June 19th
2009
10:44 AM
Signed the Mirena petition which all of you should too. So many people who are on it with no side effects as well as doctors do not believe us and it is very frustrating. Both my OB/GYN and the neurologist I have been seeing don't think the Mirena is responsible for my dizziness/foggy head, anger/anxiety/moodiness, body tingling, however my symptoms started exactly 3 weeks after I got Mirena inserted. Never had these issues before. Have had the Mirena removed and hope these horrible symptoms go away!
-- By redshrimp | Reply | (1) replies | Private Message me
June 17th
2009
6:59 PM
I have been on Simvastatin for about 4 months now. For the past 2 months, I have been having unexplained muscle/joint pain and tightness in my hips and thighs. I couldn't figure out what I'd done but thought it was just one of those things (slept wrong, stepped wrong, etc.). I've been working with a foam roller to get the knots out, even getting up in the middle of the night to work on the roller because it hurt so much. That helped some. Took Motrin but that didn't work at all! Added Omega 3 fish oil and glucosamine and that did help a little. Have been limping for 2 months now and it finally occurred to me, "I wonder if it's the Simvastatin?" I already knew I was sensitive to chemicals like sodium lauryl sulfate, so everything I see written here makes sense to me. I emailed my MD today and she said to stay off it for 3 weeks and see if I see any improvement, plus get blood work. I sure hope I don't have any muscle damage. Thank all of you for posting your experiences
-- By sheilagirl | Reply | (2) replies | Private Message me
May 28th
2009
1:52 PM
With my NuvaRing experience, at first it was all great! I was loving the convenience, it seemed perfect for me and then the side effects started. At first it was nausea. Then came the vomiting. NOW I am experiencing back pain, abdominal pain, severe fatigue, vaginal discharge, tingling in my finger tips and toes. I have only been on the Ring for 2 months but KNOW I have already gained weight. My mid-section is bloated and I FEEL pregnant but no that I am not. Mine is coming out tonight.
-- By bbryce09 | Reply | (1) replies | Private Message me
April 28th
2009
11:07 AM
I had mine removed less than a week ago after using it for almost 2.5 years. Like most, I did my research post insertion (I'm finishing up my PhD and have always been very 'body aware') and thought I knew what I was getting into. I've had 2 children (now 11 and 13) so I'm familiar with the pregnant feeling.
My life has been pretty turbulent for the last 3 years (grad school, divorce, cross-country move, intense new romance) and I blamed my symptoms on stress. The last 9 months, however, have been relatively calm. With that background, here's the low down:
Long term symptoms (since within a few months of insertion): Mood swings (very up to very down), Depression (with poor response to treatment), Bloating, Bleeding (sometimes almost all month...mellowed after 1 year), Cramping, Hair loss, Vision effects, Mental fog (pregnancy brain), Weight gain (20 lbs in 2.5 years), Hip pain
More recent symptoms that finally tipped me off: Acceleration of mood swings and brain fog, Lethargy, Acceleration of wt gain (despite consistent workouts and diet), Spike in blood pressure (feeling heart beat in finger tips...like when I was pregnant...verified by nurse at removal appointment. Mirena documentation says remove it if you get a spike in BP), Panic attacks (totally irrational with no external explanation, lasted for days), Suicidal thoughts (SO not like me).
In just in the few days since removal, my mental clarity has improved immensely. Nothing like being foggy when trying to write a dissertation! My energy level is way up. While I've been working out regularly for a few months with continued wt gain, I can feel it coming off now, already. My moods are much, much better. Little things have been throwing me way off track for a long time. I had a couple emotional knocks last night that just rolled right off (no gruesome details, just know that a week ago I'd have been in a puddle of tears). My blood pressure is down and food cravings are gone. Hips feel much better.
Doc at Planned Parenthood said that she has seen a few women in her clinic who have had problems and wanted the Mirena removed (cost me $94). She thinks it might be the beginning of the wave. I had no idea that the hormones in the device could be causing so much trouble. Over the last year, especially, I have adjusted my whole life and lifestyle to stabilize my moods (and maintain a relationship with my very patient partner), not linking them to all the other symptoms. Ugh. I am relieved and angry at the same time. The difference, pre and post, is night and day.
FYI, I had a few hot flashes the day after removal, along with a mild headache for a few days. I was on my (light) period when I had it taken out and it's still tapering off. Moods were pretty rough the first afternoon post-removal (another suicidal rant in my journal) but consistently good since then.
I'm going to circulate a cautionary message with my girlfriends and grad student peers. I sure would have liked to have known long ago what was causing me so much trouble.
