October 12th
2008
10:41 AM
Last Sunday I attended the American Foundation for Suicide Prevention (AFSP) walkathon in St. Paul, Mn. I was able to hand out hundreds of flyers to survivors of suicide and people in the mental health community. Of the hundreds of flyers that I handed out only two people had ever heard of the link between Singulair and these various side effects that we have all noticed. I received some wonderful responses and many people offered to make copies of the flyers and hand them out to everyone that they know. Several people worked in the mental health community and in pediatric offices and they were going to tell all of their coworkers about Singulair.
I also had the opportunity to talk with Dr. Paula Clayton. She is the National Medical Director for AFSP. She said that they are aware of the concerns with Singulair and their organization is going to Washington this spring to express concerns about Singulair and several other medications that are linked to depression and suicide. She also stated that if everyone could write letters to their local representatives that it would really help to raise awareness.
September 25th
2008
11:18 AM
I am going to be attending the American Foundation for Suicide Prevention (AFSP) walk on Sunday, October 5th here in St. Paul, Mn. Dr. Paula Clayton, the AFSP National Medical Director will be there and I will have an opportunity to talk with her. Does anyone have any advice for me? I will also be handing out flyers about the dangers of Singulair and spreading the word about the grass roots efforts of Parents United for Pharmaceutical Safety and Accountability. If you have any advice for me please let me know.
Thank You.
-- By sarahsmom | Reply | Private Message me
September 24th
2008
7:47 AM
I wanted to post an update on my contact with the Congresswoman's office , which I am communicating with.The ALA study we were all so upset with,was originally done by Merck,what a surprise!The FDA did contact me and state that they look at all the available data and have even reviewed this site.I am reiterating how important it is to contact your representative in Congress,they are trying to form a coalition for better notification practices.Our Congresswoman Kirsten Gillibrand is working with other members and looking for more to contact her office, that have families they represent.Also the Parents United for Pharmaceutical Safety and Accountability group that Jenna has formed is a very important tool.I will hand deliver it to Washington if we get enough people to get involved.The FDA is taking more time than we would all like but,if they have hired more staff and hopefully that alone will expedite this investigation along.I hope the awareness level rises when WBZT out of Boston airs our stories.Again Please Make a nuisance out of yourself with your Congress Rep. it will help to make it a law to expedite important information on added side effects to the doctors and pharmacist .All of us need to come togehter as one voice and it will make a stronger statement.When the advocacy website is up and running,we can all help by taking the time to contact those who have posted to sign up and get involved.The importance of this was stressed to me by the Congresswoman's staff.I also walked in a Suicide Awareness and Prevention walk over the weekend,I took the opportunity to hand out flyers I printed. They contained information on the serious side effects such as suicidal thoughts and actions, so people that may have had a loved one die from suicide and taking SINGULAIR could make the connection.Many have not made the connection and they are unaware of the link!!!!!!!
I am looking for all avenues to travel, any ideas are appreciated.I have scanned a print out of a sheet that is an alert to post in schools and emailed it to Jenna,if you would like a copy send me a private email and your email address.A family member worked with the School nurse in her hometown and made this a communication tool.You can start at that level and just white out the name of the town and the nurse add your own or nothing just the alert.We went to all the local schools and there is no liability it just states the facts,good for the bulletin board in community centers also!Do what you can to help,it is grass roots efforts that brought this country to what it is now.Even through disappointments we still have the freedom to try to make change.Kate M.
June 17th
2009
10:11 PM
I just recently posted about my experience with mirena and had then read some more posts, and I had a thought. With SO MANY of us experiencing these symptoms-can't we do something about it?? Couldn't we send copies of these thousands of posts to Bayer or whomever is the top of mirena, I think it's Bayer. Or someone who can help us! Obviously we're are not all crazy! There is obviously something going on here. I mean I want to make sure other women are aware that this product may not be the greatest thing in the world. Anyone else who has a thought on this msg or reply please.
-- By nickel | Reply | (1) replies | Private Message meThanks for listening!
And blessing to all.