July 29th
2009
3:59 PM
I've had the Mirena since Aug. 2006 - three years now. I considered having it removed because of intense irritability, depression, suicidal thoughts, and lack of interest in sex the past 5 months. I went to my doctor's office this morning to have it removed, but kept an open mind to alternatives. I'm 39 years old, and the doctor indicated that at my age, some of these issues are normal. I found a list of Menopause side effects, and many are similar to Mirena's side effects! At any rate, I asked if there is a way to offset these side effects so that I can keep the Mirena. She gave me an estrogen patch called "Vivelle", and I'm hoping that will help. Has anyone else tried estrogen therapy to offset Mirena's side effects? I still have the Mirena and will follow up in a few weeks.
-- By rvanderbilt | Reply | (1) replies | Private Message me
July 5th
2009
10:10 AM
I have been on lisinopril for over 3 years - 5 mg/day. I am a 52 year old female in great shape and exercise daily. For over a year now I have had muscle aches, muscle weakness, heart palpitations, foggy brain feeling, insomnia, fatigue, some tingling in extremities. I also sometimes get these spells where all these symptoms come on at once. It's very strange. Been to numerous doctors including, PCP, 2 neurologists and a rheumatologist and after many tests they all come up with nothing. After reading posts at this site I think it may be the Lisinopril and with my PCP's permission stopped taking it 11 days ago. My blood pressure is fine - I am monitoring it daily. My symptoms still remain. Does anyone know how long these symptoms may continue? I am grateful for any additional information you could provide.
-- By arey888 | Reply | (2) replies | Private Message me
June 20th
2009
10:10 AM
Sorry to post again, but NO ONE REPLIED TO MY POST!
I am 5 days post removal and need reassurance. Unlike everyone else, I have NOT felt better right away. I am just as tired (if not more), more irritable, and JUST GOT ACNE on my face and arms 2 days AFTER removal! I'm still dizzy and the brain fog is just as bad. Have not bled a drop at all.
I know everyone is different, but my removal experience has been completely different... don't feel better, no bleeding/clots, no immediate improvement. IS SOMETHING WRONG WITH ME??? Was it not the Mirena after all???
-- By ameigh | Reply | (8) replies | Private Message me
June 19th
2009
12:45 AM
My nightmare began Feb 24, 2009 when I had the Mirena IUD inserted. Amazing how crazy we all are! I have an almost 3 year old daughter and my husband and I are pretty certain that we are just having one child, but just in case we changed our minds, we wanted a form of birth control that was not permanent. Before I had this IUD placed in I talked to my ob/gyn about the Mirena vs the Paragard, I decided to go with the Mirena because my ob/gyn explained to me that because of the low level of hormone that would be absorbed into my bloodstream, that I should be okay and not have any side effects and I would have a very light period. I have tried other birth control pills and the nuvaring and all of them have affected me from anxiety to headaches to cold sores.
I have experienced the same symptoms as all of you. dizziness, foggy brain, numbness on right side of body, anxiety, acne, irritable, moody, bloated, headaches, weight gain (although I do exercise 3-4x/wk I gained 5 pounds in 2 mos.), hives( I have a history of allergies which I have been able to control with antihistamines 2x/wk and then all of a sudden I could not control it--saw my allergist who switched my meds), GERD which I was diagnosed with 10 years ago and had successfully arrested the symptoms after treatment), spotting, period every 3 weeks, etc.
I called my ob/gyn a couple of months later to tell her about my symptoms especially the anxiety and was told that it was probably related to my cycle and for me to chart my symptoms and to let her know how I was feeling a month later if things did not improve. Well after putting all of the pieces of the puzzle together, I figured it out that it was the Mirena that has been causing me this hellish nightmare.
On June 15, 2009 I went to go see my pcp to address my GERD issue and to start meds again. I told her that I was considering having my IUD removed because of all of the side effects that I was having. I told her that I was going to go home later and call my ob/gyn to make an appt. She told me that she would be able to remove it for me and so she did.