April 27th
2009
4:07 PM
First of all, a big thanks to all of you who have shared your experiences. I am a biochemist, with a background in pharmaceutical research...I chose the Mirena IUD after careful consideration of it's active ingredient, Levonorgestrel. The side effect profile seemed pretty acceptable...until I started to experience nearly ALL of them...I am 33 years old and had the Mirena IUD placed in October of 2008 after the birth of my second child in June of 2008. The initial reaction was to be expected...cramping, a little spotting etc...nothing to be alarmed about. I still have yet to have a period (which I really don't miss so no problem there) I never gave a second thought to this until now...for the past month or so (coinciding with the weening process, since I have been nursing the entire time, I believe the side effects were not as noticeable) I have been experiencing the following (that may or may not be related to Mirena as my OBGYN has so adamantly pointed out, but after reviewing your posts I'm willing to bet they're connected) and are in order of occurrence: Major, but temporary, hair loss after 2 months or so; Major respiratory infection lingering over a month with difficulty breathing, tightness and pain in the chest at around 6 mos; And in the past month, several instances of motion-like sickness/ nausea, dizziness, blurred vision, major impatience/ mood swings, loss of appetite (pregnancy-like symptoms...yep, I was thinking man I'd be pretty pissed if I was that 0.01% pregnant statistic), and as of this past weekend, my first aurora migraine with tunnel vision and serious nausea and vomiting, to the point where I went to Urgent Care...who referred me to the ER...who wants to perform a battery of tests including a head CT. I have an appointment with a trusted GP tomorrow to discuss possible root causes...but it is to coincidental that so many women are experiencing these same symptoms! I am certainly leaning towards having this removed. CAN THOSE OF YOU WHO HAVE HAD THIS REMOVED PLEASE RESPOND IF YOUR SYMPTOMS SIGNIFICANTLY IMPROVED OR WERE RESOLVED!!! THANK YOU!
These side effects seem to go well beyond a 5% rate of incidence according to all of you who have reported. I will investigate further and keep everyone posted. As someone who is highly experienced in the pharmaceutical industry, you bet your a$$ I'm going to get to the bottom of this! Good luck ladies!
April 17th
2009
2:26 PM
a little update. i took 5 mg lisinopril for 3 days, had blood work done on Monday and afterward, took the 4th pill. so the bloodwork reflected only 3 pills of 5 mg each. my potassium level, which right before starting lisinopril, was 3.9- was suddenly 6.4.
doctor called Tuesday, told me to stop taking lisinopril, come in for an EKG and have more blood work done on Thursday, 3 days after stopping
he just called to tell me that my potassium levels are back to normal
March 2th
2009
9:05 AM
I stated taking Omeprazole about 4 or 5 days ago. I stated having chest discomfort, pain in my back,left and right arms, pain in the legs,neck pain, tingle in my finger tips on the left. These all happening at different times. My doctor said the same thing as some of the previous post that this drug was not the cause, I disagree! I previously had taken this drug and had the same problems some month ago but I forgot about the side effects. These side effect are considered as minimal or rare 2-9 % I will not be taking this drug again.
-- By lsgardner | Reply | Private Message me
January 14th
2009
8:48 AM
I've been on it for about 2 months, the first month nothing really happened...but the last month its just been getting worse and worse. Light headed, sweaty hands, cold feet, tinglinging in the fingers, heart palpitations, etc...the worst are the heart palps, and light headedness (I feel like I might pass out right now!). I stopped taking it today, my last pill was yesterday morning, so hopefully the side effects will subside today or tomorrow.
for those who went off the drug, how long did it take for the side affects to disappear?
-- By land234 | Reply | (9) replies | Private Message me
January 6th
2009
2:55 PM
I have been on lisinopril now for about 9 months, 10mg/day. I am tired. I have lost half my hair. My chest feels weird, and I have heart palpitations. I thought it was coffee, but it never went away, even after I went decaf. My muscles aches. My hands are swollen in the morning. I have been watching what I eat, and have cut out red meat almost completely. I only use it as an ingredient in one dish I make, and then I only use 1/3 to 1/2 of what I used to. I eat oatmeal, drink the low cholesterol OJ, take vitamins and my cholesterol has shot up over 60 points in the last 6 months. I have sinus trouble, my scalp itches, my back itches and my ears itch. I am a 51 year old woman. My BP was in the 140's when I started this drug. I stopped taking it two days ago, and will see this doctor on Thursday. If she is like the rest, it won't be the fault of the drug. It will be mine. I felt a lot better before I went to her and I am so mad at myself for taking this drug.
