Flares symptoms and conditions

I have had rheumatoid arthritis for 20 years,controlled reasonably well with a combo of methotrexate, naproxen and enbrel. I do a 10 day course of prednisone several times a year for bad flares. I absolutely hate taking prednisone because it turns me into a crabby, edgy, insomniac who can't stop eating. It makes me bloat and that REALLY makes me nuts because I've done so well at weight watcher's, I don't need that nasty, upset stomach over full bloat feeling. And the "roid head" headache thing ? I'm on the phone all day at work so that's bad, too. The insomnia is the worst, really, because I just lie there awake. When I stop taking it I return to normal within 2 days. I only do it when I am absolutely desperate - I already lost some tendons in my left hand to arthritis related damage so I tend to use the prednisone when the fluid builds up in the right hand or if I'm really too sore. I'm also aware that long term prednisone usage is a one way ticket to osteoporosis / osteoarthritis, so I really have to feel like I cannot deal before I take it. It's a hate/hate relationship.

It has been 7 weeks since the removal of my Mirena. I don't have any side effects except for the week before and the week of my period. Moodiness (my poor husband), dizziness, extreme fatigue, cramps, the eczema on my hands flares up... Can anyone turn on the light at the end of my dark tunnel and tell me that they no longer suffer from symptoms the same or similar to mine, post Mirena? I know everyone is different, I just feel discouraged and need to hear a success story! Thanks and God Bless.

