)
Can anyone tell me your experiences after getting off lisinopril?
-- By badmedz | Reply | (2) replies | Private Message me
June 26th
2008
5:25 PM
I can't tell you all how glad I am that I found this web site.
I've been taking 10mg Lisinopril daily for about ten months now (for slightly high bp). Beginning last October, I started feeling the following symptoms off and on:
-lightheadedness (including one fainting spell)
-some discomfort and tightness in my chest
-difficulty breathing (when this happened, I would force myself to breathe deeply and usually found that I was breathing OK ... just felt like I wasn't always getting enough air)
-feelings of panic
-muscle pain in back and neck
-diarrhea
I've never really had any previous health problems and I've never suffered from anxiety or panic attacks.
I saw my doctor several different times about these issues. When it first started, my wife wondered if it had something to do with the medication. My doctor (who I really like) said 10 mg is not enough to really do much of anything.
Since I've been on it, my bp has been great. And I knew 10 mg wasn't very much. I believed that the medication wasn't causing it. So I went through the series of tests:
-MRI was normal
-blood tests were normal
-repeated EKGs were normal
-chest x-rays were normal
-stress test was normal
My doctor started thinking it was something mental and talked to me about ways to reduce stress and anxiety. But I knew there was something going on.
Then I found this site. I stopped taking Lisinopril yesterday and am talking to my doctor about changing to something else.
Thanks, all!
-- By badmedz | Reply | Private Message me
November 17th
2007
3:51 PM
I miss me...WB has turned me into a zombie and I'm more depressed than before. I've only been on it for 5 days, but I don't think I want to see if it works out after reading these posts. One of my major complaints about WB are the constant hallucinations. While mild they make me anxious, agitated and a little paranoid. I don't have much in the way of visual hallucinations, mostly hearing sounds and perceiving them to be threats and smelling odd smells that don't exist. I'm also emotionally "flat", have no interest in anything and I'm shaky and feel very cold most of the time. And I've never had anger issues before, but now I don't trust myself around anyone. I just want to be alone. I was told this medication would work for Seasonal Depression and help me to quit smoking, but right now I miss how I normally feel. Has anyone else had hallucinations? Do they go away or should I quit taking WB right away? It doesn't make sense to suffer for a full month when my seasonal depression only lasts for 4 months anyway - does it make sense to hang in there and see what happens? After reading these postings, if WB doesn't work for me, I'll go back to being un-medicated. It doesn't seem so bad now.
I'm taking generic 100mg SR twice a day. After only 5 days, do I have to worry about withdrawals if I quit?
-- By andee | Reply | (7) replies | Private Message me
August 15th
2007
12:55 PM
I am extremely hot and sweaty, memory loss, fatigue, aching hands, dizzy at times and most recently had a fainting spell (black out) while I was attending a movie -- it started with dizziness and then I became totally burning up hot and wet with sweat so much so that my hair was wet -- this lasted about 1/2 hour and ended with the dry heaves. Please let me know if anyone has experienced this. I had my thyroid blasted with radioactive iodine about 3 years ago (Graves Disease) and I have been hotter than blazes since that time. I am on 112mcg of levoxyl
-- By lrm007 | Reply | (1) replies | Private Message me
March 25th
2007
4:01 PM
Been on Lipitor one month, 52 year young female, having never been on any medication on a regular basis. Use the treadmill 5-6 days week and also practice yoga. Consider myself to be physically fit and active. Since starting taking Lipitor I feel fatigued to the point where I've stopped using the treadmill. My blood pressure is all over the place. I almost passed out at work, went to my doctor and she immediately called the rescue....blood pressure was 70/40...said I was dehydrated. That was 4 days ago..had another episode of a fainting spell today. I am taking myself off this med...it is the only med I take. Oh, I also experienced tingling in my hands. Is this normal?