I instantly felt better--it seems like all of my symptoms have lessend or disappeared, and I had a bit of spotting which my pcp I was a happy person again--I was nice to my husband and was actually laughing when my 2 year old was having a tantrum in the bathtub! About 2 days later I began to bleed heavily and began to feel lightheaded, heart palpitations, cold sweat, and I felt like my legs were going to give from under me. I was thinking that I needed to go to the er. This occurred at 11:00 pm. I called my pcp and spoke to the on-call doc and he told me that if the symptoms continued that I should go to the er; I also called my ob/gyn on call doc (answering service) that I needed to have the symptoms addressed by the doctor who removed it and not my ob/gyn ( I was livid because I have been her patient for 10 years). Anyhow today I called my ob/gyn and spoke to the np who I am not very fond of and she told me that only the bleeding is expected and that all of the other symptoms are related to something else and that I should see my pcp for those. I disagree with her and believe in my heart that all of the symptoms are related to the removal of the IUD. Unfortunately I was not able to talk to my ob/gyn because she is off today. Anyhow I feel like I am feeling better although I feel like it will be a slow recovery and hope that there are no long term side effects.
What makes me the most upset is that the drug manufacture does not disclose all of the side effects, which I am sure that they are all very aware of. There are thousands of women with the same complaints and yet this birth control is still allowed to be distributed to women. Shame on them.
To all of you considering the Mirena: DO NOT HAVE IT INSERTED
-- By maxeegirl | Reply | (2) replies | Private Message me
June 2th
2009
7:39 AM
I had my Mirena in for 20 months. I had it removed as i realized that it was causing many side effects including headaches, painful feet when i got up in the morning, bloated stomach and fat rolls! WEIGHT GAIN of 6kg or 13 pounds and i could not get it off (usually i can drop a kilo or two if i needed by eating smaller portions and no snacks), foggy brain, very tired and exhausted for no reason, lower back aches, tender breasts, no period whatsoever (not a bad thing), NO libido and possibly more - a doctor suggested he possibly suspected depression. After i had it removed, i bled for several days then nothing then a few days again. It has been 5 weeks since its removal and i have already lost 3kg or 6.5 pounds, and i have not felt tired unusually at all. All my other symptoms have pretty much disappeared overnight and i feel myself happy, exuberant self again. HIGHLY recommend removing your Mirena if you are feeling symptoms like mine. Condoms girls is all i can say, don't mess with your finely balanced hormone levels. Also i researched a natural product you might be interested in to regain natural hormone balance, Maca Root. Ask a naturopath at a health food store for more info. Stop searching for answers like i was doing, and do what you think is right for you and your body.
-- By mcb | Reply | Private Message me
May 28th
2009
6:48 PM
Well, I'm really glad I found this site. I can't believe how disillusioned I was. My doc prescribed Yaz because for the past year and a half I have had extremely irregular periods and would go from not having any period at all for a few months to have a two week period. I would also have dark brown to practically black spotting often. So my doc said to try Yaz.
I would much rather go back to what was happening before to what's happening now. I have only been on Yaz for 2 months now (I am on the last few days of my second pack). First month I was so depressed and would cry and didn't care about much of anything. I felt like an idiot. I started to hate my job that I love. When it came for the break in the pack I didn't start my period until the day I started the new pack and it was the most painful and heavy period I have had in my entire life (and I used to have pretty bad periods when I was a teenager). It lasted for 10 days (at least). What a nightmare.
To make matters worse this month I have been angry and snappy at everyone and for no real reason at all. The smallest thing makes me extremely irritated. I have been having pain in my wrists and knees which I have had a pre-existing issues with but the pain is worse now. Headaches, constant bloating, foggy brain as if I am stoned or something, disinterested in things I normally care about. My legs have been so itchy I am scratching the skin raw and have started to develop small itchy red dots on my arms and legs. I am thirsty a lot, to the point where I have to bring a water bottle with me everywhere. And most concerning for me is that I have been extremely nauseated, dealing with severe stomach pain, mild to moderate vomiting. Also recently I have been really really tired. I was really sick this week, was it a stomach flu or Yaz pulling another trick out of it's pocket?
I work at a bank and the emotional parts of this makes it extremely hard to to my job. Thank God I have an extremely understanding boss. I am stopping Yaz immediately because this is insanity. I don't think that I'm going to take birth control pills again. I have an appointment to talk to my doctor next week and I will talk to her about different options. I am only 24, this should not be the case.
-- By niacin | Reply | Private Message me
January 1th
2009
8:53 PM
ive been on levothyroxine for about 6 years...... for an underactive thyroid gland and i am stunned reading all these side effects as for about 4 years ive suffered from severe joint paint, fatigue ,very low moods , foggy brain, mood swings hair loss, all i want to do is sleep and even then im still tired.
I am 35 and feel about 80 as my back hips legs calfs and feet all hurt so bad.