I'm a 35 yr old stay-at-home mom of two who was diagnosed with mixed connective tissue disorder over three yrs ago. But since I was 18, I've had scleroderma & rheumatoid arthritis when I was 23. I never took any drugs for either one up until May 2008. Although the worst things I've gone thru over the yrs were weight loss, stiffness and limited flexibility. The most dramatic change was my facial features. I've had old friends from high school ask me if I had plastic surgery! Other than that, I was able to get pregnant twice and have two beautiful boys. When my rheumatologist diagnosed me with MCTD in 2006, two yrs after my first child, it was very upsetting to know that lupus and sjogren's syndrome was added to the mix, literally. She wanted me to take prednisone and plaquenil. I said no way. I told her I wanted to try for another child and didn't want any drugs to ruin my chances. She assured me that I could take both even while I breastfeed! So I left and ended up with my second boy in 2007. But admittedly, both pregnancies took a toll on my body, the first one with MCTD and then the second one, I had gestional diabetes. A few months after birth, I felt the arthritic flares and the fatigue and sluggishness coming on strong. Without doing any research about either drug, I did consider taking it after I stopped nursing my second child and thought okay, two children are it for me and now it's time to take care of me. I was given prednisone at 5mg daily May 2008 for that entire month. I was very scared but I did it. I just didn't do it consistently. I would skip a day or two..or three...or four days at times before I would take it again. The rheumatologist didn't give me any warnings about side effects, skipping the dosage or tapering off. After I ran out, I decided I couldn't go back on anymore. It did ease the stiffness in my joints and gave me more energy but the mood swings, faster heartbeat and more than normal anxiety did not help. In the next two months, I experienced serious cases of heartburn and acid reflux and a series of episodes when I would gag on a bite of food and had to jump a few times to get it down. I felt a rush of such fear every time it happened that I knew it was the absolute worse feeling I ever experienced in my life. Then the worst happened last August when I fell asleep one one night after having a chocolate chip cookie. I woke up and couldn't swallow. I started drinking water but it was coming back up and out of my mouth. I panicked and screamed for my husband to do the Heimlich on me but it wasn't working. We called 911 and I started downing another glass of water. By the time they got there, I felt the cookie go down. It was something I never wanted to go through ever again. I saw a holistic chiropractor who specialized in kinesiology and other little rituals. He discovered a problem with my adrenal glands and digestive system. Soon after, I saw a gastroenterologist, had an endoscopy and Barium swallow and the diagnosis was esophagitis. It significanty showed how thin it was getting and why I had trouble swallowing. As of last November I was scheduled to have a three hour endoscopy to have a tube go down my esophagus to widen it enough to be able to swallow again. I was too scared and so it didn't happen to this day. You see I like to go the natural route but it is an expensive one at that. It really is my gut instinct that tells me that drugs like prednisone are killing more people than helping people live. But I look back to the fact that I still didn't know anything about it, not like I do now, thanks to the internet and websites like this. Then here's an absolute doozy for you! I was fine for a few months, up until a few months ago in February. My knees were in pain and stiff as a board, my arms were not happy as well. I couldn't take it anymore so I actually went back to my very first rheumatologist in March, who I saw when I was 25 yrs old. He did x-rays and then pushed for the prednisone. I broke down and decided to take it again. This time at 10mg a day. Now I know this is nothing and so was the 5mg from last yr but being only 102 lbs at the time, my body was telling me that it couldn't handle it anymore. I took it consistently this time and for almost two months. The last two weeks though I started to skip again. I also decided that the RA was too old school for me so I went to see yet another RA at the end of April, the one who diagnosed me w/MCTD three yrs ago. I figured the first one never changed so maybe she got better this time around. She took me by surprise when I told her I was taking pred and that she wants me to stop!! She specifically said, "it's an immunosuppressant, that wouldn't work for you."! What a joke!! So she just said to finish it off and start on plaquenil, another drug I dreaded to take. Again, no explanations about side effects or tapering off, I had like three pills left and just stopped. As for the plaq, talk about short-lived. I took maybe three or four and that was it too! I was angry by all the RAs and how they operate. Just take this and don't worry about nothing else. I'll see you in a few months. Then you go home and forget about it. It is highly unlikely with what came next for lil ol me. The first week of May, a pain started in my right ankle. It was more like an annoying sore pain so I tolerated it. By the end of May, I was hobbling on a cane and watched my foot go from normal every morning to an inverted position, w/ the sole facing my left foot. It was swollen, painful and I couldn't put any weight on it. After thinking I was going through an arthritic flare, I said to myself that this was no ordinary flare I've had in the past. I thought of prednisone and how it started after I stopped taking it. The plaq was not in the picture since it takes months for it to take effect. THAT'S WHEN I FINALLY SAT MY ASS DOWN AND STARTED SURFING. After a good three sleepless nights of reading pages and pages of info about withdrawal symptoms, tapering off and stories much like the ones I've read here, I flipped out and went on a mental rampage. I put two and two together about the link between my esophagus and stopping the pred last yr. I have no doubt that the pred f'd it up! Now after seeing one orthopedist (who didn't deal w/the foot/ankle but didn't know), having an MRI which showed torn tendons and ligaments and then being sent to a podiatrist surgeon (BIGGEST MISTAKE TURNED INTO A BLESSING), who decided to take the conservative approach by having my foot casted in a straight position. It was a procedure that I had to be knocked out for since I couldn't bear the pain of anyone moving my foot. That was June going into July. Removal day was the 23rd and lo and behold, hello inverted foot again. Not only did the cast feel loose but I felt my foot turning in it! The blessing was that I didn't have surgery and I didn't have it w/ this damn doctor! He then felt I needed to see a neurologist to rule out whether I may have lesions elsewhere in my body that could be the cause of my foot inversion. I said sure I will see one but I'm not coming back to you! I went to see the doctor I was supposed to see in the first place, an ortho surgeon who specializes in the foot & ankle. But boy he threw me for a loop! Not only did he roll his eyes at the idea that prednisone was involved in this injury, but that MRI don't tell the truth and so I don't have anything torn!! Based on my autoimmune history, he wants me to see a rheumatologist to rule out arthritis as the culprit. He also thinks seeing a neurologist will be a waste of time. He also mentioned the possibility having RSD/CRPS. Google it, it's not GOOD! I honestly hope that's not the case since I'm not in any pain other than the stiffness and non weight bearing pain I'm already used to. This ortho is supposed to be one of the best in the nation and I don't know if I can trust him either! All I know is the prednisone should be BANNED. BLACK BOX THIS BITCH!!! If I had the power and money to go after the makers of this drug, I would run them down for every dollar. I have my 22 month old who was just diagnosed w/PDD recently and I get angry w/the memory of that RA trying to get me to take the pred and plaq before I got pregnant again! My almost five yr old is wondering why I have to walk around in crutches every day and that I can't go outside to play with them anymore. It's been almost three months of this ordeal and it's starting to really depress me, my husband is trying his best to take care of me and the boys as well as my mother and mother-in-law. I have a great support system but I still long for leisurely walks by myself and taking the boys out on my own. I can only go outside in a wheelchair after my husband carries me down three flights of stairs in a no elevator apt. bldg. Life has changed drastically! I'm trying to stay sane everyday for my boys' sake and for my husband's. I do want to mention one last and most IMPORTANT THING. A website: ****** I started taking it two months ago and it has helped me tremendously so far, regardless of my situation. I developed an enlarged thyroid nodule back in February which needed a sono guided biopsy to see if it was cancerous and it turned out to be benign with normal thyroid function as of last month. As for my foot, I don't know what I may have if it's not arthritis related but I hope that LDN is working on it as of right now. For all autoimmune disorders and some cancers, anyone here should take a look at the website and read more about it. Thank you for letting me share my story :-).

