November 23th
2008
8:51 AM
after about a week on my methadone my feet and ankles swell they diagnosed it as cellulitis but cellulitis doesnt go away w/out antibiotic treatment so the next 2x it happened i didnt get antibiotic treatment i just put my feet up and stayed off them and the methadone and the swelling went down! also after about a week i start to do random episodes of passing out once with my face in bowl of cereal and once doing dishes and this was at prescribed dosage!!! be very careful i am on blood thinners and i think the dosage builds up quicker in my system perhaps. i didn't tell doctor because they work for my pain better than anything else he has given me and its hard enough to get something that even takes the edge off my pain i have so many medical problems that three very reputable neurosurgeons refused to operate on me due to my risk of stroke and i am only 49! i have deg disk deg joint rheumatoid arthritis, bilateral neuroforaminal stenosis in lower back l4-5 and s-1 several disks that are dehydrated and dessicated , many bone spurs poking in spinal canal in cervical spine every disk in cervical spin either bulging herniated or previously operated on severe arthritis in feet toes and severe nerve damage in right foot where big toe and baby no longer can lift up neuropathy in right arm radiculopathy in left missing protein s in blood which is the protein that keeps your blood from overclotting so i have been on blood thinners since 29 yrs old and have had several pulmonary embolisms b4 age 29 and proper diagnosis and the list goes on! and yet even though i got my soc sec disability by myself w/out lawyer assistance due to list of medical problems which spoke for itself i still cannot find a doctor who will try to work with me realistically on a pain management program that even manages to take the edge off to enjoy the quality of life enough to be able to spend time with my 4 yr old granddaughter doing things like fishing and playing with her in ways that i would like such as camping amusement park rides (which they have forbidden!!!) can anybody out ther help me find a doctor who will not be afraid to prescribe something that will really work enough to put me back in the game off life ? did i mention that i need right hip replacement it is bone on bone and left isn't far behind and lower back was listed as severe bilateral neuroforaminal stenosis needing surgery also as of 2 yrs ago and also need several cervical surgeries and that i have a benign tumor in thoracic spine that cant be operated on but does still cause pain! so please if you can be of help to me/as winter is upon me now ,which as we all know multiplies most of our pain problems so speed of the essence!!!!xoxoxoxo please e-mail me if you know of any doctor who can be of real help managing pain no surgeon will touch me due to risk of stroke , i stayed awake for last major surgery it had to be done risk outweighed stroke risk if it didn't get done. i am currently on methadone 10mg 4x daily and it barely takes edge off and causes too many side effects which i wont tell dr. because it is the closest thing ive had to pain relief and have been on same dose for 4 yrs ,and my pain has no hope of improving but only the certain knowledge that it is going to get increasingly worse every day and my granddaughter only has me her grand papa and her uncle, my son, that she can depend on being ther in a good role model form as well as being her only consistent source of love ,affection and proper parenting! I love my daughter but her and her boyfriend ,my granddaughters father of course, are 2 of the most self centered people on earth and unfortunately they put their needs b4 thier own daughters on every level and in way to much detail for me to put here i need only say this combine 2 totally self centered individuals with a pretty big cocaine addiction and you will get enough with that to know my dilemma! they buy her many clothes n toys n moviiiies to keep her busy while they play but never enough food or mmeds or real needs such as affection, love ,food, drinks etc!! they both work in a hosp making great money but i have to provide my sweetie(grand baby) with food meds affection love and all the things they should be doing! this is why it is even more urgent i am able to function well w/out as much pain as possible she needs to be here with me and her pa pa in a healthy ,wholesome loving and affectionate home she loves to bake and read and learn with us she never wants to leave and it tears my heart out when i drop her home with her daddy and she cries hysterically because she doesn't want me to go and she wants to stay with me and i cant! so please help me find a good doctor who can help me function at highest level w/out pain but also as coherently and safely as possible!!??? i would be forever indebted to you for your kindness and help! e-mail is ******* please send referrals or recommendations of any and all sorts tysvm, i live in the area of erie county new york tysvm,xxxooo tysvm for all your time ,much love, pained and troubled grandma in n.y who needs your help to be able to help my sweet grandbabyxxxooo