-- By nancmccaug | Reply | Private Message me
January 7th
2007
11:13 AM
My normal period arrived again , but this time about 3 days too early (30.12.06). And today it's already lasting 8 days!! And it only got a bit lighter today. I'm feeling totally drained, tired, dizzy, completely weak... I wish I finally would be as I was before this Yasmin nightmare... But it seems as if my body will need much more time as it already had to finally find its balance again...... :-(
I had a fainting spell during my gig on silvester and had foot cramps (which is not usual for me......) during standing on stage...
Anybody out there who has also such problems during their period???
Greetings
Silke
December 17th
2006
11:30 PM
@guest 34715:
Please check out my post from about 2 - 3 days ago. It was a very long post where I nearly told my story again completely. The most frightening side effects again here:
anxiety
uncontrollable panic attacks (day and night), and during taking yasmin always about 8 hours after taking it (about 5 am within my sleep!! not necessary to mention that these have stopped nearly immediately after getting off!!)!!
muscle hurting
muscle weakness
dizziness
tiredness to the point where I thought I'd pass out
fainting spells
weakness all over my body
headaches
nervousness (sometimes to a point, where I thought I'd go totally crazy)
muscle fasciculations
blurred vision (totally frightening!!)
breathlessness
tight throat
heavy feeling on my chest from time to time
joint aching
Simply everything was completely too much for me, for about 3 months I even couldn't talk to someone on the phone without getting a fainting spell and dizziness
and the list goes on.......
Greetings
Silke
December 14th
2006
10:38 AM
Kim:
It seems you didn't read all of the posts, that have been written here during the last days. There is noone who says, you will be like you are now forever!!
You think noone here was as bad as you and dejay Kim???
Ok, I think I didn't tell my whole story for too long. So here it is. And dear, believe me: I and many other ladies were exactly as bad as you and maybe even worse!!!
I also nearly lost my job, because I wasn't able to work for months!!!!! I wasn't able to sing in my band, which I had done until that time for 14 years, which really broke my heart!!
I didn't even leave my house for about 3 months, and after this time I went out to the supermarket only together with my husband, never alone and only for a few minutes because I wasn't able to stand more than a few minutes without getting a fainting spell!!! I simply was no longer "alive"!!!
Tingling arms and legs, hurting muscles, muscle weakness, headaches to the point where I wanted to put my head off! Fainting spells without any reason, just doing a few steps to the toilet nearly made me break down, breathlessness like an 90years old ill person just after doing a few steps around here in my living room, aching joints, numb feeling in my legs, arms, and the list goes on!!
I went through a total hell and worse! I really believed I was goin' to die within the next months and believe me: At some point I couldn't even awate it, because I didn't want to feel all this any longer!!!
Well, I normally don't really want to think back to that time, because it was a living nightmare, which I'm still somehow shocked about!
Some days I even wasn't able to go into another room here in my own house because of the anxious feeling, the dizziness, the faint feeling and the breathlessness and weakness! Most of the time, my husband had to stay with me even on toilet!!!!!!
My head was foggy, I felt as if my life was just a dream and I wasn't really awake. I was sitting here all day in ONE room, trying to read a paper or watch TV, couldn't even work on my computer or do ANYTHING else because I had very bad vision problems and nervousness to the point where I thought, I'd go crazy about that!!
Sometimes a day I got some tiredness which wasn't only tiredness. It felt, as if someone had knocked me down and I was going to faint! I never had such a frightening feeling my entire life before!!!
My mum and dad had to come around here every day to cook for us and do our household because I wasn't even able to wash the dishes or something else because of my severe symptoms. I had turned into a total "baby", just awaiting the day that they would even have to wash me and put my clothes on!!
And for about 5 months NOONE could find out anything, thousands of doctor's visits and NOTHING!!!!! And no one was aware, my bcp could make me feel like this until I found an endocrinologist who really admitted, that all this could be brought on by my holy Yasmin!!!!! That was day 1 of my new life!!!
The next 3 - 4 months after getting off still were pure hell. But Kim and dejay, one thing you should know: I HAD BEEN ON THAT NIGHTMARE PILL FOR OVER 5 YEARS!!!!!!! And not only a few weeks or months!!
What should I tell you more?? I think this should be enough for you to see, that you're not the only ones who are doing that bad!