I am a 41 year old woman who had an epidural injection using Kenalog in my lower back (for stenosis, disc herniation, degenerative disc disease, etc.). My first injection was on 4/1/09. About two weeks after the injection, my period started a week early. I had light to moderate spotting, not quite like my normal period. I also noticed that I broke out with major acne, had bad mood swings, constant urination and increased hunger. I had a second injection in my back on 429/09. I told my pain management Dr. what I had been experiencing, and he said that it was the side affect of the drug, Kenalog.

I just saw my GYN for my yearly pap smear and told him what I had been experiencing. He said he had never hear of anything like what I was going through as it related to an epidural injection, though he also admitted it wasn't his area of expertise. Due to my age, my GYN commented that the spotting I was having could be due to my body changing and getting ready for menopause. He said that spotting was very common in women my age. He gave me a prescription for Progesterone 100mg to start taking for 15 days to see if that stopped my spotting (and hopefully return my cycle back to normal). He also did a uterine biopsy to rule out any other causes. My uterine biopsy came back normal. I'm currently taking the progesterone and my period seems to be tapering off, but it still hasn't stopped. It went from spotting to more heavy bleeding to spotting again. I'm due to stop the progesterone on Tuesday 5/26/09 so we'll see what happens there. It's officially been six weeks of having a period.

I'm very frustrated that I've had a menstrual cycle this long. I canceled my other future epidural injections as right now, by back in doing much better (the injections did help, though the side affects are the pitts!). If my back flares up, I will seek other solutions as I will NEVER have any Kenalog again.

For those women who've had the same issue with their menstrual cycle, did your cycle ever return to normal? If so, when???

I have been getting the cortisone shots on and off for about a year now, basically, whenever my ankle flares up. I had one earlier today (or yesterday as it may be), and now here I am at 2:45 am, deathly tired, but with my mind so active I cannot sleep. I noticed the same thing after an injection a couple of weeks ago. I can't believe I never noticed it before. I have always had the woozy/loopy feeling afterward, afraid to drive home, but thankful I live less than a mile from the doctor's office. This is usually followed by a day of nausea and other side effects. It's weird, though. The websites with info on this drug don't talk about the nausea, the dizziness, the "feeling out of it", the headaches. Only that the pain is worse before it is better (definitely true!). But do the docs not know about this or are they just turning a blind eye? I keep reading that such side effects aren't possible because cortisone occurs naturally in the body. But the stuff they are injecting us with is not produced by ur bodies. It is synthetic, and being that we are not producing the dose naturally, it is very likely overload. So, how can there not be side effects?

