Fibro symptoms and conditions

DIDN'T WORK AT ALL & HAD BAD SIDE EFFECTS! This didn't help my severe 'painful red bumps' kind of acne. In January 08 the dermatologist put me on solodyn 1x daily, Rosaderm face wash, & Atralin topical gel, both 2x daily. Eventually she switched me from atralin to RetinA, b/c the atralin wasn't strong enough. I have many health problems, but the last few years I have been feeling absolutely awful- constant body & joint aches, constant fatigue, & mood swings due to the pain. It got so much worse in Jan 08. My doctor & I had been talking fibro for a long time, but she diagnosed me in early March 08. She suspected fibro, as well as an autoimmune disease (when your body attacks your own tissues by mistake) due to a massively high ANA (anti-nuclear antibody) count on a blood test, so she referred me to a pediatric rheumatologist (there aren't many) b/c I was under 21 at the time. The rheumatologist diagnosed me with myofascial pain, which is very similar to fibro. She explained, "It's the exact same pain as fibromyalgia, except it moves all around instead of staying in certain points." Then she told me something shocking: SOLODYN CAN CREATE CONSTANT FATIGUE, BODY PAIN, AND OTHER FIBROMYALGIA-LIKE SYMPTOMS!!! IT ALSO MAKES A PERSONS ANA COUNT SOAR, WHICH CAN BE SEEN IN BLOOD TESTS!!! So she told me to go off the Solodyn right away, which I did gladly because it had been weeks & it hadn't helped my acne. She told me to watch for changes in my myofascial pain/fibro symptoms. After about 1 week my muscle & joint aches started to lessen. Obviously the Solodyn had increased this pain. The weird thing is, after about 3 days after stopping Solodyn, my acne improved. It was almost like Solodyn was preventing my acne from going away! When the results from my next blood test came back, my ANA (anti nuclear antibody) count had dropped but it was still high, indicating an autoimmune disease. It appeared Solodyn had raised my ANA count to a level even higher then it normally was!! It turned out I did have an autoimmune disease, but my rheumatologist told me she's seen teens who take Solodyn & have an elevated ANA count b/c of it. Then they have to run hundreds of tests b/c they think they have some disease that they actually don't have. When they stop taking Solodyn, their blood tests normalize, & then it proves don't really have an autoimmune disease. But by that time they've gone thru dozens of unnecessary tests, not to mention the stress & worry of thinking they might have a disease that may potentially be life threatening. They wasted time, money, and sleepless nights, all because solodyn screwed up their blood tests!!

I am in really bad pain from my fibro. The Ultram quit working, lyrica caused weight gain and violent nightmares and did nothing for the pain. My husband was given lyrica for his numbing feet and had the same problem with nightmares and woke up yelling and one night punching the wall. This is stopping now that he has got off the stuff. This lyrica is bad stuff at least for both of us. I need some help for this pain. I don't know what to do.

Nightmares, weight gain, headaches.

My fibromyalgia has totally flared since I had Mirena put in about 2 months ago. The fibro always was better when I was pregnant and since Mirena has increased progesterone (like pregnancy) that it wouldn't make it worse - maybe even better like pregnancy. But it's definitely worse and I'm really thinking it's because of the difference in hormones. When you are pregnant - estrogen is increased as well so maybe that difference is to blame. Who knows. I have also had more breakouts. No hair loss yet but major fibro problems (aches and pains, memory/cognitive problems, sensation of swelling/stiffness etc...). I am hoping if I have it out the flare will subside a bit. If I am still majorly flaring in a few weeks - I think I will have it out.