-- By tiredofdrugs2 | Reply | (1) replies | Private Message me
December 2th
2008
11:30 AM
I was put on Cipro for 10 days for a sinus infection and it did nothing so I went back to the doctor and was prescribed Avelox. I took my prescribed dose of 1 400 mg tablet once daily and after the third dose began to feel some very strange sensations. I started cramping and hurting from my elbows to my finger tips as well as I started having night sweats, tremors/jerking when trying to go to sleep which is another story in itself. I may have gotten 9 hours sleep in 4 days. All of this over a sinus infection. I guess we are simply being lab rats for the Rx companies.
-- By mawalk | Reply | Private Message me
May 26th
2008
9:07 PM
I took Doxy last summer for cystic acne. It worked fine and I didn't have any problems, and my skin cleared up nicely. I had some left over (bad, bad, I know but it hasn't yet expired!) so I started taking it again about 4 days ago. I noticed, almost immediately, severe tingling and burning in my fingers and hands and up into my arms when I am out in the sun and for hours afterwards. Also water (like washing my hands) makes the tingly feeling much worse. Weird, right? My two index fingers are bright red and any touch burns.
It's weird because last summer when I was on it I was out in the sun all the time with no problems at all.
-- By shayrizzle | Reply | (4) replies | Private Message me
March 31th
2008
10:29 AM
I am upset because neither the Pharmacist or my Doctor were any help. I thought I was going crazy. I have been on this med. for 6 or 7 weeks of which have been absolute misery. I have experienced numbness and tingling in my finger tips, headaches, yellowing of my skin, severe nausea but never throwing up, unable to eat and yet gaining weight, severe dizziness and nearly passing out, fatigue, pain in my legs when I exert myself (climbing stairs to my bedroom), unable to stay asleep at night, leg cramps, stomach pains, anxiety!!, depression, grouchy, extreme bleeding with my monthly cycle (my normal cycle is 3 to 5 days this cycle lasted 3 weeks and counting), coldness, heart palpitations, chest pains, wheezing and deep dry hacking cough. I just felt like I was going to die also thought it could possibly be menopause, low blood pressure (90/60). Because BP was low I took 1/2 the dosage day before yesterday (5mg). Yesterday I stopped taking it altogether and I was able to eat (yeah!!!!) with only minor nausea. Today my legs are not hurting as bad going up and down the stairs and my bleeding has really slowed down. I don't have a headache but I am still coughing and am having the problem with the numbness and tingling in my fingertips. I see dramatic improvement. I believe if my husband had not researched the side effects of this drug online, it would have killed me. Also he thinks that women should not take this drug because of the emotional impact on the husband! Also I am so angry that his happened to me in full sight of the medical professionals !@!@!@ I will be posting this message on as many medical sites that will take it.
-- By c91640c | Reply | Private Message me
March 11th
2008
5:15 AM
I am a 54 year old male who was put on Lipitor by my Dr to treat cholesterol levels of 6 to 6.5 around august 2007. I used the drug through until early Jan 2008 when I started to notice continuous muscle pain and injuries especially in my lower back buttocks and arms. I constantly had tingling/burning sensations in my large leg muscles, finger tips and hands. My eyesight was deteriorating rapidly and I had a constantly fuzzy brain which was hard to focus and concentrate. I thought that I had rapid onset Alzheimer's or similar. I was finding difficulty controlling/getting nerve instructions to muscles such as bowels, prostate, mouth. My Wife accused me of slurring words and my balance became unstable and I had a series of minor falls.
I started to wonder about my medication and as I only used two and Lipitor was the newer one of the two I stopped taking it. With in Five days most of the symptoms were disappearing or rapidly improving. After ten days I decided to reintroduce Lipitor and within four days they were all rapidly returning. It was at this point that I started to do a lot of research and found all of the sites highlighting the varied side effects attributed to this drug. None of which had I been informed of by my doctor or Pharmacist and most of which I was experiencing. Needless to say I now no longer take the drug and most things have returned or are returning to normal including the eyesight, balance and nerve control. This drug needs to be withdrawn from use before too many people suffer lasting debilitating damage or even worse, death.
February 29th
2008
8:42 PM
Wow. Thank god for this Bulletin! I was diagnosed with hypertension at age 28
and tried a variety of drugs with no control over the BP. So, about 2 1/2 - 3 years ago, I was prescribed 100MG of Toprol XL which seemed to control it well, but with debilitating long term illness. I had no idea until today that Toprol XL was causing similar grief to others. The horrible symptoms that I have been experiencing now for several years are Extreme Chronic Fatigue, Profuse Cold Clammy Sweating, Dizzy spells, weight gain, seeing specs of light and thousands of eye floaters, severe depression, muscle aches, headaches.