Had injection 2 pm today immediately had head spins like I was off my face (I am a 45 yo mum so no drugs here) heart racing very dizzy and hearing was distorted. Told doctor he was not concerned. I have had injections before and have experienced the burning skin sensation rashes and tummy aches and cramps. I try to hold off for months on getting another but the pain in my shoulder is so bad I have to eventually. ATM my shoulder pain has intensified 10 fold although eventually I will be pain free in a week or so this should last up to 3 months. I will be able to sleep better which I desperately need as I shift work and have a young family.

After being treated for two major crohn's flares since 2005, I have had all the regular treatments for crohn's. Remicade gave me a liver abscess so the only choice left for Mass General Dr. I see from the MGH Crohn's and Colitis Center was Humira. It is helping to keep me in remission after a long bout early spring, but since Humira Pens were added to my treatments and medications I have had short term memory loss, lack of concentration and foggy head. I have been off and on Prednisone without the memory loss, but have had a bit of a fog due to it. This has been bad enough that after attempting over a month to get back to my teaching job, I have had to ask for a leave. Has anyone else complained about this problem with Humira?

I have Autoimmune Hemolytic Anemia (AIHA), was diagnosed in Feb. 2008. Have been ill for several years and finally it came to a head in Feb. I had a blood transfusion and then in the hospital 6 days later with a hgb of 4.0. I was so toxic and my blood so screwed up I nearly died. I was given another transfusion then (total of 5 pints of packed red blood cells) and started on Prednisone. For 3 days given liquid Pred injections, starting at 1000mg, tapering down to 250mg., then on the pill form at 100mg. Sweat poured off of me dosing down. I was off work for 2 months. I am still tapering but am now at 1mg. DR. added another drug, Danazol, after getting to about 10mg because my blood started going crazy again. My side affects with Prednisone have been, Euphoria, no depression, LOTS of hyper brain activity, thoughts running a 100 miles an hour but body at slow speed.Visual problems and a feeling of being highly drugged. 2 to 3 hours of sleep each night, compulsive behaviors and a lot of pacing back and forth. Couldn't hold my concentration because my mind wandered so much. Extreme Tremors in my back, hands and head. Wanted to talk constantly, if no one was around I talked to my Chihuahua or the TV. My cheeks puffed up and became hard and had a fat pocket puffed up on left side of my neck. My dog thought I was crazy, she was tired of the lights being on at 3 or 4 in the morning. Legs looked skinny but didn't gain weight until I got to about 60mg. Gained 25 lbs total. Tapering caused bad spasms in my calves, feet and hands. Thigh muscles would get extremely weak each time I went down a dose. At 50mg I started getting sleepy and could hardly stay awake. Went back to work at 35mg and couldn't remember how to sign on to my computer. Some memory problems since I was in the hospital, couldn't remember how to spell words I knew as a young girl. Started having hip pain about 3 months into the Pred, that hasn't stopped. At 10mg feet, knees, shoulders hurt deep in the sockets, muscles below my neck knot up, may take a while to totally get off this. Read on a couple of blogs where people cut a 1mg tab into 4 pieces to taper off the Pred. because of side effects. Had thrush in the beginning and break outs of shingles. I hope to God I never have to get back on this drug again, it is so HARD on the body but it did do what it was given for, to repress my immune systems. My next step is Spleen surgery, hope this is a cure for me, am sick and tired of being sick and tired. Wouldn't advise anyone to take Pred unless it's a life or death situation. It's prescribed too liberally and people have multiple problems, worse than I have experienced. I've probably forgotten some things, but there's enough I've mentioned to give you an Idea it's not good, but if Pred is all you have then you do what you gotta do!! My puffy cheeks have went down though, now my hair has become curly but at least I have hair and my chihuahua stills loves me!!!

I had the same steroid injection for tonsillitis this past January in both cheeks. I now too have noticed a large indentation in my right butt cheek. I was never informed of this possible side effect either. I would definitely be interested in pursuing a class action regarding the disfigurement of my previously favorite body-part. Had I been informed of such, I would have just had my tonsils removed!!

