Fibromyalgia symptoms and conditions

Just to start of, I just got out of the emergency room for heart attack symptoms which I later found out were caused by my cholesterol med that I was just put on 2 weeks ago, Litportal. Well after looking this up on google and found out many people had the same affects I figured well if that made me have so much pain maybe I should look up Lisinopril w/ body pain. OMG, was I speechless. After reading the blogs I was sure that the Lisinopril was causing all my pain which doctors had diagnosed as Fibromyalgia after 8 years of testing. I was put on Lisinopril 8 years ago after my reg brand was not covered by my health insurance. Didn't think much at the time because it was suppose to be the no name brand of what I was taking. Well, it started off with weird things happening. Pain in my ankle and wrist like I sprained them. Shooting pain in arms and legs. Vision problems, numbness on one side of face, stomach pain, just feeling like crap. Months past then other weird things happening, not feeling like I slept at all even though I did for 8-9 hours, body aches all over, anything I did made me hurt. Then years past and it was everyday, wake up with pain and go to bed with pain. Not able to do simple stuff like play with my kids or go grocery shopping knowing I was going to hurt even more and that percocet was all that would relieve it. After 8 years of this I am totaling drained. Just cleaning my house kills me. Everything got even worse after the years and still gets worse. Going to the doctors knowing they think I am crazy and it's all in my head. Family members questioning my pain. I would always say, if you could be in my body for one day, just one day, you would know the hell that I have been through. But today, a new life came into me, after reading tons of blogs on the side affects of Lisinopril. I am just hoping that this is what it is caused from. I am 39 years old now, my 30's completely wasted, and do I mean wasted. To think that this has all been due to a little pill taken daily for 8 years. I thank everyone who has posted on this blog, because if it wasn't for you, I would have no hope. Now I do. And I am schedule for an appointment in 3 weeks to change my meds. What I thought I would have forever may soon be gone. Or at least some of it. Thank you.

Just had to comment on these side effects I'm reading about Lipitor and other Statin drugs. I don't take anything and I never will after finding this site. Guess what, I have had high cholesterol since I was in my early 20's. When I say high... it ranged from 240 - 260...remember when 250 was OK? Well folks, it's 30 years later, my cholesterol is just about the same range, and Oh My GOD...I'm still here without any drugs.!!! They lowered the range so they could pass out the pills!!! Greed, greed, greed. Do you wonder why our Healthcare system is out of control? Well, when you keep feeding people medications that are presenting the side effects they do, making them sicker, they just keep testing and testing and testing for other things. Let's do blood work, MRI's, CAT Scans, Spect Scans, Pet Scans...Scan away...and guess what...all comes back OK...hmmmm why not look at the drugs you're prescribing. We need to see "all the side effects" listed. Not just some. They're misdiagnosing, Alzheimers, Fibromyalgia, MS, Lupus, Dementia, Arthritis, and on and on when it's been the drugs causing the diseases!
Ween off everything and anything you can...take your chances...when God wants you, he's going to come and get you no matter what you're doing...right or wrong!

hair loss, neuropathy in my right leg, complete exhaustion, numbness and tingling, stabbing pain in my back that wraps around my chest, headaches, depression, paranoia, stomach pains, chest pains, tremors in my head, pain down my neck, pain in toes, blurred vision, tearing pains in feet, very weak, moody, pain in face, really bad symptoms week prior to period, cracking sound in joints, -- Have had symptoms for three years and just had a neurologist confirm today that all of these problems have been caused by my doctor prescribing avelox and prednisone!

BTW...also have had major weight gain with Lamictal...loss of sex drive, tired all the time (there could be other things that affect this but)
I also take high BP med, acid reflux med but I don't feel they contribute to this problem with Lamictal. I've been on those meds way longer than L so...I think I just would like to "start over" and see how I can feel better.
I used to think L was exactly what "the doctor ordered" (no pun intended...again, glad I can sorta laugh at this but...) BUT I DON'T FEEL GOOD!!
Another doc prescribed me Provigil and didn't really explain what it was. She said I needed it bc I was tired all the time. I actually went there bc I thought I had Fibromyalgia and all I got was a 'script for Provigil and sent on my merry way. Got it filled, took my first 200 mg pill and thought I was goin' out of my freakin mind!! OMG!! Told my psych doc and he was like, "P not good for BP patients" so...BUT I did cut the dosage down bc it was SO nice to have energy to make it through the day but still, I do not suggest taking the stuff.
Anyways....just thought of this after I posted walla go...tx!

