July 29th
2008
6:11 PM
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan
PS Does anyone know how long these severe body aches last after completely stopping. Its been 6 weeks and its just a little better. My doctor told me to fight it out or get back on pred. NO WAY!!
July 16th
2008
5:15 PM
I am 55 years old. I had open Heart surgery when I was 41. In the last five years, my triglycerides where high. I was on, Lipitor, Tricor, Mobic.
I droped thr Tricor, because I went on line and learned you are not supposed to take tricor and Lipitor together. Lately I have had tingling just below my neck. I am feeling flu like symptoms the last couple of days for no apparent reason. I am weak, all my joints amd muscles ache. My Cholesterol is about 146. Well after reading all this I am going off this stuff today. Are these some of the symptoms?
Also in the last 2 years I have gone from a 8 and half size shoe to a 9 and half...like my feet have swollen.
May 25th
2008
12:49 AM
Just checking in again. Wrote about my dad,(Feb. 08 and May 1st) 77 yo white male, had been on Lipitor 7 years. After my mom passed away I got involved with his health. Read so much about the side effect of Lipitor - finally convinced him to GET OFF LIPITOR ASAS- he has been off since Feb. 4, 2008 and is slowly getting back to where he should be. About 85-90% better than he was 6 months ago. It is a shame that my he and my mom were bot able to do things last summer because he felt so bad. (He had muscle aches, spasms in his wrists, joint aches, bad nightmares, tossing and turning. Although he was also being treated for arthritis, his blood and xray showed none!) PLEASE take the first step and get off this drug - call your pharmacist if you are not sure, tell them your side effects.
It will take awhile to get back to your old self - but my dad is proof that it will get better.
March 4th
2008
10:20 PM
I was taking Levaquin for a sinus infection. After taking the first dose of 750 mg, I noticed that I started having tingling and numbness in my hands and arms. After the second dose, I started feeling the same tingling and numbness in my arms, hands, and legs. Because I had been having severe headaches anyway, I started wondering if I had some kind of neurological problem and my headaches were linked to the strange sensations. However, I noticed that I didn't have any problems with my arms and legs until after I started taking Levaquin. Some of my other symptoms were: tightness in my neck muscles and sore muscles. I also remember seeing a flashing light from the corner of my left eye and floaters. I stopped taking Levaquin after just 2 doses because it began scaring me and I feared what might happen after my third dose. I can't afford to take any chances with my health. That's why I appreciate this post, and I see that I wasn't just imagining these side effects. Since I've stopped taking this medication I still have problems with my arms. They feel heavy like I've been lifting weights and the ache. A couple of times, I've had to take pain medicine for the pain in my arms because they've hurt so bad, it feels kind of like when you hit your funny bone and you try to figure out why they call it a "funny bone" because it's definitely not funny! My arms hurt so bad I couldn't lift them, and I could type or write so I just took some medicine (tremadol) and laid down. It's been weeks since I've taken levaquin, but I still I have sensations and aching and heaviness in my arms. Has anybody been off of Levaquin for a considerable amount of time and found that the symptoms go away? Please give me some hope! :) Thanks.
-- By stephb | Reply | (1) replies | Private Message me
February 11th
2008
3:14 PM
I took Levaquin 500 mg for 10 days for pneumonia starting Jan 23, 2008. It got rid of the pneumonia but after about a week being on them I ached all over but especially in my biceps, moving was agony. My doctor said I must now have a virus but I've never had a virus that made my biceps so painful. Yesterday my left knee swelled up twice its size, today after being off it for 18 hours it is still just as big. Sleep is impossible, everything hurts and feel wired. I've been off the Levaquin for five days now and symptoms are still progressing. Was going for a battery of tests today, then last night my daughter who is an RN found this site and said there is your problem. Don't know what to do. Any suggestions?
-- By luvpoodle2 | Reply | (3) replies | Private Message me
November 9th
2008
1:08 PM
Just checking in again. Wrote about my dad,(Feb. 08 and May 1st) 77 yo white male, had been on Lipitor 7 years. After my mom passed away I got involved with his health. Read so much about the side effect of Lipitor - finally convinced him to GET OFF LIPITOR ASAP- he has been off since Feb. 4, 2008 and is getting back to where he should be. About 85-90% better than he was last year. It is a shame that my he and my mom were not able to do things last summer because he felt so bad. (He had muscle aches, spasms in his wrists, joint aches, bad nightmares, tossing and turning. Although he was also being treated for arthritis, his blood and xray showed none!) PLEASE take the first step and get off this drug - call your pharmacist if you are not sure, tell them your side effects. It will take awhile to get back to your old self - but my dad is proof that it will get better. Weput him on Fish oil supplements and CoQ10 - all natural - not medication and over the counter.
-- By jb4boys | Reply | Private Message meHave also taken him for acupuncture for his arthritis and he is seeing great improvement with this in only 6 visits AND NO DRUGS, he was surprised by the results. Please consider an alternative to drugs and medications.