I have been to the doctors so many times and got no where.
ive been told your in pain because your depressed( who would not be depressed ) but i said i am depressed cause im in such pain.
i remember asking once if it was due to the thyroid or the drug and the doctor said your levels are fine and the drug gives no side effects.
I feel like stopping it right now to be honest.
I only got it after my third pregnancy and i remember reading once it can correct itself as it could be caused by pregnancy ????? any ideas.
ive copied and pasted a lot of these comments and i will be making a trip to doctors to be fobbed off again im sure ....but its worth a try
November 12th
2008
12:34 PM
Hello Ladies,
I just had my Mirena inserted on 11/7/2008, and since the insertion I had experienced some side effects as well. For the first time in my life I had experienced the worst anxiety attack ever. It lasted three days... three whole days... The day after insertion my husband took me right to the ER. The er doctor said it was from the anesthesia, gave me Ativan IV and sent me home with a pill in case it didn't get better... After the anxiety attack subsided I was then left with anxiety, light headedness, dizziness, and mild headache and at times nausea. I call my doctor with these symptoms, he decided to keep me home for the rest of the week and said I should rest. However I noticed that I am still anxious, I was having a rapid pulse, I was waking up with light headache and a high blood pressure... My pulse was going up as high as 150 bpm... So far today the rapid heartbeat has calmed down. But I'm still feeling that foggy brain feeling. I feel as though I'm never going to feel normal again.. Not sure if this is all related to the Mirena but folks I haven't felt normal since I had it put in... I want to feel like my old self again... I don't feel right! Any suggestions???
-- By babs301 | Reply | (1) replies | Private Message me
November 6th
2008
2:00 PM
Now that I have had mine removed and can think clearly again, I just realized that I had anxiety at work all year long and felt so overwhelmed with everything coming at me all the time, feeling like I had developed Adult ADD and scared I would lose my job because I couldn't keep up or kept screwing up little things with my foggy brain. WOW - it was this IUD messing up my body and my mind the whole time. Why won't doctors listen to us and hear our cry for help???
-- By ljdavies | Reply | (6) replies | Private Message me
November 5th
2008
2:37 AM
I was wondering if anyone else was having the same experiences and then I came across here!!! Hopefully there will be someone out there who will be able to relate to me. I had my Mirena placed in August 2008. It wasn't that bad going in, actually went right back to work after that. About a month into it I just wasnt feeling right. In September I tried to get it taken out, but the hospital talked me out of it (military hospital, and said the cost blah, blah, blah, blah...) Well since then my life has been a living hell. It started as a small little headache but has literally grown into a DAILY dizziness and headache "fest" that is so bad that it's effecting my daily life. has anyone had this??? I've had CT scans, MRI's, spinal taps.. All says i'm ok... Plus "foggy brain" to go along with it.
-- By phantasyprincess | Reply | (4) replies | Private Message me
October 27th
2008
1:44 PM
Wow is this some interesting reading!
I got my Mirena put in place in Oct, 2007 - 2 months after the birth of my 3rd child. I was breastfeeding and had not yet had a period so I never had the excessive bleeding that most experience and up to very recently I thought it was great.
I've had so many of the symptoms people are describing on here but did not attribute to the Mirena. My husband is the one who has told me repeatedly over the last few months that I need to go see my doctor because he feels like it is related "to that thing!" His position is from one of seeing my moods, irritability, and anger. Of course my mood and irritability has resulted in me basically telling him to shut up and that he doesn't know what he's talking about!!! Well, I'm eating crow now!
My symptoms are extreme back pain - and like a few others who have mentioned they thought it was their mattress - that is me! I was out shopping for new mattresses and complaining about it to everyone who would listen! I've been having lots of stomach cramping and pain. I also have the cloudy thinking or foggy brain. But I think the worst is the moods and irritability. I was ready to find a therapist and get some anti depressants or something b/c it just is continuing to get worse and then I found this site. I think what I need is to get this thing out!!!
I did call my doctor office and talked to a nurse who told me I should have had symptoms before now if I was going to and that the hormone stays in one spot and doesn't go systemic. Whatever. Not based on the research I've found!
y husband has been telling me that I need to go see my doctor
-- By kmonaghan | Reply | Private Message me
October 20th
2008
10:53 PM
Vertigo, weakness, fatigue, exhaustion, aching numbness in arms, numbness in face arms and legs, extreme pressure in head and neck, burning feeling radiating from the base of my neck through shoulder blades to arms, foggy brain, waking up feeling (for no reason) like I have a major hang over, chills, aching feet, weight gain, feeling very fearful of my symptoms because they feel like nothing I have ever experienced.