ps Im not sure the L works that great on the depressive side of BP

I have Fibromyalgia and CFS and came down with bronchitis. They started me on a steroid for the bronchitis and my FM and CFS symptoms improved 10 fold!!! However, when I told my doctor about this, he started me on the Dexpak 13. I have only taken it for a few days and I don't see the same results. I can't sleep. I feel hungry all the time. My stomach is bloated beyond reason. I can't concentrate, worse than normal. My skin, which is super sensitive without Lyrica, is worse now even with Lyrica. It feels like a bad sunburn. I don't think I can take this anymore and I don't really recommend it.

in 2006 i was attacked and bitten by a dog , the wounds became infected and was prescribed levaquin for the infection, about the 8th day of taking it i noticed bad joint pain, insomnia, anxiety, ringing of ears,and more symptoms, i was in good health before this, and have been in misery every day all day ever since!!!!
i have been told by my dr that i have fibromyalgia. if anyone has a doctor that will verify that the levaquin , and the trauma from the dog bite caused the fibromyalgia, please contact me , thanks

I just learned that you can develop Cushing's Syndrome from taking prednisone, and that the doctor that has you on this should warn you that you could develop this. 10 mg a day usually worked for my pain, but I eventually got up to 20 mg a day, and that's when my problems really started. Of course I had already gained enough weight, which caused severe depression, but then I started gaining like crazy, and this is really weird, I was eating less, and had no appetite, but still gaining weight. I started feeling too tired to do anything, I have severe lower back pain, and get short of breath from any little bit of activity I do. I can't even take a shower without sitting on the side of the tub to rest. I also started having restless leg syndrome at night and would wake up several times. I sweat profusely without doing anything. I can just be sitting on the couch watching tv and sweat will start pouring down my face. I keep a towel with me at all times to wipe the sweat off. I definitely have moon face, and I also have sores all over my legs and face. I wish I would wake up and it was all a bad dream, but not so. I feel for everyone that has had these experiences. I am seeing an endocrinologist next week to see if I have Cushing's Syndrome. I don't even know if there is anything to do for it? Has anyone else who has used prednisone been diagnosed with Cushing's Sydrome?

I had the Mirena inserted 2 weeks ago and about 5 days post insertion I began feeling changes. The first problem I had was the inability to fall asleep and stay asleep. My 2 months old daughter has been sleeping through the night and I was looking at the clock all hours just trying to fall asleep! I had insomnia! Then I began getting horrible acne, deep lumps in chin, very painful. I have been a horrible person to live with. I have been crying for no reason at all and yelling at my husband and children. Luckily, I noticed that these changes began happening shortly following the insertion of the Mirena. I began my research and found this website! I feel so lucky that I realized it was the Mirena before it ruined my life. I have an appointment to get it taken out in 3 days! Of course, my doctor said, "The Mirena couldn't be causing these problems, the hormones are only in the uterus." Bull! I know my body and it is having a terrible reaction to the hormones! Keep your chin up and get the Mirena out, you can be normal again!

Worst night of my life--woke up feeling filled with anxiety, insomnia, had to get up repeatedly to urinate, felt very agitated, though I felt very peaceful & relaxed at bedtime, feet were swollen so badly I couldn't put on my shoes. I took 10 mg of Benadryl, which did not change how I felt. My internist took me off the Singulair immediately, when I contacted him the next morning.

Despite being on an antidepressant which was recently increased, very recently I felt sad, anxious, and was crying all the time, felt irritable, and was chronically tired. I took 400mg of gabapentin (Neurontin), prescribed for nerve pain, numbness, tingling in both hands & feet at 9 p.m. Just before bedtime at 10:00 I'd take 10 mg Singulair. 1-2 hours later I was wide awake, sometimes not sleeping for hours or at all, even after taking 1-2 Benadryl, without the dyes.

Over the past two years I've had eczema, for which I saw 2 different dermatologists and an infectious disease specialist. Eczema was so bad, I couldn't sleep at night. I consulted with every imaginable doctor, including the allergist who prescribed Singulair & was told it couldn't be the Singulair because Singluair was FOR ALLERGIES. Was diagnosed with fibromyalgia by a neurologist, recently had a repeat of an MRI because I couldn't walk the pain was so bad. My neurologist was unable to find any reason I had pain & difficulty walking, after reviewing the results of the MRI.