After reading about others with similar side effects, I am confident that it's from this medication. I have had all kinds of testing done including T3 & T4 Throid levels and a full array of blood work with NO LUCK! Regardless of the consequences, I am going to quit this damn medicine today because it appears to take 5 weeks or so to get it out of the body to notice a difference. I am so desperate for change. It is ruining my life because I can
't wake up, I'm always tired even though I get 10-14 hours of sleep. My wife and kids are bummed because I have no energy to do anything, EVER!
If you have any other suggestions or would like to comment about this.
Sincerely,
Sean
-- By seand777 | Reply | (6) replies | Private Message me
February 3th
2008
5:55 PM
been taking Altace for about 1 year. never experience the terribl3e cough i hear so much about. however do have the following with a 2.5mg. feeling of throat closing or jammed, very cold feet at times, lightheadedness all the time. i also take Toprol xl 25mg so the combo could make it even more so. all my tests come out normal, so it has to be this medicine. i guess you either have to live with it or go through a trial and error period with other medication.
-- By mattdillon | Reply | (3) replies | Private Message me
January 21th
2008
1:31 AM
Dear Users,
At first I thought it was just my imagination seeing that I have recently undergone angioplasty with stenting I should be feeling on top of the world but then I started developing breathlessness and muscle aches with the occasional sleepless nights which my specialist could not explained and attributed it to my genes as my elder sister had the same experience. However, now it has gotten worse with sudden piercing pan to both my shoulder blades right to my finger tips. I am in a way glad to have found this site and know that others have the same problems as myself. It would be a good thing if all patients are warned of these side effects.
June 26th
2007
12:31 PM
im not a member of this website but here's my story. I am 23, healthy, and in good shape. Never really had anything serious. I came down with a sinus infection almost 2 weeks ago and was prescribed amoxicillin, which i immediately had a reaction to. broke out in a rash.. I was then prescribed Zithromax and Prednisone. I was taking prednisone and felt weird then looked up the side effects and decided not to take it. After my Z-max, I was not feeling any better and returned to the doctor yesterday. He prescribed Levaquin and Duramax. I decided to check the side effects BEFORE beginning taking the medicine. I went to medicinenet.com, and no serious side effects were listed. I took the levaquin on an empty stomach, and about an hour later, my mood shifted from Happy/Playful to Zombie-like and confused. I wanted to cry but I wasn't sad about anything. I couldn't sleep that night, and woke up after having a nightmare. I came to work today and researched it and found multiple websites of people complaining about this medicine! What is going on!?
-- By offdah3z | Reply | (1) replies | Private Message me
November 17th
2006
1:52 PM
I've been taking Lisinopril for about 9 months, my wife for over a year. She has a terrible hacking cough day and night.
I have two finger tips that stay numb, a severe cramp that comes and goes in the left shoulder and neck. My cough did'nt last but a few months, but the muscle cramps are getting worse! My wife has started cramps in her side and legs.
September 28th
2006
8:47 PM
I was percribed Avelox on Sept. 25, 2006 for a sinus infection. I'm used to these because I get them frequently due to my high allergies. I know that people have different reactions and I know that my sever reaction was suppose to be rare as the side effects section says, however, what I experienced I pray to God I never experence again and consider myself lucky to be alive.
I took the first pill (10 day perscription) at 3:35 on my way to pick up my son from school. Within 5 minutes of taking it my crotch felt like it was on fire, and itched bad! My first thought was "I didn't use a publlic restroom, so I can't have crabs" Things only got worse for me. I was at my son's school five minutes later, and by then my ear lobes were burning, and my vision was a little blurred, my hands were very shaky, and they were so swollen that my finger tips were white and I could barely bend them. I walked into the school to get my son and told him something is not right and mommy needs to go to the hospital, so I was going to get back in the car and try to drive myself, but as I pasted to office again, I peeked in to see if the school nurse was still there, her light was off so I told my son she is already gone. How she heard me I don't know, but she said no I'm still here. Two minutes later I started vomiting, and shaking even more. When she took my blood pressure it had already dropped below 80 or 90 over 40 or 50, and my heart rate was above 125. This was all within 15 minutes of the first dose. She gave me medication for an allergic reaction. The I felt like my stomach was being eaten from the inside out, and I was itching hororably. So bad infact that I made myself bleed a couple of times. The nurse watched over me and kept taking my blood pressure and pulse for close to an hour and a half. She let me go home when it was back above 100's over 60's. She was somewhat discusted with the doctor's office reaction that the medication should not have effected me that quickly, but it did. Like I said my reaction is suppose to be rare. It is just another thing to add to my allergy list. I pray others don't react the same.
