May 2th
2009
11:22 AM
I've been on the fentanyl patch for almost 3 years. I started on the 25 patch, then went up to the 50. Now I've weaned myself back down to the 25 patch. I was put on it for chronic back pain caused from a car accident.
I'm determined to get off this drug, so any and all suggestions are welcome!
In the last few months I've been experiencing some odd side effects that seem to be becoming worse by the day. Firstly, it seems like I can feel the effects of the patch more so, like when I first started using it. I also started experiencing nocturnal problems, my legs in particular felt like they were burning up and the muscles were really tight. If I stretched them it only seemed to worsen the problem. The only solution, weirdly enough, seemed to be jumping into the tub for a half hour.
In the last couple of weeks I have been experiencing MY FULL BODY HEATING in the middle of the night, as though it's the middle of summer in the middle of a big heatwave. I move around on the sheets and try to find a cool spot. I manage to sleep for only minutes at a time. For awhile this was only happening the second day with the patch (I only wear it two days at a time). Now it's the first and second. It's disrupting my sleep and I'm exhausted. My doctor gave me some sleeping pills which worked rather well but now I've run out and I really don't want to start depending on another drug.
I NEVER should have started on this drug and though it does work and work very well for chronic pain, I still highly recommend finding any other option out there for dealing with your pain. The withdrawal effects are horrendous. The first time I went through withdrawal I could not believe how terrible the symptoms were. Vomiting, diarreah (never could spell that one right, lol), and the pain was amplified times 100. My Doctor seems to not understand how scary it is to even contemplate getting off this drug, the withdrawal is that scary!
I managed to get down a patch size by cutting a tiny sliver of the plastic backing on the patch (NOT THE PATCH ITSELF!!!! The backing that you remove!) and sticking it on the patch before transferring the patch to my skin, so in essence, I was blocking out part of the patch and just made the plastic a little bigger until I had finally blocked out half the patch at which time I went down to the 25 patch with zero side effects.
I'm on percocet for the fallout pain and take up to 8 per day, although some days I can take as little as 3. After I'm off the patch I'm determined to get off of this drug as well and learn to manage my pain in a different way.
December 29th
2008
10:42 PM
Very high tolerance for medications incl 60mg morphine, 20mg oxycontin 4x day, however, I just cannot seem to tolerate Fentanyl. Have tried it two times in past, both the 25mcg and 50mcg. The first week or so is great, after that the side effects are more than I can tolerate. All of these side effects were extreme and unbearable not just mild. They affected my ability to function and sent me to bed on more than one occasion. Extreme fatigue, nausea, sweating, anxiety and weakness. I felt as though I had a very bad case of the stomach flu. Both occasions I stuck it out for 2-4 weeks till I finally had to quit using it. Any suggestions as to why would appreciated. Some of my side effects aren't even listed in brochure.
-- By mommywoman | Reply | (4) replies | Private Message me
September 26th
2008
4:18 AM
I have been on the Fentanyl Patch for about 5-7 years now, for a condition called Loin Pain Hematuria Syndrome. It's rare (but more people are showing up with it) that is not life threatening and has no cure, but consists of serious pain in groin (loin) area, side pain (near kidneys) and sometimes around to back. It also consists of mid to large amounts of blood in the urine, it's known have thin blood vessels in the kidneys that allow blood cells to enter urine, but no real known reason of its cause. I am still pain free (just have discomfort on the third day before I change to a new patch) but after the first few years have started to have a lot of side effects and withdrawal symptoms. I change my patch at night and on the first day (the next morning) I feel fine and have no issues except a little sleepy from the night before. On the second day I get very sleepy, anxious, somewhat agitated easily, and a little depressed. On the third day, when I have to change my patch that night, I am even more sleepy to the point where I can barely keep my eyes open and they are heavy, all through the day and evening, I too have some memory issues but are not as much as the other side effects, I get low grade fevers that I can feel change over different areas of my body, shallow breathing in which it feels like it is sometimes hard to catch my breath, urinating often with not a lot of urine coming out (on third day only), some body aches, worrisome, more depressed, and weakness. Then after I change my patch the third night and it absorbs, I am wide awake and can hardly sleep. I even wake up every few hours on the second night, but the night I changy my patch is the worst, so I am tired the next day which is the first day on a new patch and the three day cycle starts all over again. I like that I am pain free, but at what cost? I am going to talk to my doctor again and they cannot pinpoint the nerves or areas of pain so I cannot have a pain pump, and I changed to this because I was getting so much break through pain between any pill form of pain medications. I did not like having to take pills every 4-6 hours. Has anyone else had this on Fentanyl or had the condition I have?
-- By gina9398 | Reply | Private Message me
October 17th
2006
6:25 AM
THI IS MY THIRD WEEK ON THE FENTANYL PATCH IT GIVES ME BAD BODY ACHES. IF YOU HAVE ANYTHING LIKE THIS PLEASE LET ME KNOW AND WHAT YOU DID FOR IT.THNK YOU
-- By coffman | Reply | Private Message me
September 8th
2004
5:24 AM
I have been on hydrocodone for several months for chronic pancreatitis.It works ok along with a fentanyl patch.Am I addicted?Probably.However,I am 5 months pregnant now and the drs all agree the baby will go thru some withdrawls after delivery.I am now trying Ultracet and my main complaint is the AWFUL nightmares.I have never heard of this side effect.You cant explain nightmares to a dr without sounding like an idiot,but my husband says I also twitch and scream during the night,when I finally do get to sleep.Slight itching,but lots of "creepie crawlies"when I try to relax.Ive decided to 86 the patch and deal with the ultracet,using my hydro for the more severe bouts of pain.
-- By sarkasticgirl | Reply | Private Message me
May 2th
2009
1:27 PM
I have been taken ambien for aprox five years, now due to back problems I also wear a fentanyl patch, at bedtime I take the ambien and heart medicine, if I stay in bed I am ok, but If I have to get up to use the bathroom its all over, my husband keeps an eye on me and I get goofy, write on nothing, talk to people he never heard of. although its been less, I am still doing it the next am my husband asks me if I remember and I do not, I do go to the refrig and eat ice cream but thats it. I ALSO now am on lyrica for back pain and I believe the two are not intermingling ok, as soon as I started the lyrica I started to gain weight, all my life my highest weight has been 145 last pm I weighed in at 166.8 pounds, something has to give, I cant breath good so don't walk much, its your damed if you do and damed if you don't!
-- By honeybear2 | Reply | Private Message me