I've seen my internist for heart palpitations. When I reported urinary frequency, he had me get a cystocopy (negative) because I had hematuria, blood in my urine, and I had weight loss.

I still have many of the side effects, like the numbness & tingling in my feet and hands, however, I am able to sleep through the night and did so immediately after going off the Singulair. A lot of the fibromyalgia pain I was having has subsided, depression, anxiety has subsided as well.

Wow, who should I believe? Placebo controlled studies which suggest Avelox is a perfectly safe drug or a bunch of crazy people who like to TYPE every OTHER word IN all CAPS who are probably all middle aged women with psychological problems and/or fibromyalgia, irritable bowel syndrome, or other made up diagnoses.

Here's a hint morons: The reason why every drug in existence now lists every possible side effect is because of crazies like you. This way, the drug company can protect themselves from litigious idiots like the poster below who wants to join a class action lawsuit. This only compounds the problem, though, because then more crazies look at the side effect profile and when they see that "Oh my gosh, it says right here it causes x, y, and z" it just validates in there mind that this is somehow a dangerous drug.

I swear, if all of the pampered babies in this country were put to work in a rice field in Cambodia, there would be a lot less nonsense in the world. You would see what true pain and suffering is about.

Toes, foot and leg cramps here too !

I've been searching for answers on LONG TERM side effects of Lupron hoping that it could give me answers as to what's going on in my body now!
23 yrs ago my fertility dr. gave me Lupron to inject MYSELF EVERY DAY (experimental back then). I had SEVERE endo since the age of 16 and was fighting that as well as trying to get pregnant thru invetro. I was 26. At 29 I had an emergency hysto. Now at 48plus I have chronic tendonitis where the tendons will shred off of the joints. I have been diagnosed with C spine and T spine disease, osteoarthritis and a mystery that I'm going to have to go to the Mayo to figure out (hopefully). I have tumors that are growing in my lower back...growing around nerves, tendons and bone, They aren't sure why they are there, why they are growing, or even what they are. Surgery removed 2 of them...but pathology shows foreign matter other than tissue/bone. All they DO know is that it is not cancer. One year ago I started losing weight (25 pds) for no reason. I'm now holding my own at 112 and hoping to figure all of this out. I can't help but wonder if Lupron or any other experimental drugs I was on has something to do with this. Is there anyone out there that used this drug so long ago??

DIDN'T WORK AT ALL & HAD BAD SIDE EFFECTS! This didn't help my severe 'painful red bumps' kind of acne. In January 08 the dermatologist put me on solodyn 1x daily, Rosaderm face wash, & Atralin topical gel, both 2x daily. Eventually she switched me from atralin to RetinA, b/c the atralin wasn't strong enough. I have many health problems, but the last few years I have been feeling absolutely awful- constant body & joint aches, constant fatigue, & mood swings due to the pain. It got so much worse in Jan 08. My doctor & I had been talking fibro for a long time, but she diagnosed me in early March 08. She suspected fibro, as well as an autoimmune disease (when your body attacks your own tissues by mistake) due to a massively high ANA (anti-nuclear antibody) count on a blood test, so she referred me to a pediatric rheumatologist (there aren't many) b/c I was under 21 at the time. The rheumatologist diagnosed me with myofascial pain, which is very similar to fibro. She explained, "It's the exact same pain as fibromyalgia, except it moves all around instead of staying in certain points." Then she told me something shocking: SOLODYN CAN CREATE CONSTANT FATIGUE, BODY PAIN, AND OTHER FIBROMYALGIA-LIKE SYMPTOMS!!! IT ALSO MAKES A PERSONS ANA COUNT SOAR, WHICH CAN BE SEEN IN BLOOD TESTS!!! So she told me to go off the Solodyn right away, which I did gladly because it had been weeks & it hadn't helped my acne. She told me to watch for changes in my myofascial pain/fibro symptoms. After about 1 week my muscle & joint aches started to lessen. Obviously the Solodyn had increased this pain. The weird thing is, after about 3 days after stopping Solodyn, my acne improved. It was almost like Solodyn was preventing my acne from going away! When the results from my next blood test came back, my ANA (anti nuclear antibody) count had dropped but it was still high, indicating an autoimmune disease. It appeared Solodyn had raised my ANA count to a level even higher then it normally was!! It turned out I did have an autoimmune disease, but my rheumatologist told me she's seen teens who take Solodyn & have an elevated ANA count b/c of it. Then they have to run hundreds of tests b/c they think they have some disease that they actually don't have. When they stop taking Solodyn, their blood tests normalize, & then it proves don't really have an autoimmune disease. But by that time they've gone thru dozens of unnecessary tests, not to mention the stress & worry of thinking they might have a disease that may potentially be life threatening. They wasted time, money, and sleepless nights, all because solodyn screwed up their blood tests!!