THESE LAST 4 WEEKS HAVE BEEN HELL!
I had my Mirena inserted on June 30 2008. I experienced mild discomfort for the first 4-6 weeks. The spotting was the worst of it and that was no more than an inconvenience. I was happy with my choice of birth control.
Then this hell began about three months after insertion.
During the last week of September the symptoms listed above started. They were mild at first but by within a week and a half I felt HORRIBLE. I suspected that it may be the Mirena, but at the same time I thought I was dying.
October 1 or 2nd (it is all a blur) I was home by myself when I started feeling the numbness and head pressure coming on again (my symptoms were coming and going, not constant) so I laid down on the couch to get off my feet. All of a sudden I felt like I was losing consciousness. I grabbed the phone and called my husband to get me to the ER. I thought I was dying. A blood clot or something. Once there, they did blood test after blood test, an EKG, urine tests, and basically I was told that there were no major system problems. I know this sounds a like classic anxiety, but I know it is not. I have to say they were very good there and encouraged me to see my family physician (whom I had already been to earlier that week) again.
I called to make an appointment to have the Mirena removed the very next day. My GYN kind of shrugged off what I was going through saying that it was anxiety and asked if I still wanted the thing removed!!! of course I did. Having that thing removed was very empowering. I was feeling so helpless and it was the one thing that I could do to possibly help my situation. The feeling of relief was amazing.
I did see my family physician again who agrees that what I am going though is related to the Mirena. She did ordered a CAT scan (came back negative) just in case.
Post removal (It has been 17 days) I have been slowly getting better. My "episodes" are getting more and more diminished and further apart. I have noticed that I am flooded with exhaustion after each of these "episodes". I also never know when there going to strike making it hard to make plans. My husband has been very supportive through out and was convinced before I was that it was the IUD. He has volunteered to get a vasectomy.
GOOD LUCK TO ALL YOU LADIES.
If you have stumbled across this because you are desperately searching for answers, all I can tell you is that I believe that the Mirena IUD has had devastating effects on many, many women, but hang in there you are not alone and you are not insane. What you are experiencing is very real. Have it removed ASAP!!!!!!!!!!
October 20th
2008
8:32 PM
I have taken my 15th tablet this morning.
I already knew i was sensitive to new products, and if a small percentage of people have side effects, I'm likely to be one of them.
I browsed through the potential side effects on a my fact sheet and then put the paper away and focused on the positive effects i was looking forward to. I was keen for improvements of any sort!
Well here i am on day 15 and had to start googling to see if it is my imagination or something else.
I commend those women who stick it out for 3 months, but i just can't risk waiting around for an improvement or for it to settle.
I can handle the mid nausea that comes and goes, even the breast swelling, which has been quite extreme. I got a rash -acne like - on my face, initially my face became abnormally greasy too- like i had olive oil on my face! But the following is just not on. i can cope with physical issues, but not mental ones.
1. Moods- Depression and irritability - what a change- I am angry, nasty -want to leave my husband, say mean things to my young children. Don't care about my kids. No warmth. Feel overwhelmed by usual tasks like housework. Feel really negative about everything in my life. Feel sorry for myself for anything that is not positive or terrific. Don't feel motivated, don't care. Resent things that normally i would just go ahead and do.
Foggy brain- can't think clearly
My husband has clinical depression so this is not helpful- two of us being self centred can't work.
Anxiety- unbelievable. I'm like another person- I allow irrational negative thoughts take over. Each day is different, some worse than others.
I've been tempted even a week ago to ask for anti-depressants for anxiety and depression when i saw my doctor for something else. i thought I was going mad.
Fatigue,- some days i just don't want to do anything.
Sleep- a couple of unexplained nights of insomnia and really negative stressful dreams.
Probably other symptoms.
Everything described is an extreme and unbearable change in me, and this effect took place probably with 24 or 48 hours (I didn't keep a diary unfortunately, but the symptoms began almost immediately.
I wish it was a good experience but i am not willing to wait and see what my mental health will be like in a month or two. Not with young kids who need a mum. I just took a herbal laxative to hopefully flush out the Yaz I took this morning. No more for me.