My experiences with Neurontin were similar to others here. I was on 600mg a day for couple years and it really did help with fibromyalgia pain! The bad thing is I gained 25 pounds and could not get it off! Then I went down to 200mg and lost 12 pounds immediately so I know it caused my weight gain. Recently I took myself off it completely, wanted to try something else. Haven't lost anymore weight (girlscout cookies keep calling my name) but I have had significant tooth pain! I did not make the connection until a neighbor told me today about neurontin causing tooth pain and I believe it! Since on SSD for fibro I don't have dental insurance but the pain is pretty bad sometimes. I'm tempted to go on it again because nothing else, outside of hydrocodone, has worked on my pain. I'm too afraid of Lyrica so I don't know what I will do!

been taking Lyrica for 6 months now for fibro, at first it really helped with the pain but now it is not helping, i am taking 600mg per day.
I have swollen legs and hands, always have like a floating feeling and also the weight gain.

I started using Yaz a year and a half ago. I was also diagnosed with Fibromyalgia within a few months of starting the Yaz. I have lost my job, and my health thinking it was the fibro. I had to stop taking Yaz due to financial restraints, but I have found that most of pain has subsided and I am feeling almost back to "normal". Has anyone else had any similar problems taking Yaz? I was exhausted all the time and in constant muscle spasms and pain.

Wow!!! Should have done my homework when they switched me to this nasty Budeprion!!! I have been on Wellbutrin XL for over two years, after being on quite a few other drugs for depression, with great results and absolutely no side effects. Then about two months ago my insurance company would only pay for the generic, so unless I wanted to pay a lot more for the Wellbutrin, I decided to switch. This was also after many phone calls and being assured by the pharmacist and the nurses at my doctors office that it was the exact same drug. I have had lots of trouble with generic drugs in the past, and this is why I was so leary to switch since I was doing so well. For the last week I have felt like absolute crap! I have had a constant headache, nausea, stomach pains, indigestion and lots of crying!!! Never in a million years did I think it was the drug, since it is suppose to be the exact same make-up and I never thought it would take two months to feel these terrible side effects when I never had any before. Sure wish I had come across this website two months ago. I have fibromyalgia as well, and thought a lot of the additional joint pain and numbness in my hands was from that, although I have had my fibro under control for a couple of years now. Thinking back now over the past few months and all the crazy symptoms I have been having, it all makes sense!!! At least I know I am not CRAZY and hopefully I can stop this nasty drug and feel better soon. How can this Budeprion be on the market and how can pharmacists tell people that it is the same. Now I have to fight my insurance company, and hope they will pay for the Wellbutrin.

Wow. This news gives me so much hope. I've been on the Nuvaring since it was still in the post-trial stages and nobody had even heard of it. My doctor recommended it because it was supposed to help with acne and weight gain, and I'd been having no luck with Yaz or Ortho Tricyclene. I've always had irregular periods, I've been depressive since high school, and I started having migraines when I was 13. Ten years ago, I was diagnosed with fibromyalgia. What this means is that all these symptoms that everyone was describing here, while they have been getting dramatically worse, were nothing I would even think of ascribing to my birth control. I've gained 40 pounds in the last 3 years, but I blamed that on my increased depression and general malaise. I'd stopped having migraines more than once a year, but now I get migraine-like (not usually as bad as the originals) headaches as often as 4-5 times a month. I've had insane mood swings ranging between white hot anger and debilitating depression (even having thoughts of suicide for the first time since high school), and sex burns and leaves me walking funny about 99.9 percent of the time. I thought it was just me, or the fibro (which leaves me feeling pretty sensitive all over); same with the nausea, especially in the morning and always during my period. Could this seriously be the Nuvaring? Oh my god, I hope so. An easy solution like that makes me want to cry from relief.

... but how do I do birth control now? Do we always have to use a condom? I've never been pregnant, so I've been told the IUD isn't nearly as safe if your cervix hasn't been violated by childbirth. Oh well, better than being crazy, I suppose.

Wow. I started taking this when it first came out, a couple of years ago. I had DM w/uncontrollable BS's. BS's came down significantly. But now, a couple of years later, I've been experiencing a few night terrors, when first put on insulin and Januvia, I gained 20# and can't! get them off. I also have fibromyalgia,...so I didn't even think about the Januvia possibly accelerating, increasing, or changing what was going on with the fibro.