I was asked to take Effexor for fibromyalgia. I felt like a zombie and always in a drugged stupor w/ night sweats. The DR kept lowering the dose. One good thing about the Effexor is that my pulsatile tinnitus has mostly abated.

I started taking prednisone when I was only 12 years old and I was on it for about a year and a half. At the age of 10, I was diagnosed with glaucoma, uveitis and cataracts and for about 10 years now I have had all these illnesses. My experience with prednisone had been HORRIBLE. Within two months alone, I gained 50 pounds, my skin started to get really really thin, I started to develop stretch marks ALL over my body with the only exception of my face and hands. I started to get the chipmuk cheeks to the point that my family was afraid that I was going to literally explode. My liver was damaged. My kidney was damaged. The vertebrates in my spine where being chipped away. There was a point in that year and a half where the doctors told me that there was a 70% chance of me going blind. The bottom line was that PREDNISONE WAS BRINGING NOTHING FOR ME EXCEPT RUIN. On top of that, I was constantly depressed. Kids at school would point at laugh hysterically at me. And if people weren't laughing, they were struck by fear and were trying to figure out what exactly I was. I remember this one instance in my school cafeteria where one girl stood up on the lunch table, pointed at me and screamed SHE'S AN ALIEN!!

I was and still am scarred physically and emotionally. My arms and stomach are really saggy because the skin is soo thin. As I said my entire body is scarred with stretch marks. I can't show the slightest bit of my body to anyone because I am so ashamed, embarrassed and afraid of peoples judgments. I am afraid that no one will ever want to be in a relationship with me.

All I can tell you is that though I stopped using it about six and a half years ago, this dreaded drug has truly ruined my life from the very start of my childhood.

I was on Levaquin for chronic bronchitis several times without reaction and then had to take it for 20 days for bronchitis that just wouldn't go away. Starting the 5th day I experienced severe joint pain (worse than my current fibromyalgia pain) and swelling in my feet and ankles. My physiotherapist suggested that I take Kefir once the antibiotic ended to clear out my system. Apparently the bacteria in it counteracts the side effects of Levaquin. It worked for me and I'm only experiencing my normal pain now and my feet look normal again!

I started taking prednisone along with Cytoxan, a chemotherapy drug 15 years ago when I was diagnosed with an undifferentiated connective tissue disorder that led to symptoms like idiopathic pulmonary fibrosis. After a couple of years, the inflammation cooled off and I no longer had increasing scar tissue in my lungs (IPF is almost always terminal) so I was glad of that. However, sometime in that first year or so I developed hardish lumps under my skin and severe pain that felt like it was "under my skin" but not my muscles, as in fibromyalgia. The lumps are even more painful, and the skin feels as if someone tried to "skin" me and then just llay the skin back down.
I have had to be on timed-release morphine for years in order to function with this pain, as it is especially painful if I brush up against something or sitting or lying down pressure is intense. Also the skin on my tongue gets so tender I have to use kids' toothpaste or it burns terribly.
After 15 years some of the lumps have gone away, but I've recently had to go back on the prednisone for my lung inflammation.
The last time I got a new prescription for prednisone I read the tissue-paper printout (not the short one you get with every Rx, the one written for professionals which includes all the new data, tests, side effects, etc.) What I want to point out, as I've not read one person saying this, is that to avoid a lot of the side effects and the harm to the glands which produce our own natural steroids, is that they are now recommending that it is taken only EVERY OTHER DAY. They say there may be some slight increase in symptoms on the "off" day, but that this keeps the natural cycle in place in bodies subjected to this drug and therefore reduces symptoms.
This is what my last pulmonologist prescribed for me and so far I have had minimal side effects--no ravenous appetite and weight gain, no "moon face" and it has still helped my symptoms.
Please ask your pharmacist for the flyer that comes with the new package and read this for yourself and then take it to your doctor. It may not work for those in dire need of the prednisone but could perhaps be tapered to this once the first lethal symptoms die down. ASK YOUR DOC--I cannot believe I have not heard more about this as it's right on the flyer--but docs are so busy, it's understandable. I'm grateful my doctor is up on the new research because I don't mind taking the prednisone this time, and I used to HATE it!
Good living to all and I wish you all the healthiest life possible.