-- By lovebug70 | Reply | (2) replies | Private Message me
August 25th
2008
8:29 AM
Topamax may help some people, but for me it is poison and I've tried it twice! This second time around I tried it longer and went to higher dose. I'll just list the bad side effects that I had this time, although I had some of the same the first time. By the way, I took it for migraines. The first time a couple of years ago I was on 25 mg a day. Then, this time decided to try again since migraines were so bad thought I would give it another chance. I went from 25 mg to 100 mg a day slowly increasing as directed. The side effects started occurring right after the first couple of days, numbness in my hands, jaw area. Then sometimes numbness in my feet. Started to feel bloated in my stomach, waistband on pants a little tighter, and also noticed a little fluid retention in my fingers and ankles. I would forget a word here and there, or when typing, type the wrong word. Eventually it got so bad that I would sit there and think to myself, ok I know this is the right word but should I actually say it or type it? Friends thought I was in a bad mood when I wasn't. I would get very very quiet and I didn't want to leave the house. Thank goodness my husband was understanding. We knew it was the drug. And we knew I would stop taking it! Sometimes my back and sides would ache which is unusually for me, and I drank a lot of water. I lost my appetite completely but still did not lose weight at all like others say they do, if anything I think I gained in fluid retention. The skin on my ears started to burn and itch, then the skin on my face started to itch. I felt nauseous almost every day. I also felt like I was completely encased in cement, this is about the only way I can describe it. You just do not feel like yourself at all. You have that foggy brain feeling people mention. You know you don't feel like your normal self, but you feel so lousy you almost don't care. It's a scary feeling. This was all in one month, I figured I had given it a chance but that was it. Even with the warnings about seizures I quit taking it immediately. I would rather have migraines than have all of those side effects. Also I wonder what is it doing to your other vital organs if it can have those effects? For those who do not experience any of this, I'm glad, but I have to say very surprised.
-- By luckylady1 | Reply | (1) replies | Private Message me
August 7th
2008
6:35 AM
I had my mirena fitted April 08, and four days ago I had it removed... What a relief! A week after it was fitted, i went to a gyn because of the cramps and they scanned my uterus. Everything was in perfect order. But the cramps didn't stop and I was bleeding more or less all the time. Sometimes I could feel it when having sex, and my boyfriend did too. I also had that PMS feeling for about three weeks before having my period, getting irritating and moody. Before period I got acne and blisters in my mouth (never had any of it before!). I had to convince the doctor to take it out, she said it was such a good birth control.
Now I am feeling happier with no mirena in my body. But I am bleeding quite heavily. I can't find any information about what happens to your body when mirena is removed?
-- By rag | Reply | (2) replies | Private Message me
August 2th
2008
10:39 PM
Does anyone notice foggy brain on Lexapro. I can't seem to hold a thought and it's getting scary.
-- By kmalon | Reply | Private Message me
April 21th
2008
5:50 AM
I had my first Mirena coil fitted about 10 years ago and though it had been fantastic. No worries about getting pregnant and no periods. I had take the pill before and had ovarian cysts removed so I couldn't use the pill. However, my second Mirena only lasted 31/2 years before I notice problems. I had a new one fitted and it had been ok for 3 years. Or so I thought. 18 months ago I became very ill with chronic fatigue, sickness, severe depression for which I was prescribed Prozac and then I developed Irritable bowel syndrome. I felt like I was going nuts. Nobdy believed how I felt. My job is at risk. I had a new mirena fitted a few months ago and the problems had eased although I feel that they are now getting worse again. I am considering having it removed. I hadn't made the link between the Mirena coil and my illness until recently. I have also gained a considerable amount of weight but I also had this when I was on the pill. Has any one had problems after using the Mirena for a number of years? as most people seem to have trouble straight away.
-- By emmav17 | Reply | (2) replies | Private Message me
April 15th
2008
11:30 AM
Has anyone had hair loss? I have been on Simvastatin for 30 days adn I noticed hair loss.