I get violently sick anything with Metformin, and swell up like an air balloon (gained 50! lbs. on the Avandia & Actos (MD screwed up and gave me both in maximum dose--I've had leg swelling ever since.) Anyone have any leg swelling/edema? They keep trying to put me on anti-depressants..I've had "real" depression before, and I don't have that kind of feeling, just exhausted, like I can't get going...fibro...or Januvia?

After reading a

Wow, I was diagnosed with fibromyalgia several years ago. Instead of getting on medication, i decided to watch my diet. I noticed i only had fibromyalgia when my cholesterol was high. I keep my cholesterol down and myself thin and toned and i am healthy with no fibro. However, i recently began to take Cipro, and all of a sudden i feel fibromyalgia coming on again. I decide to look this up online and find out there is a connection!

I have taken Paxil for several years for Fibro and Neuropathy. Since I am in constant pain, I get very agitated easily so I was given Paxil to help take the edge off my days. Yes it has helped.

But I have a terrible sweating problem. It has been going on for several years also and no one has ever mentioned it could be caused from the Paxil. I am embarrassed to even go out anymore because I have sweat rolling down my face and my hair gets wet. I know people are starring at me.

After reading all the side effects, which I have many but always just associated them to my other problems, I think I may also try to get off this drug and just see if the sweating stops. If I could go a day, out in public, without this sweating, it would be the happiest day in my life. I am almost to the point of being a recluse now. So keep your fingers crossed for me and a prayer wouldn't hurt also!

Thanks

I too am taking Lipitor and have been for a couple of years now.
On Nov.19th I was given the diagnosis of Fibromyalgia.
Now I read the side effects and they are they same!

I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.

Hello,

I read about how YAZ birth control pill affects the body and psych and I am now scared. This is my 2nd day of YAZ (I've never been on birth control pills ever and I am 27 years old), it's all new to me but after reading all these negative posts about Yaz I don't know what to do. Before the birth control pills, I was depressed, annoying, serious weight problems - 210 lbs :~~((, low energy, low libido, always tired, terrible migraines every 2nd day, ridiculously increased appetite and excessive hunger, hair where it shouldn't be, menstrual blood clots, excessive cramping etc
I have all these problems for 3 years now and now that the family doc. put me on YAZ birth control pill I am even more scared - mainly of more weight gain, it would be a tragedy for me, I am fat enough already and what's worse I can't lose the weight, exercise doesn't help, diet doesn't help, NOTHING. Will YAZ birth control pill worsen my already tragic condition? I just don't know what to do and what to believe ... I appreciate any advice or help you can give me ... Thank You to all!

I might have mild FIBROMYALGIA, but on this drug I felt like I got hit by a truck. I am on my 3RD WEEK. Terrible pain/weakness in all my muscles, the trigger points for FM were very tender. It may be that FM is getting wose due to stress, but this all happened on Yasmin.

"Spacy" and not paying attention. I blamed things on my stress level. No interest is sex due to the pain and hurting.

Very depressed and not wanting to do much (mostly because I hurt!) I can't ride my horse w/o pain afterwards.

No nausea, some stomach trouble. Acne is not better or worse.

I am getting off it this weekend and going to see if it in fact the pill.

Women with CHRONIC FATIGUE AND FIBRO be warned to keep an eye on things.

I have taken Levenquin for years - so far nothing bad (at least that I have noticed). I have had cohn's, fibro, CFS, UTI, kidney stones, COPD (from having my immune system suppresed by crohn's treatments), diabetis (caused by Prednisone), high blood pressure alternating with very low bp (ranging from 234/142 down to 53/36), racing pulse then very low pulse (ranging from 156 down to 29 bpm) and some of these (pulse and BP) can be all in one day (both caused by Prednisone).

Thing is - I just turned 29. I have been dealing with these since I was 18 or so. I have often taken Levaquin with Prednisone and other antibotics.