Hi everyone, I have just read all thirty pages of posts to try to find some answers to my crazy reaction to prednisone. My thoughts are with you all since I have had an usually severe reaction to prednisone. I was on prednisone for 1 week in October 2008 at 60 mg/day for a sinus surgery. I am still having the following side effects at full force:

Axiety to the point I can't socialize
mood swings
hot/sweating even in freezing weather
whole body shakes
severe migraines
tooth sensitivity
muscle pains
extreme thirst (I drink almost 2 gallons/day)
hungry all the time
moon face
water retention around waist
acne
hair loss
rapid heart rate
dizziness
nightmares
night sweats
high blood pressure
high hear rate

I'm not exaggerating, my parent's can contend to that. I do have a history of having sever reactions to medication and I've had all the gland and blood tests which all check out. I never had a single one of these before the prednisone - I was a healthy 22 year old.

I was wondering if any could tell me when this hell will end - my job and well-being depends on it!

I've been on levothyroxine 150mcg for about 3 months before that it was 100mcg and so on. I have gain lots of weight and tired all the time. depression also, headaches. I hate this gaining weight, sleepy all the time and depression is from gaining weight. I thought this med is to up boost my thryiode but it doesn't seem to be working. my dr. said I'm on the highest dose there is. I don't know what to do any more. I was thinking about taking myself off this but not sure what will happen if i do. I hope there is someone out there that might be able to let me know if they are going through the same things what they are doing and how they feel now.

I have severe Fibromyalgia, as well as several spinal injuries. I have been taking Celebrex for six years now, and have experienced none of the problems described in the side-effects sheet provided with it from the pharmacy. It relieves my pain for several hours, and helps with the inflammation that keeps me from being a productive part of society. Without it I experience difficulty in doing even the simplest of tasks, because my pain level increases so drastically. My only complaint about this drug is that it is so expensive my welfare insurance constantly fights me on it; insisting I take generic forms of it which do not work as well, and DO cause me many side-effects that are not only unpleasant but are also unacceptable. While sympathetic to those who have experienced difficult side-effects, Celebrex has my vote; though I wish wholeheartedly someone would speak to them about the outrageous price tag they attach to it. I have worked in pharmacies, and know they more often than not charge $200 and upwards on many popular meds for which their cost is in the less than $20 range. Shame on them for this. And shame on the government for allowing them to do so. No wonder people are buying drugs outside the USA. But I digress. Celebrex is a very good and effective drug. I just wish I did not have so many problems keeping it in my medicine cabinet. Thank you for listening.

I had Mirena inserted in 2007 due to a lack of tolerance to birth control pills. The experience was very painful for me. However, the doctor explained that the initial insertion process is different for every woman as we are not all designed the same. My cervix/uterus is oddly positioned. According to the doctor they are "crooked". As a result, the doctor had a difficult time properly inserting the mirena, which in turn resulted in major pain! But, this was just my personal experience. Not every woman will encounter this difficulty. However, I would recommend taking at least 2 ibuprofen before the procedure. Throughout the past 2 years, I have experienced a range of symptoms. Major depression, severe mood swings, acne, lack of energy, excruciating lower back pain which mocked mild labor pains, and the overall inability to function normally. I begged the Doctor to remove the Mirena 6 months ago, but she convinced me otherwise considering I cannot tolerate birth control pills either. Nevertheless, I am 35 years old, have one child already, and do not plan on having more. Well, last week, I was basically confined to my bed due to excruciating lower back pain, and severe bleeding. I called the Doctor, and they finally saw me today. I insisted on having the Mirena removed once and for all, and already feel 100% better just 12 hours later! The purpose of my message is not to discourage anyone, as we all have different levels of tolerance when it comes to pain, medications, etc.....Yet, I felt compelled to share my personal experience as it was not a positive one for me! The only "positive" symptom I obtained from the Mirena was a lack of periods. Unfortunately, there was a downfall to that as well. Due to a lack of a regular menstrual cycle, I felt extremely bloated, and had difficulty losing weight despite working out 5 days a week, and eating a proper diet. I sympathize with each and every one of you, and appreciate your efforts in sharing your experiences. Upon stumbling upon this website a few days ago, I finally found the courage to have this thing removed so I can once again "feel normal!" Good luck to all of you!

