May 9th
2008
7:33 PM
I had the Mirena put in six weeks after having our daughter, on June 30th, 2006. I never was able to loose weight, and felt very bloated, moody, with pains in my sides (ovary level), and then in the Fall of 2007, I noticed a significant loss of vision in my left eye. I went through $40,000 worth of hospital visits, and one 8-day stay, to figure out that the Mirena had caused a rather large blood clot to form on the outside of my brain in the main vein that crosses over the top outside brain. I have suffered from multiple ER visits with migraines lasting up to 72 hours, even after shots and meds. I have been going to the University of Colorado Hospital for treatment and it has taken over six months to get me on a medication regiment that will hopefully alleviate my debilitating headaches and now am living with the possibility that my vision may never get better in my left eye. The Dr.'s I have seen: an eye surgeon, a Neurologist, a Neuro-ophthalmologist, a Retinal Specialist, and the multiple local MD's. The tests run on my body and head have been very extensive, including blood tests, multiple MRI's and the final MRVenagram that tests the flow and drainage of and around my brain that found the blood clot and have ruled out everything from MS, to Pseudotumor Cerebri (which is a lifelong disease offering only pain management for the most part), as well as a macular deterioration related with people over fifty, not 24, they have also ruled out any pre-existing tendency for being prone to blood clots . This has been the scariest thing of my life and so consuming and debilitating, that I would never recommend the Mirena to anyone. I have missed so much work and the traveling to doctors have been a drain on our financial situation. This kind of information needs to get out there because Dr's are denying any relation to the Mirena. My Dr's have definitely diagnosed my problem as the Mirena. The swelling of spinal fluid was my body trying to protect itself and that swelling caused such great pressure on my optic nerve that my macula, where a person has central and fine detail and focusing, wrinkled in a layer of my eye that cannot be operated on. I can no longer read out of my left eye and the stress that created for my right eye is a contributor to the migraines. I also see double at night, when lights or signs are illuminated by the headlights of my car. I am seeing two images! This is very hard to accept and not being able to read for very long also upsets me. The likelihood of my vision repairing on its own is slim to none. Thanks Mirena. SO please, please help the word get out!!!! Also caution anyone you know who is planning on getting the Mirena, or who has one in to be aware of any changes. My experience has been very extreme but maybe women out there are going through the same things I have been and no one will recognize the relation to the Mirena. I am only glad my Dr. was willing to admit the Mirena was the cause.
-- By mamarose | Reply | (1) replies | Private Message me
April 28th
2008
4:04 AM
My experience and a question...
Hello all,
I had mine placed 6 days ago. First 2 days were a little painful. But I was able to go to school and work (in my final year of college and am having a hard enough time in Calculus without missing a day). I have been on many different kinds of birth control (patch, pill, and shot). My problem is I suffer from severe migraines. At the worst point in my life, they were 3-5 times a week. The patch worked the best for me. I lost weight, periods didn't change at all, migraines went to 2-4 a month and I (still to this day) have never really experienced cramps. However, because of the cost and my financial situation at the time, I couldn't afford it. The shot was the worst. Gained 10 pounds every 3 months, very emotional and depressed all the time, and the migraines slowly became more frequent. Changed to the pill (Kariva) and took it so that I only had a period every 3 months. My migraines almost went away completely but I had a lot of lower abdomen pain. Had every test under the sun and they found nothing wrong. My doctor suggested changing my birth control so here I am. My question is are there any signs of complications from the placement of Mirena? About once a day or more I get a sharp pain in my lower left side. Not sure if this is just the same pains I had from the pill (didn't take anything for birth control for 2 months and all the pain stopped. didn't start up again till placement) or if others have experienced this when something was wrong. I am scared they may be something wrong but being a broke college student, don't really have $100 to spend at the doctor to have the usually *shrug*. Thanks! email ******
February 2th
2008
11:35 PM
First of all I would like to thank you foe sharing your stories... you have saved my life.
I got Mirena "the monster" in October 2006. For a while I thought it was the best thing ever. In the next few months I gained a few lb, my skin stared to scare after bouts of acne, I did not have the usual energy. I blamed the new job, stress and aging. It seemed like an accelerated aging but I have just accepted it, low metabolism, everyday stress, you name it.