I have had 1 remicade infusion so far for ulcerative colitis. The next day a bunch of spots appeared on my lower legs. There were 30-40 of them, small, roundish, purple/dark red. They looked like blood spots under the skin.
It wasn't a rash and they didn't itch or hurt. My doc had no explanation, and I haven't heard of anyone else having this reaction. They checked my blood for a clotting problem and didn't find anything. The spots faded away over a week or so. My next infusion is in 2 days, so we'll see if they reappear.
I have also been experiencing a weird kind of insomnia where I am so physically antsy I CANNOT keep lying still, I have to shake my body or kick my legs or something. I read up on restless legs syndrome and the symptoms sure sound like what I am experiencing. I don't know if it's connected to the Remicade - I read that iron deficiency can also cause it and I am anemic due to the UC. But since Remicade can disturb the central nervous syndrome, it seems possible. Anyone else experience RLS with Remicade?

I was put on Prednisonsone for Uveitis, inflammation of the eye. He started me on 20mg at 9 pills a day, then each week it was lowered to 6 pills then now i'm on 3 pills and then next week it will be 1 1/2 pill and i'll be off. I got the puffy face, my feet swelled, everytime i hate my stomach bloated and hurt, my face and neck turns red, i stayed hungry although i fought the temptation of eating for not wanting to gain a lot of weight, which I don't think I've gained any. But now I wake up in the middle of the night and severe knee pain, it feels like my knees they are in some kind of device that is crushing my bones they hurt so bad. i caught a bad cough and it's been around now for about 2 weeks and won't go away, i told the nurse about it and she says, i probably just got what everyone else has gotten, just a bad cough, well what's if it's some kind of infection? I look like a chipmunk, my face is so puffy. When i get off these prednisone in another week I WON'T BE going back on them, no matter what the case. I'm in more pain being on them and have more side effects while on them than the problem i was having with uveitis. I think some co workers thank I'm over reacting, but they're not here they don't see all the pain and frustration i'm going through while on this drug. The leg pain just started this weekend and i Know i can't deal with waking up everynight like this in severe pain. Everyone just makes me feel like i'm over reactin and it's nice to know that somebody out there is going through the same thing. Any comments will be great.

My son is three and a half and has been taking singulair for a little over two years. But only when his seasonal asthma flares up or when I know it is that time of year that he has problems. While taking singulair he has always complained of headaches, stomach and leg pains, and of course it never occured to me that it could be a perscribed medication. However after hearing the affect it had on another little girl and that leading me to research it to find all of these postings from other parents. What really brought on the investigation is the last week. My sweet little boy turned into a monster. He kicked, hit, screamed, pinched, bit, scratched or anything he could do to physically hurt you. We were all freaked out by this because he is such a sweet, gentle little boy, one of his teachers made every excuse she could think of. Because this was not in his character at all, then of he did it to her. She described it as a switch going off inside him. I believe he was also hallucinating, he told me someone told him to do it. This is by far the most scary thing I have ever been through and will never give my son singulair again. Further more I am going to pass this information along to all my friends and family and hope and pray that it makes is to everyone so this madness this perscription medication causes.

My daughter is 15yr old and has been taking Singular since she was 4 yrs old. It is rather shocking to see some of the side effects being spoke about, as she has experienced some of these same side effects. The pain in the side that others have referred to as the 'stitch' in the side. We have taken her to several different physicians and they all state that it is from exercise, or growing pains, or the way she sleeps at night. This has been going on with her for at least 3 yrs. She also experiences the terrible buzzing tone in her ears that others have experienced. I have taken her to the ear/nose/throat physician several times and he states that it would need to be fixed by surgery... hmmm... sure makes a parent wonder! She also experiences frequent headaches, and is exhausted when she wakes up in the morning after a good 10 hrs of sleep.
I will be contacting her pediatrician in the morning as my daughter only has one lung and has terrible asthma, although I would like to know the other options rather that Singulair.