And comparing how long I had been taking that sh... and knowing how long you only had been on it should give you so much hope! Think about it!
I went through the hell I mentioned above for about 8 months!! And what do you see: I'm still here and look at me now:
I'm working again, singing again (have 3 new bands!), living again. Even though not everything is back to where it should be I started to live again and have still hope, that I'll be back to normal one day and completely can forget, what I've been going through!! What do you think how anxious should I be about a permanent damage, after being 5 years on this poison??????
So please kim and dejay, listen to what the ladies here are telling you and try to keep your chins up and keep in head what you've been told here so many times. IT WILL GET BETTER!!! I think you NOW know that I'm aware how hard that is and that I don't tell you just some "stories" without knowing what I'm saying.
I'm working as a lawyer's assistant and believe me: Even my boss isn't willing to start a lawsuit against a pharmazeutic group! It's sad but true: We can't really prove that we got those problems because of Yasmin and that's the problem!! There IS no doc who will attest us that fact!!! The only thing we can do is help each other, listen to each other and try not to loose hope and stay strong. This is what brought me back to life again, and nothing else!!!
And to your pacification: I finally found TWO doctor's who admitted, that the cause of all this COULD definitely be Yasmin!!
Hope that helps somehow, but please READ it, especially kim and dejay!!
Ant the others: Sorry for that long post, but I think it was really necessary!!!
Best wishes !!
Silke
-- By voicesi | Reply | Private Message me
April 7th
2006
1:22 AM
@ Guest 20952:
Well, after only 1 1/2 years ON Yasmin I would surely have said the same things as you do now! I never expected to go through that hell I went through after 4 (!) YEARS on it. And after my first fainting spell and really severe panic attack it still took about 4 months for me to realize WHAT really was causing me such pain and torture (well, I never expected MY Yasmin to do such things to me!! I swear!!)!!
So please be careful and watch your body!!!! If I would have done that and would have found this site earlier I'd surely gone off that pill much earlier and perhaps wouldn't have gone through all this agony I did for the last 2 years!!!
It seems as if in some woman the side effects occur slightly over the years because Yasmin has this diuretic in it which slightly causes an imbalance of electrolytes and vitamines in your body. So it may help, to always drink enough water and perhaps take some supplements like magnesium and so on during times, you are sweating more than usual (a hot summer's day, during workouts, during illness with fever (like the flu or a cold, etc.)).
Everyone out there: Please be extremely careful with that drug, even if you seem to be ok at the moment!!!
Remember I was very well on that pill for over 3 years until everything hit me at once!!!
Greetings
Silke
November 30th
2005
11:03 PM
In Dec 2004 I experienced adverse reactions to the MRI contrast Magnevist several days after receiving an MRI. The first sign was a grape sized boil on my abdomen and a drop in blood pressure. The doctors thought that I had a staph infection, but there was no sign of bacteria or infection in my system. The doctors were perplexed as to what was causing my health issues.
In January 2005 I received an MRA to view the veins and arteries in my neck. I received Magnevist via IV pump. During the procedure I experienced severe pain in my right shoulder (the same arm receiving the injection), severe pain in the center of my chest, then a very hot flushing feeling from my waist upward. I could feel my tongue swell and there was a heavy metallic taste in my mouth. I told a radiology tech, but they blew me off and said that they had never heard of anyone having a bad experience with the contrast. The next day my nose bled and I had diarrhea. By the third day I was urinating blood. By the fifth day the boil on my abdomen grew into a 5 inch by two inch oozing pus patch on my side. My blood was no longer responding to my hypertension medication. I experienced temporary paralysis of my right leg, right eye pain, swollen lips, and a dark patch under my right arm. I remember laying in bed crying from the pain in my side; my breathing became labored, and my chest felt really heavy. The doctors were at a loss so they began treating me for everything from staph to shingles to a fungal infection, but nothing worked. Two weeks later I had a near fainting spell in the ER. My blood pressure was too high. The ER folks worked on me nearly three hours trying to get my blood pressure under control. I was so cold I was shaking. The doctor eventually applied a nitro patch to my chest then shot me up with some drugs and finally my pressure came down to a manageable level.