The only thing that seems to concern me this time is extreme sweating - It is hot enough in the deep South without this med. I am noticing now that since the diabetis is under control (without meds now), I am very shaky and low sugars.

Also, if this causes racing pulse - I am in big trouble. I was given this med for a UTI, along with Prosed (which contains Atropine - from the Belladonna plant). Atropine was given to me in the hospital when I had the pulse crash of 29.

Just praying that I won't deal with any side effects like this.

Oh and I see insomnia- I am dealing with that enough now! If this is similar to Cipro - I should sleep well though LOL

I have fibromyalgia. I was given Levaquin after 3 other rounds of other antibiotics didn't work. The Levaquin was prescribed by a ENT Dr. He never mentioned the side effects to me or the several drug interactions. With my fibromyalgia I take several medications including NSAIDs and narcotics, antidepressant, asthma meds and blood pressure medication. He was aware of my meds. He also prescribed prednisone at the same time. Since I've been looking up this drug I see it interacts with almost everything I'm taking???? How could he still give it to me? Any way I took it for 10days 500mgs/day plus the prednisone for 7 days. I started having weird side effects right away but I blamed it on the steriods. So I took my 10 days and I still had the sinus infection and he prescribed another 10 days. I took them all even though I felt like I was dying because I thought I was having a terrible Fibro Flare. I went to my regular Dr. and told him of the pain and side effects I was having and he said it was my fibro and prescribed me morphine to go alone with my vicodin and tramadol I was already taking. I was still having severe pain even with the pain meds. Today I put 2 and 2 together and started searching the web. I looked up all my meds and looked at their side effects and was horrified when I found out what it was from. It is totally scary that once you get the diagnosis of Fibromyalgia that Dr. don't search for any other cause for your pain and just blame every symptom on Fibro and refuse to do any tests. They just give me a bandaid and sent me home with more drugs with more side effects and more drugs to help those side effects, etc.,etc. I quit taking the Levaquin 3 days ago and my side effects I still have are the following:
SEVERE SWELLING OF MY WHOLE BODY - MY STOMACH LOOKS 9 MONTHS PREGNANT, I HAVE PITTED EDEMA IN MY LEGS, MY FACE AND EYES ARE SWOLLEN, TO THE POINT I HAVEN'T BEEN TO WORK OR IN PUBLIC BECAUSE I AM SO HUGE

SEVERE PAIN IN ALL JOINTS OF MY BODY(ESP KNEES,ANKLES)

SEVERE PAIN, WEAKNESS AND STIFFNESS IN ALL MUSCLES IN MY BODY(ESP LEGS AND ARMS)

SEVERE PAIN IN ALL TENDONS AND LIGAMENTS

SEVERE FATIGUE, WITH INSOMNIA (IT'S 3:15AM RIGHT NOW)

PAINFUL SKIN SENSATIONS - BURNING, SORENESS, TINGLING (EVEN HURTS WHEN THE WIND BLOWS BY IT)

SHORTNESS OF BREATH FROM MINOR EXERTION AND WHEN LYING DOWN, CHEST TIGHTNESS

CLUMSINESS, TRIPPING

MUSCLE SPASMS AND JERKING

FEELING WARM, SWEATING (ESP. AT NIGHT)

LOWER ABDOMINAL PAIN AND IRREGULAR MENSTRAUL BLEEDING

HARD TIME WALKING, DRIVING OR GETTING UP FROM A SITTING POSITION

IN THE BEGINNING HEADACHES EVERYDAY FOR ABOUT A WEEK

DRY MOUTH, THIRSTY ALL THE TIME

BLURRED VISION, SEEING THINGS MOVE IN THE CORNER OF MY EYES

#1 question is this going to ever go away and is there any way to treat it? I don't think I can handle another debilitating disease. I have 2 kids ages 6 and 9. They need a mother. I'm thinking of going to the Dr. in the a.m. but not sure where to go so they won't just dismiss me again. E.R.? I feel like I have kidney failure, colitis, ruptured ligaments and damaged joints. It's my son's Birhtday tomorrow I hate to ruin his party but am afraid to wait. I here it could be deadly??? Please help!