LOL- EVERYONE! I'M SITTING HERE SEARCHING FOR SIDE EFFECTS FOR MIRENA AFTER REMOVAL. I HAD MIRENA FOR 1 1/2 YEARS, AND I REMOVED IT ABOUT 2 MONTHS AGO. I HAVE EXTREMELY HEAVY BLEEDING SO I FIGURED I WOULD SEARCH IF IT HAD SOMETHING TO DO WITH THE REMOVAL. WHEN I HAD MIRENA INSERTED, I HAD ABSOLUTELY NO PROBLEMS! THE ONLY SIDE EFFECT I HAD THE ENTIRE TIME WAS EXTREMELY LIGHT PERIODS FOR 2 DAYS, BUT I GOT THE PERIODS EVERY OTHER WEEK! WHEN IT WAS REMOVED, I FELT ABSOLUTELY NOTHING! NO PROBLEMS! I WAS IN SHOCK BECAUSE I THOUGHT IT WAS GOING TO HURT. THE ONLY REASON I DECIDED TO HAVE THE MIRENA REMOVED IS BECAUSE MY HUSBAND AND I PLANNED A TROPICAL VACATION, AND I DIDN'T WANT TO BE BLEEDING ALL THE TIME, SO I FIGURED-GET IT REMOVED AND GET THE DEPO ( I HAD DEPO FOR 9 YEARS AND HAD NO PROBLEMS, AND NEVER GOT MY PERIOD). WELL, HERE'S A FUNNY STORY!! THE REASON THIS VACATION IS IMPORTANT IS BECAUSE I AM CONSTANTLY DEPRESSED, ALWAYS CRYING, EASILY AGGRAVATED, LOST ALL MOTIVATION, LAZY-I STOPPED CLEANING/ COOKING, I DON'T GO OUTSIDE WITH MY LITTLE ONES- MY HUSBAND DOES, ALONG WITH EVERYTHING ELSE. NO SEX!! MY HAIR IS FALLING OUT , EXTREMELY BAD ACNE (RESULTING IN MANY TRIPS TO THE DERM. AND SHORT HAIR CUT), I SOMETIMES FEELS PINS AND NEEDLES ON THE RIGHT SIDE OF MY BODY FOR DAYS! I WENT TO THE DR. AND SHE SAID I WAS EXTREMELY OVERWHELMED, STRESSED AND DEPRESSED! I ALSO HAD A THYROID TEST. MY THYROID IS FINE, AND AS FOR THE MEDS THAT WAS PRESCRIBED FOR DEPRESSION- I NEVER TOOK THEM ( I'M NOT A PILL TAKER-CAN'T REMEMBER!) SO AFTER ALL A TROPICAL VACATION IS JUST WHAT I PROBABLY NEED TO SNAP ME OUT OF WHATEVER MY PROBLEM IS! WELL, AFTER READING THIS , ALL I COULD DO IS LAUGH!! YOU SEE, LOOKING BACK----IN THE PAST 2 MONTHS- I HAVEN'T CRIED, I AM FILLED WITH TREMENDOUS JOY WITH LOTS OF ENERGY. I TOOK MY KIDS TO THE PARK AND FOR LONG WALKS NUMEROUS TIMES. I CLEANED THE ENTIRE HOUSE AND IT'S STILL SPOTLESS, COOKED ALMOST EVERY NIGHT, I HAVEN'T HAD A SISSY FIT, OR FELT SOME TYPE OF ANNOYANCE YET, MY FACE IS CLEARER, MY HAIR HASN'T FALLEN OUT AND GREW LONGER. AND MOST IMPORTANT I LOST 34 POUNDS! ( 174-140). RIGHT NOW AT THIS CURRENT MOMENT I FEEL BETTER THAN EVER! MIRENA BEING THE CULPRIT NEVER ONCE CROSSED MY MIND. I SUMMED UP MY PROBLEMS TO BEING STRESSED FROM MARRIAGE, 3 HIGHLY ACTIVE CHILDREN AND RUNNING A BUSINESS. SO I SIT HERE IN MY GLORY AND CHUCKLE TO MY SELF THINKING ABOUT ALL MY POINTLESS NAGGING & CRYING & BLAH BLAH BLAH. AND I THANK YOU WOMEN FOR OPENING UP AND BEING HONEST BECAUSE I NOW KNOW WHAT WAS WRONG! THANK YOU.