April 8th
2006
8:30 AM
I have been taking Lipitor for 3 years; I started having problems with my finger and thumb on my left hand. I passed it off as arthritis. Not being aware of the side effects of Lipitor. Then I started having numbness in my finger tips. My Dr said it could be a pinched nerve in my neck. However, tests are expensive with no insurance, so I bypassed the MRI. In the last 6 months I have been getting weaker in my legs, I can hardly walk a block without my legs starting to shake. Yesterday I was at work and went to walk down a flight of stairs and almost fell. I had to do a lot of walking and my knees started giving out on me. I was so embarrassed. I had to stop and rest, and let the rest go on. My husband saw a Lipitor commercial and heard the side effects one being Muscle weakness. I have stopped Lipitor affective today. I will be sending my Dr an e-mail immediately after this to let her know I am discontinuing Lipitor. I am afraid of what I have done to meself. I just hope I can get my health back.
-- By revjudy | Reply | Private Message me
April 5th
2006
6:03 PM
I have been suffering numbness in my finger tips and intermittent short memory loss. I have a lack of energy, as well. I plan to discontinue my Lipitor use immediately. I am on 20mg daily. I take aspirin also.
Someone suggested I halt the Lipitor and begin taking Niacin.
I will keep you posted.
-- By pg3914 | Reply | Private Message me
December 7th
2004
5:27 AM
Hi thank goodness i've found this website as i've been on lisiniprol for 4 months now and the side effects are awful, but because i'm taking it to help control of heart failure my DR says I must continue with it.
There are some days I can't move to get out of bed because of pains in my shoulders and down my arms to my finger tips and, because I have arthritis i was thinking it had got worse, but after reading messages here I now believe its a side effect of lisiniprol.
I also have dizzy spells and on one occasion I blacked out but my DR told me to hold on to something when rising to my feet. and keep exertion to a minimum.
I gave up smoking a few months ago and I still have a persistent cough and some days I feel very depressed. I will now go back to her with a print out of this page and see if she is willing to believe these are side effects from the lisiniprol.
As I suffer from low blood pressure normally the lisiniprol now has me down to as low as 85/48 some days and I feel crap anyway I don't think they're for me.
November 25th
2004
1:43 PM
have been on lipitor and coversyl plus for 7 months - just recently have had tingling in finger tips ,tongue swelling (it feels swollen) and tingling in tongue, head feels kind of foggy some muscle cramping and kind of a numbness on left side of arm and leg - I had a mild stroke 7 months ago at that time my cholestrol and blood pressure were on the high end of normal not out of control. I have gone for blood tests just waiting for results. I am getting a little stressed over these side effects which do not help the whole situation. Can side effects take this long to manefest themselves.
Thanx - Sharon
June 10th
2004
10:04 AM
My side effects, which I am convinced are from Zocor are as follows: Muscle fatigue, hot feet, tingling finger tips, muscle twitches, very bad anxiety, short temper. My Doctor took me off of Zocor a few days ago, no relief yet, I hope it comes soon.
-- By mbp66 | Reply | Private Message me
Lipitor (5) Lisinopril (5) Mirena (4) Avelox (2) Zocor (1) Hydrochlorothiazide-Lisinopril (1) NuvaRing (1) Altace (1) Omeprazole (1) Toprol-XL (1) Simvastatin (1) Lamictal (1) Levaquin (1) Doxycycline Hyclate (1)
September 25th
2009
8:35 PM
I really wish I would have found this site before making the decision to have Mirena inserted. I had it put in yesterday, September 24,2009. It was the most painful things I have experienced. My Gyn had told me that I would have "period type camps" for a couple of hours after insertion. Well I spent my entire day on the couch with a heating pad on high and 800MG of Motrin. None of this touched the pain. I ended up having to take a sleeping aid so that I could go to sleep and hoped I would wake up the next morning feeling much better. Well I woke up this morning and the cramping was not as bad, but still more than "period type cramps". I also noticed that I was having very bad lower back pain. I was cleaning my house and every time I moved the pain would be stabbing. I have not spotted at all yet, but I know it has only been a day. Today I was working and noticed that my right arm went numb from the elbow to my finger tips and my eyes seem very tired.
-- By kristeharding | Reply | (1) replies | Private Message meI am a little upset because the Mirena booklet did not discuss any of these side effects. And also my Gyn had made it sound really promising because I cannot take regular birth control pills. I think I will be calling them on Monday and asking to have it removed. I really wish I would have done more research before having this done.