Hello,

I read about how YAZ birth control pill affects the body and psych and I am now scared. This is my 2nd day of YAZ (I've never been on birth control pills ever and I am 27 years old), it's all new to me but after reading all these negative posts about Yaz I don't know what to do. Before the birth control pills, I was depressed, annoying, serious weight problems - 210 lbs :~~((, low energy, low libido, always tired, terrible migraines every 2nd day, ridiculously increased appetite and excessive hunger, hair where it shouldn't be, menstrual blood clots, excessive cramping etc
I have all these problems for 3 years now and now that the family doc. put me on YAZ birth control pill I am even more scared - mainly of more weight gain, it would be a tragedy for me, I am fat enough already and what's worse I can't lose the weight, exercise doesn't help, diet doesn't help, NOTHING. Will YAZ birth control pill worsen my already tragic condition? I just don't know what to do and what to believe ... I appreciate any advice or help you can give me ... Thank You to all!

EVERYBODY REPLY TO THIS Let's see exactly how many women have had negative side affects from Yasmin. Just reply with the sideaffects. I see lots of posts and was wondering how many women are out there sharing similar problems. So me.... migraines, extremely horrible mood swings all from taking yasmin for 8-9 days next..........? lol

I've been on levoxyl for approximately 10 years thinking the side effects were from my hysterectomy 6 years ago and being on hormone replacement therapy. I am irritable, agitated, unable to stay asleep, having more and more trouble recalling people I've met through work and retaining information. Family and friends have teased me. It's getting worse. My most bothersome side effect is that every night while after falling asleep, I've been awakened by extreme hot feelings like I'm on fire inside, not the same as hot flashes experienced by menopause. I'm hungry all the time feeling like I can't stop eating, luckily, not gaining much weight but picking on food as much as possible. I'm waiting for a phone call from my doctor to see how to stop using levoxyl and what I'll have to replace it with.

10mg made me feel high. It helped with my depression and my ocd. I thought maybe an higher dose would help me feel even more better, it just made me feel like not interested in anything anymore, don't care about anything anymore, complain alot, and feel like wanna hurt people. I think it is not really a good drug for people who have bipolar disorder. I think the lower the dose the better you will be but this doesn't apply to everyone.

I have been on this antibiotic for pneumonia for a week. I already have a possible ulcer and have a prescription for zantac. I am on 100mg BID for two weeks. Since taking this medication my ulcer has become much much worse with frequent heartburn and a lot of drowsiness/lethargy. I feel like I float through my day and am confused and using the wrong words a lot, and just not paying full attention to anything. I have a constant pain right under my sternum that flares up and a lot of mid to lower back pain, esp. at night. I have had a headache for the last four days. I did some research and found that ANTACIDS SHOULD NOT BE TAKEN WITHIN TWO HOURS OF DOXYCYCLINE!!! Bummer for me, since I have been drinking Mylanta like it was my only source of hydration.

I have been taking lisinopril/hctz 10/12.5 mg tablets for about a year now. I did get the cough for awhile but it only flares up now and again. I do remember really rough night coughs for awhile where I felt like gagging but they have passed. My bp is where they want it and I have going to the gym for the past 6 months with no ill effects. If I can lose at least half the weight my doctor wants me to lose I am going to talk to him about lowering the dosage or drop the added ingredient. He also put me on a thyroid med too. I hate pills!

This website is wonderful! I finally have peace thanks to being off Advair and knowing that all those dreadful symptoms were side effects of Advair.
I have been on ASMANEX now for 29 days and haven't misssed my life before on Advair. When I was on Advair, my asthma was not in control. I used my inhaler at least 2X/day, I was panting when I exercised, my asthma woke me up at night and my leg cramps kept me from falling asleep for many hours every night.
I was on Advair 250/50 and felt awful. I now take ASMANEX 220mcg only once per day; before I go to bed and my asthma is in control. I am taking 280 mcg LESS of steriod than when I was on Advair and no Serevent and I feel better than I ever have!
It's amazing b/c I tried Advair 100/50 and it didn't work for me at all but ASMANEX(mometasone) is much more effective.
I have been waiting for this drug to come on the market for some time (it is the same drug as Nasonex just like Flovent is the same drug as Flonase) b/c I have horrible allergies which flares my asthma and I have found that Nasonex (mometasone) was far superior for clearing nasal congestion than Flonase so I assumed it (Asmanex) would work great for asthma too and I was right.
As a matter of fact Nasonex works so well compared to Flonase that at the moment it is pollen season and I don't even feel like I have allergies. Now that is amazing.