I have been on prednisone, from 30mg to 10mg daily since November for polymyalgia rhuematic, fibro, and inflamatory arthritis. I can move again, but am now gaining weight, have hair falling out, and lots of nervousness. Have gone on xanax which has helped. Mood swings varies. Lots of depression because you don't know if you are really getting better or not.One day you can be at the top, next day, down at bottom. Good luck to all those on this drug. We need it.

VAGINAL BLEEDING HAVEN'T HAD PERIODS IN 5 YEARS
JUST IN THE PAST FEW DAYS HAVE INCREASED NEURONTIN
TO 1800 TWICE WHAT I HAVE BEEN TAKING FOR THE LAST 4 YEARS. BLEEDING STARTED TONITE. I HAVE FIBRO, LUPUS, ARTHRITIS,FACTOR 8 DEFICIENCY, MIGRAINE EQULIVANT WITH PARYLSIS, GOUT, RLS,SUGAR, HI BLOOD PRESSURE,BURSIDIS,DRY EYE, I THINK THAT IS EVERYTHING
OH YES SEVERE MEMORY LOSS.
PJ

I am taking Ultracet. It was prescribed for me by my doctor for my fibro. I had the headaches but they went away. The highness lasted 1 week into it. Now I am fine. It kills almost all of the pain and I am in no way addicted to it.
I highly recommend anyone to give it a try for fibro relief. Medications act differently for everyone. I think its worth a shot.

I started taking Neurontin about 4 years ago.My neuroligist started me on it for Polyneuropathy(nerve damage in my feet and legs)He started me out on 300 mgs. (taking 2 three times a day) It was a miracle drug at first,since my feet had been hurting(burning,stinging,numb toes and balls of feet felt like I had been walking on sharp rocks bare footed and they were bruised)for 2 years.Then they started hurting again after I had been on it for 2 weeks.So he increased the dosage to 400mg taking it 2 three times a day and same thing happened.So he increased it to 800 mg. 2 three times a day.I started getting blisters on my tongue and alot of swelling in my feet,ankles and legs,so he decreased it and that all went away.So he slowing started increasing it and those didn't come back.
I went to another dr. because I moved and he decreased it because thought I was taking too much.And the pain became worse.Well I had ins. whenever I was taking it before and then I didn't have it anymore after about 8 months of being on it.It is so expensive so I had to cut way back on it because I couldn't afford to take the full dosage I was suppose to take.And that is how I know it works for the pain.While I was cut back on it,the pain was almost unbareable.I am taking 300 mg. 3 in the am,2 at noon and 3 at bedtime and my feet and legs still hurt,but I know from experience that if I wasn't on it I would be in unbearable pain.
I am on alot of various drugs.I also take Lamictal 25 mg. 1 four times a day for the neuropathy.And I also have fibromylgia.I seen where alot of people have fibro and it is being treated with this drug.It doesn't seem to help my fibro.Or maybe it would be alot worse if I wasn't on it.Don't know.I take Elavil 100mg. 1 at bedtime,Zanaflex 4mg. 1 at bedtime for the pain and fibro,Synthroid 0.1 mg. 1 a day,Pravachol 40 mg. 1 a day for high cholesterol,Metaglip 2.5-500 mg. 1 a day and Avandia 4 mg. 1 a day for diabeties and Vicoden 5 mg. & apap. 1 every 6 hours for pain.
The Neurontin seems to interact well with all these drugs.
I have dry mouth and some confusion which affects my ability to think and carry on multi-tasks.I am trying to get on my diability.I applied twice and was denied and I got a lawyer and we went to court before the judge 2 weeks ago and it will be 3 to 4 months before I hear if I am getting on it or not.