In May 2007 we went for a graduation of a friend. When entering the auditorium I started the feel panicky... it was a weird sensation but I decided not to pay attention to it. I love crowds, I love people. I forgot about it soon afterwards.
During my annual the doctor told me that my thyroid is becoming hypo and I have the elevated number of antibodies.
Then in July 2007 I was returning from Europe I had a full blown panic attack (I know now what it was). I had to be taken to the emergency room where I was treated for tachycardia and ordered to see the cardiologist. The months between July and December I have spend trying to figure out what is wrong with me. I started to have the anxiety attack on the regular basis, insomnia, I lost half of my hair, I was just barely serving, living from day to day, unable to accomplish anything, I was just trying to attend to the basic needs of my family.
I went to the cardiologist, endocrinologist, ob, EarThroots doctor (In September I developed the strange sensation of a foreign object in my throat), my family doctor (several times). I was put on Beta blockers, Xanax , Lexapro. Nothing was helping. I was depressed and absent, could not remember a thing, my mind was under some gaze. I could not understand: I am happily married wife, mother with no worries, great financial situation, job and perspectives. No drama and trauma in the last few years.
But even though it did not make any sense, I started to look for a psychologist/psychiatrist. I hired the private trainer and started the rigorous program of exercising. I learn how to meditate and attended twice a week yoga classes. I read everything in the library on the subject of anxiety, I learned relaxing techniques, bought tapes, music, dvd's. Changed diet. Eliminated alcohol and caffeine. Got massages. Everything provided only a temporary relief.
I started to make notes... the most severe anxiety started every 28 days (for a week) and sometimes in the 14 days. This when I suspected that Mirena may have something with it. Then I found this site and several other sites. In December, after a month of researching I came to the conclusion that it is impossible that thousands women on different continents are hallucinating... and on December 22, 2007 I went to take The Thing out. the best Christmas gift ever!
12 days later I had the famous Mirena crash (thank you again for sharing!), with a mini depression, suicidal thoughts, full blown anxiety and a lot of crying. The period brought a huge relief. The side effects are still present but they are diminishing day by day.
As someone here recommended, just when I was about to start this month "the anxiety period"... I went to acupuncturist. I told him that I need help with anxiety. When on the table he told me that I am having hormonal imbalance, I have a lot of heat (?) inside and that the region that correspond to the liver is pretty swollen. He told me that he is going to help me in 5 session and that I will be able to take off myself and that my body in a few months will return to normal. I have had two sessions, I did not have acute anxiety this months, I almost feel like my old self.
I am off meds, I take occasionally the beta blockers for heart palpitation (one time in January), I started to supplement with vitamin B complex. I drink Sleepy Time Extra -- with Valerian (celestial seasoning) at bed time. If I need to make sure that I will sleep I take the prescription antihistamine (hydroxizinum).
I am sure there is a light in the long tunnel... courtesy of products of Mirena... well ... you could say that I owe them a lot of spiritual growth and learning... at the price of personal hell...
Please know if I can be of any help-- I will gladly answer any questions.
Have hope! Take the damn thing out!!!
-- By mimi72 | Reply | Private Message me
January 29th
2009
9:54 PM
Hi my name is N. and I'm 18 I had a beautiful baby girl back in June of 07 and had my mirena put in about 6 weeks later and I hardly had any periods and once in a while I would have what I thought was a period but it would be like a brownish color and only for a few days at a time and before I got pregnant I was rarely moody and my family constantly told me I was like an angle when I was pregnant because I was so happy and maybe within the past 3-4 months I have been the queen of the bitches pardon my French and I will get so angry over the littlest things and I even noticed a huge drop in my sex drive I mean before me and my boyfriend would do it almost every day and now we can go over a month without even the thought of sex and within this past month i gave had a huge burst with acne and i would never have more than one or two pimples at a time before i was pregnant and i haven't had weight gain im actually very thin im actually smaller than before i was pregnant and I was wondering if. this might because of my mirena and if it is should I take it out and if I do what would be a good type of birth control because I don't have the financial situation to get pregnant right away.
-- By nclmhs | Reply | Private Message me