I was taking Trileptal for mood swings. After hearing a lot of great things about it, I took it for only a few days before I started having Tardive Dyskinesia side effects-- for me, this was a twisting kind of pain in my neck and back. It made it almost impossible for me to sleep. I finally got Cogentin to stop the twisting muscle cramps.

Maybe not everyone will get this type of cramping muscle pain; I get it with some neuroleptics since I took Haldol for years, and it is notorious for causing Tardive Dyskinesia. I don't usually have the TD, only flares up when i take certain meds.
good luck to all, I was hopeful Trileptal would work for me since so many people state it helps them and has few side effects.
I also thought I ate more while taking it. :-(

I am 45 and started taking Lipitor in December 2004. Iy lowered dramtically the cholesterol count from 225 to 130. After my first 3 month supply ended (with no side effects), I got another order but since I am an avid golfer, came up with horrible tendonitis near my left elbow (i.e. tennis elbow) while diligently practicing for a tournament in June 2005. The pain was so bad, I could not wash my hair after the golf round. I have never had an ache like this in my entire life. It then went into my right elbow. I halved my dose from 20 mg to 10 mg by taking every other day. After reading the posts here, I will now go cold turkey and see if the pain goes away. I have another golf tournament in 2 weeks which I will start practicing for again. It will be very interesting to see if this flares up again. I still have mild pain in both elbows right now. How can we get this information to the FDA? It is too important.

Well, so far I have been lucky as my side effects have been bareable. I have had to take prednisone twice due to ulcerative colitis flares. The first time I started at 40 mg I.V. while in the hospital. Within 2 days I had gone from having 15-20 BM's a day, to 2 or 3 a day. Within 9 days my diarrhea had cleared up (and I was able to leave the hospital). I noticed after about 4 or 5 days of being on prednisoe that my appetite had gone through the roof. I was inhaling the tasteless hospital food like it was gourmet cuisine, and then I mooched food off the teenage in the bed beside me, and anyone else that had any. After loosing about 30 pounds in the previous few months from the colitis, the weight gain was actually a plus. Other effects from the prednisone were night sweats, insomnia, mood swings (I was really irritable), joint pain, and kind of a buzzy head feeling. The Doc tapered me quickly on the following schedule:

40mg 2 weeks
30mg 1 week
25mg 1 week
20mg 1 week

then dropping 2.5 mg's a week to 10, then 2.5 mg's per every 2 weeks until 5mg, then off.

I noticed the side effects diminished alot once I was under 20mgs.

The second time on prednisone after another colitis flare has been a lot easier to take. The only effects I noticed this time were appetite, buzzy head and joint/bone pain (especially in my neck). which again decrease alot when I got under 20mg.

Like I said, I feel lucky that my problems haven't been as bad as many who have posted on this site. If you are new to prednisone, don't get to scared by everything you here. If you are taking it, it is probably because you have little or no choice. Stay positive and maybe you will be lucky like me.

I have been on 10-day prednisone tapers twice for severe asthma flares. The first time the worst side effect was the insomnia-- starting out at 60 mg/day, I didn't sleep for the first 4 nights, and it was at least 6 months before I got a decent night's sleep. The second time, it made me so wired and jumpy that every noise was like a spike going through my head, and I developed an extreme startle reaction, also a body rash, bloated stomach and moon face. The first few days of the second taper, I had an enormous appetite increase, but a few days later I lost my appetite completely and had constant nausea, diarrhea, and stomach acid (not heartburn, no reflux) as well as muscle weakness and pain.

muscle pain,sinus problems like never before,runny nose, very bad gerd problems,sight problems,astma sometimes worse than before, tired etc.

trying to get off but asthma flares up....