Six weeks later I was referred to a dermatologist and he knew what my issue was five seconds after he looked at the boil on my side..."That's a reaction to a chemical" he said.
In June I discovered that the radiologist tech had given me 40cc of Magnevist. The Berlex insert says that the maximum dosage is 20cc, so I was given double the recommended dosage. After doing some research I found out that several radiology clinics in at least three states give double or sometimes more that the recommended dosage during the MRA procedure. The radiology folks truly believe that Magnevist is safe at high levels. I hope that radiologists will read this entry and conduct further research about Magnevist. What they don't get is that the drug can be dangerous and symptoms may not arise until several days later. So folks if you experience any of the adverse reactions listed under Magnevist, especially Stevens Johnson Syndrome, get help fast and don't let the doctors take you on wild disease chases...It could be hazardous to your health.
SM
-- By moontime | Reply | Private Message me
June 6th
2005
9:10 PM
I have a keloid scar on the back of my left chest wall. It is tender and painful to touch and itchat time.
I start receiving kenalog injection in March, April and June 2005. About 2 mins post injection, I began to nauseating with a bitterness feeling at the throat. With my eyes closed, I see blackness with flashes and spots of lights. My whole body was feeling very uneasy, can't differentiate whether am I being suck in or am I being lifted and had the feeling in incontinence. At the initate time, I still feel conscious responding to my friend command, than I guessed I'm might had lapsed into unsconiusness. 5 minutes later I woke up feeling nausea and dizzy. Feeling much better after 10 minutes or resting, I return to work.
Thinking that I might be sensitive to the pain that cause me to faint, I decided to go for the subsequently injection in April and June to desensitise the pain. But it happened again both times after the procedure except that I'm conscious of the surrounding but I keep my eyes closed. But in yesterday episode, I expercience additional side effect after about 30 minutes later such as acute pain at the injection site and surrounding area that almost cause me to faint again and associated with sharp abdominal pain that I need to relief myself. Last night I slept at 7 p.m., this moring I work up with a slight heachace which clear off after a short duration. Now I'm perfectly alright with occasional shooting of sharp pain form the keloid.
The doctor is aware of my fainting spell but still advise me to return for regular injection as the keloid scar is hardening.
I'm wondering should I continue to go for the keloid treatment???? It quite torturing during the syncope attack. Any one care to advise????
Yasmin (4) Lisinopril (2) Mirena (2) Magnevist (1) Kenalog (1) Levoxyl (1) Wellbutrin (1) Lipitor (1)
June 18th
2009
11:56 PM
I got Mirena March 3rd, 2009 - The first 3 weeks I had the bleeding and small clots along with HORRIBLE cramping that about took me into the ER on 3 different occasions. After that it seemed a little better, well, until recently that is. I have been experiencing dizziness, headaches, lightheadedness and fainting spell. These were the unexplained symptoms. Next I noticed horrible tingling in my arms and hands and sometimes even legs and feet. Not just a little tingling, I mean a lot, like the kind that wont let you lay down at night or sleep. I have been very nauseated and often feel like I'm about to get sick but nothing comes out. It's amassing that all of my symptoms started about 4 months ago, around the time Mirena was inserted and have just been escalating. I have not had a period since the initial bleeding occurred, but i have had the brownish discharge that others have mentioned as well about once a month. Also heard palpitations and chest pain has been occurring more often. I blame this on my asthma, which has got worse over the last 4 months also along with an increase use of my inhaler. Can this be related? My neck is always tense and I feel my joints are also becoming more inflamed. My vision is sometimes blurred and at my last eye exam last week my doctor had noted a "drastic" vision change and increased my lens strength within the last 6 months. The last symptom I can think about is how tired I have been. I have a very active 16 month old and it's exhausting trying to keep up with him and finishing nursing school full time. My mom did mention today how "moody" I have became over the last few months, maybe its stress related? Maybe it's all Mirena related? I would like to know more...wouldn't you?
-- By wann427 | Reply | Private Message me