-- By gumbyrk777 | Reply | Private Message me
October 27th
2008
3:13 PM
Hi all...I've been taking 25mg. of Topamax at night for 5 days now. Unlike most of you I have not experienced the tingling in the extremities or the weird taste in the mouth or even much tiredness at all other than what has happened as a result of my weird side effect. I was prescribed Topamax by my neurologist for my migraines. I've had them since I was 12 years old. I'm 49 years old. The got worse during peri-menopause which is kinda normal given the hormonal fluctuations, but was told by my neurologist that they would very likely subside significantly when I became menopausal. Well folks, I've been menopausal for 5 years and for the past 2 years my migraines have been the most horrific of my life. I have approx. 15 to 18 migraine days a month, some of the headaches lasting 3 bloody days. So it comes to this...Topamax. In the past I have suffered some pretty rare side effects from some very benign medications so I guess I shouldn't really be surprised that this is happening to me now. The first night I took it I slept like a baby. The second night I was slightly 'hyper' but managed to get to sleep. But for the past 3 nights it's been hell. When I lie down in bed, my body feels as though there are electric currents shooting through it and coming out my right leg. I have to move my right leg or go completely bonkers. Fortunately my daughter is away at university and so I can sleep in her room. So I lie there...on my left side...with my right leg hanging over the side of the bed swinging and swinging and swinging as hard as I can just so that I don't scream. It's awful. Last night was the worst. I saw dawn this morning. I just got off the phone with my pharmacist and he told me that I had described a classic case of RLS - Restless Leg Syndrome. And guess what? Topamax is used to trest RLS!! For bleep's sake! So nice people I am suffering a completely opposite side effect to the one that seems to be the most common one...tiredness. Has anyone else heard of this? Experienced this? It seems to all focus down to my right hip and leg. I have to move it vigourously or go nuts. I am so tired today but that's because I got like 3 hours sleep. I fell asleep from sheer exhaustion after my husband left for work at 7:30am.
A side note...I also take 75mg of Effexor for panic disorder and my neurologist told me that this is a very good mix of meds for migraine prevention. My top dosage for the Topamax will be 75mg taken at night.
I'd really appreciate any feedback on my side effect. Thanks in advance.
D.
-- By luna13darke | Reply | (3) replies | Private Message me
August 1th
2008
11:17 PM
Hello All, My Levaquin nightmare began on June 18th, 2008. The side effects I had were so unbelievable, most of you, if not all of you will believe this. I had severe night sweats which would transfer over to a extreme cold chills, which would allow me to sweat like crazy. Bathed in Sweat. I thought there were small needles all around me and poking me everywhere. My feet, toes, knees and buttocks tingled like there was no tomorrow (and still are to this day). When and how can I make these side effects go away. I'm sick of them. I no longer have the night sweats or the bitter chills, I'm now totally aware of want is going on around me, while taking the med and several days after I couldn't even tell you my name. The bridge of my nose, and running across to my ears tingled like crazy and my ears rang all the time, and they still ring once in a while still. I need to know when this feeling of tingling in my hands, feet, knees, legs and humming in my ears will go a way. Help! I think this drug needs to taken off the market. I took a total of 17 pills. My first scripted was for 15 days and by not knowing any better less then a week later and another doctors appointment, and one more script, which I filled. I took two pills from that bottle. My husband called the doctor and she told him this wasn't normal. She told him that I was to stop the med asap, which I did and I'm still having these awful tingling. If anyone, anyone has any suggestion of how to get those med out of my system I would certainly appreciate it. God Bless each and every one of you. May you all find relief.
-- By teaa | Reply | Private Message me
January 2th
2008
5:56 AM
I went to my doctor on Monday December 17, 2007, because I was experiencing a fever, chest congestion, with an extremely painful cough. He gave me 7 sample blister packs of Levaquin 500mg, and a sample Pulmicort Flexhaler 180mcg. He also prescribed a cough medicine for night time if I needed it. He said I had bronchitis or a possible pneumonia he couldn’t hear. I also used a nebulizer with Abutrual.
On December 23, 2007 I awoke with the most intense pain I have ever experienced. My wrists, finger, toe, elbows, knees and ankle joints all hurt. My muscles in my legs and back burned. My hands, fingers, feet, toes, and shins felt like they were “asleep” or the worst pins and needles ever.