-- By tjacobson | Reply | (8) replies | Private Message me
February 13th
2008
11:05 AM
I had my Mirena inserted 8 weeks after having my 3rd child. Everything seemed fine for the first 3 months but then I began to develop severe pain in my finger joints, wrists, ankles, elbows, back and neck. I was shuffling around like a 90 year old woman. At first I thought I may have developed arthritis and then my mother suggested I give up the breastfeeding as it might be 'taking it out of me'. Then the other symptoms seemed to creep up on me - foggy brain, severe mood swings, feeling sad and depressed for no reason, SEVERE headaches, night sweats and extreme fatigue. I couldn't complete tasks like washing the clothes and general cleaning of my home and I never felt refreshed after a long sleep. I remember saying to my husband on 3 or 4 occasions 'I feel like I'm going crazy!!' I think he thought the same thing. It was only by chance I revisited a forum I had bookmarked earlier when I was trying to find out how long after initial insertion the bleeding lasted that a post containing some similar side-effects to the ones I was experiencing caught my eye - well what an eye-opener, I would never in my wildest dreams have connected my symptoms with my IUD. The cause of my debilitating symptoms became so clear and that night I squatted down in the shower, found the strings, gave a tug and took the damn thing out myself! That was 3 weeks ago and I've felt a little better every day. I'm hoping to be back to my old self as soon as possible. Thank you so much to everyone who has shared their experiences. If it wasn't for you these debilitating effects on my body would have continued for I dont know how long.
-- By mellyjelly | Reply | (3) replies | Private Message me
March 7th
2007
4:29 PM
I began a new dose of Prednisone yesterday. I was diagnosed w/ RA about 3 years ago. I have been on Embrel (didn't work) and am now on Humira and Methotrexate. I have been having extreme difficulty the last month and finally returned to my doctor for relief. (I have been on Prednisone before and had only the headaches) I was prescribed a higher dose this time (60 mgs 2 x daily) and have been battling with a racing heart that beats so hard it hurts. I have now taken my second dose and cannot walk more than 10 feet without feeling like I am having a heart attack! While it is helping the RA pain in my joints, I am so scared to move and so uncomfortable when I do, I am not sure what is better. The disease or the cure? Has anyone else battled with the racing heart? Oh and I also have high blood pressure and the Prednisone is making it higher even with my meds!
My only other instance with this effect was from a steroid injection about a month ago. That episode placed me in the ER receiving medication to lower my heart rate.
Mirena (13) Yaz (2) Simvastatin (1) Lisinopril (1) Lexapro (1) Topamax (1) Levoxyl (1) PredniSONE (1)
October 1th
2009
6:19 PM
Vertigo, weakness, fatigue, exhaustion, aching numbness in arms, numbness in face arms and legs, extreme pressure in head and neck, burning feeling radiating from the base of my neck through shoulder blades to arms, foggy brain, waking up feeling (for no reason) like I have a major hang over, chills, aching feet, weight gain, feeling very fearful of my symptoms because they feel like nothing I have ever experienced.
-- By calybo | Reply | Private Message meTHESE LAST 4 WEEKS HAVE BEEN HELL!
I had my Mirena inserted on June 30 2008. I experienced mild discomfort for the first 4-6 weeks. The spotting was the worst of it and that was no more than an inconvenience. I was happy with my choice of birth control.
Then this hell began about three months after insertion.
During the last week of September the symptoms listed above started. They were mild at first but by within a week and a half I felt HORRIBLE. I suspected that it may be the Mirena, but at the same time I thought I was dying.
October 1 or 2nd (it is all a blur) I was home by myself when I started feeling the numbness and head pressure coming on again (my symptoms were coming and going, not constant) so I laid down on the couch to get off my feet. All of a sudden I felt like I was losing consciousness. I grabbed the phone and called my husband to get me to the ER. I thought I was dying. A blood clot or something. Once there, they did blood test after blood test, an EKG, urine tests, and basically I was told that there were no major system problems. I know this sounds a like classic anxiety, but I know it is not. I have to say they were very good there and encouraged me to see my family physician (whom I had already been to earlier that week) again.
I called to make an appointment to have the Mirena removed the very next day. My GYN kind of shrugged off what I was going through saying that it was anxiety and asked if I still wanted the thing removed!!! of course I did. Having that thing removed was very empowering. I was feeling so helpless and it was the one thing that I could do to possibly help my situation. The feeling of relief was amazing.
I did see my family physician again who agrees that what I am going though is related to the Mirena. She did ordered a CAT scan (came back negative) just in case.
Post removal (It has been 17 days) I have been slowly getting better. My "episodes" are getting more and more diminished and further apart. I have noticed that I am flooded with exhaustion after each of these "episodes". I also never know when there going to strike making it hard to make plans. My husband has been very supportive through out and was convinced before I was that it was the IUD. He has volunteered to get a vasectomy.
GOOD LUCK TO ALL YOU LADIES.
If you have stumbled across this because you are desperately searching for answers, all I can tell you is that I believe that the Mirena IUD has had devastating effects on many, many women, but hang in there you are not alone and you are not insane. What you are experiencing is very real. Have it removed ASAP!!!!!!!!!!