Hi there. I am so glad I found this website too. My mirena was fitted in Dec 2005. Since then I have been on anti-depressants twice. I have terrible mood swings, am constantly ratty with my two young sons and my husband, I feel like I am constantly stressed out and definitely feel like I can't relax. I am always shattered. I feel my heart "tremmoring" quite a lot. My hips and top half of my legs ache most days. I feel bloated quite a lot too, like the feeling before a period, or even slight labor pains. I have a constant vaginal discharge, and have slight bleeding after intercourse. I had convinced myself I had cancer from some of these symptoms, but have just had smear test results and all is fine. So it must all be down to the mirena. The only thing is though I am SOOOOOO scared of having it removed, frightened of the pain and of the bleeding immediately after! I would like to hear from people who have had it removed, did it hurt and was the blood loss severe?

I have type 2 diabetes for a few years and am 59 yrs old-and do not have fibromyalgia or kidney,liver problems or depression or a history of any painful muscles ever. I work up to 90 hrs a week as a doctor for the past 12 years and am a DIY renovator of my home in mt free time. I exercise regularly and am fairly fit, I do have a congenital mitochondrial myopathy characterized by non painful arm and leg muscle weakness- but have not been symptomatic significantly for 20 years. I take vitamins and one aspirin a day and have no medication allergies. weeks ago I started Januvia- my only diabetes medication. I worked well to normalize my mild to moserate elevation of BS.Over the past 2 weeks or so, I have had an increased somnolence without feeling rested upon awakening. I felt like I had been beaten with telephone poles and hammers, More distressing is the insidious onset of neuromuscular pains episodic sharp ones, more persistent aching and burning and tingling tingling, with a dense heaviness in legs more than arms worse with exertion and relieved by rest. 3 days ago it was to the point where I had to stop walking after 8 steps and could not climb a ladder beyond one step . I should not curl 2 lb weights even twice, Typing on a keyboard fatigued my arms after 5 minutes. I stopped Januvia three days ago, slept 30 hours,, felt better yesterday,restarted januvia last pm, Today, after 12 hours of sleep I feel exhausted like I did hard manual labor for a few days without ant sleep. The telephone pole beaten feeling returned, My weakness and pain are back with a vengeance and I cannot walk very well and have to stop typing this every 2 or 3 minutes to rest my arms, and have weakness also in my back muscles with curious sparing of abdominal muscles. Heat and massage do not help and are uncomfortable. I feel tired like I do when my myopathy acts up and my Krebs cycle is disrupted and thus my mitochondria do not make ATP to power my muscles- with the additional new symptom of significant pain. Aside from a mild tachycardia of about 100 at rest, my vital signs are normal, my cpk, Mg, thyroid function tests, comprehensive metabolic panel and sed rate are all normal . Heavy metal screen is negative. I will stop Januvia and probably never take it again, If my glucose goes back up I will go back to metformin which I took a few months about a year ago,
I suspect in my case that Januvia disrupted my mitochondrial function as well as being additionally toxic to my muscles and nerves by some additional pathogenesis, I question whether those individuals who have weakness, somnolence and neuromuscular symptoms might have some underlying mitochondrial dysfunction - a very under diagnosed condition - patients being told that their symptoms are of psychiatric origin.

My fibromyalgia has totally flared since I had Mirena put in about 2 months ago. The fibro always was better when I was pregnant and since Mirena has increased progesterone (like pregnancy) that it wouldn't make it worse - maybe even better like pregnancy. But it's definitely worse and I'm really thinking it's because of the difference in hormones. When you are pregnant - estrogen is increased as well so maybe that difference is to blame. Who knows. I have also had more breakouts. No hair loss yet but major fibro problems (aches and pains, memory/cognitive problems, sensation of swelling/stiffness etc...). I am hoping if I have it out the flare will subside a bit. If I am still majorly flaring in a few weeks - I think I will have it out.