My husband went online and found out that is was most likely caused by the Levaquin. And thankful I was taking TWO steroids! So when I called the company that makes Levaquin they told me to stay in bed! When I asked them how long this could last they said 1 week to two months.
As of today, the pain in my fingers, toes, wrists, elbows, ankles and knees, which is like tendinitis is mild to moderate. The burning in my muscles in my legs and back is still intense. The “pins and needles” is affecting mostly my hands and feet and my left leg from the knee down. I also still have a deep pain under booth knees. I have also experienced a periodic facial twitch on the left side, below the eye about 1.5 inches.
I am weak, and completely unable to get around do to the pain in my legs and feet. I am furious that my doctor prescribed a medication that could cause these problems without warning me, as samples do not come with warnings. I feel disabled, angry, and would like to know what I am supposed to do now!! Has anyone found anything that helps with the pain?
-- By queensoccermom | Reply | (3) replies | Private Message me
September 4th
2007
2:34 PM
I am 43 (female) and have been on Singulair for a couple of months now and the benefits have been AMAZING! I have chronic generalized eczema and pronounced facial flushing which led to swelling and Rosacea. Since starting Singulair (with a Zantac and Reactine) my skin is almost always cool (it's been YEARS). The benefits for me have been as great as what the steroids do for my skin. I can tolerate more triggers and the freedom and self-esteem boost is unquestionably life changing.
But recently I started to bruise, over every-little-thing -- even a blood pressure cup created a ring of broken blood vessels. Then about 3 - 4 weeks ago I started getting deep lower leg pain, and cramping in my calves and arches. This grew more regular, and my hips joined in and I am now rarely without the pain and deep aches. Then the weakness started, it was most pronounced in my dominant hand, I can hardly write or hold a pen now. Typing is difficult now as my hands and forearms are so weak. Yesterday I couldn't pinch my fingers to pick up a potatoe chip! My arches are curled with aches, I am weak all over and getting really uncoordinated. Going up the stairs is a chore, going down is just wacky -- it's harder than going up I am so wobbly and my knees want to give out. It's getting so pronounced that I realized that this must due to something I'm taking and the only thing I'm taking new is Singulair so I decided to Google "Singulair Side Effects" and the first link I clicked was Carrie's post, which I replied too. Then I realized there was more and have been reading all the other posts.
I am grateful that it is just side effects and nothing more sinister. This weekend the accumulated symptoms had me a bit frightened. I was washing my hands and it felt like I sprained my fingers doing it. The ligaments just sort of let go and things began bending the wrong way. It happened when I bent over to put something in the dishwasher, it was like the rib cage lost it's shape for a moment (I don't know how else to describe it). THAT felt bizarre and got my attention. Not being able to pinch my fingers to pick up a chip was the final clue that something is going wrong here. I will stop taking the Singulair now. It's a shame this happened, it was really doing it's job for me. The price of the side effects is too high though.
-- By twickle_purple | Reply | (3) replies | Private Message me
February 16th
2007
8:44 AM
I had been taking Zocor for about five years when I developed a tingling in my feet & toes. I went to my Doctor
and he said I probably had a pinched nerve that was causing the problem. So I went t a chiropractor for about a month, but the problem got worse. Went back to my doctor and he immediately said that I had neuropathy. I went to a neurogolist had tests taken and sure enough I had nerve damage to my feet & legs with severe shooting pains and tight
muscles. I asked the neurologist what caused the problem, he said it was the statins in the Zocor I was taking. I stopped
the Zocor the immediately but the damage was done. The neurologist told me the statin break down the fatty tissue covering the nerves and could take months even years to heal. Now I was a very active 70 year ald man went to the ymca three times a week walked 3-4 miles a day, worked the weights even played golf 2-3 days a week. Well, all that has stopped. walking has become a chore. because the pads of my feet feel like they have big knots in them. But the good news is I wont give up and let this rule my life. I still work the weights and still struggle thru the pain of walking that 1 mile a day. oh yes I have started taking vitamin C for my cholesterol
July 10th
2006
5:57 PM
I was on a Levaquin 5-day pack which didn't help my sinus infection, so the doctor immed. put me on an additional 2 weeks of 500mg per day. (Note: I have taken Levaquin in the past, but only for a week at a time). About 4 days into this, my tops of my feet, toes and balls of my feet became very sore. This becomes especially uncomfortable after I have been laying down. After reading some of the prev. comments, I am starting to think this is related to the Levaquin. I will not take my dose tonight and contact my doctor tomorrow.
-- By ayahr | Reply | Private Message me
August 15th
2005
11:31 AM
I am taking both Lotensin and Maxide. Upon doing some research, I believe that it is the Maxide causing my problem: cramping in my hands and feet (toes and fingers) and tightening with soreness (like cramps) at the back of my ankles by the achilles tendons that sometimes cause me to limp. Following up with my physician.
-- By donanvan | Reply | Private Message me
April 21th
2003
3:20 PM
I have been seriously ill for 8 months now after taking 3 500 mg. doses of Levaquin for a simple uncomplicated UTI. My doctor assured me that the antibiotic was perfectly safe. I trusted him, to my regret. I have been plagued with Severe Central Nervous System neurotoxicity. I also have severe tenonitis in both wrists and both ankles. My veins bulge. I have blurred vision, visual distortions, headache, muscle spasms through my whole body, abdominal pain with indigestion,,nausea, acid reflux, memory loss, confusion, agitation, abnormal dreams, tingling in my feet, toes, legs, arms, head and back. Severe back pain. Lumpy large muscule tissue in lower back. Pain upon walking. Difficulty concentrating, sensitivity to light and sound. Ringing in ears. Neuromuscular pain in chest, underarms,legs, arms, shoulders, all over body. This nightmare is ongoing and getting worse. I hope that I can help others with these problems. I flew to Indianapolis, Indiana to see Dr. David A. Flockhart, Chief of Clinical Pharmacology at IU School of Medicine. He was the only person that I read about that had background and experience in fluoroquinolone antibiotic adverse drug reations. He told me that this class of drugs, when not eliminated from the body, binds to the nerve endings/gaba receeptors in the brain. He stated that the drug does not metabolize much and sits in the brain and causes events to happen. He also stated that the drug binds to the nerve endings throughout the body including the stomach and also binds to the ends of the bone. He stated that it would take time for me to get better. He stated it would take three years if everything went ok. He prescribed Valium in as low a dose as possible to control tremors,seizures, and muscle spasms. If that did not work he recommended the gabapentin/Neurontin that my current neurologist had me on. The valium does help with the muscle spasms and nausea. The Neurontin helps me to sleep better and helps with the nerve pain. I still need further testing to determine the possibility of front temporal lobe partial epilepsy. I have already experienced two episodes of full body convulsions. Don't let your doctors tell you that its all in your head or dismiss your syptoms. If you have tendon problems, refrain from strenous exercise and lifting heavy objects as you are at risk for tendon rupture. I take low dose valium and 1 Neurontin at bedtime to help with nerve pain. The set back to these types of drugs are that your body builds up a tolerance and you eventually need to increase dosage. They are hard to come off of and can cause increased seizures if withdrawn too quickly. Dr. Flockhart told me that I would need to check in to a drug rehab center to come off of valium after prolonged use. I think that all victims of fluoroquinolone antibiotics should come together and work to get these drugs removed from the market. That's what it will take. The FDA cannot ignore publicity in numbers. Thanks to all for listening. Jessica/adrvictim
-- By adrvictim | Reply | Private Message me
Levaquin (4) Zocor (1) Singulair (1) Topamax (1) Loestrin 24 Fe (1) Maxidex (1) Methadone Hydrochloride (1)
March 17th
2009
12:13 PM
I have been on Lo-es for 4 yrs now and just recently started having side effects. I was diagnosed with migraines back in Sept 08. My doctor told me to take the pill continuously. That seemed to work for a while. My periods which started out painful and heavy went to super light and no pain. But now it is the same thing again and I am bleeding throughout the month with no stopping. My latest side effects, I have notice swelling in my feet, toes and calves. It is painful and gets worse as the day goes on. Since Sept 08 I have gain 50 lbs. My doctor is running blood tests every two weeks to find out what is wrong with me. So far everything has come back normal. After reading what you ladies have posted I am thinking of taking my self off of this pill. I take it for regularity. I had my tubes tied 7 yrs ago and since then my periods gradually got worse that is why OB put me on Lo-es
-- By macsgurl76 | Reply | Private Message me